#okay so like the thing is WHY DO ALL THE MEDICAL ADVOCACY GROUPS have 0.0 followers on sns pls? | Explore Tumblr posts and blogs

roseband · 3 years ago

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there’s a graphic/web designer job at a health care nonprofit that i actively care about and i feel like i wanna apply lmao even though i just get my benefits from work on wednesday LMAO like??? it’s in cali/dc only but???????

#personal #okay so like the thing is WHY DO ALL THE MEDICAL ADVOCACY GROUPS have 0.0 followers on sns pls?#or if they do have followers they have 0 engagement #like 100k twt followers + 1-2 retweets means ur doin something wrong my dude!#i have had to tell so many ppl on chronic illness subs what fucking programs are available to them thru obamacare and im like??? why did u #not know why did no one tell u this exists PLEASE???#like i know i've collected all the random health system info over the years bc of like...#myself (i know which non profits u can take ur minor kid to to get a prelim diagnosis for physical crap for free)#(or also all the ways to tell ur ableist teacher or school admin to FUCK OFF for not providing what they're supposed to #in nice little legalese of... this is IDEA IDEA is federal and fuck u i will go to the district sort of way)#my cousin.... cuz she got yeeted off insurance pre obamacare..... like this bitch [expensive] *yeet*#or my mom with how to fill out medical disability forms (LMAO WHAT IS WRONG WITH MY FAMILY)#... actually we have an idea of what's wrong w/ my family now cuz my cousin is independently from me being evaluated for #connective tissue disorders too ........ cuz within a year for her part of her nose dislodged in her face and she has to surgically get it #reconstructed and like... it's not like she did anything to cause trauma it just moved??? and also she's been having worse tachycardia than #i am so...... combined with her childhood gastro deformities that were surgically repaired (why she was too expensive for my aunt's insuranc #to cover before they were federally required to) and her wonky jaw like my wonky jaw that's she's got an expander in rn #they had the same 'if u can't connect the issues think connective tissues' thought for her LMAO hELP?#i didn't even need to bring up ctds to any of my doctors like i thought i would... they just all three in a row went #U NEED TO SEE X Y and Z as soon as appointments open #i go into a doctors office and i walk out with 2 more referrals pls make it stop... and that's wht my cousin's having now too #but she's a kid so it's worse for her emotionally ://#cuz she's 13 almost 14 so thats def worse for a kid to be dealing w/#i bitched to my aunt about the doctor paperwork ping pong from two weeks ago about cardiology and her face was like O.O wtf #like she had this face of what the fuck did i marry into and have kids with LMAO.... but also her family is mutants too #(like im certified to be some type of mutant now bc like... i qualify for a heds diagnosis fully and we need to rule out BAD TYPES)#she works in gene sequencing for oncology research (btw a job that requires a PhD that paid 75k at first OOF) for booby cancer #cuz a significant number of her family is BRCA mutants with all the booby cancer.. my mom's wasn't a known mutation she was just unlucky #(spiders georg meme.. but instead of spiders it's my maternal family collecting typical ashkenazi health issues)

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