#my self discovery after asd diagnosis
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As of the end of May 2022 I've decided that, for the time being, I will mainly post about how I started re-discovering myself after my Autism diagnosis. This post is to be a list of those posts for easier access:
#1 Body temperature
#2 Friendships part 1
To be continued...
#my self discovery after asd diagnosis#autism spectrum disorder#autism#autistic problems#autistic friendship#autistic life#autistic witch#being autistic#actually autistic#autistic pride#autistic community#autistic culture#autistic experiences
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so ya wanna know about autism: masterpost
I give this google doc link out to individuals a lot, and realized it might be useful for a lot of people if i shared it more widely. It’s a masterpost of a whole bunch of Autistic Stuff -- here’s the link to the actual doc, but i’ll also post it all here on tumblr (under a readmore after the table of contents).
(edit: if the hyperlinks aren’t working for you, here’s the google doc url that you can copy and paste into an internet browser to access everything: https://docs.google.com/document/d/16BqhRv4IlZ6KcElGAEZOx8sFYwRs4W1jF-ddY_XKYnE/edit?usp=sharing )
Please spread it around (including sharing the google doc link outside of tumblr wherever you want). Feel free to comment with more resources, tumblr posts, articles, etc. that you find helpful! And if any links are broken, let me know.
It can be a major challenge for adult autistic folks to find content for us and by us, because so much “official” content is 1) ableist and harmful and 2) geared towards parents of autistic children. So I’ve compiled just about every resource I’ve got that discusses autism by and for #actuallyautistic folks.
TABLE OF CONTENTS
- ORGANIZATIONS AND SELF ADVOCATES
- DEFINING AND DESCRIBING AUTISM
misc.
Metaphors and images for autism
Disability models
Issues with Functioning Labels, ideas of “Mild” - “Severe” autism
- AUTISM AND INTERSECTIONALITY
misc.
Autism among women
Autism and race
Autism and LGBTQ
- STUFF ON SELF DIAGNOSIS
misc.
Is it ADHD or Autism??
Tests / checklists
- STUFF ON PROFESSIONAL DIAGNOSIS
- AUTISTIC PRIDE / CULTURE AND HISTORY!
misc.
Autism / disability history and culture
The Neurodiversity Movement
Person first vs. identity first language
Cureism
- AUSTITIC TRAITS (BEYOND THE ONES COMMONLY DISCUSSED!)
Misc. - samefoods, lists, needing to know what to expect, etc.
Stimming
Communication stuff - misc. - Verbal/nonverbal - Infodumping - echolalia - Prosopagnosia - Aphasia - Eye contact
Special interests / hyperfixations
Auditory Processing Disorder
Sensory issues / Sensory Processing Disorder
Meltdowns and Shutdowns and Burnout
Executive function
Emotion stuff
- MASKING / PASSING / SCRIPTING
- WHY AUTISM SPEAKS AND ABA ARE SO BAD
- MISCELLANEOUS
Suicide
Allyship / for allistics - For parents of autistic persons
More non-speaking autistic self-advocates
misc.
_________________
SOME ORGANIZATIONS AND SELF ADVOCATES
ASAN!!
The Autistic Woman and Nonbinary Network
Amethyst Schaber’s “Ask and Autistic” YouTube full of videos on various autistic stuff
Lydia X.Z. Brown / Autistic Hoya
Dr. Nick Walker
Mrs. Kerima Çevik
“Non-Speaking Autistic Speaking” - Amy Sequnzia’s blog
“The thinking person’s guide to autism”
The How-To Wiki for autism is actually really helpful!
Ollibean blog .
DEFINING AND DESCRIBING AUTISM
Video: “What is autism?”
“About autism”
“What being autistic means to me”
Myths about autism .
Metaphors and images for autism - “Autism is a sundae bar” - “Autism is purple” - “Understanding the spectrum” comic - Another visual on the idea of a spectrum - And another visual on the spectrum - not an on-off switch .
Disability models - Understanding disability models - Video: models of disability discourse .
Functioning Labels, “Mild” or “Severe” autism - Article on functioning labels - “What’s wrong with functioning labels? A masterpost” - Another article on problems with functioning labels - “I don’t experience my autism mildly; you experience my autism mildly” - A non-speaking autistic who is labeled non-functioning discusses labels - “Most people would consider me low-functioning, but I hate that word” - Tweets from actual autistics on functioning labels - How the same person may be labeled low or high functioning at different times - “Mental Age Theory hurts people with disabilities” .
AUTISM AND INTERSECTIONALITY
Article on autism in communities of color + in the LGBTQ community
Autism, intersectionality, and STEM college outcomes
Articles on intersectionality on The Art of Autism .
Autism among women - A reminder about talking about differences in autism in “females” - “I thought I was lazy: the invisible struggle for autistic women” - “The women who don’t know they’re autistic” - “The gas-lighting of women and girls on the autism spectrum” .
Autism and race - “Being Autistic, Black, and Femme” - “Black and Autistic: Is there room at the advocacy table?” - “Autistic, Gifted, and Black” - “I, too, am Racialized” - Autistic Hoya on being Chinese & a transracial adoptee - Video: “Growing up BLACK in a neurotypical legal system” - The Autism Wars: Mrs. Kerima Çevik’s blog .
Autism and LGBTQ - “Autism and gender variance - is there a cause for the correlation?” - “The intersection of autism and gender” - Issues being transmasc and autistic - “Gendervague: At the intersection of Autistic and trans experiences” - “I’m an autistic lesbian and no, I don’t wish I were ‘normal’” .
STUFF ON SELF DIAGNOSIS:
A self-diagnosis masterpost!
Autistic self-dx is valid
“Reasons why self-dx is good from the pov of a professional”
Some reasons why autism may go undiagnosed
“Five reasons I am self identified as autistic”
“Beware of gatekeeping”
A masterpost of “resources for women who believe they might be autistic”
A therapist who’s never met an incorrect self-dx-er .
Is it ADHD or Autism?? - Links to information on the intersections between autism and ADHD - A list of things that are more ADHD, things that are more autism, and things that are both - Science: decoding the overlap between ADHD and autism - The concept of neurodivergent “cousins” .
Various tests / checklists: - ASD Checklist - List of inclusive autistic traits - Book: I Think I Might Be Autistic: A Guide to Autism Spectrum Disorder Diagnosis and Self-Discovery for Adults .
STUFF ON PROFESSIONAL DIAGNOSIS:
Privilege in being able to get a diagnosis
Pros and cons of getting one
Someone answers the question “Was it worth it for you to get diagnosed as an adult?”
Professional diagnosis can get some people deported :/
This person’s journey from self-dx to pro-dx .
AUTISTIC PRIDE / CULTURE AND HISTORY!
The wiki how-to on accepting your autism
The wiki how-to on autistic strengths
“7 Cool Aspects of Autistic Culture”
“I’m autistic and proud of it”
“You are not a burden”
“What is self advocacy?” .
Autism / disability history and culture - Video: “Is autism a disability?” - A google drive “disability library” full of amazing content - A tumblr tag full of posts with autistic history - Book - Loud Hands: Autistic People, Speaking includes essays that explore the history of autism and of autistic self-advocacy - Book - Neurotribes: The Legacy of Autism and the Future of Neurodiversity .
The Neurodiversity movement - The neurodiversity paradigm - Video: basic terms and definitions - Video: what is neurodiversity? - Liberating ourselves from the pathology paradigm .
Person first vs. identity first language (“person with autism” vs. “autistic person”) - ASAN on identity first language - Why it matters - Video: Autism ACTUALLY Speaking - Science: a study on what labels actual autistic persons prefer - An image showing the difference between person first and identity first language .
Cureism & seeking causes of autism - Video: “Autism and the disability community: the politics of neurodiversity, causation, and cure” - Video: Self advocacy in a culture of cure - An analogy against cureism - It’s okay that some autistics do want a cure - Quotes on Truth Is by Julia Bascom about not needing a cure - Cureism is eugenics - “If a cure is found, no one will force you to take it” .
AUTISTIC TRAITS (BEYOND THE ONES COMMONLY DISCUSSED!)
“Thinking about patterns of opposite extremes among autistic people” (e.g. how we tend to be sensory avoidant or sensory seeking, extremely gender conforming or extremely gender nonconforming, hyper-empathetic or hypo-empathetic)
An essay on inclusive autistic traits
This tumblr is dedicated to answering people asking about whether various things are autistic traits!
This person lists the reasons they think (know) they’re autistic; the list includes a lot of traits that often aren’t talked about
“Some autism things” .
“What are samefoods?” - “Why do autistic people tend to samefood?”
It’s okay if you don’t like certain things / avoid certain things because of your autism
Wanting/needing to know how long something will last, what to expect .
Stimming! - Video: what is stimming? - Video on self-injurious stims - Video: autobiographical look at stimming and its role - More than a coping mechanism - A masterpost of examples of various types of stimming - Video on vocal / verbal stimming - Examples of vocal stimming as communication - A tumblr blog with a tag full of examples of body stims .
Communication stuff - Trouble with volume modulation; repetition; inconsistent talking habits - Autistic idiolects - Autistic dialect? - Autistics communicate differently amongst each other! . - Verbal/nonverbal - - Selective mutism - - Semiverbal communication - - Different amounts of access to speech - - A person on being non-verbal and using AAC - - People who are nonverbal still deserve to be listened to .
Infodumping - What is infodumping?
Echolalia - “Autism and Echolalia: what you need to know” - What is echolalia? - A tumblr blog’s tag featuring examples of echolalia
Aphasia and autism
Prosopagnosia (Face blindness) - Science: a study confirming that some 67% of autistic persons have some degree of facial recognition difficulties - Science: a study offering theories for why this is!
Video: Autistics and eye contact - Science: Researchers explore why autistic people avoid eye contact
Tendency to overexplain .
Special interests / hyperfixations - Some info on hyperfixations - Video on special interests - Emphasizing the intensity of these things - “What’s so special about a special interest?” - “Why we love what we love and why it should matter to you” - Not every autistic person knows everything there is to know about their special interest - “Interest hopping” - Dividing our life into “eras” of special interests .
Auditory Processing Disorder - Examples of APD - “You might struggle with auditory processing if…” .
Sensory Processing Disorder - Video: What is sensory processing disorder? - Video: a virtual experience of what it’s like to be at a party as someone with SPD - A post about some of the weird sensory stuff that many autistics experience (such as feeling nauseated when your real issue is a headache) - Many sensory issues aren’t just annoying, but physically painful - Difficulty in explaining autistic hypersensitivities - Auditory sensory musings - Trying to describe sensory overload - Not noticing when we’re hungry - Weird tolerance for big pain, intolerance for small pain - Science: “Unseen Agony: Dismantling Autism’s house of pain” - Tumblr blog with a tag of other posts about sensory issues .
Meltdowns and Shutdowns and burnout: - Meltdowns vs. shutdowns - Video: “What are autistic meltdowns?” - Video: “What are autistic shutdowns?” - A description of meltdowns - Signs of a shutdown in autistic people - How to support someone having a shutdown - Science: “Autistic shutdown alters brain function” - How to avoid meltdowns - “Dealing with meltdowns” - “The protective gift of meltdowns” - Video on autistic burnout - Article on burnout - Science: Autistic burnout described by a researcher - An article on autistic regression (burnout) - “Help! I seem to be getting more autistic” - talks about how things like burnout, aging, new environment, being around other autistics, and more can cause this .
Executive function - Video: “What is executive functioning?” - A chart describing the different aspects of executive function - “Executive functioning problems - a frustrating aspect of being autistic” - Autistic inertia .
Emotion stuff (including empathy) - Our emotional regulation is different - Article: (some) people with autism can read emotions, feel empathy - Video on misconceptions around autism and empathy - “Double standards: The irony of empathy and autism” - Science on the “double empathy problem” involving relationships between autistics and non-autistics - Not a bad person for not having empathy - More musings on autism and empathy - “Autistic grief is not like neurotypical grief” .
Alexithymia: - Science: Overlap between autism and alexithymia - Video: what is alexithymia? - “I don’t know how I feel”
MASKING / PASSING
Video on passing
An infographic on autistic masking
Another video on masking / “hiding” in a neurotypical world
We are not obligated to mask or “act less autistic”
When you mask less and get told “you’ve been acting more autistic”
Getting called high-functioning because you mask/pass well
Scripting: - Video: what is scripting?
WHY AUTISM SPEAKS AND ABA ARE SO BAD
A guide to identifying good autism organizations (and how they can improve!)
Autism Speaks:
Some facts and statistics
An AS masterpost
Another AS masterpost
Video: What’s wrong with AS?
Video: a non-speaking autistic’s response to discussions between Autism Speaks and GRASP
“Enough with the puzzle pieces”
“I resign my roles at Autism Speaks”
“Responding to Autism Speaks” .
ABA:
Video: what’s ABA?
“Studies find thin evidence for early autism therapies”
Masterpost of why ABA is harmful
More on how ABA is abusive even if a kid “seems to like it”
An autistic describes ABA’s “quiet hands” method
And another post on how ABA is harmful
Trauma and autism
Alternatives to ABA
MISCELLANEOUS
Suicide - Video: Speaking to suicidal autistics - Science linking autism and increased suicidality - Video: “diagnosis saved my life” .
Allyship / for allistics - Video: How to be an ally - Resources for supporting autistics during Autism Acceptance month and year-round! - Autistic accessibility needs - “How to be a friend to autistic people” - 15 things you never say to an autistic person - What to say / not to say to an autistic adult - Video: what shouldn’t I say to autistic people? - Video: Things not to say to an autistic person - Video: “Isn’t everyone a bit autistic?” - Don’t talk about “mental age” - “To those who tell autistic persons ‘everyone experiences that’” - Why it’s not helpful to say “well I don’t think of you as disabled / as autistic” - How to support a loved one who’s gone temporarily nonverbal - How to support someone having a shutdown - Help reduce meltdowns in a loved one - Don’t restrain an autistic person having a meltdown - Understanding why autistics seem “so picky” - Making communication easier for your autistic friend - Avoiding ableism against AAC users - How to protect your autistic employees from ‘no script found’ situations” .
For parents of autistic persons - “Don’t Mourn for Us” - “You don’t ‘lose a child to autism’” - Advice from autistic adults on treating your autistic children with respect - A masterpost of advice for “autism parents” - It’s okay if your kid doesn’t hug you or say “I love you” - “They keep publishing these violent articles” - “When you’re autistic, abuse is considered love” - You don’t have to tell everyone who comes across you and your kid in public that your kid is autistic / you don’t have to constantly apologize for your kid! - Your kid isn’t bad / uncooperative just because they have certain differences - Don’t tell autistic adults we are “nothing like your child” - A tag full of more tumblr posts about / for “autism parents”
More non-speaking autistic self-advocates - Video: “In My Language” by Mel Baggs - Mel Baggs: “Don’t ever assume autism researchers know what they’re doing” - Lysik’an: “You don’t speak for low-functioning autistics” - Film: Deej
Autistics and the idea of “getting out of your comfort zone”
Autistics accommodate allistics far more than the other way around
It is icky when autistic persons are only valued when we’re “productive”
Parents who are themselves autistic
Autism as genetic? - Science: “Autism Genetics, Explained”
Science: links to some studies on autism and gastro-intestinal issues, autism and caffeine, autism and sleep, autism and stimming, autism and queerness, autistic strengths, and more
#actually autistic#autism masterpost#actuallyautistic#autistic stuff#autistic resources#autism resources#log#summer 2021#ref#long post#masterpost#links
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Recent reads roundup
since I took the blr off my phone, I've been reading more, here's what I've finished recently The Devil Wears Prada by Lauren Weisburger Good. Ending is a bit...wtf and wraps up in a hurry. Miranda's mean-ness gets pretty self indulgent and the narrator is kind of a hot mess.
I think the most interesting thing book to movie it does is being set decidedly in the 1990s and how things were so different then.
I think fans would the movie would like the book. If you're not a fan of the movie, you're not missing much, just go watch the movie it does this thing way better.
Rare Objects by Kathleen Tessaro
Weird story about this one -- Dollar Tree has a surprisingly interesting selection of books. They're pretty RNG random, but if you hit it on a good day (and in the right location) you can get some cool shit from Harper Collins and Simon and Schuster overstock titles. Like there's a Dollar Tree in the middle of nowhere TN that had a ton of weird books on philosophy and linguistics and I bought a bunch of those.
Anyway, this is a book I bought based on the cover and the back description. Set in the 1920s, a young Irish woman gets wrapped up in Gatsby-style intrigue and fame after getting a job at a rare antiques store. It's a neat book, I actually enjoyed Tessaro's style. I think the 11th hour love triangle (GAG) was too much and was resolved in a way that made it seem like the author didn't know where to go next with it. She's written one more historically set novel that I think I'm going to read next.
The Autistic Brain by Temple Grandin
NF, obvs, by famed professor with ASD Temple Grandin. I've been on a long self discovery journey of if I have ASD. This was a good book to help investigate what a diagnosis could mean, what it doesn't mean, and how I can better take care of myself regardless of getting professionally diagnosed. Would recommend to anyone curious about autism.
Currently Reading: Care of the Soul, Alan Turing: The Enigma
Honestly I have a 10 stack deep of books and I'm in between a lot of stuff right now.
#2022 reading journal#2022 reads#devil wears prada#miranda priestly#rare objects#kathleen tessaro#the autistic brain#temple grandin
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Life ramblings
Speaking about my life in any kind of public forum has always been exceptionally difficult for me. Even though I know to the most absolute degree that no one will care what I have to say, talking about something as simple as a haircut can make me nervous and make me delete/rewrite/never bother with a post.
Case in point: the reason I've been pretty much only slightly ghosting on Tumblr and nonexistent on Dreamwidth: changes in my life.
It's one thing to endlessly research and learn and analyze and wonder, but it's always another to actually begin the journey, especially when you start it so much later than most. Self-discovery for me is a winding trail with several side paths that I always want to explore, and that makes it a road which can take me quite a while to traverse to the next important crossroads.
For the one or two of you who might actually read this, buckle up. This really is a ramble.
Coming to the realization that I was transgender was both easy and gradual. Easy, because once that bulb turned on, it explained a myriad of different behaviors, preferences, and ideations. Yet it was also gradual, because I literally had no framework to even think it might be a thing for me until I met and RP’d in a group with an FTM a while ago. I suppose to younger people it might be mind-boggling that I’d never even considered it a reality until then, but without any media presence (and I have a very narrow view of pop culture as it is anyway) or literary examples, the idea that I might actually be a man rather than masculine-leaning woman was a foreign one, and certainly not something I could apply to myself in any substantial sense. So I had to realize it was a thing, and then research gender dysphoria to see if it was just a wild idea, or if I fit the criteria. And boy, did I, to a T. *cough*
Once I figured that out, I then had to decide if I want to transition or simply accept the diagnosis and see if I could just live the rest of my life. After all, it's been over twenty years since I was in high school, after all, and I've gotten college degrees, married, divorced, and been an employee at multiple companies in that time. I’d obviously been able to live this way for a number of years as an adult, so could I simply continue and simply make small allowances here or there? Transitioning at any age is never easy, but the challenges differ from one age group to the next. I had to carefully weigh my choices and make the final decision - which was that I absolutely did not want to finish my life as a woman.
I've been absolutely fortunate to have a supportive network of family and friends, and work so far has been accepting (though it's not generally public knowledge there yet). Still, there's a lot I have to sort out, from inside my head to determining how I fit in the outside world (not that I ever figured that out in the first place).
And with that new male self-identity in place, other aspects of my life have shifted in fundamental but subtle ways. I'm a feminist, but not a woman. I'm questioning my sexuality (again), but it hasn't really changed so much as the POV to consider it has altered. I'm re-centering myself in the world in a way that I completely ignored before because everything was wrong so it didn't seem worth it to try. I'm actually working on my health seriously for the first time in my entire life - again, never a concern because my body was completely disconnected from me prior to acknowledging what I truly am. I'm analyzing my ASD and introvertism and a myriad of other things, wondering what will change and what won't, what was me and what was the result of my social and gender dysphoria. All this while my body is literally changing and my psyche shifts to the most calm and *right* it has ever felt since before puberty.
It's fucking amazing and fucking terrifying, all at once. And I don't regret the decision for an instant.
As for fandom, I certainly identify more closely with male protagonists and mlm romances now. To be fair, that was building as I came closer and closer to my decision to transition, but now that all that is settling into place, I understand so much more about my writing and my preferred POVs, why my favorite characters are who they are, and why I feel so distant from certain characters and ships. I had to put my playthrough of Andromeda completely on hold because I'm hoping (against hope) that the mlm romances will be improved as they promised. Ironically, I was finally able to complete a run-through of the original Mass Effect trilogy because I stopped trying to play as a woman and just gaymanced my way through with an M!Shenko story that, despite its flaws, I absolutely adored. I'm even going to go back and replay DA2 with a male Hawke and see if I connect better. Oh, and my former canon Hawke? Yup. Transgender man, always was. I just didn't realize that either.
It has put a distance between me and Tumblr, though. It's subtle, but I notice it when I try to re-engage with fandom and utterly fail. I've distanced myself from my old blog and presence even further and pretty much abandoned the two sub-communities within the fandom that I tried haphazardly to belong to: writing and modding.
For writing, I have three major stories left open/unfinished: my Warden story, my Cullrian fic where Dorian becomes the Inquisitor, and my canon Inquisitor Martin Trevelyan story. I adore my Warden, but I feel so distant from her that I wonder if I'll ever pick that up again. I love my Inquisitor Dorian story as well - I had so much politics and fun with derailing the canon plot planned for that one - and of the three, it's the one I'm most likely to return to writing. The one I want to do the most is my Martin Trevelyan story, but I'm not sure I want to pour myself into writing that story when I'm feeling so distant from the fandom itself. I don't write for accolades, necessarily, but I do like to feel a connection between my readers and myself for fic, and the time for DAI has come and gone. It's hard to write when I feel that no one will read it.
As for modding, I now regret my involvement in that community. I don't have a suitable personality or a viable skillset to offer, and I should have just backed out early and let someone else take over and do what I did, but better. A couple of other blogs have stepped up to the plate, for which I am grateful, but it's a weekly debate with myself whether or not I should just delete that sideblog - heck, my whole Tumblr - and simply move on. The only reason I don't is that I know there are quite a few links to some of the tutorials and lists on the sideblog, and I feel it would be unfair to do so. Yet I tried and failed at Discord, and am completely disinterested in modding ME:A, so I think that ship will not sail again.
In addition to that, I've been in a constant re-evaluation of my online presence and what it means. The release of ME:A had me intrigued at first, but as time has progressed, I've come to realize that even though I enjoy and love the game itself, I feel no connection whatsoever to other fans of it. I don't like the fanart, I don't like the same characters as everyone else, and I simply don’t experience it in the same way I'm seeing it on my dash. People are leaving Dragon Age behind again (which is fine, fandoms are always circular), but I don't choose to move on. And it's getting harder and harder to find meaningful ways to interact with what remains of the parts of fandom I am interested in. Outside of my perennial RPs (which is still Dragon Age), I don't really maintain an online presence except for what little I've struggled to establish here on Tumblr - and the value is diminishing enough that I wonder how long I'll be around.
So. Anyway. Many ramblings later, I guess I just needed to get all that out and written down somewhere. My apologies if you actually read all this. And kudos, as well.
At least Tiki is a unisex name. That I don't have to change.
Tiki on Dreamwidth | AO3 | FF.net
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Autism Acceptance Month 2018, Day 3 (Belated): My Diagnosis/Discovery Story
Yes, I know this is a day late. To compensate, I’ll be posting both Day 3 and 4 today, so you’ll get extra autistic anecdotes. Here’s my story!
I figured out I had ADHD before I figured out I was autistic. At first, I thought ADHD explained everything about me. But after a while, I noticed how much I was relating to the autistic community, and even to Temple Grandin when I watched the movie about her. I struggled with this immensely: not believe I was autistic myself, and not wanting to appropriate or make light of the autistic community. I eventually found the term “autistic cousin”. I was relieved, but it didn’t last long. Soon the prospect of being autistic myself seemed more and more likely.
The therapist I was seeing at the time thought I showed signs of it, but she wasn’t qualified to do anything more than that. So I finally got up the courage to do some research myself. I took as many diagnostic quizzes as I could find, then went into reading about autistic people’s stories and seeing what life was like from their perspective. Once I found the DSM criteria, I checked that against my own life and saw things matching up. My partner also related to what I was finding, and we ended up looking into it together.
After everything I had read, after getting a detailed picture of what autism was like, I knew it fit me and my experience. I self-diagnosed (along with my partner) and joined the autistic community.
But I knew self-diagnosis wouldn’t be enough for some of the things I needed. For one, telling others I was autistic would always have the risk of them asking for official “credentials”, which I wouldn’t be able to provide. For another, I knew I would need support and accommodations for any jobs or schooling I did in the future. I couldn’t get that if I wasn’t confirmed.
When I left my previous therapist and went to a new mental health care provider, I brought it up with them, citing the research I had done. They agreed that autism was very likely, but they needed an official second opinion. Eventually I was referred to Easter Seals for a neuropsychological evaluation, both to confirm my autism and to clarify my mental illnesses. When they mailed me my results a few weeks later, I was terrified. But it turned out my worry was for nothing. They had confirmed that I met the criteria for ASD. I was official.
This confirmation was fairly recent, and I’m still so grateful that I had the resources to get it. Any negative effects of being official to me are far outweighed by knowing I have the ability to disclose my autism and get accommodations in the future. Now I feel free to advocate for myself and for the rest of my community, and I feel even more free to be myself.
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My self discovery after ASD diagnosis #2
Friendships -part 1-
🚨 if you think you might have autism/are diagnosed/have someone around you who (jokingly or not) has said they might be autistic, please do read this post. As boring as it may seem, it might be helping someone in some way 🚨
I didn't think that it would take me a couple of weeks, if not more, to write a second post of this series, but here I am.
As a disclaimer, I want to say that what I wrote is my own experience, and not a way to tell other people who are on the Autism spectrum that what I say is any type of rule. That being said, let's dive into the subject that consumed a fair part of my life so far.
I cannot distinguish between friendship and love. Maybe this is the time to mention that I am Demisexual (a.k.a. if the person doesn't hit my button, my attraction is in no way or form sexual, at all).
I remember my mom telling me that I get emotionally involved way too deeply for "just friends". At the same time, my dad always told me that I "expect too much and feel too deep" about friendships as I was growing up. But for me, friends to be a part of my life have to have a certain purpose. I've never made a friend just because that person was what society calls as "nice". I had zero feelings toward nice. I needed deep, now and mind-blowing factors to consider a person "worthy" of my energy and focus.
When I say "worthy" I do not mean it in a superior way, like "I am better than you, but you intrigue me so you got my attention". No. "Worthy" for me means someone who reciprocates the depth of my interests and openness towards mamy "crazy" things.
Frienship "worthy" for me means "fuck small talk, tell me how that memory you've just shared made you feel inside without embellishing anything, just being honest no matter how weird or crazy it sounds".
I've always been out of touch with how society thinks that friendship talk should go like, always unable to understand any of it, but if you share deep psychological details, thoughts and reactions, and you've got me listening, learning and sharing as much as I can understand about that situation from my perspective, and going forward to supporting and discovering more with you.
But, this wasn't a thing in primary school, not in middle school either. In high school some wanted to be all that, but couldn't sustain that thinking and attitude. In university everyone cared about having fun, friends with benefits, getting a job, complaining about daily life issues, etc. At the job I got the ppl who already either had a marriage and kids to worry about, or the ones in 3-5-7 years relationships and only talking about getting high at parties.
In my 30s I started actually looking at myself, my issues, my emotions and that is what got me here to getting diagnosed with Autism.
Now, untill this age I had my share of a few friends. I say a few because I'm not able to sustain friendships with more than 3 people at a time, 3 being already too much. Why? Because it takes me years to discover a person, to get used to them, to understand them and to find their place in my life.
If anyone got to this point reading, prepare to either understand or be disappointed. Friends, for me, have each a different role in my life. No 2 friends of mine, in my 34 years of life, have ever had the same role. No one gets the role someone else had, because... that was someone else. I cannot put two people in the same role because there are no two humans who are completely and perfectly the same. Therefore, I cannot do the "better one" or the "replacement one" shit that I've seen some people do in their lives.
That being said, most people think it's amazing not to be thought as a replacement for someone else, but fulfilling a certain role in my mind is considered rude by them.
For me each person in my life has to have:
1. a useful role for me to benefit from
and
2. a life, mood, attitude and way of thinking that I can work with in supporting, listening, helping, and generally contributing to their life in a way that actually helps them.
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I will end this 1st part about Friendships from an Autistic person's point of view, because it is already a lot to read and digest. I also need time to accomodate with how much of my personal thinking I've shared in this post.
I will start my next post about this subject with the last few paragraphs from this one, for it to make sense.
#my self discovery after ASD diagnosis#autism spectrum disorder#autistic witch#autism#being autistic#autistic problems#autistic life#autistic friendship#possibly autistic#personal experiences#random thoughts
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