#ibdorknownasinflammatoryboweldisease

[crohns-girl]

#crohnsdisease #crohns #colitis #ulcerativecolitis #ibd #ibdorknownasinflammatoryboweldisease

[tropicanine]

make jokes about yourself to get going skmehow. if you're german you get it. well it's basicly saying bag animal which would be a marsupial. hence the stoma i found it was quite funny I even called an email of mine like that before. I just had to take it. #colitisawareness #colitisulcerosa #ulcerativecolitis #crohn #crohns #ibd #ibdorknownasinflammatoryboweldisease #photooftheday #may #bag #backpack #ourlifewithcrohns #illness #crohnicillness #autoimmuneillness #autoimmune @ulcerativecolitissupport @our_life_with_crohns

[queenbeeofibd]

So today is #worldibdday so thought I'd share this. I suffer with Crohns colitis. I live each day fighting off fatigue, stomach cramps, anaemia, joint pains and having to think about what I eat on a daily basis. I'm actually one of the lucky ones. Im still able to work and pretty much do what I want whereas so many others can't. Work have thankfully allowed me this day to raise awareness in gym. I'm hosting a charity football match end of June and I'm able to live a pretty normal life despite having this awful disease. - Shared from @andywhittamore #ibdsuperheroes #ibd #crohns #colitis #awareness #livingdaybyday #invisibleillness #notaprogresspic #gym #dwffdunstable #dwff #charityevent #30thjune #crohnswarrior #ibdwarrior #ibdlife #ibdproblems #ibdawareness #ibdorknownasinflammatoryboweldisease — view on Instagram https://scontent.cdninstagram.com/vp/154bc93e626d8678e46cdfc420f5480f/5B846F12/t51.2885-15/s640x640/sh0.08/e35/31906344_2075062212707348_6309509027445342208_n.jpg

[jrobinjrob]

Tired

 Well, I am so tired. I am tired of endless sticks from needles for blood work and tests,  believe it or not they really hurt and account for large amounts of time in waiting rooms. I’m tired of the trips to see Doctors, them shrugging their shoulders saying they don’t know what is causing me pain, they too account for large amounts of time in waiting rooms. I so tire of x-rays, the radiation cannot be good for me, I’m sure I am at a much higher risk of cancer than “normal“ people, again life sucking waiting rooms. I’m tired of tests, tests, tests, and all the time they take in waiting rooms. I am so utterly tired of these deadly medicines I take, azathioprine is one the reasons I have to get blood work, to check my liver, as it causes liver failure and cancer. Humira risks include cancer, heart failure, serious infections, and sudden death. I’m beyond tired of shots, flu shot, pneumonia shot, monthly B-12 shot, ouch, ouch, ouch let alone the time in waiting rooms and every two weeks I give myself a shot in my belly that hurts beyond description, Humira! I tire of endless drives to appointments again life sucking. I tire of colonoscopies and hospital stays (12 in the past 4 years). I tire of humiliation involved in many of the tests and sometime everyday life.

 More than all else I am so very tired of being terrified, why, all of the things above. I fear Mr. Robinson your blood work shows you have something going on, Mr. Robinson these x-rays show something wrong, I’m sorry Mr. Robinson you have liver failure, Mr. Robinson you have auto immune this or that, (so far I have got to hear that three times). I’m tired of being afraid, so tired of this part… Looking back to the first time I heard “Mr Robinson, I’m so sorry, you have Crohn’s disease” at which I was very relieved to have a name for what was going on. Ever since that day and the research I did, I have been scared, scared as hell…

 I guess I tire of all the bad things that go with Crohn’s disease and being an auto immune baby. What I do not tire of is all of the wonderful people I have met, all of the supportive people that have stepped up saying I’m here for you, people that I have never met and people I have known for years. Fred Rogers said in a time of need “The Helpers” are everywhere, running straight to the problem, well I am surrounded by the helpers, and I never tire of these people and love them dearly…

[crohns-girl]

#ibd #ibdorknownasinflammatoryboweldisease #crohns #colitis

[crohns-girl]

#ibd #ibdorknownasinflammatoryboweldisease #crohns #colitis (at St. Clair College Centre for the Arts)

[crohns-girl]

Having family help you though an illness

When someone becomes sick in a family , the journey they take is very seldom ever a journey they take alone. It is a journey that love ones often take with with the patient . They as a family unit grow and face difficult challenges . They go though the highs and lows together . The strength of the family unit grows so much in a short time . This is key to the progress the patient makes which is also essential to the families and patients well being !

[crohns-girl]

#crohns #colitis #ibd #ibdorknownasinflammatoryboweldisease #ibdawareness

[crohns-girl]

#crohns #colitis #ibd #ibdawareness #spoonie #ibdorknownasinflammatoryboweldisease #leakygutsyndrome #crohnsdisease #ulcerativecolitis

[crohns-girl]

#summertimefun #ibdorknownasinflammatoryboweldisease #crohns #colitis #crohnsgirl #ibd #ibdawareness

[crohns-girl]

Hey you ! Your a survivor #crohns#colitis#ibd #ibdorknownasinflammatoryboweldisease #ibdcommunity #spoonies

[crohns-girl]

Thank you so much for sharing your page with me Julie ! I hope everyone checks it out and show her some love !

[crohns-girl]

#Crohns #colitis #ibd #ibdawareness #ibdwarrior #ibdorknownasinflammatoryboweldisease #crohnsdisease #ulcerativecolitis #spoonies #invisableillness #chronicillness #chronicallyill #crohnsandcolitis #crohnsjokes

[crohns-girl]

#Crohns #colitis #ibd #ibdawareness #ibdwarrior #ibdorknownasinflammatoryboweldisease #crohnsdisease #ulcerativecolitis #spoonies #invisableillness #chronicillness #chronicallyill #crohnsandcolitis #crohnsjokes

[crohns-girl]

#Crohns #colitis #ibd #ibdawareness #ibdwarrior #ibdorknownasinflammatoryboweldisease #crohnsdisease #ulcerativecolitis #spoonies #invisableillness #chronicillness #chronicallyill #crohnsandcolitis #crohnsjokes

[crohns-girl]

I'm not a perfect girl. I may not always seem content. And you will never hear me say I'm beautiful. But I am perfectly content with how beautiful my heart is! #crohnsgirl #ibdorknownasinflammatoryboweldisease #followme #followmeplease #needashoutout to my crohnies