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#if you have any triggers theyre probably in there somewhere! watch out lol!
isa-ah · 2 years
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big long bluhhgg under the cut lol <3
idk i woke up in my feeilngs this morning so i figure its worth like. talking about i guess. i havent really gone over this again in a couple years so like. yknow. my life story or whatever
so my mom was a kid when she got pregnant and bc of that my grandma took over raising me & even as my mom grew up and moved out i staid put bc as far as i was concerned, my grandparents were my real parents. my mom went on to marry a guy and have two other kids, who she treats like her only kids lol she has her family unit, i have mine, fine. whatever.
when i was a little tiny thing my grandfather was a truck driver. hed only be home once in a blue moon but hed always bring back the coolest little things for me from his buddies and travels. (he had a LOT of stories, about long haul truck driving, being a shrimper til his boat capsized and he nearly froze to death, being stationed in okinawa, all the way back to being raised by an incredibly abusive drunk who ended up blowing his brains out. he used to get all starry eyed in a way id never see him otherwise when hed talk about how cool his dad was, taking him as a young boy to all the local bars. hm.)
my grandmother had a plethora of stories to the same. her parents were both prisoners of war; my great grandmother would tell me about eating snails off the toilets for nourishment while she was in the concentration camps, and my great grandfather idealized the american soldiers that liberated them so greatly he ripped his family up and moved to america the moment they were freed. they would eat hamburgers and hot dogs for dinner nearly every night "like a real american family." they had two kids together- my grandma, and her little brother.
her father enlisted in the american military when they landed here and so she was an army brat. she never got to set down roots really, and was deeply bullied by her peers and beaten to the point of having scars to show me in her late fifties. shed detail the horrible things he did to her, and how it pushed her to sitting in a bathtub alone one night, trying to slit her wrists when a warmth brushed up her back and asked gently against her ear; who do you think will have to clean this up? and after realizing it would be her little brother, she picked herself up and marched on.
(its funny. at one of my lowest points i had nearly the same experience.)
her father would go on to cheat on her pregnant mother, accusing her of infidelity and abandoning her with the baby, my grandma and her brother, and marrying another woman the moment the divorce finalized. the children he would go on to sire with her would create a wide rift in my family of in-fightng and nastiness, as his children believed without doubt that my grandmothers little sister was a bastard and not one of his own.
(at my grandmothers funeral, her sister would confront their ancient ninety-something father, lost almost entirely to his alzheimers as he clung to his wife and cried, with a DNA test proving she was always his daughter. it was really bad.)
my family is known for that in fighting now. the hedrics vs the brodeurs vs the nothern virginia family vs the florida family vs the- on and on and on. always fighting, bickering, cutting people off at the arm. nastiness. its how i was raised, to be angry and cruel, and its difficult to maintain sometimes.
so on we go- my grandfather developed diabetes too severe to keep trucking, and so he lost his job. he sat down in his recliner in front of the TV when he got home from work for the last time and in that recliner he sat til the day he died. nearly twenty years, and id say he left the house maybe a dozen times. no friends, no trips, only attending holidays that were hosted in our tiny home and only speaking to people who were there to visit my grandmother. he would wake up around 9pm and the sound of his tv would blare through the wall of my bedroom until nearly 4pm when hed toddle off to bed. i still cant sleep in silence.
my grandmothers diagnosis wasnt far behind; breast cancer. likely from some hormones shed taken decades prior before the effects of such things had been seen. she was scared, but she was strong, and her best friend moved down from massy to live a couple minutes up the road and help us on the daily. his name was jimmy blackbar, but we always called him jimmy black bear because he was a huge man with a frothy mane of black hair. from then on, we did everything as a unit; every errand, every outing, he even joined my karate dojo when i was forced to learn self defense following the abduction of a local girl.
and on life went. doctors appointments, whispered conversations, attending every susan g komen for the cure event in a wide radius around where we lived. we volunteered relentlessly; my grandmother wearing the "survivor" shirts, and me, a tiny thing in third or fourth grade, pushing her wheelchair and wearing the "caretaker" shirt. jimmy always in tow.
there came a week where we hadnt heard from jimmy in a few days and so, upon leaving the dojo to head home, as we passed his house i asked if we could check on him. my grandmother placated me, saying a man needs his space, and clearly he did bc he hadnt been at practice. just let him rest.
now, that was fair enough. while we did nearly everything together- even spending the autumn in massy with his mother once, arguably one of the most beautiful memories i have as my grandmother and i fed the koi out back then laid in a hammock for hours staring up at the orange and yellow canopy above- he had an explosive temper and had lost it frequently on the both of us. i loved him, but god he could be scary, and hed whip shit at you if he was particularly hot. maybe that was all he needed then, a little space.
a week later my mom picked me up from elementary school and burst into tears in the parking lot. "its jimmy, baby. his heart stopped."
hed had an aneurism and they found him face down on the floor of his bathroom. hed been laying there like that for days, clinging to life; hed been laying there, even, when we drove past a few days prior. i never forgot that.
life went on. it felt empty without him, and i started living up to that caretaker role more and more. heavy lifting, picking, moving; echoed even in my late twenties with my crippling sciatica. every doctors appointment, medication change, every cup of coffee. i was on call.
"jo-bear." "lucy." "goose." "trouble." "brat."
like clockwork, eternally being called up. can you do the dishes? laundry? sweep, mop? can you get this for me? can you help me? can you get my meds? and the less enjoyable; my shingles are flaring, can you put this on there? my drainage tubes are clogged, can you help me flush them? my port needs to be accessed, can you administer this?
why, you ask, would a 13 year old be well versed in clearing, accessing, and administering to a port in their grandmothers chest? well, easy. the nurses we paid to drive well out into the boonies to do it for us said it was too far. it fucked up their schedules. it was a waste of gas. and so they looked around at our home, tiny, with only a woodstove for heating, nicotine dripping down the walls and bare cabinets and pantry, and then they looked at me and asked; do you want to know how to do this instead? and dutiful, because i was a caregiver, because thats what everyone told me, i learned.
being poor is hard. being poor and sick is impossible. the cost of chemo, radiation, insulin, the gas to drive back and forth nearly five hours round trip to visit the hospitals, the doctors- we would only go grocery shopping once a month. my grandmother got social security and my grandfather got disability. wed bundle up what money we could and drive out to the nearest city to buy staples in bulk and pray. it meant i spent most of my childhood eating cereal for meals, or scraping together mayo on bread, or just outright nursing ketchup. i honestly can only remember maybe three instances of my grandmother cooking for me, cooking her special mac n cheese, and my mother told me years later that she always wondered how i got enough to eat.
the local food bank helped, i guess. a small church in town would gather the things the stores were about to throw away, like expired or moldy produce and bread, and then lay it out on the tables and have us all stand around them with our hands at the ready. theyd count down, then call "go!" and we would scramble to gather up anything we could reach to take home. it only happened once a month, so we tried to make the best of it.
after years of battling, my grandmother finally got the formal title of "remission." shed done it! it wasnt easy; there was mishap after mishap, infections, complications, her chest was a mutilated plane of ridges and folds that had at one point burst open and sprayed blood across the bathroom mirror as she screamed my name and sobbed for my grandfather. but finally, she was in remission.
for a few months, anyway. she began to grow uneasy, asking doctors for advice, for scans, because she could feel it encroaching. they all told her she had no insurance and was just paranoid from her battle. it took her months to finally find a doctor that took her seriously enough to humor a scan, and by then the cancer was everywhere. her ribs, her spine, her skull; it was everywhere.
the only person who took the news harder than her was my grandfather. he didnt want to watch her die, so he decided to do everything in his power short of killing himself to make sure he died first. his insulin shots were regular, but his sugar intake was not. he refused physical therapy, stopped going to his doctors appointments, and left our house to smell like the decomposition of human flesh as his feet began to rot.
"rot" sounds like a strong word. the decay was really happening; dry and wet gangreen, his toe coming off in my grandmothers hand at the lightest tug, and an extended hospital stay in which he was deeply deeply lucky not to succumb to sepsis. it was bad. but he was alive.
my mental health had at this point deteriorated to such a point i wasnt sleeping anymore. my grandmother was put on ambien, and as such began sundowning; wandering the house like a brittle confused ghost of a woman. she had dropped weight as she went back on chemo, rapidly dipping from 300lbs down to nearly scraping the bottom of 100lbs. she was shaped like a paper doll by then, wide from the front but she would turn to the side and disappear. i could hold my elbows around her. her head was bald and her feet were cold. she had a soft spot on the top of her skull that malformed her head where the radiation had eaten away the bone alongside the cancer. the knot on her forehead persisted.
she would never recall what she did at night, and while at the time i was indignant- i wasnt sleeping because she would call in a slurred haze to cancel taxis that werent due for several more hours but she thought had never shown up at all for doctors appointments she needed; she would fumble with the locks trying to wander out into the snow in the middle of the night, confused; she would yell my aunts name at me and berate me for trying to coax her back to bed; she would pull down what meager things we had in the kitchen and slurry them, ruin them, then blame me come morning; or, worst of all, she would simply find a place to stand. at the oven, by the small yellow light of its hood, staring into space for hours unresponsive- how dare she not remember how hard i had to work, how tired i was trying to keep her safe, and blame me for it too? it wasnt until reflection years later that i realized her denial was probably born of fear.
the ambien was my own waking nightmare, but it wasnt the worst of it. with my grandfathers rotten feet and my grandmothers mindless stumbling, falls were frequent. i had to be alert. i had to be ready. i never know when one of them would fall wrong and crack their head open on a corner. the mental image is as potent to me now as it was as a child, terrified in the half second of bone chilling silence that would come between the staggering of someones steps and the thundering peels of a body clattering sprawled across the floor. id be up and out of my room in a heartbeat to help, lifting people bigger than myself on pure adrenaline alone back to their seats so i could assess them.
the emergency squad, as you can imagine, was well acquainted with us. most falls had to be documented at least, hospitalized at worst, and so they would begin to come out every few months- then weeks- then days. they knew all of our pets by name. they regarded me with warm sadness. i think they must have said something to my grandfather, as in the thick of it hed tried to pack me up and throw me out. "this isnt a place for children," but if i left theyd have no one left. who would pick them up? check their medication? call the doctors, the emergency line, the taxis? who would make their coffee?
and so stubbornly i staid. i was a caregiver, after all, i was trained by the nurses and professionals who couldnt be bothered. i had to stay. i had to stay. i had to stay.
i stopped spending time with any of my friends beyond taylor. i stopped sleeping over with family. i stopped making day trips. eventually, around 13, i dropped out of school entirely.
i was falling asleep at my desk every day, horrified every bus ride home that id walk in to blood and gore and death. i was too distracted to learn anything and too afraid to really enjoy myself anyway. school wasnt an escape anymore when i was needed so desperately at home.
and so i stopped leaving the house really altogether, unless it was to go somewhere with them or to visit taylor (my rock). id thought at the time that her mother was my saving grace, the only adult in the world who understood me, who would drop everything to help me. i found out later that she hated me, and only did it to martyr herself to her peers and daughter.
as my grandmothers health declined over my teenage years, my grandfather became more erratic. he would throw fits, thundering around the house, slamming shit and crying, yelling at me because, "i'm dying too! im dying and nobody CARES! im dying and no one will even MISS ME!" as i sobbed and tried to reassure him. "my WIFE is DYING and theres NOTHING I CAN DO!"
and at the other end of things, my grandmother; wailing behind locked doors that my grandfather didnt love her anymore, that she was hideous, mutilated, she wasnt a woman anymore nevermind a human at all. i would lay against the door and beg her to unlock it so i could hug her, hold her, promise her that wasnt true. she never did let me in.
and so on life went. winters were always the hardest; we only had a woodstove, so my room was nearly perpetually the outdoor temperature. id sleep bundled in layers, wearing three pairs of socks to try to keep the frigid ache out of my feet, bundled up right up to a hat and hood over my head buried under three blankets to try to keep in some of the heat. it only worked so well when i was up and down all night anyway, looking after them. my grandmother was so withered she hardly produced her own heat anymore, and my grandfather had lost all feeling in his feet; often, hed find, they were resting against the broad side of the fireplace and burning, or the dogs were chewing on them. it was bleak.
now, throughout all of this i had tried my best to stay positive. id been raised in a southern baptist church that i had, at the height of my faith, been visiting four or five times a week. if anyone was going to help me save my grandparents, to be a good caregiver, it would be god right? even if no one else on the planet gave a shit, at least he would, right? at least, so long as i was good, and pure, and holy. no drugs, no alcohol, no self exploration, no expressions of sexuality- nothing. i did absolutely nothing, but try to focus on being a good christian and taking care of my grandparents.
at least, until the tension between my desperate dysphoria and my faith hit a breaking point when a gay couple joined our church and the pastor threw his sermon out the window to preach hellfire and death to faggots. they left in tears in the middle of the sermon and i was spun out and listless thereafter.
i dont honestly remember much from the time i dropped out until nearly 18. i was accused often and loudly of being a drug addicted whore, a liar, a slut, of being inappropriate with my grandfather, with my brothers, entirely baselessly, all thrown at me as a confused and hurt child by my family. it was my first real point of contention with my identity. while id gotten away with looking entirely ambiguous and using male names, male haircuts, male clothes, male interests and male friends to soothe my permeating wrongness at being called a girl, puberty was not kind to me. and with the unease over my gender and sexuality with seemingly no out (as who in a small christian town would have informed me of trans mens existence?), and with the deeply seeded feeling of utter failure as a caregiver whos patients were dying in front of them, and with the loss of my faith that had taught me near lethal levels of self hatred, i had no idea who i was anymore. no name felt right. no role. no place. i was nothing and no one.
and then my grandma died.
it wasnt a surprise. shed been declared "dying" twice before, and had survived. and while shed finally been moved to live with her son as he was right up the road from the hospital a good two and a half hours from us, and had been formally enrolled in hospice, and had withered into the skeletal apparition of a woman, i dont know how serious any of us could take the finality of her, once more, being declared "dying." she wouldnt live to see sunday. it was wednesday.
we went to visit her that day. she lay near motionless in bed, her voice soft and airy. id felt sick, nauseous, unsure of what to even do with myself. i laid with her. i held her. i told her how much i loved her. but the reality of it just kept bouncing off of me. i said my goodbyes, temporarily, until we visited again on saturday- i told her wed be back soon. and i walked out to the living room.
my mom and uncle talked a while longer, and so a good fifteen minutes had elapsed before we turned to actually leave. from her room down the hall i heard her calling. "i love you." and i was so exhausted, so callous in that moment, that from the living room i called back, "i love you too!" rather than taking that opportunity to see her one last time. we were coming back after all.
well. we didnt make it in time.
my grandfather had been hospitalized for the last week or so nearby, and his visit the night before ours hed told her gently, kindly, that she didnt have to keep holding on. it was okay to let go. wed be okay. and so she had, only a few hours after he left. i never got to see her again- she was cremated too soon after.
i have never, never forgiven myself for that. for not going back to see her when she called to me. i had no idea then what it would mean for her to truly die. to never see her, hear her, speak to her, hold her again. never. i didnt know any better.
my grandfather didnt find out until twelve hours later. my grandmother died november fourth, 2014, at around 4am. we visited him in the hospital as a family that same day, around 4pm, after wed all figured out what to say. when he saw us walk in the door, grim and pale and together, hed started hitching as if to vomit or sob or both before anyone had said a word.
after they told him he screamed at us, berated us, why would we wait so long to tell him? why wasnt he there for her? why didnt we call? and as he screamed his kids left one by one until it was only me at his bedside as he broke down. i held him in my arms as he wracked sobs and spit and sweat into the crook of my neck and clutched my shirt like he was a dying man himself.
i spent hours in bed with him, and every nurse, and every doctor who came through to check on us thereafter, and every aid at the nursing home he was sent to recover in received the same monotone greeting; "my name is roland brodeur, and my wife is dead."
i was alone for the week after. i didnt know what to think, or feel. relief, more than anything, at the time. it hd been so hard for so long to try to keep her together, keep myself together, keep our family together; no longer did i need to be up every night to make sure she wasnt hurt. no more wailing and vommitting in the bathroom. no more port flushes, or bandages, or wigs, or hair chunks in the food, or laughter, or her smokers cough, or the way shed say my name, or,
my grandfather successfully broke himself out of that nursing home three times in the week thereafter. only once did he reach the street without falling, and while he had no idea how to get home, he began walking anyway. they caught him, of course, but he was discharged soon after.
and so it was the two of us. wed never been exceedingly close, but without my grandmothers boisterous personality to fill the quiet crevices we began to spend more time together. it was slow; her memorial service was very very hard on us as i, 17, had tried to play host to people twice or thrice my age, and hed refused to come then changed his mind too late and missed it entirely; but we began to spend nearly all of our time together in the living room.
finally, for the first time in my life, he began to take his health seriously. she was dead, and he was alive, and i was still here. so our diets shifted, and he began attending his doctors appointments and bringing home small items for his physical therapy. we were going to be okay.
i turned 18 that december. the holidays were solemn; i was driven out to my aunts where my grandfather had promised to soon follow, but he never showed up. i spent christmas crying to myself, surrounded by family, and he spent it alone in our tiny rotting house.
come new years eve, he, taylor and i sat around trying to enjoy ourselves. this would be a fresh start. this would be a clean late. a month out from her death, maybe we could recover. taylor went to bed, he staid at his post in front of the tv, and i found things to occupy myself until i got tired enough to sleep. (it was hard, sleeping).
come 4am, i crossed the hall to get ready for bed and to say my goodnights to my grandfather. even at a distance though, i could tell something was wrong. he was pallid, sweaty, head hung and eyes glazed. i rushed to his side, turning on nearly every light in the house in the process, trying to get his attention.
he replied in garbled quiet syllables. i called my mom. she told me she was coming. he had a seizure. i called the emergency squad.
and so i staid there, kneeling in front of him and holding his hand, promising over and over again that i was here, im here, im here, im here, theyre coming and im here, its okay, im here.
they arrived nearly simultaneously; bursting through the front door to see what was wrong. over the course of their visit they realized his sugars were off the charts and pumped some insulin into him. as the levels came down he came back to himself, his vision and speech clearing until he was shrugging off their concerns and even cracking a joke. the tension began to ease. hes okay.
and then he had another seizure.
there was a beat of absolute silence before he sucked in a breath and the medic in front of him dropped to his knees to check on him. he was okay. a little out of it, but responsive. thank god.
and then he had another seizure.
and this time, the breath didnt follow. the medics voice pitched up as he repeated his name over and over again, calling him, checking his pulse, his pupils, and as a flurry of yelling began my mom started screaming at me to go to my room. i was gutted, breathless, silent, staring at my grandfathers limp body as the medics swarmed back through the front door and began using the paddles to try to bring him back.
i did relent to my mothers keening, stumbling numb back to my bedroom to where taylor somehow slept peacefully. heavy with grief already weighing in my chest, i crawled up her body and fell face down and sobbing into her stomach. i didnt know what else to do.
the ambulance took him to be air lifted. they did everything they could. he was dead before he ever left our property, though.
the image that still stands out to me was of my mother. it had been with my grandmother too- id been sleeping on her couch as she paced through the living room, crying quietly into the phone, and as i woke up, i knew. and here to, she was on her knees on the living room floor, sobbing and begging god not to take both of her parents so soon. i held her while she cried and told her it would be okay, even if i didnt believe it myself.
its a long drive from so far out in the sticks to reach the hospital. the wait seemed even longer once we were there. they stuck us in a quiet side room, isolated, seemingly endlessly. my mother and i had been crying on and off but taylor had remained stony faced and strong for me. it was only when i looked to her, feeling nothing but coldness in my soul and whispered, "i dont want to be an orphan." that a single tear rolled down her cheek and nothing else.
i think in all the time this happened, taylor was the only person who ever held me.
when the doctor finally arrived, it was with the news we all expected. "im sorry," as he handed my mom a box of tissues, "we did everything we could. he was dead long before he arrived here."
he lead us to see my grandfathers body. it was surreal, to see him laying there, tinted purple and bruised all over. his eyelids were ruddy, and the hand id been clutching hours previous was like ice. his skin still somehow pliant, while his joints had begun to stiffen. i just stood there and held it for what felt like hours. my mother told me later he looked like he was smiling, but i never saw it.
and so. on life goes. my mom drove taylor and i back to my empty terrible little home and dropped us off. we milled around, exhausted, but sleepless. she helped me rearrange the furniture to put less of an emphasis on my grandparents favorite places to sit, as they were plainly visible from my bedroom doorway and the torment was endless as my head turned to smile at them every time i left to use the bathroom. it was awful. when taylor had to leave, i was just left there, alone.
i had failed as a caregiver. i had failed as a grandchild. i had failed as their youngest. i had no one in the world in that moment. that winter was bitter, and i couldnt bring myself to be present enough to keep the woodstove lit. the animals and i all froze for it, but i could barely climb out of bed. no heat, no cable, nothing to comfort me left beyond my own meager devices. i had the first two hobbit movies on dvd and so i stuck them into my xbox and they played nonstop on loop for months. it was the only way to fill the silence. the only voices i could listen to. i dont remember eating a single thing. my family just left me there. i was no ones responsibility, and so i would be no ones burden. as an adult i learned they all felt so guilty over what id been put through they didnt want to face what i would have become after that.
it was in this time the nightmares really began. there was one, one specific nightmare, in which i was in my house in the dead of night with nothing but pitch black outside, and i would run door to door trying to keep them locked and the horrible cruel things outside at bay. i never did see them, whatever i was desperately trying to hide from, but it was omnipresent and i was terrified of it.
at every turn the doors would again be unlocked and open. the latches would give at the lightest tug. the darkness would seep through the cracks. the only variables were my grandparents, like props- sometimes they were there in the living room, unresponsive to me as they stared into the television. sometimes only one of them. sometimes i was alone. but over and over again i had this nightmare, every single time i fell asleep. regardless of the time of day, of if i was sleeping or napping or just resting my eyes, i had this nightmare. and i had it for nearly three and a half years thereafter. sleep deprivation was my only solace from it, driven to such an extent that i began having prolonged hallucinations and severe paranoia.
my only solace was after the pipes froze and burst in our little cement basement. they couldnt justify leaving me there much longer, so my aunt told me- just another two weeks. if i staid in the house she would come to get me to move in with her. at that point i was so happy just to have an out that i begged my neighbor to periodically stop in on the remaining animals in the house so i could go stay with taylor until it was time to move.
my aunt called me LIVID when she found out. she berated me at the top of her lungs for disobeying her. maybe that should have been a red flag, but i was so consumed in my own self blame for my grandparents death that i assumed she was right to feel that way.
i got little say in what was kept when we went back to clean the house out after. in fact, i got almost nothing of my grandparents. to this day, all i have is my grandmothers favorite hoodie. somewhere in the process, the cleaning solutions we had been using must have gotten in my eye because the pain was bad, and the effects would be lasting.
living with my aunt was a nightmare. she was unyeilding; scolding and punishing me for not getting out of bed because the infection in my eyes was so bad i couldnt see and it hurt to have any light hit them. insisting it was my fault i was left nearly half blind, and that my lack of recovery was because i wasnt trying hard enough. (i was told later i had had severe chemical burns and infection that have left my corneas riddled in holes and craters, and severely light sensitive. all of it could have been fixed with a single doctors visit in the worst of it.)
and on it went; i had no time to grieve, as she forced me out the door and into terrible fulltime jobs. they became my only reprieve from her, as any time i was home i had a chore list of no less than four hours worth of cleaning that she would accuse me up and down of lying about on the daily. shed gaslight me, set traps, pull gotchas, until i began to believe her. i genuinely thought i was making up the hours id spend working on cleaning, that i was a lazy liar, and that i deserved the slow recession of any right to food in the house she imposed.
my most beloathed of chores was dishes. every night after dinner, of which i was allowed to eat less and less until not at all, i would have to come down to clean up after the families meals. her pampered chef knives were her prized possessions, and her rules for cleaning them were strenuous. the closest ive ever come to killing myself was standing in that kitchen, over her sink, with one of her favorite knives pressed into my wrist as the depths of sorrow and grief id had to pave over to maintain what she wanted me to do began to crumble.
the only thing that stopped me was the gentle realization that if i killed myself here, the first person to see it would be one of my younger cousins. that that would be something he would never be able to forget or move on from. its the only thing that stopped me.
i would go on to climb the railing of an overpass at around 1am in the dead of a december night. i was bitterly cold, having no winter jacket, a two hour walk from home, being punished by my aunt because the job shed hoisted upon me had kept me later than she felt like coming to get me. so i had no choice but to walk on broken feet after nearly twelve hours of standing, with no winter clothes to deal with the whipping icy winds, and no street lights or sidewalks to follow. i couldnt do it anymore. i was so tired, in so much pain, with only blame and alienation from my family. i just wanted to die and be done with it.
two rungs from flipping my legs over the railing, movement caught my eye. at the far end of the dark overpass was the vaguely visible outline of a golden retriever whos owner was walking it down the long road i had to walk to get home. and i thought, maybe, if i could pet that dog, maybe i could keep going. maybe id be okay. the road was across a wide flat area, prepared for development that had yet to start, so the visibility was a near quarter mile in the moonlight. and so.. slowly.. i stepped down and began to trudge on.
yet, when i reached the end of the overpass, they were nowhere to be seen. there was nowhere to go, mind you, but forward; there were cliffs to either side of the overpass that went down into the highway, and then this single stretch of road forward with no trees or houses for the duration. they had simply vanished. i still dont really know what happened.
and on i trudged. nothing else to do but survive day to day under my aunts open hostility. i wasnt allowed to eat family meals, no, but then rules came about keeping my own food in the house. it would be doled out to my cousins and uncle if i dared to, and food in my bedroom was prohibited. the best i could do was hide a few cereal bars between my mattress and the wall for the days i couldnt eat at work. it was miserable.
"just get over it. youre bumming everyone else out." told to me, six months after the death of both of my parents. no one had asked me if i was okay in that time. no one had held me. no one had told me it wasnt my fault. taylor was the only silver lining i had. she was always there for me at a moments notice, she kept me sane, and god i love her so much. i dont think i would have survived it without her.
i managed to scrape by until i met Lo, the man im due to marry next month. this was nearly seven years ago now, but i still remember the nervous jitters the first time i packed a bag and bought a train ticket to make my first solo journey from virginia all the way down to florida to meet in person. id go on to make the 20 hour trip frequently, falling into his arms and having the brightest points of my life, only to be left sobbing and wracked with fear the morning of my return to my aunts home. it was hell. but i was starting to find reasons to pull through.
even if my aunt had outed me as trans and gay while i was visiting him, effectively burning my bridges with most of my family behind my back and then lying to my face about it for weeks after. my mother wouldnt look me in the eye. my extended family has never once spoken to me since. my own brothers wont come to my wedding because im a faggot, rooted in the reaction my mom had to this and how its grown nasty and dehumanizing since.
(i have a very strong feeling that the majority of the years i spent this way are locked up tight in an alter who hasnt fronted in years. i frequently broke down over depersonalization and being convinced i truly wasnt myself then, in a way i have not felt since. i really cant remember most specifics, but the cadence alone would give it away, i think. at the time i was too afraid to face it head on and define what was happening to me, but in retrospect im nearly positive.)
and so on i trudged. my aunts aggressions would gradually grow over time, until a night where id let my guard down around my brothers visiting us and shed gotten me by the nick of my hoodie and dragged me down my the throat to hiss and growl and snarl nasty things to me over an argument wed had days prior. shed blocked me from the internet and ignored my very existence in the elapsing days. it all came to a head with this interaction, a nasty game of parroting that i was lucky to have her, that i love her, that im grateful she forgives me for the things i do, and punctuated with a hug i was forced to initiate. when i told my coworkers the next morning, in tears, i was told if she put her hands on me once shed do it again. i told my mom the next day i needed her to come get me right now.
the day we went back to get my possessions was the last day i ever spoke to my aunt. she was purple in the face, veins stood out against her forehead and screaming wrathful nasty things at my sobbing mother about me as i tried to gather my things- thrown into a haphazard corner of the garage after id pleaded with her to just leave my room untouched and let me organize and gather my belongings.
my mother hyperventilated on the drive home, and told me through gritted teeth that shes worried my aunt may have been abusing me. i told her exactly what she had done to me, and she had to pull over to stomach it. a week later she told me my aunt was trying to get in touch and i should go ahead and give her a call. (the betrayal and fear i felt in that moment was rivaled only by my mom freely inviting her over to visit without warning me first.)
my mother would ask often when i was planning on moving out. she didnt want me there, that was plainly clear, and the raw edges of my recent outing didnt help. i was given a mattress on the floor in the kitchen, in plain view of everyone at all times, covered in ants with the cat box beside my pillow. my only reprieves were times i spent with taylor or lo, anywhere i could find to be that wasnt her home.
lo was already planning a move with his mother to phoenix by this time, as neither of them could afford a place of their own, and so i was invited along. i dont think ive ever said yes to something so quickly in my life.
phoenix ill elapse; i spent two years making a three hour commute to a job that did horrific things to my mental and physical health. my sciatica was so aggressively hurt by the ways in which i begged my managers for accessibility that they refused that i would often collapse off of numb lightning struck legs, scattering anything i was carrying. my longest shift worked there began at 4am and ended at 12:30am. twenty and a half hours. i got two thirty minute breaks, a single compensated meal, and had to work the next day.
tensions with los mother, a deeply traumatized neuro divergent woman who wasnt aware of any of the above, finally hit a fever pitch and over the course of a week we were rendered homeless, sleeping on taylors floor. while her mother welcomed us in with open arms, her nastiness was prevalent and constant. bitter and put upon by our very existence under her roof. we were kicked out later so her transphobic boyfriend would be more comfortable coming over to visit.
from there we landed a disgusting single room in a frat house in maryland that hadnt been properly cleaned in the years preceding our arrival. it was so bad we left within a month to move in with who would later turn out to be an absolute psychopath of a woman in a slightly nicer house. after a year of trying my best to be friends with her she turned on us, blew up our living arrangement, called the cops on us, got the wifi cut for a week, took all the locks off our front door so we couldnt lock her out & eventually got us evicted entirely. why? because i asked her to buy some food for her cats because in the weeks she hadnt been home and id been taking care of all of her animals (not that shed asked me to) theyd run out of kibble.
and that rounds us out to now. los mom drove up to get us, two years out from phoenix and a lot of self discovery later, were now out here in the sticks of alabama. lo and i have been together nearly seven years now and were slotted to get married next month, so life really has begun to look up for me, but man. sometimes its all just so fuckin much. i went through so fuckin much and for what? yknow? my family is still shit. i dont speak to my aunt, my mother and brothers refused to come to my wedding, my grandparents and jimmy are still dead, and so my entire world has been condensed down to a handful of friends- taylor, elliot, ofc my fiance- and really nothing else. i dont really feel like i have any family anymore. its a grieving process still, to accept that, loss after loss like that, but it gets a little easier every day.
& anyway if youve ever wondered why i have a system, i think it oughtta make a little more sense now. lol.
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and-i-uh · 4 years
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6? 22? Any other number you wanted to answer?
6- i dont have any stim toys, ive never really delved into that stuff, i was never really given the chance to explore stuff that would help me out with stimming and such. I also dont think i would like stim toys? Maybe i just have to try some but idk.
22- idk any specific songs i stim to. But ive stimmed while listening to mcr, and honestly i just stim to alot of the general songs i listen to. I really like singing along, i think thats a stim of mine, and some songs just listening to them is like stimming (anything with drums and/or guitars)
2- i like blankets a lot. Even if im hot and dont really need one, ill subconsciously grab the blanket on the couch and put it on my lap, and on my bed. There was one day i grabbed a pocket-sized beanie baby and put itin my hoodie pocket, and just knowing it was there made me happy. Also when i was with my friends one of them stuck their hands in my pocket and i panicked and like moved it out of their reach bc i was scared to get made fun of lol, it ended up being fine. I sleep with stuffed animals a lot. I think thats it
3- my school experiences were,,, not fun at all. Theres a lot to unpack there. My schools all had this thing called a “504 plan” or whatever. And it’s supposed to help people with certain disorders/disabilities. Mine only acknowledged my adhd as far as i know. Maybe my anxiety too. Some of the things that were supposed to ‘help’ were moving me to the front of the room, i got extended time to complete stuff (supposedly), extended time on certain tests (which i only saw on the act, literally i got no other extended time to do anything else. And after i got extended time on the act my scores shot up. Imagine the potential if i was given my actual extended time shit) and the meetings were hell. They started to have meetings with me in middle school, sixth grade i think. Having an administrator there, and my parents, and at least one teacher was terrifying to me. I think i cried every meeting. Honestly it felt like an interrogation to me, esp with all the damn eye contact and shit. My dad asked me if i wanted to continue it this year and i was immediately like fuck no nuh uh not happening. And whether or not I actually needed to be in the front of the room depended on the class, teacher, the people in there, but a lot of the time i would just be moved to the front and i would hate it. In eighth grade my math teacher moved me from the back of the room (a favorite seat in that class) to the front of the room in the middle of class for like a week. It was honestly humiliating and the only time i was eventually able to express my opinion on the 504 shit. Actually my freshman math teacher did that too. Ahaha moving on now before this gets too long.
4/5- three negative and positive things about being autistic.
Pros-
(1) i dont really have a chance to not have a hobby. Ive always got an interest to keep me entertained and i like that.
(2) stimming is nice, i like it, im not afraid to let myself stim. Makes me feel better.
(3) im unique and shit. I have a different pov than other people and that allows me to have different ways of thinking. I think outside the box ig. I also have this weird version of confidence and objectivity that I appreciate in myself
Cons-
(1) its hard to feel like i belong somewhere, bc im so different. Im getting better at it but im not good at getting close to people.
(2) i also like,, dont have certain permanence? Like object permanence? A lot of the time i dont really miss things/people unless im somewhere that reminds me of them. Idk if it’s negative really but its something,, even a spin, like bts, i dont really miss them that much until i do. Theyre still very important to me but yeah
(3) people dont really get me the same way other people get other people. And its hard for me to explain it to people. And theres certain people i get more than others. Its weird.
7- people need to give autistics a chance to be heard. Apply the accommodations you “give” them. Dont put them in the spotlight and give them space when needed. We are what you might call “picky” too. Eating, learning, socializing, we have our own things we need to be able to do shit. Learn them. Let us stim. Encourage us to learn about ourselves and remind us that youre there for us. But dont try to help us unless we ask or we actually need help. Dont trigger meltdowns on purpose, stop using the r word even in passing like its not a big deal. Be more than aware of us, accept us, appreciate us. Dont be a bystander.
8- i dont have much experience with meltdowns? I think? If i have i didnt have chances to recover. I had to go back to class or something. Idk how to recognize them in me either.
10- showering. Thats a big thing that even though i kinda need i forget to do. Except during school. I had a whole routine in the morning and i was super punctual. If i didnt shower i would be late, miss the bus, forget something.
12- meat. The way it feels. Disgusting. How do people eat it and not feel like dying? Same with lettuce. Spinach is fine but every time i try to eat lettuce I almost throw up. Bell peppers, pickles, vinegar, mayo, eggs usually, cheese sometimes. Just off the top of my head. One time i tried putting lettuce on my burger, was feeling adventurous, and after biting down i had to just take the lettuce off. Another time, my stepmom (newly married to my dad) made slads for us, and i was skeptical. There was white stuff all over the salad and she wouldnt tell me what it was. I tried eating a little carrot stick thing and almost vomited. Thats when she learned I cannot eat mayo. Even if idk that its mayo i still cant fuckin eat it. She forced me to eat bell peppers one time. Didnt go well at all. At all.
(Not gonna do the spin one bc ive already talked about them and if i do again itll be too long)
15- yes! I only do big stuff(?)(like yelling n shit) when im completely alone. Like if im home alone. Bc i get so loud. Sometimes ill hum in my room or sing to myself in my room though. Its so fun. As for phrases i repeat, ill repeat anything i find interesting. In a movie or song, or even something a friend said. One time my mom said the phrase “tough titty said the kitty but the milks still good” and i went around the kitchen repeating it until she got annoyed. Also sometimes something in the room will have a constant sound and ill like think a phrase to that sound repeatedly. Idk how to explain it lol. Idk if thats echolalia either
16- rocks. Typical i know, collecting rocks. But i just cant help it. I see a rock i like, i pick it up, take it home. I used to collect sticks. And when i was in elementary school, i used to pick shit up off the playground. Beer bottle caps was a favorite. Apparently the school called my mom about it bc they found my stash and thought it was from home and my parents were drinking excessively. 😬 oops
18- introverted?
19- kinda depends. Idk. I really cant tell wow. I would probably say hypersensitive. Just cause i have a ton of sensory issues and a lot of stuff bothers me. Like types of clothes. And how things are resting on my body. Yeah i guess i am hypersensitive.
20- i used to struggle with self love a lot. And sometimes i still kinda do. But in the past few years ive really started appreciating myself and trying to learn a lot about myself. Its going well id say.
21- empathy. Hmm. I think im very empathetic, actually. I can always tell when someone is feeling uncomfortable in a situation. And when i should tell people to back off of them if they wont say it themselves. And im very uncomfortable when theres secondhand embarrassment. And bullying, in something im watching or reading. Yknow, I actually cant watch mean girls. I just. I tried, i had to walk away bc I couldn’t take it. It also kinda triggers me so theres that. Bc of the bullying. But yeah im very empathetic. Otherwise socially im not good at that.
23- nope. Ive got like no support system other than tumblr and online friends. Apparently my dad refused to acknowledge im autistic and hes my favorite parent. Thats his big flaw though. And if i “came out” to him and said it myself he would probably come around. I know hes not completely nt either. My Opa has ocd, so nuerodiversity runs in the family ig.
While making this i got distracted and went on insta for like an hour oops lol
24- steampunk cosplay? Or college dorm tips? The steampunk one was freshman year, and the college dorm one was fifth grade. It lasted well into sixth grade and seventh grade.
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timefought · 5 years
Text
   rules.
   i.
     my name is kitty. i am 24 years old, and am wiradjuri & ashkenazi/sephardi. i live in australia ( gmt+10 ). i studied palaeobiology, evolutionary biology & animal behaviour, but dropped out to be terminally ill instead. i’ve been roleplaying since neopets days. i grew up watching dr who ( & my middle name is a very obscure dr who reference ), and am a life-long classic/eu fan. my pronouns are they/them exclusively.
    ii.
   as you might have twigged from the above, i’m very sick. replies sometimes take a long time. i try to work on them as fast as possible but sometimes life aint like that. i DO miss replies relatively often, so you’re always welcome to pop into my IMs to let me know if you’ve posted or just to chat, but i’m sorry in advance if you like very prompt replies. i’m not that bitch. i wish i was. please just dont badger me. i’m doing my best, my best just sucks.
   iii.
     PLEASE read my about thoroughly. i know it’s dense, i’ve tried to break it up as much as possible for ease of reading & locating specific information. it’s also a continuous wip;; i am adding more and more to it as i go to make things easier on partners and potential partners to find what they need. i really will know if you haven’t read it.
   iv.
     i tend to write long replies, with icons if my partner uses them. i don’t necessarily expect it to be returned, but i do require a proper response i can reply to. charlie wont chase after your muse, under pretty much any circumstances, and i need some substance to a reply to be able to write something. generally, i don't really enjoy chat type things. i like something to be happening.
   v.
     i cant believe have to say this but: racism is bad. nazis are bad. fascism is bad. conservatism is bad. transphobia, homophobia, misogyny, ableism, anti-semitism —- theyre all bad. don’t do them. yes, i will call out users who act like fuckwits. if that’s ‘causing drama’ to you, you’re free to hop on your bike and idk grow some ethics i guess. if you couldn’t tell from the content of my blog, i don’t allow that bullshit & if you do, even by just ignoring it and avoiding the topic entirely, you’re not welcome either. i get that’s a hardline stance to take. if that scares you, i cant say im sorry. this goes for people who ship incest/paedophilia/rape etc, too.
   vi.
     smut, shipping, etc: obviously, i’m an adult. i’m 24. i will not write anything even vaguely sexual with anyone under 18. i won’t write anything more than platonic/mildly vaguely romantic with anyone under 18. i am open to ships. a brief note, though;; charlie mostly prefers women in both her platonic and romantic life. men are, mostly, simply a means to a financial end. yes, she’s likely in many context to vaguely proposition men. this isnt an attempt to force anything, it’s just the character, & to be honest she's probably just gonna mug em anyway. i am open to shipping otherwise generally, you’re free to come into my inbox at any time or send a meme or anything if you’d like to. chances are i’ll be open to it.
   vii.
     triggers will be tagged on request, but any issue you have can be brought to me directly. i’m happy to chat about anything, so dont be worried about approaching me. it’s all good.
   viii.
     i don’t send in rule passwords. i do read rules, but i just hate doing that. sorry.
   ix.
     please if you’re following from a personal for a rp sideblog, i need you to tell me ( personally or somewhere on your blog that is easy to find ) what blog its for. if you don’t i might block you, just because ive had personals cause me problems before. ( longtime personals-of-people-i-know are obviously fine lol )
   x.
     i have discord available on request for plotting/chats, and my IMs are always open. im usually around if i’m awake.
     theres probably more to come.
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