the-chronic-potato

[the-chronic-potato]

There are some days that you’re going to be outmatched by your pain.

And you can google every possible home remedy and call all your medical professionals and take all your meds, but your pain or illness just isn’t going to stay away.

So sometimes you just need to stop, breathe, rest up and hope that tomorrow brings you better results.

At least that’s what keeps me going.

[the-chronic-potato]

[the-chronic-potato]

“I am worried my body won’t keep up with my ambitions.”

— (via mamas-still-doing-it-all)

[the-chronic-potato]

Punch all people who say “you’re too young to be in so much pain just wait till you’re MY age” 2020!

[the-chronic-potato]

From my Facebook page

[the-chronic-potato]

Update (Good news and bad news) 06/09/20

Hey, everyone. So I haven’t been active in a while and so much has happened!

I got accepted into nursing school, and I am currently in my 3rd semester. After completion of this semester, I will be eligible to sit for the NCLEX-PN. In two additional semesters, I’ll be ready to sit for the NCLEX-RN. It’s so exciting, yet terrifying!

Now while my disease has been mostly in check with Entyvio throughout this journey, I started having some problems off and on starting this past January. I ended up having another colonoscopy this past week, during which they found and removed a polyp. My GI broke the news to me that Entyvio is no longer working and that I will have to have surgery, as I have exhausted pretty much every treatment option.

I am now waiting to schedule an appointment with the surgeon and find out what’s next. All of this on top of moving, working, and nursing school has me so overwhelmed and stressed out. I can only hope that everything works out.

[the-chronic-potato]

This, forreal! 😫

My colitis is dehydrating the heck out of me so I’m trying to drink pedialyte but it reminds me too much of the laxative they make us drink before colonoscopy and I didn’t expect it to be this unpleasant wtf @_@ eeuhghhilrfhjkjlds 

[the-chronic-potato]

Person: I don’t really think your symptoms/illness/condition is actually as bad as you say it is…

Me:

[the-chronic-potato]

If there’s one thing I STILL haven’t learned in the years I’ve been fighting my autoimmune disease, it’s when to ask for help. I always say “no, I’m fine,” blah blah blah, when I know it’s time to seek additional medical help. I hate admitting it and I always fear what will happen next.

I just sucked it up, however, and called my GI nurse as I am weak, feverish, in pain, can’t eat, etc. I really wanted to “wait it out,” but I know that this is a dangerous game I’m playing, and I must nip it in the bud as fast as I can, even if means having to go back to the Devil’s tic tacs (Prednisone) for awhile.

My biggest fear right now is my GI taking this and confirming I’m failing Entyvio, which is scary to me as E is one of the only options I have left, and I had felt the closest to normal on it than I have felt in YEARS (until now, at least). It was actually working fabulously...

Now I have a lot of fear and doubt. I have a swarm of emotions eating at me. I just want everything to be okay 😞

[the-chronic-potato]

I honestly teared up! Please look at these and read the captions for each one!

This hit me WAY too close to home

Nicely done, and paints an honest picture on some of the behind-the-scenes aspects that come with living with Crohn’s or UC

[the-chronic-potato]

Since it’s Crohn’s Disease and Ulcerative Colitis Awareness Month and since Marvel has just had a major new release, I’d like to share the IBD Unmasked comics again!

Takeda (the Entyvio company) teamed up with Marvel comics to create a band of superheroes with Crohn’s or UC, and the project is just amazing!

Go to https://www.ibdunmasked.com/global/ to learn more and partake in quizzes, facts, resources on how to help, creating your own superhero, and reading up on the Unbeatables! 💜

[the-chronic-potato]

stomach: hey im going to overreact to harmless foods

me: why

stomach: i gotta

[the-chronic-potato]

the main thing about living with a chronic illness is that you just kinda get used to it. you’re USED to being in pain. you’re USED to being tired. it isn’t until you talk to non chronically ill people that you remember that this isn’t normal.

[the-chronic-potato]

Update - 6th Entyvio Infusion

I haven’t updated in a long while (shame on me, I know), so here’s the run down on what’s gone on:

• colonoscopy in mid-March

While my GI did say there was improvement (though I was too drugged up to remember much), he did say it wasn’t as much as he had hoped. I have an appointment with him this Wednesday to further discuss, including the issue from the previous update (Crohn’s vs UC; my case seems to be atypical)

• 6th round of Entyvio this past Tuesday

I had been doing much better symptomatically on Entyvio, though I’m in a bit of a hiccup right now. I’m hoping, however, that it is because I have suddenly stopped my Celexa (I know) because it’s not helping much, and I gained 12 pounds.

Up until this, however, I had been able to do many things I haven’t been able to do in a very long time and have felt a lot better! As I said, I’m hoping the symptoms I’m going through now are a hiccup and that all will continue to be well soon again

[the-chronic-potato]

I can’t remember

What’s it like to be healthy?

[the-chronic-potato]

the best way to explain autoimmune disease to others (via @kuroown when I was in the hospital and this joke she made still makes me laugh)

[the-chronic-potato]

Excuse the language, but if my insides could just chill the fuck out that would be fantastic.