#still have to go in for my lung xray and bloodwork too
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terrible possessing cramping craving for gata rn. been since last july that ive been off wheat and it has NOT gotten easier nor do i think has it improved my quality of life greatly...less joint pain but god at what cost.
#therapist has been insisting that i get a colonoscopy(ill opt for a ct at most no way am i doing that unless its life or death)#still have to go in for my lung xray and bloodwork too#im so tired of getting poked and prodded and ive only got 6 months of health insurance left#thinking ill eventually give up and fold into the ambiguous inflammatory disorder my mom exhibits#would love to go to the doctor just once and have them say and know exactly whats wrong with me!#text
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Telling my family that I have cancer
Trying to figure out a way to tell everyone that means the most to me that I have cancer was one of the hardest things I have ever had to do. Especially my mom (who had end stage COPD), my stepdad, my kids, my friends and family. What and how was I going to tell them without breaking down and especially not knowing everything just yet. I still had scans, biopsy's, lab work, and so much more to get done before I even knew exactly what my treatment was going to persist of. I did know at the time that I wasn't going to tell my mom just yet because I wanted to know all of the facts before I told her because she would worry too much and I wanted to be able to answer all the questions that she would ask. I did tell my kids (which they handled it pretty well and have been very supportive), my stepdad (which I asked him not to tell my mom yet) my friends and family. It was easier than I thought t would be. Everyone was very supportive and really stepped up to be there for me.
The next step was going to my first appointment which included seeing the breast surgeon to get me in the door to see an oncologist. scans and bloodwork. Getting the basic rundown of how my life was going to go for a while. When i got my first scans to check out my neck and breast, I was on my way home from appointment when I got a call that they needed me to come back because I needed another scan because something was seen in my lung. Let me tell you I broke down in tears. Like it wasn't enough that i have caner in my breast and neck and now I might have it in my lung as well. I had to trust the process. Had to trust these nurses and doctors that I didn't even know yet. So I turned my car around and drove back to doctors' office for more scans. I was on the phone with my mom trying not to cry and reassuring her that everything was ok and they just wanted to check things out more. See I was going to go see her to tell her what was going on but didn't because they had found another spot. I then set up more appointments for biopsies on my lung and also my neck. That next week I had the biopsies done and let me tell you it was no walk in the park. They did them both in the same day and everything was ok until I coughed. I couldn't catch my breath, but they told me that could happen, so I just kept going. Just chalked it up as a side effect from biopsy and it would get better. It didn't. I was new to this journey, so I didn't know what to report to the doctors or what was normal and not normal just quite yet. The next week I got a call from my nurse telling me to be prepared to check myself into the hospital for my first chemo treatment because it would have to be inpatient because insurance was fighting the treatment plan. Let me tell you when i say i have the most amazing team of doctors that is what I mean. They go above and beyond for me and making sure that I get everything I need. When I got the call to go check myself in, I was still having a difficult time breathing so they ordered me an Xray which showed that my lung has partially collapsed from the biopsy that I had had the week prior. I got woke up at 4 in the morning to take me down to have a chest tube placed. I freaked out because I have watched so many medical shows and what you see on there isn't what I got. My chest tube was the size of an IV tube so it wasn't that bad or uncomfortable at all. Not saying that that's what everyone will get just saying that I was freaked out thinking about getting a huge tube in my lung. It was definitely a huge relief when it came to taking a breath. I had to wait all day the following day to start my chemo treatment because they had to get the right dose prepared for me as well as the iv placed right. I hadn't got my port placed yet because they wanted to start my chemotherapy right away. Insurance also fought the idea of me getting immunotherapy so that was placed on hold as well. Again, my doctor came through and made sure I was getting the best treatment possible, she made it happen just took a few days to get it after my first chemotherapy. I cant express how important it is to have doctors and nurses that make you feel comfortable and listen to you. You have a voice and an opinion in every step of your treatment. My team is amazing. They listen to me, they let me ask questions, they are the ones that see me cry if i get nervous about something, they understand that I don't look at my scans through the my chart because I'm not a doctor and I don't understand some of the things that are on there so its best to just let them tell me what i need to know. They have been there for me throughout everything cancer has thrown out there to me. My radiation doctor is my favorite doctor because she likes to listen to everything going on in my life. The very first time I met her was about an hour after one of my granddaughters were born.
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Tony, Bonnie, and I came back from the vet. Bons has been acting normally for the last couple of days. She’s been eating really well, has her crazy energy back (last night when I told tony I had already given her a sedative, he went “you did?!?!” because Bonnie was having full on zoomies in the apartment hahaha), and no breathing issues! We did x-rays and her lungs look better and the vet said she’s happy with the progress. They also still show something in front of her heart that doesn’t make the heart itself super visible on the xray. The vet said it could be a mass, cancer, or anything. The only way to really know is to do a MRI, which right now we can’t do since it would require Bons to be put under and it’s ridiculously expensive. The vet said that she’s happy how things are going though and we should continue Bonnie’s treatment. Tomorrow, we will get the bloodwork back and hopefully her kidneys are ok too. Can’t thank you guys enough for praying for her and sending us positive messages. And THANK YOU to everyone who has been messaging me and asking about her. Sometimes, life here can feel very isolating, especially when something like this is going on, and it helps so much to have you guys’ support. Can’t thank my Tony enough either. He’s truly my angel on earth and it blows my mind everyday that he considers me worthy of his love. Gente, voltei do vet com a bom e o Tony. Os pulmões da bom tão melhores mas ela está ainda com algo no peito. A médica disse que o único jeito de saber o que isso é seria fazendo um outro exame com sedação e isso é perigoso. Então, ela mesmo disse que por enquanto, é continuar com o tratamento da Bonnie. Ela está agindo bem normal. Quer brincar de bola, biscoito toda hora, comendo tranquila. Tanto que ontem depois dos remédios ela tava correndo que nem loca aqui em casa e o Tony não acreditou que eu já tinha dado o sedativo pra ela hahah. Então obrigada por todas as orações, pensamentos positivos e mensagens que vocês me mandam perguntando como ela está. Isso significa muito para mim e da um apoio muito grande. Também não tenho como agradecer o Tony. Ele realmente é meu anjo na terra. https://www.instagram.com/p/B1ePVDfDaey/?igshid=1mlk6xyx2axgh
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