theghostofmaddy

[theghostofmaddy]

I think that it's really important for people to realize that being disabled is traumatic. genuinely. your body and brain feel like they are breaking down and wrong. you are in constant heavy stress from stuff like chronic pain. most disabled people i know have a somewhat regular emotional break down from the trauma of it all. and we are expected to just smile through it by society, to not be in the way, to not be an issue.

[theghostofmaddy]

Something I want able bodied people to understand is that I don't want a diagnosis cause I wanna be sick so bad; I want a diagnosis because there is already something wrong with my body but I don't know what the fuck it is.

[theghostofmaddy]

"kill them with kindness" WRONG run them over in your wheelchair 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽

[theghostofmaddy]

“but you’re so young!” congrats. you just proved that your biases about what disabled looks like are preventing you from acknowledging the facts.

[theghostofmaddy]

I need a badge that says "Nothing happened, I'm just disabled" to wear when I use my braces or other disability aids. Maybe abled people would stop asking me about it then.

[theghostofmaddy]

"You're always so chipper and excited even though you're in pain, I could never."

Bethany, if I wasn't chipper and excited about the most mundane things like bees and dice, then I would literally be bedrotting all day every day, sobbing because my entire life is falling apart because I have no answers or relief to pain that doctors think is fake. So I will take joy in my trinkets and rollerskating while my body allows because one day I won't be able to.

[theghostofmaddy]

having the ability to create art, but your chronic pain keeps you from it, is one of the most frustrating and mentally painful things..

[theghostofmaddy]

I’m so sorry if this is also anyone else’s experience. Being chronically ill and in pain around your parents who have the “get older and then you’ll actually feel real pain.” Mindset, is actually the fucking worst. Especially if you have a parent that who has pain too. Like we’re in the same damn boat but you have absolutely no sympathy for me just because I’m 25 and my pain “can’t be worse than yours” because I’m “so young”.

It’s so lonely feeling immense pain and having everyone around you (whom you just need support from) tell you to get over it and that you “don’t know real pain yet”. Some days I feel so shitty I do not see the point anymore, it really doesn’t help when some days all I need is someone to say I’m doing a good job of fighting this, that they see me, that they care, anything other than “you probably didn’t take your meds” or “I don’t know why you think you’re in that much pain.”

Middle aged/older adults really love to gate-keep being able to express that you are in pain and gain support if you are younger. If you’re a parent who has a ill child and you ignore their pain and belittle it like that, sorry but you are someone who obviously only gives a shit about your own experience and your kid deserves better.

[theghostofmaddy]

[theghostofmaddy]

[theghostofmaddy]

[theghostofmaddy]

No clue 🤷🏻‍♀️

[theghostofmaddy]

[theghostofmaddy]

There is no worse “oh shit” moment than having a situation at work and thinking “maybe i should call the manager” then realizing you are the fucking manager.

[theghostofmaddy]

You want to find your soulmate? Date me! Chances are I won’t be your soulmate but you’ll probably marry the person you date after me! 🥲❤️

[theghostofmaddy]

Facts

[theghostofmaddy]