#no side effect steroids

[aquaquadrant]

I know this is random (you don’t have to post if you don’t want to) but I also get infusions for crohns and just wanted to let you know you’re not alone man. I don’t know anyone else who gets these infusions but it’s nice to know that even a random person on the internet who writes amazing things also goes through the same things I do! Once you get the dosing and frequency right, it’s gonna be all over for you mfs!! Anyways I wish you well and wish you luck and good things happen to you!

:0!!!!

wait that’s so cool… what are the odds someone in a similar situation happened to see my post??

before i met w my doctor to discuss results and treatment, i was expecting to be put on oral meds (immunosuppressant + steroids). it seemed to be the most common treatment i found while doing my own research, esp as the first option. but he said he wanted me to start infusions due to the severity of my disease- which i hadn’t even heard of before for crohn’s. that was a real curveball.

so suffice to say, it’s VERY NEAT to hear from someone in the same boat. thanks for the kind words, i wish u the best as well!

[mars-ipan]

forgot to say it but i’m home from my infusion!! yippie!!

[angelnumber27]

People who have taken seroquel or people knowledgeable about psychiatric medications- HOW do you stop the horribly strong munchies you get from quetiapine every single night? Or at least how do you cope with it….. Or how can you overcome the urge to eat literally everything when you’re not even fully awake? I can’t just stop taking it (bAAAADDDDD IDEA) but I’m so tired of this. I eat healthy and balanced all day then take my seroquel and feel like a fucking zombie with a bottomless pit for a stomach and eat in a way I never would normally. It disgusts me so much and I need help figuring out a way to not do that shit anymore

[fragglez]

i hate doctors so much why did they tell me "your prescription is ready to pick up!" and then when i go there they're like "oh they don't make this anymore" WHAAT

[brotatowho-blog]

So uh, my doctor has had me on oral steroids for months now, and turns out they can cause depression, since they decrease how much serotonin the brain makes. Not only that, my antidepressant is a regulator, meaning it only controls how much of some chemicals my brain takes in, not how much it produces. I haven't even realized that the major amounts of depression I've been feeling just so happened to coincide with how long I've been taking these steroids. I'm already in the process of taking less of these steroids to eventually be off of them, since you can't just stop taking them, but god damn, my brain has been hell lately, can't wait till I'm not taking them anymore.

[seventh-district]

.

[recapitulation]

been having the strongest fucking food cravings recently its like ive been possessed by the spirit of spaghetti or whatever

[tj-crochets]

I am once again in insurance hell, so let me reiterate: Aetna is the worst health insurance company I’ve ever had to deal with. Avoid it if you can. 

[percabeth4life]

How is your health? Do you have any plans for when you plan to write again?

Thanks for asking!

My health is currently horrendous, I've got an infection, a virus, and a neck injury, though at least the ear infection is gone. On top of that I did *something* to my knee (not unusual) so I'm having to keep a close eye on it cause it's causing me lots of pain <3.

I'm hoping to have a new chapter of ATLOP out Monday, and if I have time (which I shall now have more of cause I've dropped a class) I might update Pray to the King next week too.

[thischarmingamy]

Frazzled & Gastroparesis

My body is so tired and my vision is blurry, but I’m wired! It’s not Red Bull or anxiety keeping me up. It’s steroids. I’m on a course of dexamethasone (AKA Decadron) to break up an intractable migraine that I’ve had since January. Decadron sounds like the name of a demon from Supernatural or maybe even a Transformer? The good news: the steroids are working and the migraine is finally ebbing.…

[risenwraith]

#136 Steroids.

During chemo there will be the inevitable ‘oh! my body does not feel like my body. I don’t feel like me! WTF?!’ at some point. And when you’ve finished chemo, even with no body hair and numb fingers, you are so pleased to think that you will get back to being you - y'know, the before you.

However, sometimes chemo isn’t the thing that trips you. (I mentioned before: different aspects of chemo upset different people - it's distressingly multifaceted and all-inclusive like that.) Some bitches find the steroids that they give you to make you feel better during chemo kick you in the metaphorical balls later. Oh, wait, yeah, that's me - I'm bitches.

I have been quietly freaking out because my arms feel stiff and messed up - they feel like they’re hugely puffy and too big for my skin. Which is ridiculous. My arms cannot have suddenly acquired extra size or weight or puffiness...? Except they have and it’s all because of the steroids.

The steroids do fucking wonders when you’re being poisoned. But when you’re done being poisoned, the steroids hang around not sure what they’re meant to be doing so just try to retain water and stuff and make you... bigger? Puffier? Weird? IDK. It’s uncomfortable - my skin feels over-stretched and I feel... stocky? and I don't like it.

Is this the whole steroids 'swoll' thing? If so I am not a fan. I am one of those unhappy individuals who has to work quite hard not to get an ED and occasionally borderline fails, so body changes are sometimes... difficult. Ergh.

I think even if you have a good and healthy relationship with your body, at some point the chemo experience - one way or another - is probably gonna weird you the fuck out.

But that's okay.

It's a lot.

It sucks.

It's ALSO saving your life.

You've got this. Aaaaand you may hate it a bit. But you do get to live.

So... Let's collectively and sensibly go with 'yey'?

[mars-ipan]

ough i’m so sweatyyy

[thethingything]

I just looked in the mirror and realised we have facial hair? I'm guessing I didn't notice it before because it's only really on the sides of our face and I avoid looking in the mirror too much but I know our eyebrows also started getting way darker and bushier in the middle of last year so maybe it's related to that?

I'm not bothered by it but I am confused given that we're afab and have never been on T

[karathraces]

skin condition psas including psoriasis is always amusing bc i don’t care if people judge my scabs they’re bleeding and itchy and sore and also growing on my joints and causing inflammation in my eyes and gut. other people’s validation isn’t even in the top 20 concerns with this condition 

[asterdeer]

the neurologist being like “you take too many otc meds for your unkillable headaches, have this more expensive prescription medication instead” and i take it and it makes everything So Much Worse

[lightspren]

uuuuugh the decision of whether or not to start a steroid pack is always so difficult for me

like Yea my knee and hip are doing awful this week, and when the big joints get involved it’s usually a sign that a bad flare is starting. YES my hands are full of aching and hurting. but consider: what if I don’t REALLY need it and instead just need to get over it