chronicallyillsavannah

[chronicallyillsavannah]

Life's a bitch, then you keep living

My life's Story

Every day is filled with unknowns

will I be Okay today?

will I be sick today?

Will I fall today?

will I die Today?

I never know

It's the most terrifying thing in the whole world

I hope that things will get better

although I have been told that might not ever happen

How can you be hopeful in a world where Iam looked at as useless

In a world where my intellect means nothing

The physical is what I "Need"

I can't run

I can't walk welI

I can't Use my hands well

I can use my brain

I can use my experiences to help others

I want to help others

Sadly, the world does not agree

as I am disabled

I know I said a bad word

One that makes people uncomfortable

I am doomed by something I have no control over

I wish the world saw past my physical

Saw Who I am

They never will though

They only will ever see my disability

Not me

Maybe one day

Sadly Not today

I wrote this poem as a way to get my frustrations out

[chronicallyillsavannah]

15 Proverbs for the Fellow Chronically Ill 

May your symptoms flare during your diagnostic testing.

2. If spoons are in short supply, one must make do with knives.

3. May you have access to healthcare that is both affordable AND good quality.

4. When your doctor will not order a test you have a gut feeling you might need, request that they note their refusal in your chart.

5. May your online patient portals sync appropriately.

6. May your healthcare providers always take you seriously.

7. May the phlebotomist get a good vein on the first try.

8. In times of distress, permit yourself comfort whenever you can.

9. If you want it, may you find humor in anything you can.

10. May you find community when you least expect it. Even a Twitter hashtag or Facebook group can offer solace when medicine has none for us.

11. If another non-disabled person tells you to “just do yoga,” feel free to flip them off. Or let them know they owe you 20 bucks. Or both.

12. May your injections be swift, and may your tablets be easy to swallow.

13. May the unwanted side effects of your treatment be minimal or nonexistent.

14. A life from bed is still a life.

15. You are the expert on your own experience.

[chronicallyillsavannah]

Sometimes it be like that

[chronicallyillsavannah]

Oh look, it's POTS 🥴