brightbluebutterflies

[brightbluebutterflies]

all my goiter pals be like 'the best feeling is when the pill goes down without choking'

[brightbluebutterflies]

Got diagnosed at 15/16... Didn't really up end my life then but as I look back it gradually recontexualized my experiences through puberty, and I suspect part of the reason I was so depressed. Getting labs done and taking pills for years does something to you when you're more aware that none of your peers have to do any of that to feel normal. I had gained a lot of weight during puberty, was having issues staying focused, and generally started to lack interest in any of my hobbies. They did blood work at my new doctor and suggested I see a specialist, who confirmed it.

I'm 21 now and looking at a potential PCOS diagnosis, which would cover the rest of my hormonal problems, with a new doctor. Hoo boy just seeing a new GP and being told "I'd be surprised if you didn't have it with all your scarring" and knowing when it started...

It fuckin' hurts man haha, I wouldn't wish it on my worst enemy let alone a kid.

That being said; Believe kids when they say something is wrong. They know their bodies best.

Has anyone else here been dx with hashimotos as a young child? I was 7 when we found out, and as far as I can remember I've been taking pills and getting a minimum of 1 lab test per year

According to the internet, most ppl are 30+ women when they get dx

My mom says that my migraines were getting really bad and that I was extremely lethargic and had lost my appetite, and bc my mom had a thyroid disease they started testing me

ETA: my mom has corrected me, I was dx at 6 yrs old

[brightbluebutterflies]

Vitamin D supplements helping? More likely than you think.

[brightbluebutterflies]

Just Chronic Fatigue Things

feeling so tired you might pass out

never feeling like you’ve slept - ever

forgetting what you’re going to say 100 times a day

being too tired to sleep

sleeping for 4/8/12 hours and feeling just as tired

needing a nap after being away for 3 hours

muscle aches

waking up feeling like you have the flu

waking up feeling like you’ve been hit by a freight train

your legs not wanting to work after walking up a small hill or the stairs

nausea

sensory overload, e.g. loud cafés, pubs or anywhere making you feel dizzy

anxiety

being too tired to remember the symptoms of your own illness

[brightbluebutterflies]

Why do steroids help so much?? I have eczema and am on steroids to keep myself from itching myself to death but why do I now have energy?? What kind of cursed black magic is this??

[brightbluebutterflies]

Fuck this shit it's itchhhyyyy.

I didn't realize you can get fucking RASHES with this. Whyyyyyyyy do I learn this on a debate night when I'm not stressed?!

[brightbluebutterflies]

So, uh, great news.

My prescription's getting adjusted.

Bad news is it's been too low long enough for me to suspect at this point my thyroid is just dead.

What a weird time to live in. I got an appointment with one female doctor and instantly we figured out that my levels were too low, that I'm also Vitamin D deficient, and that shit would only get worse if I wasn't further taken care of.

After arguing for years with a male doctor to tell me just the basic numbers of my blood tests and if they were OK....

If you suspect something is wrong and your doctor won't validate or address your concerns, get a second opinion.

I'm going to see a new specialist. Hopefully they're nice and communicative.

[brightbluebutterflies]

Hahaha writing poems about your illness just be to be told "oh these two are too similar to each other".... Bitch this is why I hate that all our doctors offices look the damn same!

[brightbluebutterflies]

Not to bitch but being sick fuckin' awful. Like, everyone else can just walk off a cold after a couple days and I'm sitting here for a week while my symptoms take their sweet. ass. time. leaving.

[brightbluebutterflies]

I hate the inherited lactose intolerance bullshit.... Like I was fine dandy and normal and now I can't have the Good IceCream™ unless I have a giant bottle of lactase with me...

Why does God hate what brings me joy?

[brightbluebutterflies]

There's something special about those days when you feel normal..they take you by surprise and leave you wondering when it'll happen again. Today I've been happy to simply be alive. I laughed, I joked, I made mistakes and didn't cry over them. I felt alive and loved it, and it wasn't even a fancy or special kinda day, I still had work, I still had to do stuff I didn't like... Yet I felt genuinely content with where I was. I felt awake, my mind clearer than it had been in years.

Treatment got me this far.... And I know and hope there's lots more days like this ahead. It feels nice to feel normal, even if I know it's nothing like how other people experience life.

I like being able to function like this, and at the end of the day smile and say it was a good day just because it was another day I was here.

Hormonal depression can go eat shit. I lived, I love, and I will continue to love until I die.

It does get better. And even if tomorrow is absolutely dog shit, I won't forget today.

[brightbluebutterflies]

It is allergies? Am I sick? Or is it just the histamine intolerance? We'll never know! Yaaay!

[brightbluebutterflies]

Keeping my thyroid in a jar and shaking it like a spell that will keep me healthy if I ever get it removed sounds more and more appealing everyday

[brightbluebutterflies]

Ah yea gotta love sitting here with my joints screaming at me because I sat down Wrong™ except I sat down like any normal person would :)

[brightbluebutterflies]

Why is it so damn hard to find a good endocrinologist???