#ibdorknownasinflammatoryboweldisease

[crohns-girl]

#crohnsdisease #crohns #colitis #ulcerativecolitis #ibd #ibdorknownasinflammatoryboweldisease

[tropicanine]

make jokes about yourself to get going skmehow. if you're german you get it. well it's basicly saying bag animal which would be a marsupial. hence the stoma i found it was quite funny I even called an email of mine like that before. I just had to take it. #colitisawareness #colitisulcerosa #ulcerativecolitis #crohn #crohns #ibd #ibdorknownasinflammatoryboweldisease #photooftheday #may #bag #backpack #ourlifewithcrohns #illness #crohnicillness #autoimmuneillness #autoimmune @ulcerativecolitissupport @our_life_with_crohns

[queenbeeofibd]

So today is #worldibdday so thought I'd share this. I suffer with Crohns colitis. I live each day fighting off fatigue, stomach cramps, anaemia, joint pains and having to think about what I eat on a daily basis. I'm actually one of the lucky ones. Im still able to work and pretty much do what I want whereas so many others can't. Work have thankfully allowed me this day to raise awareness in gym. I'm hosting a charity football match end of June and I'm able to live a pretty normal life despite having this awful disease. - Shared from @andywhittamore #ibdsuperheroes #ibd #crohns #colitis #awareness #livingdaybyday #invisibleillness #notaprogresspic #gym #dwffdunstable #dwff #charityevent #30thjune #crohnswarrior #ibdwarrior #ibdlife #ibdproblems #ibdawareness #ibdorknownasinflammatoryboweldisease — view on Instagram https://scontent.cdninstagram.com/vp/154bc93e626d8678e46cdfc420f5480f/5B846F12/t51.2885-15/s640x640/sh0.08/e35/31906344_2075062212707348_6309509027445342208_n.jpg

[jrobinjrob]

Tired

 Well, I am so tired. I am tired of endless sticks from needles for blood work and tests,  believe it or not they really hurt and account for large amounts of time in waiting rooms. I’m tired of the trips to see Doctors, them shrugging their shoulders saying they don’t know what is causing me pain, they too account for large amounts of time in waiting rooms. I so tire of x-rays, the radiation cannot be good for me, I’m sure I am at a much higher risk of cancer than “normal“ people, again life sucking waiting rooms. I’m tired of tests, tests, tests, and all the time they take in waiting rooms. I am so utterly tired of these deadly medicines I take, azathioprine is one the reasons I have to get blood work, to check my liver, as it causes liver failure and cancer. Humira risks include cancer, heart failure, serious infections, and sudden death. I’m beyond tired of shots, flu shot, pneumonia shot, monthly B-12 shot, ouch, ouch, ouch let alone the time in waiting rooms and every two weeks I give myself a shot in my belly that hurts beyond description, Humira! I tire of endless drives to appointments again life sucking. I tire of colonoscopies and hospital stays (12 in the past 4 years). I tire of humiliation involved in many of the tests and sometime everyday life.

 More than all else I am so very tired of being terrified, why, all of the things above. I fear Mr. Robinson your blood work shows you have something going on, Mr. Robinson these x-rays show something wrong, I’m sorry Mr. Robinson you have liver failure, Mr. Robinson you have auto immune this or that, (so far I have got to hear that three times). I’m tired of being afraid, so tired of this part… Looking back to the first time I heard “Mr Robinson, I’m so sorry, you have Crohn’s disease” at which I was very relieved to have a name for what was going on. Ever since that day and the research I did, I have been scared, scared as hell…

 I guess I tire of all the bad things that go with Crohn’s disease and being an auto immune baby. What I do not tire of is all of the wonderful people I have met, all of the supportive people that have stepped up saying I’m here for you, people that I have never met and people I have known for years. Fred Rogers said in a time of need “The Helpers” are everywhere, running straight to the problem, well I am surrounded by the helpers, and I never tire of these people and love them dearly…

[crohns-girl]

#ibd #ibdorknownasinflammatoryboweldisease #crohns #colitis

[crohns-girl]

#ibd #ibdorknownasinflammatoryboweldisease #crohns #colitis (at St. Clair College Centre for the Arts)

[crohns-girl]

Having family help you though an illness

When someone becomes sick in a family , the journey they take is very seldom ever a journey they take alone. It is a journey that love ones often take with with the patient . They as a family unit grow and face difficult challenges . They go though the highs and lows together . The strength of the family unit grows so much in a short time . This is key to the progress the patient makes which is also essential to the families and patients well being !

[crohns-girl]

Thank you so much for sharing your page with me Julie ! I hope everyone checks it out and show her some love !

[crohns-girl]

#Crohns #colitis #ibd #ibdawareness #ibdwarrior #ibdorknownasinflammatoryboweldisease #crohnsdisease #ulcerativecolitis #spoonies #invisableillness #chronicillness #chronicallyill #crohnsandcolitis #crohnsjokes

[crohns-girl]

In this brochure you will find advice on how to handle the basics of living with inflammatory bowel disease from others who have been down the road as well. For more information, find us online: www.thegutsygeneration.ca www.facebook.com/thegutsygeneration

There is a a great pamphlet ! Please Rt to other #crohnies The Gutsy Generation is the voice of the new generation that Youth affected by Crohn’s disease and ulcerative colitis, the two most common forms of inflammatory bowel disease (IBD). The CCFC Youth Advisory Council (YAC) helps advise the Foundation on how to better engage youth in the mission – to find the cure for IBD. As youth between 15 and 24 years of age, we face unique challenges with our diseases. Even though IBD affects more than 200,000 Canadians, it is not uncommon to feel isolated. We believe that no one needs to go through this alone. It is our goal to help youth by providing them with knowledge and by connecting them with others going through the same experiences whether it is navigating through high school, going on your first date or surviving frosh week on a gluten free diet.for the whole story read the pamphlet http://www.isupportibd.ca/pdf/brochure-youth-support.pdf ......... In this brochure you will find advice on how to handle the basics of living with inflammatory bowel disease from others who have been down the road as well. For more information, find us online: www.thegutsygeneration.ca www.facebook.com/thegutsygeneration

[crohns-girl]

#life #kindness#whatdidilearn #crohns #crohnie #crohnsgirl #colitis #ibd #ibdteam #ibdorknownasinflammatoryboweldisease

[jrobinjrob]

Hey Friends,

  It's just me, just Josh,

Just one person in at least five million worldwide (probably many more since 50,000.each year is diagnosed), at least 1.5 million Americans that suffer from a Chronic Illness called inflammatory bowel disease (IBD), Crohn?s disease and ulcerative colitis, we have no cure. We, I could really use you help!

  I spend a lot of my time working in Taylor County, WV for youth sports, I am a basketball coach, (good one) and a baseball coach, I  really enjoy the Kiddo?s. My last basketball All Star Team went 24 and 2.  I also spend some time on Veterans Affairs, and my Son (ARob) and I walk every year for breast cancer in our local Relay For Life.

  This time of year is for me. I am and have been sick for 5, years with an incurable disease called Crohn's disease, Crohn's is illness that causes never ending sickness and pain, and as of late I am very sick again. The meds I take are deadly, they cause infections, heart failure, liver failure drug induced Lupus and sudden death, and the illness can be deadly as well. I have lost 5 very good friends just in 2012 to Crohn?s, and a beautiful friend to Meningitis whom has a sweet little girl with Crohn's. 

  Please consider me and my friends a worthy cause. I know that many of us are struggling financially right now and I know there are many causes out there to contribute too.  But I am asking you as my friend to please donate any amount of money you can and walk with me, us, on June 29, 2012 at Hazel Ruby-McQuain Riverfront Park, Morgantown WV. Registration begins at 3:30PM. I am so looking forward to you guys being there, and again I?m not beating around the bush, I your help and support, your money and support will help me and my ?Crohnies? survive and find a cure!!! ( I love these people more then you can know)?. Last get together the CCFA had they told us VERY big things are right around the corner!!! So join me, PLEASE I need you, join our cause!!!

Just Me, Josh!!!

June 29, 2013

Hazel Ruby-McQuain Riverfront Park Registration Start: 3:30 PM Walk Start: 4:30 PM