#ive been way less anxious working alone than when i was in bigger store. at least now when i do things poorly

[nordfjording]

I just really hate sending my financal paper stuff to people I sometimes meet because then They'll Know and its not... There's nothing To Know, because my accountant says im doing fine and i have been able to feed myself and my dogs every single day since i started. But surely, in my mind, it must be going Poorly because I'm the one doing it and things that i do get done poorly. This is a fact of the universe. And now my best friends cousin whose dogs im on a first name basis with will know that. And she won't say anything (there's nothing to say) but she'll Know.

[tcfkag]

Spoonie Life: My Last Week (fun with complications)

So, I’m having a really rough week. It feels like literally the second I get a break from one thing or a handle on another, then another thing pops up. I never get a break and it is exhausting. And sometimes it just makes you feel so alone because even those that support you - and I have a hugely supportive community of people in my life - just can’t understand. I’ve been feeling increasingly depressed and anxious and alone and my therapist does not have any availability to see me...possibly for months. So I wanted to just write up everything I’m going through because sometimes that helps but also because hopefully some of you may have gone through some similar things (esp. blood clots and ovarian cysts) and could give advice and/or just support. 

Here’s a (not so) short summary of shit that’s been going on lately (in list form because why not). Don’t feel like you have to read it all. I know everyone has their own things going on. But I just needed somewhere to vent and while I shared some of this on FB, I also feel freer to be honest and just fully disclose how hard this is for me here. Sometimes that’s one good thing about this hell site - less reason to self-censor and try to sound positive/hopeful/happy when I really truly am not.

Last Monday (the 15th), I finally finished three months of IV antibiotics I was on for an intra-abdominal abscess (an infected collection of fluid that was right underneath my diaphragm which meant that, for a while, it hurt to even take a breath). 

Good news right? Stopped it about a week ago which is awesome because the antibiotics were infused two hours x three times a day (i.e. six f*cking hours a day that I was connected to an IV bag).

But, I knew I would need a follow-up CT scan that was scheduled for this past Wednesday....and who knew what that would show.

Towards the end of last week, I started feeling very tired all the time. And then my physical stamina just suddenly....decompensated abruptly. I would get tired doing anything. Monotasker and I went to the grocery store and halfway through, I had to sit down (or risk passing out). After a few minutes, I told him “we need to get out of here” so we rushed through the rest of the basics we needed. And then while he checked out, I sat on a bench near-by. My heart was racing, I was out of breath, I was dizzy and light-headed, and just generally felt like I had run a 5K. 

The first couple times this happened I thought “well, maybe I’m out of shape, I *haven’t* been working out at ALL lately. But then I remembered, it was what - a week ago that I attended NYCC where sure, I got tired sometimes and had to sit down once in a while, but it was nothing like this. And I knew that fitness doesn’t decompensate like that....it’s sad that when confronted with such a serious health issue that my first reaction was to just....blame myself. Right away.

So last Sunday (a little over a week ago), I went into the ER to get checked out. I hoped it was something SIMPLE, like dehydration or maybe my anemia had gotten worse or low levels of some kind of electrolyte imbalance. Anything that could be handled in a single evening. Three guesses about whether that was really the problem (though if you’ve followed me for more than a hot minute, I’m sure you know that the right answer is...because of course, NOTHING is ever simple).

At the ER, they decided to do the CT scan I was supposed to have that Wednesday just to make sure there wasn’t anything they were missing. And while the abscess they had been treating was largely unchanged (so they are going to stop the antibiotics), they also found that I had a blood clot in my pelvis. This is my third blood clot but the other two (a DVT in 2008 and a PE in 2015) were both post-surgical. This is my first blood clot that happened “spontaneously”. The admitted me to the hospital for about 48 hours and put me on a heparin drip until they could get a blood thinner arranged to release me and send me home. 

A few observations and factoids about blood clots and their treatment for those who are interested.

People with Crohn’s Disease and Ulcerative Colitis (i.e. IBD) are more prone to blood clots. If you have IBD (or any autoimmune disease actually), you should be aware of this risk and know the signs of blood clots (esp. after surgery) and make sure to take preventative measures like standing up to walk around on long flights.

 Traditionally, blood clots were treated with the blood thinner warfarin (Coumadin is its brand name). It takes a few days to get to the correct level in your blood, so you have to be on injections of another blood thinner Lovenox (twice a day, at home, injected yourself) until your “INR” reaches the right level in your blood. While on warfarin you have to have regular bloodwork to check your INR - every few days at first, then weekly, and if you’re on it long term the tests become less common.

This is very challenging for me - after ALL the health issues I’ve had, my veins are completely shot. Even basic blood work is a challenge.

There is a newer genre of blood thinners out there called DACOs - you’ve probably heard of them (they include Xarelto and Elliquis) which are better for a couple reasons, I guess, but the main one for me is the lack of required blood thinners. Three guesses on whether my health insurance approved them? NOPE. They sent me into pre-authorization hell (which frequently means “nope never going to happen” but in this case I hope means “well if your doctor pushes hard enough, we’ll give in eventually).

Question: has anyone gotten one of the DACOs approved? Is there anything specific that you had to prove? How did it end up working out?

If you are someone who menstruates, just be aware - going on a blood thinner can cause your period to start early (mine started less than two days after starting them - at least a week or two early) AND it will make your period longer and heavier. 

P.S. - the GYN I saw yesterday said that Xarelto would make that even worse which leads into a later part of this post, but basically she said it was really important that I get my IUD replaced if I was going to be on Xarelto long term.

Since this is my third blood clot, it may mean that I will have to be on blood thinners permanently, which I’m not looking forward to AT ALL. Because really, do I need another medical complication? The answer is no. No, I do not. WHICH MAKES THE NEXT PART OF THIS POST IRONIC.

So this is the part of the post that I could actually use some advice on. 

So for a while, maybe as long as a year, every CT or MRI I’ve had has included a note from the radiologist saying that a benign ovarian cyst was seen on the scan (or sometimes it was called an “inclusive cyst” from the ovary into the peritoneal area. It would sometimes “recommend follow up with a GYN”. Okay....fair enough.

When I asked my GI and my PCP about it a long while ago (maybe even two years ago), they both sort of just said “sure you should see an OB-GYN about that at some point” but really didn’t follow-up on it. And then time passed because I had a LOT of other health issues that took precedence.

Sometime nine-months to a year ago, I started having pain in the area where my rectum used to be, especially when I was sitting at my desk at work. There were days it was so bad that I could not sit directly on my butt at all and had to constantly find different positions. And on those days, I would frequently also have pretty severe pain in my pelvis. For months I basically ignored it...again, I have chronic pain and I had bigger fish to fry. Again, it got put on the back burner. Until one day it was so painful I was crying at work. So I called my PCP who also called my GI and he looked at my scan and said “it’s probably that cyst, you should see a GYN....” Still no urgency (and my PCP even said “I don’t know i it’s that - sometimes doctors like to blame cysts when they just don’t know what else is wrong.”) Again and again, this cyst was acknowledged but treated as no big deal - a nuisance to be dealt with eventually.

Side note: at no point in this did my PCP or my GI bother to ask me about pain with sex, despite that being a somewhat obvious question.

So nine months ago (or so), my PCP finally did get me a referral to see someone in the minimally invasive surgical OB-GYN office. I called to make that appointment and was told “you cannot see a surgeon until you’ve seen one of the GYNs” so I got an appointment for several months later with a GYN in the office. 

Then, I had to cancel two different appointments with her because I kept being sick and/or in the hospital...and of course, each new appointment was two-three months later. 

So my appointment with the GYN (who was lovely) was yesterday. She told me that my cyst (which is in both the ovary and the peritoneum) is now the size of a GRAPEFRUIT! It is almost certainly to blame for the pain I get sometimes in my (former) rectal area and the pain I have when I have sex. She said that even if it’s “benign”, if it’s symptomatic like this, I shouldn’t have to live that way. For the first time, I had a doctor who I felt like was taking this issue seriously even though it wasn’t related to my IBD and was “just” a lady issue. (Though to be fair to my PCP, she has taken it seriously in the past, but it’s just not her specialty).

This GYN also said she’d be willing to take me to the procedure room and sedate me to put an IUD in, whether I have surgery or not because I had such a bad experience getting it last time!!! I really loved that she took my concerns about that seriously. Bless her.

So the (very extended) upshot is that I made an appointment with the minimally invasive surgeon who I was supposed to see SIX-NINE months ago (who, amazingly enough, had an appointment available MONDAY) and I may need to have another surgery to take care of this cyst. This cyst that wasn’t always the size of a grapefruit....but years of being told that it was benign, to “check it out” eventually, and having all of my other health needs take precedence has now left me here. With a huge cyst that has ruined my sex life and is starting to seriously impact my everyday life too.

TL;DR? I have TERRIBLE LUCK. ESPECIALLY this week. And I’m just feeling absolutely overwhelmed, lonely, and frustrated. And if you’ve had experience having surgery for an ovarian cyst, especially one that’s “including” on something outside the ovary, I’d really appreciate your thoughts on the procedure and whether it helped and was worth it.

[rosepetalmark]

Not in the Stars

2.5k words

Renjun x Reader

warnings: alcohol mention

in which you plan to confess your love for your best friend to him at a party, but the universe has other plans in store for the both of you. 

You like Renjun. A lot. 

That was one sentence in your five years of friendship with Huang Renjun that you never thought you’d say to yourself, let alone admit to. 

You don’t know where these feelings came from, but all you know is that they’re strong and on your mind twenty four seven. Everything he says and does captivates your mind, causing your feelings for him to grow even stronger.

It’s as if these feelings for him suddenly hit you like a brick one day. You were strictly best friends last week, and now you have these unexplainable deep feelings for him, eating you alive and begging for you to confess to him.

It’s not that you’re opposed to dating Renjun, it’s just that he’s been your best friend for several years and he means so incredibly much to you. You just don’t want to risk losing him or making things between you two weird if he doesn’t feel the same. 

So you suppress your feelings. As long as you have Renjun as your best friend, that’s all that matters, right?

Jaemin always makes you second guess yourself, explaining that the dynamic duo that you and Renjun are would be ten times more incredible if you were dating. Since you’re already best friends and know everything about each other, why not date? Only bigger and better things can come from it he always says.

Although Jaemin makes strong points, you’re still scared Renjun will turn you away, mainly because you’re ninety nine percent certain that he only views you as a friend, nothing more and nothing less. 

Yeah you have sleepovers  and spend hours late at night talking on the phone with one another, but that’s what best friends do. If Huang Renjun has any feelings for you, you’re sure someone would have said something by now. 

You get the typical stares from old people when you make your daily trek to school in the morning, him waiting outside your house for you at exactly seven forty two, smiling so bright the second you walk out your front door.  

You constantly get mistaken as his girlfriend whenever you go out together on the weekend, which always causes a deep pink blush to appear on Renjun’s cheeks. He’s always quick to brush it off though, making it clear to everyone around you that you’re strictly best friends, and that neither of you view each other in that way. 

Boy is he wrong.

Everything about Renjun makes your heart flutter, and that’s something that scares you.

For starters, he excels so well in school. For someone who spends eighty percent of his time doodling instead of taking notes, he aces every test and can recite every piece of information that’s been discussed in class with no problem.

He’s caring and funny, and so unapologetically himself. He takes you to art museums on your spare time, talks about the latest conspiracy that’s on his mind, and always insists you go for milkshakes every Sunday night.

And boy was he cute. The way he tilts his head all the way back and crinkles his eyes when he laughs makes your heart absolutely melt.

Huang Renjun makes you happy and positive and there’s nothing more in this world that you want than to hold his hand and kiss him in public, as well as call him your boyfriend so bad. 

It wasn’t until you were out late with him, hanging out on the roof at Jeno’s house, trying to escape the loudness that was coming from inside. Jeno was throwing a kickback to celebrate the beginning of summer, something he does ever year, in which there’s always too many people inside, and you and Renjun find yourself on the roof trying to seek solace in the stars. 

Renjun looked so ethereal in the moonlight. There was nothing more that you wanted to do than press your lips ever so gently against his, and hold his hand while staring up at the stars displayed so brightly above you both in the dark sky. 

“What are you thinking about bubs?” Renjun asked, referring to the nickname he gave you when he found out that’s the name you gave your favourite stuffed rabbit when you were a child. 

God the way his voice sounded in this moment made you weak. The tipsiness you both experienced earlier was wearing off, causing your lack of hydration to become present through your raspy voices. 

But you don’t care. You’re with Renjun, and you are warm and comfortable and in love. 

In love. 

You’re in love with Huang Renjun and you can’t keep it in any longer.

Maybe this would be the best time to tell him. Every time you’re completely sober, you push the idea to the side, trying your best to forget your feelings for him even exist. What if Jun doesn’t feel the same? What if he does but months down the line you figure out you’re better off as friends, and then when you try to get back into your non-romantic routine, everything feels off? You always worry that things will go wrong and Renjun will eventually stop being your friend.

Not tonight though. Renjun looks gorgeous in the moonlight and the little bit of alcohol that remains in your system is acting as your source of encouragement, convincing you to confess to him right now and hope for the best outcome possible. 

“Love,” you reply nonchalantly. 

“Love?” he questions, staring back to you, seemingly surprised with your response. 

“Yeah. Just wondering what the universe has in store for me, you know?” you ask, turning your body to face his direction, criss crossing your legs over one another. “The idea of love both intrigues me and freaks me out. It’s exciting anticipating what will come from it, but the fear of something going wrong down the line makes me not want to pursue it, you know?” you say, staring innocently into his eyes.

He cocks his head, an intrigued look falling on his face. He purses his lips, looking as if he’s going to say something, but remains silent. 

You both remain in silence for the next several minutes, which causes your thoughts to wander. What if Renjun has caught on? Maybe he’s thinking of ways to turn you down gently. Or he’s trying to express that he somehow knows you’re talking about him, and he’s trying to do so in a similar manner. 

But the silence is killing you, and you want nothing more than for Renjun to say something. Anything to get your thoughts to shut up, and your heart race to stop rapidly beating.

“I think you shouldn’t be scared of love,” he finally says. 

Taking a deep breath, he looks off into the sky, admiring the many stars laying millions of miles away from you both. “I get that you never know what may come out of it, but I think it’s worth a shot to know you tried, and to experience something you’re not fully sure is going to work,”  he speaks softly.

“Take a look at the universe for example. It’s so big and undiscovered, yet millions of people are fascinated by it. We’re obsessed with the stars and galaxies and the possibility of aliens- which I know for a fact exist by the way, yet we’re not afraid to spend our time discovering them and giving them our attention. I think of love in a similar manner. Yeah the thought seems so broad and scary, as there’s so many things to experience and discover, but I think it’s worth it. You’re only going to learn new things about yourself and life, so why not give it a shot?”

He clears his throat, and pays his attention back to you. He has a look of determination in his eyes, and that only makes you grow even more anxious.

“Aren’t you a wise expert on love, Mr. Huang,” you chuckle.

“Well what can I say? I do a lot of thinking on my spare time when I’m not bickering with you,” he laughs, positioning himself on his arms so he can get a better view of the night sky.

“Hey!” you shout, pushing onto his arm, causing him to lose his newly comfortable position and to fall on his back. “What are you thinking about Ren? You have this sour look on your face.”

“Well your idea of love got me thinking,” he says softly, staring into your eyes.

Nervousness takes over your body. You have no idea what he’s going to say, and every second of silence is eating you up.

“And?” you say abruptly, eager to know what he’s about to say. 

“I’ve been thinking about this for a while now, and I don’t know, I never thought much of it because I’m a wimp, but I think I’m going to ask Yeri out” he confesses, a small smile forming on his face. 

The mention of Yeri makes your heart sink. Yeri. He wants to ask out Yeri. Not you. 

Of course he likes Yeri. What isn’t there to like about her? She’s really pretty and polite, and they’re both the editors of the school newspaper, so they spend a great amount of time with each other. 

God this hurt. 

“Oh really,” you respond, with a less enthusiastic tone replacing your prior happy one.

“Yeah. We’ve been getting to know each other a lot more ever since we got asked to do this editorial on the basketball team, and I think I may have feelings for her”

“Well, um I think you should go for it Renjun, “ you reply, looking off into the stars to help keep what’s happening off your mind. If you look into his eyes, you’re certain you’ll start crying.

If it’s not you, you’re glad he has an interest in a girl with a golden heart and personality. 

“You think? What if she doesn’t like me?” he asks nervously, fiddling with the rings on his fingers.

“Like you said Ren, you never know what will come from love. Why not give it a shot if it’ll lead to potentially greater things not only within yourselves, but life in general? And if she ends up only seeing you as a friend, it’s okay. You’ll find someone one day who loves every part of you.”

And you can’t help but know deep down that that person is you. If Yeri rejects him, you’ll be right here to help him pick up the pieces, if not, you’ll still be here. As his best friend. Renjun deserves all the love and happiness the universe has to offer him, and despite being sad he shows no romantic interest in you, you’re glad he finds it in an amazing girl. 

“Alright cool, I guess I’ll ask her out on Monday when we meet up to discuss the paper then.” he says, smiling to himself. 

He looks so happy. Ecstatic even. You haven’t seen him smile this big since he won first place in your school’s art show.

“She’s here you know, at the party,” you say to him. “You should do it now.”

“You think?” he asks, eyes wide. 

Renjun was never one to act on impulse. He’s a man with a plan, and always has to do things by the book or else he’ll lose his hair. He likes structure and time, a complete flip from your bold and impulsive self. 

“Yeah, why not? You’re both here, you look really cute right now, and the stars are out in your favour, shining bright to provide you with the courage to do so.” 

This makes Renjun smile. You’ve always been a help in boosting his confidence, and you’re glad to be of assistance in such a nerve-wracking yet exciting period in his life. 

Standing up, he dusts the possible dirt off his legs. He crouches over, looking into your eyes and grabs your hand. “You’re the best y/n. I don’t know what I’d do without you.”

“As I with you,” you reply, a soft grin forming from your lips. “Now go downstairs and ask her out before she leaves.”

Standing back up, he begins walking to the door. “I’ll let you know how it goes!” he half shouts, pressing his hand to the door handle,  and making his way back into the house. 

You’re now left alone, on the rooftop, with just the stars and your thoughts. 

Why didn’t you bring up your feelings to him sooner, you thought. Now you’re only left sad and alone, because you were too scared to tell your best friend you’re in love with him. Confessing to him seemed so perfect in your mind a couple minutes ago, but sadly the universe has other plans in store for you. 

You decide to get comfortable and lie down, and begin to look at the constellations that are possibly present within the night sky. You can still hear the loud, most likely drunk people just a floor below you, and the vibration of the music hitting your body despite being away from the noise. But you don’t care. It’s just you and the sky, and you’re doing everything in your power to forget about the party below you, and to focus on the stars. 

As you point out the orion in the sky, you feel a buzz in your back pocket, indicating that you’ve got a text. Reaching for it, you unlock your phone, and see a notification stating that Renjun messaged you. Pressing on the messages app, you click on his name and read the following:

jun bug: she said yes!! we’re going out on tueday after we’re done editing :) (2:17 AM)

“Yes.” Yeri said yes. 

You’re happy for your best friend, but for yourself, you’re heartbroken. The possibility of dating him is now slim to none, especially since a potential girlfriend is in the mix, only making you more sad for yourself. 

You make sure to reply quick, and in a way that’ll make him happy, and hopefully provide you with the positivity that everything will be okay.

y/n: i’m so happy for you ren <3 (2:18 AM)

As you press send, you feel the tears start to slide down your cheeks. You’re happy for him, you really are, but you can’t help but wish that things went differently, and that you were in Yeri’s position. 

But as Renjun said before, love can be scary. It’s a learning experience, and if it doesn’t work out, you just need to take what you can from it, and hope for the best in the future. 

So you’ll take his words, and you’ll try your best to move on. 

It’ll be tough, but you hope to god that one day he’ll just be your best friend, and that this heartbreak won’t last with you forever.