#please don’t let medical people gaslight you. please. advocate for yourself
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Haiii everyone sorry for the absence… been dealing with awful symptoms for a while that all turned on its head on Friday and sent me to the ER…. 4 operations and a surgery later I’m now in recovery ❤️ Inshallah looking to get outta the hospital in the next day or two ❤️❤️❤️
#ewbie.txt#please don’t let medical people gaslight you. please. advocate for yourself#I was gaslit to the point of a near blood infection because no one listened to me until I. was in the ER#Alhamdullilah for all irregardless.#love you all. please be well ❤️❤️❤️#Alhamdullilah Alhamdullilah Alhamdullilah
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the amount of medical gaslighting that happens to people with chronic illness is so disappointing. Every single chronically ill person that I know have experienced some form of it. I feel like there should be guidelines in place before people in the medical field are able to throw someone’s mental health, age, or appearance in their face. So many people get sicker or go undiagnosed and without treatment for so long because of this. It breaks my heart looking back at the way I used to have to beg for help and leave every appoint disappointed and in tears because no one would take me seriously. My heart goes out to anyone in the midst of that. Please don’t be afraid to let them know if you think they’re wrong, please don’t be afraid to advocate for yourself. I wish I did sooner. I waited 5 years to find a good team of doctors and a diagnosis. It takes most people 6-10. It shouldn’t be like this.
#chronically ill#chronic pain#lupus warrior#lupus#inflammatory arthritis#fibromyalgia#autoimmune disease#postural orthostatic tachycardia syndrome#systemic lupus erythematosus#bppv#vent post#ibs#fibrostrong#anxiety#doctors#nurses#nursing#chronically sick#mental health#hospital#pain#invisible illness#illness mention#medical gaslighting
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*** Trigger warnings ***
Medical procedure gone wrong / Traumatic birth / Chronic illness
I’ve been incredibly vocal about my experience with getting an epidural injection during my labor & delivery in 2018 if you know me on my personal social media. It’s been three in a half years and I’ve decided to try to go a little more public with my story. Why? Because I have felt so hopeless, exhausted, sometimes crazy, and incredibly alone over these years and if telling my story helps just one other women who might be experiencing the same things as me, that’s enough of a reason for me. I’ll be splitting it all up into chapters to help make it easier to read!
*LONG DISCLAIMER*
Please keep in mind, my story is mine and it is still ongoing. I’m being seen by medical doctors and still trying to find a diagnosis after 3.5 years. I do share my opinions but I also share factual evidence. I am not a doctor and I cannot diagnose anyone, I can only share my personal experiences. Please seek out professional help and always do your research from reputable sources.
Secondly, I am not anti-medicine. I am pro do your research and make sure you know what you’re letting people put into your body. I am pro advocate for yourself and your health. I am pro listening to women and mothers and taking them seriously. As a woman and a mother, I’m an advocate on recognizing medical gaslighting and knowing your medical rights, things I didn’t know about before going on this journey. I’m honestly not against epidurals even though I had a horrible experience with one. I won’t tell you not to get one, but I will tell you my experience with getting one, how my life changed after getting one, my pain I live with every day after getting one and all of the risks, no matter how rare they may be that are possible with these procedures.
Mothers are being handed a consent form while they are having contractions every minute, bent over in pain, about to give birth to a whole human being and expected to understand what they’re reading, to care about what they’re signing and to fully understand the risks involved. Doctors are failing to verbally inform of all the risks as well and not all of the risks are listed on the consent form. 3.5 years ago, I didn’t question it either. I had no reason to. Now living with the pain I’ve had to go through, I see how much that needs to change. I am not anti-medicine, I am not “ban all epidural injections during childbirth” at all. I want to make that clear. Even if at times I seem hostile or against it, please understand how much that needle has affected my life so I do get emotional when discussing it, however I still recognize how rare of an occurrence this is and most of the time epidurals work just fine.
Chapter 1 - Stabbed in the back
It was finally induction day! I was 39+1 weeks and so ready to not be pregnant and get control of my body back. I spent most of my time pregnant bending over a trash can vomiting multiple times a day, I also had gestational diabetes so I was pricking myself 4 times a day and dieting, so boy was I over it! I just wanted to meet our precious baby.
I went into my induction with one goal and one goal only: have a healthy baby. That’s all that mattered to me. I didn’t have any type of birth plan other than get the baby out. I did however knew that I wanted to try to go as long as possible without any pain meds. I wanted to give birth naturally, I wanted to see if I could do it. After all, that's what us women were made to do! I won’t go into details about my labor so let’s fast forward a bit. I was 6 cm dilated and my water had just broke. I was doing pretty good up until then but the contractions started to come on so strong and they weren’t giving me any breaks. I remember my husband telling me, “You don’t have to deal with this, you can get an epidural. It’s okay to get one if you are tired.” I was so tired, but I pushed on for another hour or so until I just couldn’t handle it anymore, or so I thought.
The anesthesiologist comes in and asks everyone to leave, except for my husband and nurses. We go over the consent form and how the procedure will go, at least I’m assuming we did. This whole time in my labor is a huge blur. I’m having contractions every 45 secs to a minute and I didn’t really care in that moment. I just wanted some relief.
I sit on the side of the bed, curled up against a pillow, trying to not hold my breath at every contraction. My lovely spine is exposed as the doctor gets ready to jab a needle the size of my hand into it. He starts the procedure. After about 5 minutes I could tell something wasn’t going as planned. There was a lot of maneuvering about, there was a lot of pulling sensations that I thought were odd. The doctor told me he was having a hard time getting it placed, he told me my ligaments were super thick. He tried at one spot, couldn’t get it in. He told me he was going to have to try a different spot. Each time he tried a spot, sudden electrical zaps would shoot through my lower back and buttocks, making me jump. It was frightening, that’s the only word I can use for the feeling.
Here I am trying to stay as still as possible while going through contractions because there is a huge needle in my back and something is happening to my body that I can’t control. I screamed out each time and started to cry, trying to explain what I was feeling to the anesthesiologist. He was still struggling behind my back but now he was perplexed as to why I was uncontrollably jerking every time he poked me. “Let’s try another spot,” he said. At least 30 minutes has past now. My mom and my sister are waiting in the hallway, trying to figure out what’s taking so long. I remember reading that epidurals usually take about 10 minutes to complete so I knew something wasn’t going as planned.
Onto another spot he goes, poking me another time in another spot on my spine. Het gets it in, I feel some relief mentally very briefly because I know this should mean my contractions will fade soon. Suddenly, as he starts to inject the epidural medicine into my back, I start to feel this intense pressure going up my back, my neck and all the way to my head. I heard liquid sounds in my ears as this pressure was going up my back. It felt like liquid was being injected into my spinal cord and that pressure was traveling up my back, into my neck and into my head eventually building up so much pressure that so I legitimately thought that my head was going to explode. I screamed out in pain. What the hell is happening?! My back was on fire, my head was throbbing, the light in the hospital room blinded me. Everything is blurry. The doctor asked me what's wrong, what hurts. I try explaining to the best of my ability but all I can get out is “my head, my head!” My head feels like it’s going to explode at any second. He keeps telling me over and over he doesn’t know what happened. Neither did I. All I knew was that this man had stabbed me in my back and I was in the worst pain I’ve ever experienced in my life all while trying to make sure I have a healthy baby.
My head is still spinning, my tears stained my cheeks. Contractions are still coming on strong but the epidural is in correctly now, at least we think it is. I lay back down and try to rest before it’s time to push. I keep getting told that everything is fine. I keep getting told that nothing wrong happened. But my head is killing me. I still have that same pressure that I experienced during the epidural administration. I try to stop thinking about it but the pain in my head was so bad it was hard to ignore it. I had a job to do though. I had to birth a baby!
An hour after the pain explosion during the epidural, the epidural started to wear off. I knew that wasn’t normal but again, I was just trying to focus on having my baby. It’s finally time to push, the pressure is unlike anything I’ve experienced before. My head is still throbbing, making it hard to push a whole baby out from my body. I remember pushing so hard because I couldn’t stand the pain any longer, I just needed the baby out. So I kept pushing, pushing, pushing, hurry up and just get out! I was getting lightheaded from pushing and the pain, I was worried I wasn’t going to be able to finish pushing. But 5 minutes later, a beautiful baby girl was born. Adeline Mae, 6lbs 8oz, 19 1/4 inches long. She was so tiny...and so so perfect. For the first hour I forgot about the pain I was in. I forgot about the horrible epidural experience. I forgot about how scared I was. I was just so in love with the tiny human we created, nothing else mattered. But the head pain never went away. It’s still there to this day as I’m typing this, 3 in a half years later.
Stay tuned for chapter 2.
*DISCLAIMER*
This is blog is not intended for medical advice nor intended to diagnose, treat, cure or prevent any disease. This blog is based off of personal experience.
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