#multisystemhypersensitivitysyndrome

[whatmustardmade]

Got some symptoms going on and can't face my keto muffin with vanilla thick double cream 😱😫😭😤 WTF, body?! It's days like this that make me wonder if I do have the Meniere's I was originally diagnosed with five years ago (that was literally from a ten min private consultation with a Nuffield consultant, the NHS ENT and Neuro drs I saw later debunked it and said it's migraine based with an emphasis on vestibular and nervous system sensitivities). My left ear keeps changing pressure, blocking up so I can't hear properly, and WHEEEEEing at me (above and beyond my usual tinnitus), and though it might not sound like much, it's making me feel a little ill! Anyone else on rocky ground this morning? Big props to us ❤️❤️❤️❤️ #WhatMustardMade #ChronicIllnessLife #MultiSystemHypersensitivitySyndrome #VestibularMigraine #KetoLife (at Ryton, Tyne and Wear) https://www.instagram.com/p/CFrES5khhL-/?igshid=1lowfotmdke4j

[whatmustardmade]

Anyone else excited for Halloween already...? 🎃 I thought I better start making some stuff now, otherwise I'll leave it too late! 😘 We went to see The Book Of Mormon this afternoon, and I learnt that I definitely can't sit in the upper circle anymore... 😳🙄😵 I felt like I was tipping forward the whole time 😭 So my vestibular issues are still well and truly present, despite the medication I've been on since May 🤦‍♀️ To be fair to it though, I'm not at the full suggested dose yet, but I'm worried now that it won't help me as much as I need it to, even when I get there. And I feel so GOOD on it, with everything else except this vestibular shit. Today I though, I am still able to think and walk and make decisions, so my cognitive function hasn't suffered despite my vertigo today. And that's a win I need to concentrate on 👍 Maybe I'll just have to live with vertigo? 🤷‍♀️ Maybe I'm expecting too much to be totally symptom free. As long as my brain doesn't stop working again like it did last year, we're golden ❤️💕🥰 I can learn to deal with this long term 💖 I feel like this is maybe something only other people with chronic illnesses can really understand, especially an invisible chronic illness. I hope you're all doing as well well as you can be, and you, too, have a win from today that you can concentrate on 🤗 #whatmustardmade #crochetersofinstagram #knittersofinstagram #indiedyersofinstagram #multisystemhypersensitivitysyndrome #stitchmarkers https://www.instagram.com/p/B11pyCNBDiA/?igshid=1gf0mykgzo1k0