#i am seeing the asthma nurse next week 👍

[defectivegembrain]

hay fever is ridiculous I am drained of all energy and struggling to breathe because the plants are blooming that makes me sound like some kind of evil wizard whose weakness is life and joy

[sir-arlieosaurus-lung-struggler]

This post helped me alot around a year ago, id just found the disabled/spoonie side of tumblr & it took a minute to "understand" that I was disabled, I was just like "wait wat... ohhhhh" cause I'd just always been told I'm asthmatic, nothing more, nothing less.

I just needed to go to the nurses office daily till like 3rd grade to get my 2 inhailers & 2 nasal sprays & 20-30 minute nebulizer done. I just needed to cover my torso in icy-hot a couple times to make it through gym class while I had debilitating scar pain from lung surgery when I was 6 (years prior). I just ~was~. I hate(d) it but I expect(ed) it.

Then I realized, "oh well, shit." Like, ya maybe this dose effect me?

Then I looked into disability stuff & was like "wait, am I disabled?" Cause I didn't really see anything pertaining to chronic illnesses. Long mental debaits later and here I am with "limits/disrupts activities/daily life/etc."

Idk maybe lifelong medical issues could be traumatizing & effect my ability to function in my daily life both physically and mentally? Maybe me having a near death expirience at 6 (where almost everyone thought i was practically dead) will make me realize my morality at a very early age? Maybe it'll lead me to not trust people cause they either force feed me meds or brush all my shit off? Maybe, just maybe, everyone pushing me will lead me to not trust my own body to the point of pushing it so far as to not even **asking** for an elevator key at school when literally everyone ik has been trying to get me to get one for 2 years now?? Because "im fine. I can keep walking, I have to force it, but I CAN."/Sar (from here this (d)evolved into a rant so im stopping here lol, tlrd: my asthma & pain due to scars effect everything, all seasons suck, summer is so bad i anticipate wearing a respirator, I can't be around running vaccume cleaners & lawn mowers, i can barley handle my schedule of going up & down stairs @ school) ((on the elevator note, still don't have a key, but my moms gonna help me see what I can do next year since I have like, 3 weeks left, fuck ya))

But ya thx tumblr for helping me put a word to the shit I've been dealing with since I was 6, helped alot. Listening to my body is an up and down hill but I've gotten mostly better 👍

Shout out to people with breathing related disabilities because this shit sucks

People who need inhalers and nebulizers. People who use ox tanks. People who can’t stand or walk too much because it makes breathing harder. People who have given up important parts of their life because of their breathing issues. People who need assistance and caregivers. Especially huge shoutout to people whose breathing problems don’t have any treatments and/or are getting worse with time

In my experience, we are often left out of the disabled community, either implicitly or explicitly. Needing assistance with chores and errands is so common for disabled people yet when it’s a lung or airway issue that causes us to need that assistance, we’re left out of the convo. Conditions like cystic fibrosis, COPD, lung cancer, VCD, asthma, anaphylaxis, and more can all be seriously disabling. We deserve a voice

Anyways, big hugs for people with breathing issues that want one. We deserve more love <3