im not gonna be my past anymore im not gonna be my past anymore im not gonna be my past anymore im not gonna be my past anymore im not gonna be my past anymore im not gonna be my past anymore im not gonna be my past anymore im not gonna be my past anymore im not gonna be my past anymore im not gonna be my past anymore
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idk how to deal with a family that doesn't understand having an invisible disability doesn't make it any less severe... Am I supposed to groan and cry and complain and narrate my daily experience for them to take me seriously? Shall I just not hold onto the railing while going down the stairs so they can see my tumble down without support? Should I fall every time a single misstep makes me dizzy or I round a corner a bit more quickly than I usually do (which is still slower than the average person?). Should I get out of bed when I couldn't sleep the night before because I was awoken by pain and my pain meds didn't do anything yet again and so I tossed and turned trying to find a comfortable position to sleep even for five fucking minutes? Should I do that and risk cutting myself while cooking or accidentally running in front of a car or just randomly passing out??? Should I point out every time my leg twitches or my hands tremble involuntarily? Should I make note of the pain I experience after every laugh, every sneeze, every cough, every quick turn of my head, every time I tilt up my head, every time I lift something heavy, every time I bend over, every time I literally do anything at all?
Of course I'm going to do things to enjoy myself!! Am I not allowed to live?? I do horse riding even though I've been told not to because it's one of the only things I thoroughly enjoy and that is a balm to my soul. Sure my hips hurt afterwards and occasionally my shoulder but I still do it because I love it and it's good for my heart. Just because I do this one physical activity doesn't mean I am any less in pain.
I am not LAZY! I am not UNRELIABLE! I am actually trying really hard to not be a nuisance and help out and be there. Fuck you. I hate you for making me hurt even more.
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I want to be strong.
I’m trying really hard to be strong…
but sometimes my tears just
fall uncontrollably.
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EVERYDAY I ASK MYSELF WHERE IS MY PERSON IM LITERALLY BEGGING FOR SOMEONE TO LOVE ME
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