#tubefeedingawareness

[emmahastwomoms]

Day 3 of Feeding Tube Awareness Week ⁣ ⁣ When we learned we were having a baby, Diana and I agreed that we didn’t want her to miss out on any experience so we bring her everywhere with us. Now this thinking was well before her diagnosis and accessories and bags, but we have stayed true to our original way of thinking. We will not let anything stand in Emma’s way and will continue to bring her on adventures, even if we have to leave because it’s too much for her. I will do absolutely everything in my power to make her happy and keep moving forward! ⁣ ⁣ What you can see in this photo is a girl enjoying the day at the zoo with her music playing on her iPad, what is harder to see is her tube that she is hooked up to so that we make sure she gets all of her food in for the day. And now that it is a little harder to get around with her 3 bags, that hasn’t stopped us and it never will!! ⁣ ⁣ #emmaleimomi #babygirl #tubefeedingawarenessweek #tubefeedingawareness #tubiefed #changingthefaceoffed #tubie #tubietoddler #cutiewithatubie #tubielife #tubiemom #gtube #gtubetoddler #gtubelife #gtubemom #specialneeds #specialneedslife #specialneedstoddler #specialneedsmom #nr2f1 #bbsoas #boschboonstraschaafopticatrophysyndrome #spd #sensoryprocessingdisorder #asd #autismspectrumdisorder #dysphagia #hypotonia #babyglasses #visuallyimpaired https://www.instagram.com/p/B8fWGXRlnXv/?igshid=zaylyllwikcz

[mum-nurse-geek-blog-blog]

#Repost @finley_zebedeemodel with @get_repost ・・・ Im not sure what the joke was but I think it was funny. #teamzebedee #tubefeedingawareness #chromocutie #jeansforgenes #childmodeluk #childmodel #childmodelsearch #disabledandcute #disabledmodel #thisboycan #zebedeemanagement #zebedeemodel #ehlersdanlossyndrome #mastocytosis #tubefedmodel #hearingloss #kidsoninstagram #instakids #instakidsmodel #proudtobeme #unique #inspire #beleive Again wonderful photo by @hollybryanphotography https://www.instagram.com/p/BnMDNDjBBTwluhgKAICYYKeeiHmfRMatrPKuNA0/?utm_source=ig_tumblr_share&igshid=1h272g9we51n8

[mum-nurse-geek-blog-blog]

#Repost @finley_zebedeemodel with @get_repost ・・・ My new favourite photo. Finley with his big sister @olivia_green.ox and his big brother jack. They never get on like this. Photographer credit to @hollybryanphotography go and see her work it’s amazing. #teamzebedee #tubefeedingawareness #chromocutie #jeansforgenes #childmodeluk #childmodel #childmodelsearch #disabledandcute #disabledmodel #thisboycan #zebedeemanagement #zebedeemodel #ehlersdanlossyndrome #mastocytosis #tubefedmodel #hearingloss #kidsoninstagram #instakids #instakidsmodel https://www.instagram.com/p/BnMCzLLBGSWRHNql2-5gDUd6WCpXt9sR4Su1Wo0/?utm_source=ig_tumblr_share&igshid=1mpf91ts7824t