#on one hand im a bit of a hypochondriac which isn’t helped by my body not working great

[iliveinprocrasti-nationn]

health issues + freaking out about health = not fun times

[mistyeyedpea]

I've been feeling so stuck lately.

I ran a fever today, which honestly isn't unusual for me since I get low grade fevers from time to time. My body likes to freak out on me. Because I dont have a ln actual diagnosis for what I go through I feel like it drives me a bit nuts. I tell doctors what I can remember, but honestly I've lived.my whole life thinking most of the things I felt and experienced were normal and doctors are so uninterested, unmotivated and unwilling it makes the mundane task seem so painful. Its even more painful when you tell them for years you have these symptoms and they only write down what they think is necessary enough to explore. The rest is dismissed as being anxious, paranoid, dramatic... its ironic isn't it? How you go to get help and these very people continue to perpetuate the pain and suffering you go through. I wouldn't go down such spirals if I had answers.

The craziest part is when you have been doing research all your life, and having lived experience with chronic physical and mental conditions... but because I appear fine on the outside, to someone who doesn't know a this about me.... to deny me is absurd. I wouldn't designate a label that isn't meant for me, but this ableism in the medic field... it needs to stop. The stigmas need to stop. Doctors need to understand that its okay to not have all the answers. Whats not okay is harming them further by gaslighting, invalidating peoples lived experiences. Where is the compassion?

We as patients, as people, can be highly aware of our issues where as some arent. I happen to be someone who's highly self aware. I observe everything from sensations to what and how I feel... I monitor my own person. I once saw a post that said "having anxiety is being hyperspace of your own existence" and they really hit the nail on the head there. I feel my anxiety stems from be being highly sensitive to what I feel and my surroundings.. I feel anxiety is just a symptom of other conditions...

It drives me crazy that I am only realizing how many signs were missed. How did people not notice? I had to learn to adapt all my life on my own... immersed in it day by day I learned to survive. It hurts me almost everyday. Im learning to let go of this feeling. This feeling that I was a victim of the system that couldn't understand me, rejected me. It made it harder to understand myself throughout the years. But now I understand..

I know that as the years go by and im alive i learn more, and I know that doctors do too.

Despite all I have been through, and still continue to go though, I push through this painful existence hoping one day, ill actually be seen. And that ill be in the hands of a doctor who won't judge me when I tell them my concerns... cause I have many.

I literally stayed up all night the other night cause I couldn't sleep.. trying to remember to document articles of research I find trying to keep them saved on favorites. I often forget how to find the favorites page so I started a notes with the links.

I started doing this in the event a doctor tries to get smart with me... I truly don't have the patience or bandwidth for it anymore. They dont do it in a nice way. They do it in a condescending way. At least the people ive dealt with..

I am a person who was born female so naturally... this is fucking oppressive as is.

I tried talking to my mom about me being Autistic and having adhd, and how im finally accepting it because for years I had "episodes" which i now know, were fucking meltdowns.

I could go on about it, but I dont want to get off topic.

My mother asked me "wow so you finally got diagnosed?"

The last time I went to an Evaluation the man I met with was a total douche who told me I was a hypochondriac had conversion disorder and my anxiety was what was causing everything... He also went off my previous diagnosis and asked me very broad questions about their symptoms to which I replied yes or no... I met with this man for less than 20 minutes and he literally went off my old diagnosis.

He knew nothing about me other than what we talked about and my previous medical records. He made stigmatizing statements when I told him about my body pains and how its possible fibromyalgia, he said he doesnt diagnose women til their thirties.

When I mentioned that I suspect im autistic he basically laughed in my face and told me im not autistic and if I want to see "the autism room" so I can "see" what "autism looks like"

I didn't contact these people back for a long time after that because it took so long to process.... medical gaslighting is real. And gaslighting in itself is insidious as it makes our imposter syndrome so much worse. We question our own existence and realities which attributes to even more mental and physical anguish... psychologically so damaging and these people have no idea.

I think I may have a case with them.. but anyways...

I learned to live in this mind. In this body. In this life to the best of my knowledge and abilities. I have to remind myself its not my fault im chronically overwhelmed or feeling behind. Im coming to terms to the fact that I am disabled. I hate to limit myself, but I have to acknowledge this in order to accept myself and release the internalized abelism.

I have to accept that I never was and never will be like other people and that's okay.

I also need reminder that being diagnosed doesn't make you (autistic). Being (autistic) makes you (autistic).

I put autistic in parentheses because you can literally change it out and tweak it to fit almost any medical condition and it holds true.

Anyways im signing off. I think I've done enough ranting for the night.

Perhaps I'll rant again and plunge deeper. I try to not give to many details but as a neurodivergent person I can't help but go on tangents at times. I'll forget what I thought if I dont write them down, so letting my brain puke words is the best mental exercise I can give myself.

If I do end up seeing a therapist, it makes it alot easier to sort myself.

I have also been trying to orient my mind with art. I try to think of the art I can make .. but when the time comes, im blank. All these ideas for my mind to run into a wall...

Sometimes I wish I had a therapist as a friend.. or a psychiatrist.

It would be good to have someone invested in you the way a friend would ... signing off