#to see an internist for some more personalized care for my Horrors
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my poor body. she does not work so good
#you don't. have to read all these tags. in fact i don't think you should tbh i'm just writing in my diary here. getting very tmi in here rn#i wanna talk about me#gonna try and see if i can get an appt with a new doc tomorrow#because as much as i want to see ANOTHER doctor like i want a hole in my head. i and my mom think it would be good#to see an internist for some more personalized care for my Horrors#cause y'know. i've been pretty happy with my endo for a while now but i just haven't had any improved results in a year or two from them#and their advice is just always. diet and exercise diet and exercise diet and exercise#which is vague and impersonal and unhelpful#it's frustrating. i just want someone to tell me what's going on and how and why we're doing what we're doing#i don't need to be skinny (i'm never gonna be skinny.) i don't need to be an athlete#i just want to feel okay and make sure my body isn't going to poison itself over time#well anyway. hoping i can make a first appointment within the next couple of months#i'm seeing my new obgyn next month...will definitely be asking about my hospital visit yesterday.#i know ovarian cysts can happen and rupture in anyone and aren't necessarily correlated to pcos but#knowing i've got the latter makes me really nervous about the former happening again#and if it happened while i'm already being treated. i think it might be time for a change of treatment...
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A Year of Risk, Fear and Loss for Families in Medicine Gabrielle Dawn Luna sees her father in every patient she treats. As an emergency room nurse in the same hospital where her father lay dying of Covid last March, Ms. Luna knows firsthand what itâs like for a family to hang on to every new piece of information. Sheâs become acutely aware of the need to take extra time in explaining developments to a patientâs relatives who are often desperate for updates. And Ms. Luna has been willing to share her personal loss if it helps, as she did recently with a patient whose husband died. But she has also learned to withhold it to respect each personâs distinct grief, as she did when a colleagueâs father also succumbed to the disease. Itâs challenging, she said, to allow herself to grieve enough to help patients without feeling overwhelmed herself. âSometimes I think thatâs too big a responsibility,â she said. âBut thatâs the job that I signed up for, right?â The Lunas are a nursing family. Her father, Tom OmaĂąa Luna, was also an emergency nurse and was proud when Ms. Luna joined him in the field. When he died on April 9, Ms. Luna, who also had mild symptoms of Covid-19, took about a week off work. Her mother, a nurse at a long-term-care facility, spent about six weeks at home afterward. âShe didnât want me to go back to work for fear that something would happen to me, too,â Ms. Luna said. âBut I had to go back. They needed me.â When her hospital in Teaneck, N.J. swelled with virus patients, she struggled with stress, burnout and a nagging fear that left her grief an open wound: âDid I give it to him? I donât want to think about that, but itâs a possibility.â Like the Lunas, many who have been treating the millions of coronavirus patients in the United States over the past year come from families defined by medicine. It is a calling passed through generations, one that binds spouses and connects siblings who are states apart. Itâs a bond that brings the succor of shared experience, but for many, the pandemic has also introduced a host of fears and stresses. Many have worried about the risks theyâre taking and those their loved ones face every day, too. They worry about the unseen scars left behind. And for those like Ms. Luna, the care they give to coronavirus patients has come to be shaped by the beloved healer they lost to the virus. Working through grief For Dr. Nadia Zuabi, the loss is so new that she still refers to her father, a fellow emergency department physician, in the present tense. Her father, Dr. Shawki Zuabi, spent his last days in her hospital, UCI Health in Orange County, Calif., before dying of Covid on Jan. 8. The younger Dr. Zuabi almost immediately returned to work, hoping to keep going through purpose and her colleaguesâ camaraderie. She had expected that working alongside the people who had cared for her father would deepen her commitment to her own patients, and to some extent it has. But mainly, she came to realize how important it is to balance that taxing emotional availability with her own well-being. âI try to always be as empathetic and compassionate as I can,â Dr. Zuabi said. âThereâs a part of you that maybe as a survival mechanism has to build a wall because to feel that all the time, I donât think itâs sustainable.â Work is filled with reminders. When she saw a patientâs fingertips, she recalled how her colleagues had also pricked her fatherâs to check insulin levels. âHe had all these bruises on his fingertips,â she said. âIt just broke my heart.â The two had always been close, but they found a special connection when she went to medical school. Physicians often descend from physicians. About 20 percent in Sweden have parents with medical degrees, and researchers believe the rate is similar in the United States. The older Dr. Zuabi had a gift for conversation and loved talking about medicine with his daughter as he sat in his living room chair with his feet propped up. She is still in her residency training, and throughout last year she would go to him for advice on the challenging Covid cases she was working on and heâd bat away her doubts. âYou need to trust yourself,â heâd tell her. Updated March 12, 2021, 9:30 a.m. ET When he caught the virus, she took time off to be at his bedside every day, and continued their conversations. Even when he was intubated, she pretended they were still talking. She still does. After difficult shifts, she turns to her memories, the part of him that stays with her. âHe really thought that I was going to be a great doctor,â she said. âIf my dad thought that of me, then it has to be true. I can do it, even if sometimes it doesnât feel like it.â Love tempered by risk and horror In the same way that medicine is often a passion grown from a set of values passed from one generation to the next, itâs also one shared by siblings and one that draws healers together in marriage. About 14 percent of physicians in the United States have siblings who also earned medical degrees, according to an estimate provided by Maria Polyakova, a health policy professor at Stanford University. And a fourth of them are married to another physician, according to a study published in the Annals of Internal Medicine. In interviews with a dozen doctors and nurses, they described how it has long been helpful to have a loved one who knows the rigors of the job. But the pandemic has also revealed how frightening it can be to have a loved one in harmâs way. A nurseâs brother tended to her when she had the virus before volunteering in another virus hot spot. A doctor had a bracing talk with her children about what would happen if she and her husband both died from the virus. And others described quietly weeping during a conversation about wills after putting their children to bed. Dr. Fred E. Kency Jr., a physician at two emergency departments in Jackson, Miss., understood that he was surrounded by danger when he served in the Navy. He never expected that he would face such a threat in civilian life, or that his wife, an internist and pediatrician, would also face the same hazards. âIt is scary to know that my wife, each and every day, has to walk into rooms of patients that have Covid,â Dr. Kency said, before he and his wife were vaccinated. âBut itâs rewarding in knowing that not just one of us, both of us, are doing everything we possibly can to save lives in this pandemic.â The vaccine has eased fears about getting infected at work for those medical workers who have been inoculated, but some express deep concerns about the toll that working through a year of horrors has taken on their closest relatives. âI worry about the amount of suffering and death sheâs seeing,â Dr. Adesuwa I. Akhetuamhen, an emergency medicine physician at Northwestern Medicine in Chicago, said of her sister, who is a doctor at the Mayo Clinic in Rochester, Minn. âI feel like itâs something Iâve learned to cope with, working in the emergency department before Covid started, but itâs not something thatâs supposed to happen in her specialty as a neurologist.â She and her sister, Dr. Eseosa T. Ighodaro, have regularly talked on the phone to compare notes about precautions theyâre taking, provide updates on their family and offer each other support. âShe completely understands what I am going through and gives me encouragement,â Dr. Ighodaro said. The seemingly endless intensity of work, the mounting deaths and the cavalier attitudes some Americans display toward safety precautions have caused anxiety, fatigue and burnout for a growing number of health care workers. Nearly 25 percent of them most likely have PTSD, according to a survey that the Yale School of Medicine published in February. And many have left the field or are considering doing so. Donna Quinn, a midwife at N.Y.U. Health in Manhattan, has worried that her sonâs experience as an emergency room physician in Chicago will lead him to leave the field he only recently joined. He was in his last year of residency when the pandemic began, and he volunteered to serve on the intubation team. âI worry about the toll itâs taking on him emotionally,â she said. âThere have been nights where we are in tears talking about what weâve encountered.â She still has nightmares that are sometimes so terrifying that she falls out of bed. Some are about her son or patients she canât help. In one, a patientâs bed linens transform into a towering monster that chases her out of the room. A nurseâs purpose When Ms. Luna first returned to her emergency room at Holy Name Medical Center in Teaneck, N.J., after her father died, she felt as though something was missing. She had gotten used to having him there. It had been nerve-racking as every urgent intercom call for a resuscitation made her wonder, âIs that my dad?â But she could at least stop by every now and again to see how he was doing. More than that though, she had never known what it was like to be a nurse without him. She remembered him studying to enter the field when she was in elementary school, coloring over nearly every line in his big textbooks with yellow highlighter. Over breakfast last March, Ms. Luna told her father how shaken she was after holding an iPad for a dying patient to say goodbye to a family who couldnât get into the hospital. âThis is our profession,â she recalled Mr. Luna saying. âWe are here to act as family when family canât be there. Itâs a hard role. Itâs going to be hard, and there will be more times where youâll have to do it.â Kitty Bennett contributed research. Source link Orbem News #families #Fear #Loss #Medicine #risk #Year
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Is it possible to balance PTSD and real life? It is, if you realize you have it, know what to look for, and get the help you need.
It wasnât until a few years ago that I realized, after dealing with migraines for over twenty years, they could somehow be related to the childhood sexual abuse (CSA) I experienced when I was eleven. No neurologist had ever asked about my past. Why would I think there would be a connection?
I started therapy in my mid-thirties for postpartum depression â my shrink was great. He helped me deal with the here and now of anxiety and depression. Triage, if you will. We eventually delved into my past and he diagnosed me as having PTSD from the CSA. (I wrote a post all about migraines and treatment here if youâd like to start with that post. Thatâs not what this post is about.)
You have to understand â I had no concept whatsoever why I hated crowds and noise, why going to Disneyland with my husband (at the time) and kids made me cry and tremble (itâs supposed to be the happiest place on earth, right?), or why slamming doors and drawers (my ex was a slammer) made me jump as if I were in a horror movie.
I pushed myself through these experiences for years, not realizing how much worse that made the hyper-vigilance. How would I know? While my shrink was helpful in many ways, we didnât discuss a connection between PTSD and my current chronic pain.
Migraines have had such a huge effect on my life since my late-twenties â how can I not have known about this PTSD link? Itâs mind-boggling.Â
Fast forward another ten years or so: Iâve written and released Broken Pieces (in 2013), moved to a new city, separated from my now ex-husband, and started seeing a new trauma-informed therapist who shows me all kinds of studies showing the link between PTSD and chronic pain. (Not every survivor of sexual trauma gets PTSD â typically, itâs anywhere from 30% to 50%; Source: Harvard School of Public Health).
Letâs talk more about PTSD, pain, and how to balance it all.
Defining PTSD
Post-Traumatic Stress Disorder is defined as a state of extreme anxiety and hypervigilance which begins after some type of traumatic experiences such as a rape, military combat, or natural disaster.Â
The symptoms of PTSD may include reliving the traumatic event over and over again, avoiding people or places that remind you of the trauma, or exhibiting symptoms of the flight or fight reaction. (Source: Very Well Mind.) (Freezing is also a natural response to trauma. To learn more about the three types of freezing, read this informative article from Jim Hopper, Ph.D. in Psychology Today.)
PTSD and PainÂ
Itâs well-known that people with PTSD are at higher risk of heart disease, immune disorders, eating disorders, addiction, and depression. But did you know that weâre at higher risk of pain issues (e.g., migraines, back pain, fibromyalgia) as well? Most survivors donât. I didnât. In fact, most physicians and other health-care practitioners donât know (or at least donât ask about it when taking a patientâs history).
My own experience was fairly unique, in that I was a Big Pharma rep â I called on dozens of neurologists as a rep who treated migraines. I saw several as a patient. One, in particular, was âthe guyâ â well-known internationally as The Migraine Doctor. Not once did he ask about my past or PTSD. Just threw a triptan* at me and said âif it works, you have migraines. If it doesnât, you donât. And donât smoke. Youâll stroke out and die.â Yea, charming.
*Triptans are formally known as serotonin receptor agonists. Triptan drugs work like a brain chemical called serotonin. This helps quiet down overactive pain nerves. In other words, triptans reverse the changes in your brain that caused your migraine.
Point is: with all of the training (and I sold neurology and migraine meds), with all my interactions with internists, neuros, GPs, FPs, nurses, PAs, etc., not once did we discuss past trauma as a connection to pain. This is major gap.
Tip: Find a physician youâre comfortable with, and tell him/her about your sexual trauma. Iâm very open about it now with all my healthcare practitioners. They are welcoming, and it often changes their treatment plan.Â
Studies show that pain is one of the most common physical problems reported by people with PTSD. This finding holds true no matter what types of traumatic events they experiencedâfor example, a motor vehicle accident, physical assault, or combat injury. People with PTSD are also more likely to report pain-related disability.
In one study of volunteer firefighters with PTSD, approximately 50% were having pain (mainly back pain) compared with only about 20% of firefighters without PTSD.
In two other studies, from 20% to 30% of patients with PTSD had frequent and chronic pain symptoms.
You can also look at this situation in reverse: Many patients with chronic pain problems also have PTSD. In fact, from 10% to 50% of people getting treatment for chronic pain have PTSD as well. These rates of PTSD are higher than those found in the general population. (Source: VeryWellMind)
Why is this? Think about it. If you are tensed up due to hyper-vigilance, you may suffer from tension headaches which can lead to migraines *raises hand*. From this same article:
Some symptoms of PTSD may cause pain. For example, PTSD-related hyperarousal symptoms often cause tense muscle pain that can become chronic. More below on hyperarousal (and no, itâs not sexual, ya dirty creatures).
âŚand the light bulb goes on
Three Main Symptom âGroupsâ of PTSD
PTSD is complicated. Though it can affect each person in many different ways, there are identifiable characteristics which are grouped in this way:
Re-experiencing: manifests as if we are reliving the event(s) through flashbacks, dreams/nightmares, or intrusive thoughts. There isnât a day that goes by where I donât experience some kind of flashback to when I abused as a child. The thoughts pop up out of nowhere during the course of my day.
Sometimes I expect them if Iâm working on my books or poetry, or watching a movie or reading a book that has that kind of content. Most of the time, though, these flashbacks are unwanted visitors that come and go.Â
Very rarely do these flashbacks trigger me, and my guess is Iâve become so used to them, I just go on about my day. Once in a while, though, I will be triggered out of nowhere.Â
Tip: What triggers you may be different than what triggers me. Make note of past triggers and discuss with your therapist. Work through them IF you feel itâs okay. There is a vast difference between being upset and being triggered. Ignore social mediaâs definition. Trust your instincts.Â
Avoidance:Â is exactly what you think it means â consciously or subconsciously changing your behavior to avoid scenarios associated with the event(s) or losing interest in activities you enjoy. It can also mean ignoring our health and mental health needs because that would mean acknowledging or talking about our experiences, which can be so shameful and debilitating for many survivors, theyâd rather suffer in pain than seek help.Â
Shame is powerful. So are you. Remember, youâve done nothing wrong. If youâre in pain, get the help you deserve.
Hyperarousal:Â okay, buckle up for this one. Hyperarousal can take many forms. Hereâs a list from Medical News Today:Â
find it hard to go to sleep or stay asleep
feel irritable and quickly lose their temper
find it hard to concentrate
constantly feel on-guard (hypervigilance)
be more impulsive than usual
feel like their muscles are more tense than usual
feel pain more easily
feel their heart beating faster than usual
feel jumpy and be startled easily
breathe more quickly or less deeply than usual
have flashbacks about a traumatic event
Hyperarousal can cause trouble sleeping, anger, concentration issues, and impulsiveness (as well as what I referred to earlier: avoidance and re-experiencing). Therapy can take many forms here and is so incredibly helpful in teaching us ways to cope with these issues.
Dissociation
Not all survivors experience dissociation, which experts explain as the mind escaping the body until the assault is over. I experienced it. I didnât know because I didnât have the language for it. I simply watched myself from a tree while the abuse occurred each time, waiting for it to be over. After that, I dissociated frequently throughout my childhood and teen years, mostly in times of stress, until I could do so on demand.
I still can â quite the party trick.
For me to dissociate without being aware is rare, though it happened recently this past summer at a small, local art gallery where my daughter interned. Hot, crowded, loud â I completely checked out mentally, yet I had no idea. I grew quiet, my eyes were glazed and unblinking as I rushed from here to there.
My guy figured it out and hustled me out of there, but even he didnât recognize what happened at first except that I acted strangely. I didnât have any way to tell him it was happening because I didnât know myself.
Tip: Talk to those closest to you about dissociation. Tell them what happens when you dissociate so they can look for clues in case youâre unable to identify when youâre in it. Let people help you.Â
TriggersÂ
What does it mean to be âtriggered?â In recent years, people on the internet casually (and oftentimes, callously) refer to being triggered, particularly in response to political conversations. Beyond that, survivors themselves often confuse triggers with stress. Stress is a normal part of our everyday lives and everyone experiences stress; triggers are specifically associated with anxiety.
From a mental health perspective, being âtriggeredâ more narrowly refers to the experience of people with PTSD re-experiencing symptoms of a traumatic event (such as exposure to actual or threatened death, serious injury, or sexual violation) after being exposed to a trigger that is a catalyst or reminder. (Source: VeryWellMind)
It can be hard to tell the difference for survivors if youâre constantly in a state of anxiety and worry, and feel as if everything is a trigger for you. This is why seeking mental health services is crucially important. Most of us are ill-equipped to know the difference.
Iâm not a shrink, yet here are some handy tips Iâve learned to use when faced with situations youâre not sure how to handle:
Is whatâs bothering you somehow linked to your past abuse in some way? Is it causing a flashback, avoidance, or hypervigilance (as mentioned above)? Then thatâs likely a trigger.
Alternatively, if you find yourself angry at what somebody said, thatâs a normal stress reaction and you are likely not triggered. You are a normal human having a normal emotional reaction to stress.
Tip: Whenever you feel stressed out, write down what it is specifically thatâs bothering you. Is it a daily activity, someoneâs voice, specific foods, the time of day? Journaling can be extremely helpful in determining what is a stressor and what is a trigger.Â
There is a lot to manage when you have PTSD as a result of sexual trauma (or any kind of trauma). Donât diagnose yourself. Get help. You deserve it. We all deserve it. We deserve love, compassion, and support.
And always remember: you did nothing wrong.
Read more about Rachelâs experiences in the award-winning book, Broken Pieces.
She goes into more detail about��living with PTSD and realizing the effects of how being a survivor affected her life in
Broken Places, available now on Amazon.
The post How To Effectively Balance PTSD and Real Life appeared first on Rachel Thompson.
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