#pscawareness

[empoweringpts9]

It's #RareDiseaseDay, so we spread awareness for #RareDiseases! •One of my rare #diseases is #PSC. I was diagnosed in #2002, and I recall the phonecall from the liver #GI. "You're a newly diagnosed liver disease patient." Um what?!? This call occurred after the results from an #ERCP and #biopsy. •PSC is thought to be an #autoimmune #liver disease, with no known #cure. It’s the inflammation and narrowing of the bile ducts, which can result in hardening. There is a possible connection between IBD and PSC. We keep an eye on any visible changes, seen on testings, to my liver and #bileducts. We’ve been watching a sclerosing (hardening) area for years, and luckily it’s staying roughly the same size, for now. . . . . #primarysclerosingcholangitis #rarediseaseday #rarediseaseday2018 #PSCUK #globalgenes #Urso #IBD #ShareYourRare #inflammatoryboweldisease #crohns #ulcerativecolitis #colitis #PSCAwareness #WeNeedACure #autoimmunediseases

[minasworld1]

After a major ERCP I had last year and the results were obviously devastating.  I forget how much I’ve dealt within the past year. Life is so precious and short. I’ve been in and out of hospitals before. My liver has always been the weakest part of my body. But the mind and spirit is even more powerful. 

[thelongerthewaiting]

I have recently been diagnosed with a rare disease, PSC. It all started in November when I had what they thought was just pancreatitis.. it turned out to be so much more.. with a military husband and two kids, I went from being primary care-giver to my kids and housewife to being dependent on everyone around me(sadly). Through google I discovered an amazing website/support group, PSC Partners Seeking a Cure. In June 2016 they are holding on conference in New Haven, Connecticut. My family and I are in Canada but my husband and I are hoping to be able to make the trek to the US for the conference. Not very many doctors around here know much about PSC.. at the conference there will be 17 of the top PSC researchers speaking... it would mean the world for me to be able to get there... any small donation or even a ‘reblog’ is appreciated. Thank you! 

[minasworld1]

It is PSC awareness week. Please check the site for more information. Me and many others are fighting this ugly disease.

[empoweringpts9]

It's a #RareDay being #LeapDay, so raise awareness for #RareDiseases! One of my rare #diseases is #PSC. I was diagnosed in 2002, and I recall the phonecall from the liver #GI. "You're a newly diagnosed liver disease patient." Um what?!? This call occurred after the results from an #ERCP and #biopsy. PSC is an #autoimmune #liver disease, with no known #cure. We keep an eye on any visible changes, seen on testings, to my liver and #bileducts. #primarysclerosingcholangitis #rarediseaseday #rarediseaseday2016 #PSCUK #Urso #IBD #inflammatoryboweldisease #crohns #ulcerativecolitis #PSCAwareness #WeNeedACure