#ihavehs

[doraj19]

I have a little known autoimmune disease called Hidradenitis suppurativa. Most of my family, a few of my friends know I’ve been suffering with this ‘invisible’ disease since I was in my teens. (I am 56 now) It is not contagious, it IS debilitating and painful 😣 😖 It is extremely hard to discuss with people. Most of the population have no idea what this disease is, much less how it can change your life. Mine is beneath my clothes, unseen by public eye, but it makes my life unbearable for weeks and months. It’s not a disease because I’m dirty, or have contact with cats or pets. It may be invisible to the outside world but it’s not invisible to me. I am #HSAware I live with HS every second, every minute of every day of my life. It touches and colors everything and anything I do, from the way I walk, move, sit down or lay down. There’s not a cure. There’s not enough research to prove any drugs, diet regimens or lifestyle changes can eradicate it or lessen it. I try to stay positive with support from the HS Aware FB & IG page. . . . . @hsawarenessnomoresilence #hsawarenessnomoresilence #hsaware #hsawareness #hidradenitissuppurativa #ihaveaninvisibleillness #purpleisforHS #hsawarenesslife #HSsupport #IHaveHS (at Crow’s Nest Capitol Heights) https://www.instagram.com/p/BvBA4l7gH9m/?utm_source=ig_tumblr_share&igshid=11mpf74tu9zwz

[ajonescreates]

🎵 reunited and it feels so good 🎵 #disneyland w/ @cali_moves #reunited #friendscoasttocoast #linesballeybfa #wegowayback #shehasmyback #ihavehers (at Disneyland)

[ohthatkayla]

Saw @thisisjillmarie post this and had to share. This is so important, especially for us with Hidradenitis Suppurativa. We are constantly battling our body but we have to remember it is our responsibility to take care of our skin in whatever way we can to ensure healing. Love your skin! #hswarrior #hidradenitissuppurativaawareness #hidradenitissuppurativa #hsstrong #hsawareness #hsvoice #ihavehs https://www.instagram.com/p/CGoYMM5jjcA/?igshid=1j7d5a7kqxx9l

[ohthatkayla]

The weekend has been rough for me. I wanted to share this because it represents what I try to explain. If you know someone with hs or you have a supporter who needs to hear this, please share. #hswarrior #hidradenitissuppurativaawareness #hidradenitissuppurativa #hsstrong #relatable #illness #chronicillness #ihavehs #hopeforhs #hsawareness https://www.instagram.com/p/CF7RJ2wDJU9/?igshid=mov0raldyaof

[ohthatkayla]

Saw this and related to it soooo well. I also love the design. By @ksandhs , follow them for some great content! #hswarrior #hidradenitissuppurativaawareness #hidradenitissuppurativa #ihavehs #hopeforhs #hsstrong #relatable #pain #hsawareness https://www.instagram.com/p/CFyY_JDjkqD/?igshid=lpbbb4199o73

[ohthatkayla]

I'm just going to leave this here. #gaslighting #patient #hswarrior #hidradenitissuppurativaawareness #hidradenitissuppurativa #ihavehs #hopeforhs #hsstrong #relatable #illness #chronicillness https://www.instagram.com/p/CFtAPCBD6zX/?igshid=1n1ec7zydo1kg

[ohthatkayla]

Already the weekend and I am starting off late. Trying to get motivated and take care of things. ONE STEP AT A TIME! Who else feels like crawling back into their cave? #hswarrior #hidradenitissuppurativaawareness #hidradenitissuppurativa #ihavehs #hopeforhs #hsstrong #relatable #hsstrong #tired #autoimmunedisease #chronicpain #chronicillness https://www.instagram.com/p/CFU4QYjDcVU/?igshid=oajgao5o8gmj

[ohthatkayla]

Though everyday is a new day there is never a way to know how you will feel. Chronic pain will be a daily gamble. All we can do is find and give support as we come together as a community. #hswarrior #hidradenitissuppurativaawareness #hidradenitissuppurativa #ihavehs #hopeforhs #hsstrong #relatable #chronicpain #autoimmunedisease #pain https://www.instagram.com/p/CFQ_UwZDlUI/?igshid=1k4cw6hnk3htw

[ohthatkayla]

Saw this and had to share. One of my biggest triggers is Little Ceasars. What is yours? #autoimmunedisease #triggerfoods #hswarrior #hidradenitissuppurativaawareness #hidradenitissuppurativa #ihavehs #hopeforhs #hsstrong #relatable https://www.instagram.com/p/CFGgFaADr39/?igshid=oxqdlhaqgcui

[ohthatkayla]

Feeling good doesn't always seem like an option for those with HS, but it helps if we can see the bright side of things. Today can be better than yesterday. 🌈 #hswarrior #hidradenitissuppurativaawareness #hidradenitissuppurativa #ihavehs #hopeforhs #hsstrong #relatable #hsvoices https://www.instagram.com/p/CE9kEnljTYy/?igshid=3veu9mqdqt2s

[ohthatkayla]

Together we are strong. #hswarrior #hidradenitissuppurativaawareness #hidradenitissuppurativa #ihavehs #hopeforhs #hsstrong #relatable #hsawareness https://www.instagram.com/p/CE808FYD9PZ/?igshid=v0tzn0kx0xcp

[ohthatkayla]

Who can relate? #hsawareness #hsvoices #hidradenitissuppurativa #ihavehs #hopeforhs #hsstrong #relatable #hswarrior https://www.instagram.com/p/CEtLYbxjU6-/?igshid=1x4k1i1a2y698

[ohthatkayla]

#hsawareness #hswarrior #hsvoices #hidradenitissuppurativa #ihavehs #hopeforhs #hsstrong #relatable #hswarrior https://www.instagram.com/p/CElIH0RDNR-/?igshid=gvzvde4ionlk

[ohthatkayla]

Saw this and thought this was a great post to express that with HS we can have good days but it doesn't mean that there isn't pain or fatigue. It's just better than our worst. #hswarrior #hidradenitissuppurativaawareness #hidradenitissuppurativa #ihavehs #hopeforhs #hsstrong #hsawareness #hsvoices #relatable https://www.instagram.com/p/CEUNK20DPw_/?igshid=1psxo9fisbd4x

[ohthatkayla]

If you don't have Hidradenitis Suppurativa remember to stop and think about how your loved one or friend may have been feeling when they weren't able to keep up or participate in activities. #hswarrior #hidradenitissuppurativaawareness #hidradenitissuppurativa #ihavehs #hopeforhs #hsstrong #hsawareness #hopeforhs #hsvoices #relatable https://www.instagram.com/p/CEIz_OHDnh-/?igshid=yarb61ds0gp0

[ohthatkayla]

A great list posted by @hs.heroes.ca , these are signs that you many have Hidradenitis Suppurativa. Diagnosis is not an easy feat. Many individuals may go undiagnosed because of the lack of information provided or due to lack of knowledge in Healthcare. #hswarrior #hsawareness #hidradenitissuppurativaawareness #hidradenitissuppurativa #ihavehs #hopeforhs #hsstrong https://www.instagram.com/p/CD6X7dAhleq/?igshid=1ezi4b5m26a21