#no side effect steroids
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mars-ipan · 2 months ago
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god i cannot wait to be off these steroids…
#marzi speaks#marzivents#<- it’s late n i’m kinda pent up abt this#i’m so TIRED of themmmm#i’m probs gonna be on them for the rest of the year. which SUCKSSS#i don’t like how many ppl comment on the moon face#i don’t mind it. like i look in a mirror and i’m okay.#it’s a little weird. but like. just because it’s different. like getting used to a new haircut#but every time i see someone for the first time in a bit it’s ‘woah your face got rounder’#and i have to go ‘oh yeah it’s water retention- steroids thing it’ll go away when i’m able to go off ‘em’#and they go ‘oh alright :) you still look good btw don’t worry’#and i just. i HATE how people talk about it!! like jfc. it’s so clear that they think it’s like kinda sad#my dad said he thinks it’s cute and he’s the only one i actually think is telling the truth there#my mom and i agree that it doesn’t matter. but even then she tries to tell me not to panic#like a little extra squish in my face is something to panic over#it’s so clear that so many people see it as another thing to pity#oh poor thing. has that chronic illness for the rest of her life. and the steroids made her jaw look rounder :(#like jfc i knew fatphobia was prevalent but come the fuck on. literally i’m like barely retaining water for steroids too#like. i’m still very much skinny (i JUST finished being malnourished ffs) but bc i’m retaining water in my face#now ppl feel the need to comfort me. over this tiny cosmetic thing that does not matter#like. i wouldn’t feel weird abt it if it weren’t for everyone else making it such a THING. why is everyone so weird about it#i’m not insecure about it but when ppl try to comfort me or go ‘it’s not that bad’ it makes me feel like i’m SUPPOSED to be insecure abt it#and it drives me NUTS. bc there are things about being on steroids that i would love to be comforted about#but the water retention is not one of them. i couldn’t give a rat’s ass about the water retention#y’know what i’d like to be comforted over? the mood swings. the irritability. the insomnia. the appetite fluctuation#the slow healing of skin. thinning and dryness in the skin. having to take like 3 other medications alongside the steroid#bc taking the steroid causes side effects that need to be medically treated or prevented#even outside of the steroid! i’d like some comfort about having to build back my stamina from scratch#i’d like some comfort about having the worst balance i’ve had in years#there’s. more to this. but i’m out of tags. maybe i’ll make some replies idk. i’m just. UGH
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aquaquadrant · 7 months ago
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I know this is random (you don’t have to post if you don’t want to) but I also get infusions for crohns and just wanted to let you know you’re not alone man. I don’t know anyone else who gets these infusions but it’s nice to know that even a random person on the internet who writes amazing things also goes through the same things I do! Once you get the dosing and frequency right, it’s gonna be all over for you mfs!! Anyways I wish you well and wish you luck and good things happen to you!
:0!!!!
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wait that’s so cool… what are the odds someone in a similar situation happened to see my post??
before i met w my doctor to discuss results and treatment, i was expecting to be put on oral meds (immunosuppressant + steroids). it seemed to be the most common treatment i found while doing my own research, esp as the first option. but he said he wanted me to start infusions due to the severity of my disease- which i hadn’t even heard of before for crohn’s. that was a real curveball.
so suffice to say, it’s VERY NEAT to hear from someone in the same boat. thanks for the kind words, i wish u the best as well!
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rossithepixie · 3 days ago
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Totally love my migraine medication that only sort of helps…
So glad i see a specialist in December
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freytful · 20 days ago
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that post describing tricking your CVS was crazy by the way. it needed to specify that the staff needs to be slightly negligent multiple times. I promise you are significantly more likely to get into trouble doing that than this
https://roidbazaar.is/human-labs/testo-c/
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angelnumber27 · 8 months ago
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People who have taken seroquel or people knowledgeable about psychiatric medications- HOW do you stop the horribly strong munchies you get from quetiapine every single night? Or at least how do you cope with it….. Or how can you overcome the urge to eat literally everything when you’re not even fully awake? I can’t just stop taking it (bAAAADDDDD IDEA) but I’m so tired of this. I eat healthy and balanced all day then take my seroquel and feel like a fucking zombie with a bottomless pit for a stomach and eat in a way I never would normally. It disgusts me so much and I need help figuring out a way to not do that shit anymore
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fragglez · 4 months ago
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i hate doctors so much why did they tell me "your prescription is ready to pick up!" and then when i go there they're like "oh they don't make this anymore" WHAAT
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brotatowho-blog · 6 months ago
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So uh, my doctor has had me on oral steroids for months now, and turns out they can cause depression, since they decrease how much serotonin the brain makes. Not only that, my antidepressant is a regulator, meaning it only controls how much of some chemicals my brain takes in, not how much it produces. I haven't even realized that the major amounts of depression I've been feeling just so happened to coincide with how long I've been taking these steroids. I'm already in the process of taking less of these steroids to eventually be off of them, since you can't just stop taking them, but god damn, my brain has been hell lately, can't wait till I'm not taking them anymore.
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seventh-district · 6 months ago
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#Seven’s Public Diary#vent post#vent#cw vent post#cw vent#cw health#cw medical#cw medication#cw death#death mention#after nearly 2 weeks of unexplained pain and Symptoms and working myself up into the worst panic attack of my life#i finally caved and went to urgent care :)#it’s not lost on me that the same thing happened a little over a year ago. not bc of the same symptoms but it’s the same fear of dying#smthn smthn if i had a nickel smthn smthn weird that it happened twice. i rlly hope this doesn’t become a pattern#i can picture it now. every spring i walk in and they’re like ‘ugh it’s the neurotic hypochondriac with 4 anxiety disorders again 🙄#wonder what they think they’re dying of this time!’#sigh. anyways i’m fine. probably.#the consensus was ‘no you’re Probably not gonna have a stroke and die. you’re just Very stressed and in a lot of pain.’#got diagnosed with Stressed Guy Syndrome so now i take ✨painkillers✨ and ✨muscle relaxers✨ 🙃#they wanted me to take a steroid shot too but that felt like overkill. it’s also a big step for me to be willing to take anything at all#not bc i’m scared of getting a shot in the neck i’m just. scared of medication in general. the side effects. the potential for dependency.#it’s only for a week but i’m still uncomfy with it. but it Is nice to be in less pain. tho i have my doubts that it’ll help long term#time will tell. but i still can’t shake the fear of the tiny chance that it Could be more serious. but it’s not big enough for them to test#for it so. just gotta live with the fear. which in turn is making it hard to relax. which is what i’m supposed to be doing. so.#anyways. i Hope the meds work and i don’t end up back there next week spending More money and seeking more treatment#sighhhh i just can’t catch a break these days. it’s Always Something#at least the electricity and internet are back on after the tornado last week. and at least i’m not in much pain for now. silver linings.#sorry to everyone i’ve unintentionally ghosted but it’s been hard to think through the pain and now the meds are making me eepy#hopefully i’ll recover and recharge my social battery sooner than later. bc i do feel v bad abt it#and it’s So nice to sleep without much pain so i’m. taking advantage of that this week. Seven Try To Relax Challenge 2024
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recapitulation · 2 years ago
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been having the strongest fucking food cravings recently its like ive been possessed by the spirit of spaghetti or whatever
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mars-ipan · 3 months ago
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forgot to say it but i’m home from my infusion!! yippie!!
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tj-crochets · 2 years ago
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I am once again in insurance hell, so let me reiterate: Aetna is the worst health insurance company I’ve ever had to deal with. Avoid it if you can. 
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percabeth4life · 2 years ago
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How is your health? Do you have any plans for when you plan to write again?
Thanks for asking!
My health is currently horrendous, I've got an infection, a virus, and a neck injury, though at least the ear infection is gone. On top of that I did *something* to my knee (not unusual) so I'm having to keep a close eye on it cause it's causing me lots of pain <3.
I'm hoping to have a new chapter of ATLOP out Monday, and if I have time (which I shall now have more of cause I've dropped a class) I might update Pray to the King next week too.
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thischarmingamy · 10 months ago
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Frazzled & Gastroparesis
My body is so tired and my vision is blurry, but I’m wired! It’s not Red Bull or anxiety keeping me up. It’s steroids. I’m on a course of dexamethasone (AKA Decadron) to break up an intractable migraine that I’ve had since January. Decadron sounds like the name of a demon from Supernatural or maybe even a Transformer? The good news: the steroids are working and the migraine is finally ebbing.…
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risenwraith · 1 year ago
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#136 Steroids.
During chemo there will be the inevitable ‘oh! my body does not feel like my body. I don’t feel like me! WTF?!’ at some point. And when you’ve finished chemo, even with no body hair and numb fingers, you are so pleased to think that you will get back to being you - y'know, the before you.
However, sometimes chemo isn’t the thing that trips you. (I mentioned before: different aspects of chemo upset different people - it's distressingly multifaceted and all-inclusive like that.) Some bitches find the steroids that they give you to make you feel better during chemo kick you in the metaphorical balls later. Oh, wait, yeah, that's me - I'm bitches.
I have been quietly freaking out because my arms feel stiff and messed up - they feel like they’re hugely puffy and too big for my skin. Which is ridiculous. My arms cannot have suddenly acquired extra size or weight or puffiness...? Except they have and it’s all because of the steroids.
The steroids do fucking wonders when you’re being poisoned. But when you’re done being poisoned, the steroids hang around not sure what they’re meant to be doing so just try to retain water and stuff and make you... bigger? Puffier? Weird? IDK. It’s uncomfortable - my skin feels over-stretched and I feel... stocky? and I don't like it.
Is this the whole steroids 'swoll' thing? If so I am not a fan. I am one of those unhappy individuals who has to work quite hard not to get an ED and occasionally borderline fails, so body changes are sometimes... difficult. Ergh.
I think even if you have a good and healthy relationship with your body, at some point the chemo experience - one way or another - is probably gonna weird you the fuck out.
But that's okay.
It's a lot.
It sucks.
It's ALSO saving your life.
You've got this. Aaaaand you may hate it a bit. But you do get to live.
So... Let's collectively and sensibly go with 'yey'?
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thethingything · 2 years ago
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I just looked in the mirror and realised we have facial hair? I'm guessing I didn't notice it before because it's only really on the sides of our face and I avoid looking in the mirror too much but I know our eyebrows also started getting way darker and bushier in the middle of last year so maybe it's related to that?
I'm not bothered by it but I am confused given that we're afab and have never been on T
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karathraces · 2 years ago
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skin condition psas including psoriasis is always amusing bc i don’t care if people judge my scabs they’re bleeding and itchy and sore and also growing on my joints and causing inflammation in my eyes and gut. other people’s validation isn’t even in the top 20 concerns with this condition 
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