#though now that I'm on an autoimmune med I've been able to miss a dose of my stimulant and not ended up bed bound that day | Explore Tumblr posts and blogs

dancingpieces · 2 months ago

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This post from yesterday inspired me to make a quick song now that I have a bit more energy, though my voice may be a bit weird since I currently have a sinus infection.

The sinus infection is really rough and bringing back a lot of memories from back in HS and parts of college when I was stuck in bed a significant amount of time without anyone being able to figure out what was wrong. Even though I know what the problem is right now, it still feels like I'm just trapped in bed interminably, so this song is to remind myself to hold on hope when I'm sick or having a bad flare that it will likely pass and it probably won't be like it was in HS where I spent years like that, and even if it is years, I'll still have some good days within it.

#chronic illness #me #my face #Idk if I've ever posted a video of me singing before #but figured other ppl who've felt trapped in bed by their illnesses/disabilities might like it #fatigue #chronic fatigue #myalgic encephalomyelitis #Idk if I actually had/have chronic fatigue/me but that really fit what my symptoms always were #and it really only improved when I got on stimulants for my adhd and would come back if I missed even a day #though now that I'm on an autoimmune med I've been able to miss a dose of my stimulant and not ended up bed bound that day #so thats a nice change #hope #rest is important #me singing #video #undescribed #I'll try to come back and add a description and captions when I'm feeling a bit better #just doing the video wore me out

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the-spoonie-corner · 4 years ago

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I haven't posted on this blog in a long time but I've still have been having health issues, even more agressively than when I started this page. I have been getting into writing more though.

I signed up for mediums partner program to try to earn some money on the side. I'm currently being investigated for an autoimmune diease ( though for some reason my ana that was once positive is now negative but my Rnp antibodies was high. My in office appointment got once again changed to a zoom appointment. Evertime I go in the sun, I get rashes all over an I've lost more than 15% of my body weight since last year of June. When I'll I do or can manage to do is sleep. I barley eat more than once a day because I get full really fast. That or I'll randomly start to vomit.

Earlier this year I go diagnosed with fibromyalgia, I bought a cane because my joints are always on fire and burning and swelling but I came back negative for RA each time and negative for the CCP test as well. I lose my insurance next month and I haven't been able to do any freelance work due to my joints and barely functioning energy levels. There are some days I can't even unbuckle my own seatbelt or open the car door, my father has to come by and help me a lot because I haven't been able to keep my home clean because I can barely even get out of bed. My gastro issues have been flaring up again as well so I barely can eat. I came back negative for my biopsies of cronh's diesease and for the blood test as well.

I have also been getting lots of low grade fevers that won't go away once they come, intense sore throats an occasionally getting nose and mouth ulcers that take forever to heal. I really don't know what the future will look like if I can't afford zofran or the two nerve meds I'm on, when I miss a few doses my entire body feels like someone throw gasoline on me and set me on fire.

I've been trying not to get me down though. I have a link tree if anyone doesn't mind sparing a few dollars to help me out or if you could take a moment to read my article I wrote for juneteenth. And spreading it around, that would be something I would be grateful for.

My Link-tree. Even if you can't spare anything, I would appreciate rebloging so others can read my article. Thank you in advance 💛

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