#my pcp is like yeah you prob have mcas and i have other patients w mcas but he isnt comfy managing my mcas or prescribing my cromolyn bc he | Explore Tumblr posts and blogs

greghatecrimes · 3 months ago

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spiritually banging my head against a wall. every time i start having respiratory/throat/chest symptoms from my mcas, I immediately flash back to all the times I've had anaphylaxis and get terrible anxiety. Survival mechanism, yes. But also... I am not having fun and I have not had full blown anaphylaxis since the early days of post mold exposure. so like. let's take a deep breath and calm down, body

#vent #personal #mcas #might delete later im just grumpy right now #i get a tight chest and im like. SHIT. anaphylaxis?? mcas getting worse???? epipen?????#ive only needed the epi immediately once but that was enough #overwhelmed because I just want to find a doctor that can help me manage this shit but there are no specialists around here so #my options rn are an immunologist in maryland or a gi in louisiana...#my pcp is like yeah you prob have mcas and i have other patients w mcas but he isnt comfy managing my mcas or prescribing my cromolyn bc he #not a specialist!! which is fair enough!!!#completely understanding thirteen being scared to death in you dont want to know when she has tremors. and thinking its her huntingtons #bc i feel my chest and immediately think 'is this my mcas. am i being horrendously triggered by mold again'#the momentary dread of 'is it getting bad' before I can calm myself down (stress can make reactions WORSE 🫠)#differential diagnosis

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