#oh btw that specialist that refused to schedule me for that test ending up suing me for failure to pay
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poyitjdr ¡ 1 month ago
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Fr I’m convinced ‘anxiety’ is the new hysteria. I’m a trans guy (pre-transition) and these are all things that I was told were ‘just anxiety’:
-legs suddenly becoming extremely weak to the point I couldn’t walk, let alone stand
-horrible chest pain
-extreme dizzy spells/constant vertigo
-new and profound memory issues/disorientation
-uncontrollable tremors
-additional chronic pain
-uncontrollable weight loss
-etc
It took nearly two years for them to start taking me seriously. In that time, I ended up needing a cane to walk and I can still only be on my feet for 20 min at the max on a *good day* (with my cane). I lost so much weight that I became too light to trigger the sensors on the scooters at Target and Walmart. My symptoms got exponentially worse in every way. It took all of that for my last pcp to take me seriously. I was sent for an MRI and it turns out I have lesions in my brain and a birth defect where my skull meets my spine, amongst other findings!
Trust what your body tells you and advocate for yourself. Check the after visit summaries. Don’t give up until you get the care you need. Find at least one person who believes you and can offer emotional support. Don’t let people tell you that you’re going crazy or being dramatic or being lazy or that it’s ’just anxiety’ when you *know* it isn’t. You will find the help you need eventually. It shouldn’t take this much work and it’s absolute bullshit that it does, but your health is worth the effort.
I love the American healthcare system. I got to urgent care barely able to think and walk just for them to tell me “oh yeah sometimes people can’t walk and think, you crazy women.” and then I’m charged $255 for a 5min visit
#I also ended up hospitalized at one point due to extreme blood loss on my period#I started getting my period nearly 18 years ago and it’s always been like that#I finally got diagnosed with PCOS over the summer and I see an endo in a week and a half#my new (absolutely amazing) pcp is still helping me through a bunch more testing to get the Big Diagnosis#I started having chronic pain and vision issues when I was 15 btw#my vision would go completely white and my eye doctor just… didn’t believe me lol#and my chronic pain was dismissed as a muscle strain#later on a clinician I visited to get tested for RA just told me to take four ibuprofen every four hours#oh btw that specialist that refused to schedule me for that test ending up suing me for failure to pay#I ended up getting the test done with a different doctor and they found significant results from it#us healthcare is such absolute bullshit I swear#I’ve spent the last several years just being stuck sitting on my ass trapped at home just *waiting*#I’ve gone through so much fucking emotional turmoil all while dealing with a body that just kept getting more dysfunctional#like I have a total list of all my symptoms to help me track them and that list is 5 pages long#and doesn’t include the two new symptoms I had start up in the past month#tbh if I didn’t have my disabled friend to help me thru all this I probably wouldn’t be here anymore#you know who you are lol#I love you fam!!!!#I also love all of y’all#take care of yourselves ❤️#sorry I ramble in the tags it’s the Brain Damage™️ lmao
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