#why is our health and mental care especially mid-covid still being ignored to put us in this state?
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Ultimately, know wtf you’re talking about before making some fiction up about a thing, person or place lmao. also tags (which might get cut off heh), cause no: ‘Americans’ are not alone in doing shit like this and yes, I have seen it done in the reverse too lol! And architecture isn’t the only place it’s done, either. A lot of this is cultural assumption: rather than appropriation.. though I’d say it’s right there at the line of it, when people are slapping their own definitions and more in context on there that doesn’t belong. Which yes, Europe does all the time too. Is that really a surprise, when that’s where the majority currently here came from?
so funny when americans make photosets with pictures of normal eastern european buildings and describe them as "melancholy" or "desolate." like my brother that is an apartment complex. my friend Милош lives there.
#other cultures do this too; don't pretend#I think the most ridiculous shit I've seen comes out of victorian houses being assumed as being in europe because#they forget that the country as a nation was founded BY europeans who fled here to escape indentured slavery: and brought that architecture-#WITH them#english: french: and spanish especially#with even more following#I think the weirdest modern idiot myths from outside the country surround guns though#was watching a korean show the other day --based on anime but still--#and one kid in it just plops a supposedly loaded gun onto a diner table#liek bro#no#no that is not how any of that works#unless you're looking to go to prison in under five minutes#SOME states have open carry laws yes#and that's STILL not how those even work#no you can't just walk in & buy a gun like a piece of friggin candy over the counter lmao#even in the least strict states you have to go through a minimum two weeks safety class; which includes operation and get a license-#of which there are several kinds and classes OF license#problem being (and current events touch)#we haven't updated those checks and class reqs in a long time#and the world doesn't take the kinds of mental illness it takes to think walking into a public place and attacking people EVER OR -#even with a knife? Seriously enough to do something about THAT and teh other issues with health care as a whole#Ultimately gun bans are worthless#when mental health and the fact the mentally unwell and crimnials are able to get a hold of ANY weapon to endanger themselves and others#better legistlation; screening and enforcement should be gone after first#because teh question we should be asking is this#why was someone that unstable allowed or enabled to get hold of a weapon? why was their mental health ignored to this point?#why were they allowed into any school especially#and why are our representatives being so lazy about fixing the root of these issues?#why is our health and mental care especially mid-covid still being ignored to put us in this state?
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I was already distressed about the political and social situation in the US, and then this happens. Are there any examples of societies that fought back against fascism and won, without civil or international war breaking out? Surely there must be some success stories in history. How did other societies overcome fascism, are there lessons to be applied to our current situation? Please tell me we're not doomed, because I have no hope for the future.
Sigh.
Okay.
I’ve been through... a lot of the stages of grief by now. That is, rageposting on tumblr, venting to my friends via text, drinking, crying while drinking, lying on my bed and staring at the ceiling, feeling the crushing weight of certainty that we’re all screwed and nothing matters, crying while talking to my sister, crying generally, lying in bed some more, and am currently still in bed while writing this, but am struggling to put on my internet historian aunt hat and offer some comfort to the stricken masses.
First off: This is bad. I’m not even going to pretend this isn’t bad. We all knew RBG had cancer again, but it was pretty fixed in our minds that she would somehow manage to hang on until after the election. 45 days before the biggest presidential election of all time, in the middle of this year, when names including Ted “Zodiac Killer” Cruz and Tom “Time for Roe vs. Wade to go, block federal funding from being used to teach about slavery, send in the military to crush the BLM protesters” Cotton have already been floated as some of her possible replacements? With Trump and McConnell determined to work as fast as possible to steal this seat as brazenly as they can, because they are literal fascists who don’t care about their own example (Merrick Garland was nominated in FEBRUARY of an election year and McConnell held it up for being “too close to the election?”)
Ugh. Anyone who doesn’t get that this is bad or acting like people are overreacting doesn’t get what’s at stake. And when, as we’ve said before and are saying again now, the future of everyone who isn’t a white straight rich Republican man in this country depends on an 87-year-old woman with cancer for the fourth time? Something’s wrong here. RBG’s death did not have to leave us in this total existential panic, and oh yeah, maybe this could have ALL BEEN AVOIDED AND WE COULD HAVE ALSO HAD THREE (3) NEW LIBERAL JUSTICES SECURING PROGRESSIVE LEGISLATION FOR A GENERATION IF SOME OF YOU HAD JUST FUCKING VOTED FOR HILLARY CLINTON IN TWO THOUSAND AND FUCKING SIXTEEN.
(Why yes I am still mad about that, I will be bitter until the end of time that we were consigned to four years and counting of this completely avoidable nightmare because of apathy, misogyny, and Leftist Moral Purity TM, but we’re talking about the future and what can still be done here, not what’s in the past.)
Anyway. Here’s the bright side, which admittedly sucks right now, but it’s been the answer all long:
VOTE.
You have to fucking vote, and you have to fucking vote for Biden/Harris. Everything that we’ve been talking about is no longer a hypothetical; it’s happening right now. This is not just some Awful Worst Case scenario, and it’s not somehow being spouted by privileged white liberals ignoring the struggles of the masses. (Viz: that awful fucking text post with its simpering self-righteousness: “are you punching nazis or just telling oppressed people to vote blue?” I hate that text post with a fiery passion and it’s the exact kind of morally holier than thou leftist propaganda that wouldn’t surprise me if it was generated by a troll farm in Krasnoyarsk.) My dad is disabled and lives on Social Security. Trump’s second-term plan to end the payroll tax takes SSID out by mid-2021, so... I guess that’s my dad fucked then. I’m a gay woman with long-term mental illness, no healthcare, no savings, no current job, and a lot of student debt. My sister has complex health problems and relies intensely on publicly funded healthcare programs. All my family have underlying conditions that would put them at worse risk for COVID (age, asthma, immune issues.) These are just the people IN MY HOUSEHOLD who would be at risk from a second Trump presidency. It says NOTHING about my friends, about all the people far less fortunate than us, and everyone else who IS ALREADY DYING as this nation lurches into full-blown fascism. That is real. It is happening.
Here’s the good news and what you can do:
Democrats are fired up and mad as hell, and they’ve already donated $31 million between the announcement of RBG’s death last night and today, and that number is climbing every second.
You can help by donating to Get Mitch or Die Trying, which splits your donation 13 ways between the Democrats challenging the most vulnerable Republican seats in the Senate. That also has raised EIGHT MILLION BUCKS in the less-than-twenty-four hours.
You can donate RIGHT NOW to Joe Biden and Kamala Harris, vote if your state offers early voting, request your mail-in ballot, or hound everyone you know to ensure that they’re registered.
You can call your US Senators (look up who they are for your state, ESPECIALLY IF THEY ARE REPUBLICAN OR YOU LIVE IN A SWING STATE OR ARE UP FOR RE-ELECTION IN 2020) and phone the Capitol switchboard at 202-224-3121 to voice your insistence that they respect RBG’s last wishes and refuse to vote on any Trump nominee until after January 2021.
The other good-ish news is that I woke up to an email from the Biden campaign this morning about how they’re well aware of this and they’re already on it. BUT WE CANNOT COUNT ON EITHER THEM OR THE SENATE DEMOCRATS TO BE ABLE TO STOP IT. Because Joe Biden is not president and the Senate Democrats do not have a majority, if the Republicans manage to rush a nominee and a vote and all 52 GOP senators vote for that nominee, hey presto, tyranny by majority, a SECOND stolen Supreme Court seat, and a 6-3 hard conservative majority for the next generation. Even if Roberts or Gorsuch sometimes defect on procedural grounds, Kagan, Sotomayor, and Breyer (who is also 82 and thus ALSO might soon be replaceable, thus resulting in an EVEN WORSE ideological swing) would be outnumbered on everything. This is terrible. I’m not even gonna pretend it wouldn’t be.
BUT:
If Joe Biden is elected with a Democratic Senate and House, IT MATTERS. It gets us off the fascism track, it gives us the ability to make progressive law and have it enacted without going to die in Mitch McConnell’s Kill Stack, it gives Biden the executive authority to nominate liberal judges and change Trump’s worst outrages on day 1, it stands as a huge example of a nation managing to reject fascism by democratic process, and while yes, we’d still have a terribly rigged Supreme Court, Democrats would control all the other branches of government and be able to put safeguards in place. The other option is outright fascism and the end of American democracy for good. This may sound alarmist. It’s not. It’s literally what the situation has ended up as, as all of us who were begging people to vote for HRC in 2016 saw coming all along.
So yes. That’s what you need to do, and what WE need to do. We need to make as much goddamn noise as possible, protest, contact elected representatives, make sure everybody pulls their weight and ferociously fights the promised attempt to ram through a new justice before Election Day, all that. But even if that does happen, THEN WE NEED TO FUCKING DONATE, ORGANIZE, AND VOTE FOR JOE BIDEN AND DEMOCRATS UP AND DOWN THE BALLOT. ALL OF US. NO EXCUSES. NO MORE TWITTER LEFTIST ECHO CHAMBERS. NO MORE. THEN, EVEN WITH A RIGGED SUPREME COURT, WE WILL ALL BE SAFER ON NOVEMBER 4TH AND CAN TRY TO FIX WHAT’S BROKEN.
The stakes are just too high to do anything else.
May her memory be a blessing, and a revolution.
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i found out pushing doesn't work. that's what my sister does when she thinks something's wrong, she pushes that she wants to go to the doctor. eventually our parents give in. i think i mentioned it because i sent an ask here recently, but my joints have been giving me grief lately. several months ago my knees kept feeling like my bones were grinding when i put weight on them for a few days. more recently, in january i think, after spending an hour or two outside, my hips did the (1/?)
(2/?) the same, that night and for the next few days. sometimes it was fine, usually better mid morning, but other times i couldn't put wait on them. it felt like they were grinding, or going to give up on me. it's been happening longer where i feel like if i move the wrong way, something will pop out. i try to sit up and swing my legs and my hips yell at me with slight pain, so even though they would probably just pop, i wait till it stops, just in case. because i don't want to see (2/?)
(3/?) what would happen if they didn't. but recently, a week or two after i started these new exercises (my mom thinks it's related to that, which it may be slightly, but i don't think so completely), modified push ups so i could get better core strength and stuff, my joints have started popping. started feeling like they'll go out more often. and i mean popping loudly. i kneeled earlier in the process of sitting up, and my sister, who was talking and a few feet away, asked me if i (3/?)
(4/?) okay. it only hurt a little, it's more just the sensation of the popping, tiny pain. but my right knee sort of buzzed, like my elbow did yesterday. except yesterday, my elbow hurt. it felt, just from a random movement, like it actually popped out for a moment, or tried to, and my elbows are usually fine. if it's the exercises, i don't want to just give up my hopes. i want to be able to one day walk on my hands. i know i'd never get back into it after this, even if it's not the (4/?)
(5/?) problem. anyways, sorry, there's a lot to say, i'll try to hurry this up. recently after reading something they flared, when it started happening nearly every time i move, then went down a little, and have stayed that way for about a week. the exercises have been making me feel a little stronger, and i just don't think they're doing this. but, i kept mentioning it. my pain. asking if people could hear it. only my sister cares to listen. she always cares. always listens. (5/?)
(6/?) mental or physical health she's there for me. she keeps saying that i really should go to the doctor, so i keep asking. i mentioned the knee thing to my mom. she said she kept researching but couldn't find anything narrow enough to be diagnosable. that i should just wear the shoes that i can't stand, stop the exercises, start up again with walking when my body calms down, as if it will. i can't stop now. but i don't think she'll take me. i think i have to wait till something bad (6/?)
(7/?) especially after the thing i read, i don't want to wait. i don't want to ignore the signs. if i could save myself so much pain, why can't i try? just two or three days ago i was getting into school when my hip started to hurt. the hallways are one way, so i have to walk around nearly the entire school to get to my class, and i only had a few minutes to get there. i just told myself to keep walking. ignore the fact that i could barely put weight on my right leg. i had to get to (7/8)
(8/?) class. but pushing doesn't work. i pushed to go to the doctor. i got in an argument. i had stuff to do and i was starting to cry, so i just said i wouldn't bring it up anymore. i'd stop. my sister's an adult. i just realized i can ask her to take me. if another bad thing happens, i will. if they flare up again, i will tell my parents that i need to go to the doctor. if they won't, i'll ask my sister. i don't want to. i know my mom tries. she said normally she would, but covid. (8/?)
(9/?) but i have to go. maybe it's nothing, or maybe i will have to stop doing the exercises, and break my heart a little bit more as i give up on another goal. but i have to. i have to. i can't cripple myself for life because i wouldn't go. i have no idea what could happen to me one day or some day soon even if i don't. maybe i'm just overreacting and i'm fine and it's growing pains but i haven't grown in 1 1/2 years and it hurts. and i'm so so tired. been reading, sorry it's like prose (9/9).
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I sent an ask about my joints recently? Yeah, well, this. yesterday I was hesitantly diagnosed with Hypermobility Syndrome, pretty wide across my body but mainly in my lower body. basically the doctor said, that since it's the best guess, I need to go to Physical Therapy and try to strengthen my tendons and joints. so obviously I'm so glad to have a solution, maybe not be in so much pain anymore, but at the same time, I like being a little bendy. I'm not stretchy, not good at gymnastics (1/2)
(2/2) or whatever, but I do like feeling a little different. so I guess it's just like, what if PT makes it so I'm not bendy anymore? is it like those metaphors where you break a stick, then put a bunch together and can't break it? or am I folding the stick in half, forsaking mobility for strength? and I don't think that a diagnosis for an actual chronic illness has hit me yet, I know I'll be more nervous when my first PT comes in 3 days, but I still feel normal.
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Hypermobile anon here, I believe I said I wished it was something a little more for some reason? Yeah, well, good news, I don't anymore. My pain is like, I'm in so much pain, but not actually that much, and I know that I both am and aren't, and it doesn't actually feel like that much, but it is? My point is, tonight's been really bad and I'm starting to think it's good the friend I tend to go outside on walks and stuff with was busy. Also, my mom, in complimenting my drive, (1/2)
(2/2) said that while my sibling was told to do physical therapy to keep their hand working and didn't do it as much as they should, I was doing physical therapy regularly and faithfully to stop my joints from aching. I know my family, mostly my parents, has lots of issues and then just powers through, but you'd think that my mom, who has a bunch going on (allergies, diabetes, random undiagnosable stuff), would understand chronic illness. To her, my joints ache. Sorry, it's not actually too bad.
Hi Anon,
First thing, so so sorry for the delay on this one. And it’s great that you have continued writing in with updates!
Thank goodness you did keep pushing and get your diagnosis (even if it may be a hesitant one)! You really could have ended up struggling for a long time. Arthritis would have been another guess if your doctor hadn’t come to Hypermobility Syndrome.
Hopefully your doctor is treating this seriously, but remember that if any doctor is trying to ignore your concerns, you can very clearly say to them, “If you’re not going to do tests I want it noted in my chart.”
From the advice of a lot of chronically ill folks, it is also strongly recommended to get your vitamin levels checked, especially b12, iron, and vitamin d. These can actually cause joint symptoms if they’re low enough and lots of things can affect your absorption of them.
It is definitely still possible to build muscle and continue to be flexible. It takes quite a lot of bulk to start limiting your range of movement, and physical therapy will probably be gradual enough that you can assess your flexibility as you go.
As far as feeling “normal”, having chronic illness actually is really common! In 2012, the National Health Council stated that roughly 133 million people in the U.S. were dealing with some kind of chronic condition.
It is awful that you’re in so much pain. Your doctor should also be helping you manage that, since strengthening your muscles isn’t going to be an immediate solution. That takes time, but you’re in a lot of pain right now. Anti-inflammatory painkillers can help with joint pain, and heat treatments like warm baths, hot water bottles, and heat-rub creams can be useful too. Beyond that, you might need prescription treatments.
Your mom is probably just trying to encourage you, but it’s small comfort compared to the level of pain you’re dealing with. People will often deal with chronic illness in different ways, especially different generations. It might help to find groups online that are dealing with similar issues, or chronic conditions in general. Places like reddit, facebook, etc will have groups or subreddits dedicated to creating a community, so you can share your experiences and find other people dealing with the same issues. You might ask your physical therapist if there are any in-person or online support groups locally.
You’ll have to find a way to manage your chronic illness, your way. If your mom doesn’t understand it, don’t worry about her. You got this. And your sister’s got your back.
-Kai, bun
#chronic illness#pain#diagnosis#doctors#family#sister#parents#mom#joint pain#hypermobility syndrome#treatment#physical therapy#medicine#long post
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