My name is Hermione. I am dealing with undiagnosed chronic illness as well as debilitating depression and anxiety. This blog is to share my life and my story with others.
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your disability is allowed to get worse .
you are allowed to get worse .
you are allowed to need more help .
you are allow to need more accommodations .
you are allowed to start using mobility aids .
you are allowed to get a service animal .
you are allowed to start using aac .
you are allowed to get a caregiver .
if you need the help and having it will make life easier for you to live , please !
please get the help ! please use all the aids you need !
you are allowed to need help and you are allowed to get help .
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A useful article from King Arthur Flour (my beloved) on baking while disabled.
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Like and reblog if your account is a safe space for trans lesbians. It feels like trans lesbians in particular get shamed and ridiculed a lot by people in and out of the community. If you’re reading this I want to let you know you’re valid and I hope your safe and doing well.
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Spoonie Thing #25
Sometimes, I’m just flat out angry about the shit I have to deal with. Why me? Why couldn’t I have a normal life?
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if youre thinking oh man i wish i was disabled enough to use this or that i have news for you:
You Are Disabled Enough.
you want a wheelchair or cane or walker cause sometimes walking hurts even if "just a little bit"?
You Are Disabled Enough.
you think a service dog would be very helpful for your disability and youre able to care for a pet but feel like you dont deserve one since your symptoms arent "that bad"?
You Are Disabled Enough.
you want to wear sunglasses indoors or get a shower seat or ear defenders or literally anything that might help you even just a little?
You Are Disabled Enough.
you dont need to prove anything to anyone, and you arent "taking resources" from anybody either. take care of your body, even if it feels like it "isnt that bad".
You Are Disabled Enough, i promise.
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Anybody else feel like they need to sit on the floor in the middle of the store while shopping because methinks they should have benches not just in the front past the checkout (not that stores near me have those either)
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tip for people with chronic pain/fatigue: lay down occasionally. haven't laid down in the past 3-5 hours? do it (if you can) and see how you feel. i've found that i'll lay down in bed just to be in my room, but then i get hit with an instant wave of relief because just sitting on the couch was too much for my body, and i didn't realize it.
when you're in pain or fatigued for a long time, your awareness of your body may get wonky - especially if you already struggle w/interoception due to neurodivergency. so. test it, sometimes. you can apply it to other things too: sit if you're standing. take a break a task if you've been doing it for a while. have a small snack to see if you're hungry. etc. etc.
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they need to invent a food that i do not have to do any work to prepare and also is cheap and also is nutritious and also tastes good and also that doesn’t hurt my tummy
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generalized anxiety disorder is kind of a funny diagnosis...like this bitch is scared just in general
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There are disabled people who can't brush their teeth, wash their faces, brush their hair everyday. Who can't shower often. Who don't always have clean clothes to wear because they can't keep up with laundry. They deserve respect and support.
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Shout out to everyone who is just so tired So so exhausted So very very tired so very fatigued so sleepy and tired So
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i’m angry that i’m disabled.
there, i said it. often this isn’t that accepted in disability advocacy.
i’m not angry about all aspects of all my disabilities, but a fair amount of them.
i’m angry that i’m in pain 24/7.
i’m angry that i’m fatigued 24/7.
i’m angry that i have joint instability.
i’m angry that i can’t handle sensory aspects of the world that will never go away, even if no one in the world was allistic.
i’m angry that i have spent so much time in psychiatric hospitals and residential.
i’m angry that i am dependent on my parents for so much.
i’m angry that i can’t take the bus on my own.
i’m angry that i have missed so much of life.
i’m angry that i have to be in a special education therapeutic school.
i’m angry that i’m in so much pain and so fatigued and have such joint instability that i have to walk with a cane (and, now, forearm crutches.)
i’m angry about so much more, too.
i’m not angry at the mobility aids, i’m actually grateful for them. i’m angry that i’m in such a painful and difficult body.
let disabled people be angry that we’re disabled. let us discuss our experiences so we all feel less alone.
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Dear hearing aid providers: stop only advertising your hearing aids for old people - from a deaf 19 year old who’s used hearing aids since she was 7
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hey idk who needed to hear this but. being able to push yourself to function through pain does not, in fact, make you able bodied
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Will literally never understand why I can’t sleep at night when my body is so tired and it takes so much effort to not nap during the day. Why can’t anything make sense.
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My dexcom is a lifesaver, particularly for my anxiety and to help me manage my diabeties
#chronicallyawesome#chronicallyfabulous#chronicallyill#spoonie#diabeties#dexcom#dexcomwarrior#type two
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