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adhdbuzz · 4 years ago

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(Quick note - I have copied this over from my main blog - this is my content...)

ADHD, Neurodivergence, Identity…

I want to start blogging about some of my experiences with mental illness and neurodivergence. Two words, that before this year, I would never of used in relation to myself.

One of the most fascinating and somewhat crippling aspects of learning you are neurodivergent, is becoming so hyperaware of your thoughts, actions, personality, wondering what’s you and what’s your diagnosis, (or what you are imagining/projecting because of your diagnosis). I likely drive my friends mad talking or joking about it, but it’s hard to articulate the complete upheaval that learning this about yourself creates. Suddenly your entire history and personhood is re-defined. You have to change your narrative. I spent most of my teenagehood and childhood feeling removed/estranged from the people and world around me. More than feeling an ‘outcast,’ I felt myself an alien. I believed (and felt that others believed), that I was incredibly lazy and did not have the drive to puruse my passions and potential. This left such a hole in my heart and self-confidence. Imagine that you have this great love for something - or many things, but can’t even motivate yourself to take one single step toward it. You lose interest in every hobby you’ve ever taken up and you don’t understand why you can’t just do the thing. It seems easy for everyone else? What am I missing? So you compensate. Suddenly (and very briefly), you are really into note-taking and study blogs and watching countless hours of videos on how to get organised and ‘change your life’ and you imagine what kind of person you could become. Or you start every new year or semester with the goal to just stay on top of things, just remember, just write it down - everyone else does it? Why can’t you? Inevitably, that falls away.

What happens when you can’t maintain this? When suddenly those three assignments are due, you’ve dropped out of your class/hobby, you’ve missed another opportunity, avoided another goal and heard another person tell you, ‘you just need to get organised…’ ‘ you’ve got so much potential, you just need to apply yourself!’ “I don’t understand how you forgot/didn’t do the thing/didn’t write it down!”

I don’t think I can ever effectively describe the impact that this has had on me. There is something so devastating in not understanding there is something different about your brain during the really sensitive, formative years of your life. Because you end up spending so much time trying to work out why you are not like everyone else, why you struggle with things that most people find easy, why it is a constant battle to stay afloat, to have people angry with you/criticising you for something that you both feel should be in your control, but neurologically isn’t.

ADHD is so severly misunderstood. It’s invisible and it is crippling. The image of the little boy in class who can’t sit still or stop talking is such a prevalent and damaging stereotype. Before I got my diagnosis and before I even had looked into ADHD, I spent hours researching what could be wrong with me and doing online ‘tests’. These ranged from anxiety, to depression, Bipolar, PMDD and Personality Disorders, (strangely enough, ADHD often exists alongside other mental illnesses and I was diagnosed with co-morbidities…) But I think this gives a degree of context to what undiagnosed ADHD feels like, because it’s not someone who wont shut up, or sit still. To me it feels like everyone else got a manual on how to be a person and I didn’t. Often times, it’s the depressed, anxious, struggling teenager or young adult, who feels so inadequate, who feels like an alien, who can’t even trust their own passions or interests. Who is in a constant battle to meet the expectations of themselves and those around them. Who’s socially awkward or uncomfortable, who’s disocciated, who can’t follow a conversation, or instructions, who suffers in loud spaces, who struggles with small talk, strangers, shopping centres, keeping themselves and their space clean, uni work, school work, chores, family, friendships, relationships, their identity, their passions, there interests, their personality, regualating their emotions

ADHD is so exhausting, because it’s a constant battle to just meet the base line. Every thing you do from the moment you get up, til the moment you are asleep (and even then) is impacted by it.

Say you have an assignment, and a couple of chores to do on one day. Not a big deal right? Ok so you set an alarm for 8am, except your brain didn’t turn off until 4am the night before, so you get up at mid day, you go to put the washing in, but you forgot to turn on yesterdays load, so you do that first, you go to make a morning coffee, you check the time, it’s 12.30 - where did half an hour go? I just got up?! (Time-blindness). You make your coffee and drink it while checking social media, which sucks you in, because your dopamine depleted brain craves stimuli! You check the time, its 1pm, you tell yourself you’ll scroll for ten more minutes, and that ten minute excuse repeats a few times. It’s 1.30 and now your angry, because why didn’t you have the self control! (Hint: you have a disordered executive function). You put your mug on the sink, promising you’ll come back to it later. You go back to the laundry, you realise you forgot to turn the dryer on. You go to do your assignment, you clear your desk, open laptop, but now you don’t know where to start - you can’t naturally prioritise tasks, or break down the individual steps that need to be done in order to complete an assignment, you must do this with the ‘skills’ you have actively had to learn from a coach, internet etc. It’s like trying to bake a cake with no measuring cups, or recipe! So now you are looking at the assessment outline, and what you’ve worked on already, and trying to close last nights 200 tabs of hyperfixation. You read the outline 5 times without actually reading it, on the 6th you try really hard, you’re fidgeting in your chair, it’s an almost physical pain having to sit there and read it. Your eyes feel glazy, there’s too many words and they look like a big smudge on the page. You quickly check messages (dopamine hit), you come back to the outline. Its been half an hour, you still haven’t started. It’s about 2pm, you havent had lunch or breakfast. You go make a tea and come back. Maybe you need backround music? You spend another 20 minutes finding the right playlist, except its not right because it’s either too stimulating or not stimulating enough. You find another playlist, or you go down the rabbit whole of some movie soundtrack you’ve been meaning to look at. It’s 2.45. The washing! You go back and finally get yesterdays load in the dryer and start the load you meant to do today. Might as well make another tea now that I’m up. Might as well check Facebook now I’ve been interrupted. I’ll start at 3.30. 3.30 rolls around, your sibling gets home from school. Noise, talking, lunchbox rattling, bags being unpacked. Distraction. The noise is painful, your executive function (the impaired part of the ADHD brain) is also responsible for emotional regulation. Suddenly you are so fiercly angry at the noise being made in the rest of the house. It’s so over stimulating it feels like sandpaper on your brain and ears, you feel sick to your stomach with rage, you are crying, sobbing. All because people in the other room are talking. You lay on your bed trying to calm the overwhelm and increasing stress at not having done your assignment. It’s 4pm. Mum asks why you left your mug out, or didn’t do the dishes (you were too busy thinking about doing the washing!) She notes the machine still going and tells you that you wont have time to put it in the dryer tonight, you’ll have to do it tomorrow. But you need those clothes for tomorrow, you’re having breakfast with a friend. You’ll have to reschedule. You message your friend, and repeat the standard script “god I am so sorry, I’m such a mess, can we do later in the morning? I’ve got to do chores…” they can’t reschedule, you cancel. You sit back down with the assignment. You fidget. It feels like a physical pain to have to sit there and force yourself to do it. You’ll do it tomorrow. You pack up, and get ready for bed, removing the pile on your bed back to your desk. Your sheets are unmade, it’s uncomfortable and you feel agitated. You’ve forgotten to brush your teeth, or clean your face. You scroll online, or hyperfocus on a new hobby, project, idea, that wont interest you tomorrow, until 3am. You set your alarm for 8am…

This is just one small example and snapshot of ADHD and the impact of Executive Dysfunction. Here are a couple of examples/descriptions of how it feels from the ADHD subreddit.

“Schrodinger’s ADHD: Everything is interesting and boring at the same time. Every subject, every hobby.”

‘The Two ADHD Moods: I can’t do it / I can’t stop doing it. The two types of ADHD time: Now / Not Now The two ADHD memory modes: I literally can not recall the words that just came out of my mouth / I can recite the opening paragraph of every single magic tree house book.’

I also want to talk Neurodivergence, as this is another misconception when it comes to ADHD. In the way that Autism, Tourettes, Dyscalculia, Dysgraphia are all forms of neurodivergence, so is ADHD. ADHD is not a behavoural issue, but a neurobiological developmental disorder. ADHD also has many overlapping traits with Autism, (not to be confused as the same, ADHD is not on the spectrum). These include, sensory overwhelm/sensitivity, memory issues, hyperfocus/hyperfixation, interrupting conversation/trouble waiting in turn, issues reading/recognising social cues, stimming, perseveration, (getting ‘stuck’ on or repeating a thought, topic or idea, even if the conversation has moved on), and avoidance/trouble with eye contact.

To be clear, ADHD is not on the spectrum, a distinguishing feature between these neurotypes is the cause of the symptom. For example someone with ADHD may not recognise social cues due to inattention/overwhelm/impulsivity, where as someone with autism may struggle to interpret these social cues.

It is important for ADHD to be recognised as a neurotype, and not a behavoural issue. When discussing ADHD traits with a neurotypical person, the response is often along the lines of ‘well everyone is a little distracted/unmotivated/lazy/forgetful/late sometimes.’ My response to that ‘Would you say that everyone is a bit ‘socially awkward/shy’ sometimes to an autistic person? Or ‘everyone has trouble reading sometimes’ to a dyslexic person?’ I imagine the answer would be no, as it is understood that these traits are a consistent, uncontrollable and debilitating.

The more I have learnt and read about ADHD in the context of neurodivergence, the more I have tried to recognise the ways I hide or detract from my symptoms, by ‘masking’. This has included, taking on certain personas or feeding someone elses assumption about me as ‘the messy one,’ ‘the disorganised one,’ ‘the chaotic one.’ In the past I have almost embraced these stereotypes about myself, as it gave me a sense of identity, a framework with which to see and understand myself. Frustration and anger masked over-stimulation/overwhelm, I was not able to recognise the root of these feelings and I also learnt to fidget/stim in the ‘right’ way. When engaging in small talk with someone I am unfamiliar with, I often resort to mimicing or imitating how I have seen other people interact, speak etc and I am conscious of eye contact, (too much, too little?). I catch myself looking at people/staring too much and am constantly trying to gauge what the right amount is, where else to look, etc. I struggle a lot with taking turns in convesation, as I don’t always know where to interject, or I worry I will forget the thought, this has led me to just stay silent instead in conversations and present myself as serious, or elusive.

That’s really all I have to say for today. I think overall ADHD is far more complex and challenging than it is perceived to be, and these stereotypes are so harmful to people who have it and are trying to navigate not only their symptoms, but a world that is not understanding nor knowledgeable of the limitations and struggles of ADHD or neurodivergence.

I have a lot more to say on all this and will try and write more about this going forward. DM/comment etc if you have any thoughts or criticism of anything I have said. Disclaimer, I am still learning and may make mistakes regarding information, or discussing other neurotypes !

Here are some links you might want to check out if you have/think you have ADHD or you have a friend or family member with ADHD. I also highly, highly recommend the ADHD subreddit!

ADHD explained simply:

https://www.additudemag.com/what-is-adhd-symptoms-causes-treatments/

“ADHD is a developmental impairment of the brain’s executive functions. People with ADHD have trouble with impulse-control, focusing, and organization.

“’Attention deficit’ is, some experts assert, a misleading name. “Attention deregulation” might be a more accurate description since most people with ADHD have more than enough attention — they just can’t harness it in the right direction at the right time with any consistency.”

Comorbidities https://adhd-institute.com/burden-of-adhd/epidemiology/comorbidities/ “The majority of adults with ADHD have a diagnosed or undiagnosed comorbid psychiatric disorder, which can complicate diagnosis and treatment of ADHD.1-3“ ADHD and Autism https://www.spectrumnews.org/features/deep-dive/decoding-overlap-autism-adhd/ “A growing number of genetic studies support the notion of at least some shared causation between autism and ADHD. But imaging studies comparing brain structures and connectivity have yielded a confusing mix of similarities and differences. And some behavioral research has highlighted the possibility that outwardly similar features mask distinct underlying mechanisms. Inattention in a person with autism, for example, might result from sensory overload, and apparent social problems in someone with ADHD may reflect impulsivity. Perseveration https://www.understood.org/en/friends-feelings/common-challenges/self-control/perseveration-adhd-and-learning-differences

“(Kids) who perseverate often say the same thing or behave in the same way over and over again. And they do it past the point where it makes sense or will change anything. It’s like they’re stuck in a loop that they can’t get out of.”

ADHD and social skills https://chadd.org/for-adults/relationships-social-skills/#:~:text=Social%20Skills%20in%20Adults%20with,their%20inattention%2C%20impulsivity%20and%20hyperactivity.

“Social skills are generally acquired through incidental learning: watching people, copying the behavior of others, practicing, and getting feedback. Most people start this process during early childhood. Social skills are practiced and honed by “playing grown-up” and through other childhood activities. The finer points of social interactions are sharpened by observation and peer feedback.

Children with ADHD often miss these details. They may pick up bits and pieces of what is appropriate but lack an overall view of social expectations. Unfortunately, as adults, they often realize “something” is missing but are never quite sure what that “something” may be.”

ADHD and stimming https://www.betterhelp.com/advice/adhd/repetitive-behaviors-in-children-with-adhd-stimming-fidgeting-and-what-these-actions-may-mean/

“Many believe that stimming and fidgeting is reserved for those on the autism spectrum. However, it is now known that children with ADHD are just as likely to use repetitive body movements to self-stimulate. In fact, autistic stimming and non-autistic stimming are different. The main difference is that those with ADHD typically only use stimming for a short period of time while they are trying to concentrate. For example, someone with ADHD may stim for under an hour while those with autism will stim for several hours at a time. While stimming and fidgeting are typically seen as tapping or rocking, there are many other things that children with ADHD do to self-stimulate. There are actually five different variations of stimming, which include olfactory, vestibular, visual, tactile, and auditory.”

#adhd #neurodivergent #neurodiversity

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