#pem!

[chronicallydragons]

Very rude that fun spoons are still spoons

[glassonlyrecycle]

hm yes

[willowreader]

PEM is one of the key features of Long Covid. It is probably one of the worst symptoms you can have. I find these vey technical papers difficult to understand but if you go to X (Twitter) you will get a good summary by Dr. T.

[pandemic-info]

Dear Mom, Thirty years later, I finally understand. Do you remember the year 1994? You got sick when I was a child, and you weren’t ever the same again. At first, it was a cough and congestion But as days gathered into weeks, you spent more time in bed Why are you so tired, I asked myself. What happened to you, Mom? By Jacquie Luciano

Jacqueline E. Luciano (she/her) is a first-generation Filipino-American who was working as a Regulatory Nurse Consultant during the start of the pandemic until she was disabled by Long COVID and associated conditions in 2022. She’s a Narrative Architect for Listening for the Long Haul: A Living History of Long COVID and a Long COVID Advisor for National Organization for Nurses with Disabilities.

[artdecoandmodernist]

Cover illustration by PEM (Maurice Pepin), Le Sourire Cover, French Magazine, 1933

[thingsiwannareblog]

Having chronic illness is such bullshit. Today I am exhausted, aching, and having chills because I overdid it yesterday.

You know what I did yesterday that was so over ambitious?

I thought really hard about how knitting works.

Yup. I knit a few rows, crocheted a few rows, and mentally - MENTALLY - sketched out the path that the yarn takes in each method and thought deeply in 3D about the topology of each method and how they’re different and similar.

And apparently that was too much, because I’m having a flare up and PEM today. FML.

[crazycatsiren]

When you're so tired you want to cry, and there are things that need to be done.

[myalgicencephalomyelitiscfstom]

PEM = Post-Exertional Malaise

[chronicallydragons]

Not enough heating pad for the ouchie so I’m just rolling around like a rotisserie chicken

[nutnoce]

Fire suppression p.1 & p.2: “Flame Retardant” & “Building Potential” Inspired by the PEM's ‘Our Time on Earth’ exhibit

I was gladly surprised to see the exhibit’s various optimistic installations, especially the building materials of the future. As a forestry student I am beginning to understand our relationship to our forests differently. In the US, forest policy which aimed to suppress wildfires has contributed to a century-long build up of fuel that would otherwise have been cleared by controlled burns or small spontaneous ground fires. Indigenous peoples shaped the forests of the Americas to require these controlled burns. More and more I realize that indigenous knowledge and collaboration is a necessary part of the stewardship of future. A concept which is present at large at the museum but also specifically within Our Time on Earth. Getting a ‘sustainable’ amount of lumber from our forest still disregards the health and purpose of these trees to a diverse and complex ecosystem. It is essential that we diversify our building material, to include carbon-negative things like mycelium! Natural resources that are close by, and at hand in our local environment, which doesn’t require chopping down a tree 3000 miles away and transporting it to the US. We need local resources whose collective cultivation lead to a sense of community and collaboration. A better future!

My thanks to lane.m.artin for collaborating with me for p.2!

[willowreader]

This is for those who are suffering with Long Covid. Click on the twitter link to view.

[pandemic-info]

Why You Should Rest If You Have COVID-19 | Time

[thebibliosphere]

"Yeah, I'll totally get that [productive thing] done now we've got an extra two hours without the stream today."

I said, like someone who's not been falling asleep in the time it takes to switch between apps on my phone.

[jrwienerheadcanons]

Gillion WILL be a father. He will see some stupid fish or squirrel or something and go "guyssss no I need him 🥺"

he already is a father, but pretzel is so lovely that she needs a sibling. and apple is a person soooo.

[crepuscular-girlthing]

without covid id be an entirely different person right now by such an enormous margin. if it got managed—i can't even let myself start, it's like imagining if superpowers became real or capitalism was being dismantled. or if i was born cis, or on Anarres

[myalgicencephalomyelitiscfstom]

ME Research UK

We are raising awareness about the debilitating symptoms of ME/CFS. Post-exertional malaise (PEM), the cardinal feature of ME/CFS, is the worsening of symptoms (and potential appearance of new symptoms) following minimal physical or mental exertion. It typically occurs 24 – 72 hours following the triggering event but may occur sooner. PEM can significantly reduce the level of activity/functioning of an individual with ME/CFS, and can last for several days, weeks, or longer.

Read more about the experience of PEM: https://bit.ly/expPEM2

Watch the Bateman Horne Center YouTube series on PEM: https://bit.ly/3UTMkJC