#i am at my most functional on 3-4 hours of sleep pumped full of stimulants

[shippofuri]

was falling asleep last night and had a waking dream of thistle so stupid i had to record it (because typing was too hard)

transcript↓

"um- i started, like, falling asleep, like i was visualizing a dungeon meshi chapter cover and it had tiny, unconscious thistle, like chibi unconscious thistle in a nightgown! and i started just imagining that i took him out the page, and he was the size of hamster, i held him in my palm and i went to the fridge. and in the fridge there was- [starts giggling] there was a tupperware container, with some french fries in it- [losing it] and um, i took the french fries out of the container, i sat them aside, and i- [losing it again] i put thistle- i put thistle in the container and i closed it, and- " (gf: "And then he suffocated!") "NOOoOoo"

[werevulvi]

Hi, could you tell me more about your autism and diagnosis and how you deal with it, how old you were diagnosed

I don't know a lot about my autism, tbh, as I never bothered to read up on it and I was never properly informed on it. But what I do know is that I learned slowly as a kid, learned to walk at age 3, was very clumsy (like medically abnormally clumsy physically, could barely run at all and couldn't climb, etc) required special treatment to learn how to eat as a toddler because I hated the sensory experience of solid food and chewing, I was incapable of understanding sarcasm, interpreted everything literally, I was stimming a lot, had monotone body language and speech, etc. I was very obviously "different" according to my parents already from around age 1 or 2, and required literally constant attention for the first 4 years of my life. Started daycare at age 4, in small groups.

Then as I started school at age 6, apparently the school nurse had told my parents that I'm probably autistic, so I consider that my "inofficial diagnosis" but they decided to ignore that and didn't tell me (until 10 years later.) I was bullied in school for being "the weird kid" by both classmates and teachers who thought I was a retard and annoying, basically, I guess. I was called a freak and weirdo a lot. But like I was proudly a weirdo, and resented normativity.

As I got up into ages 10-12 my depression and DID symptoms (alter) kinda took over and became more prominent than my autism symptoms, as I wasn't as physically clumsy anymore and started learning social cues. My mental health continued to decline over the next few years, until I sought out therapy on my own at age 16. It led me to doing my first few suicide attempts, which led me to ending up at a closed psychiatric ward.

While staying there for a few weeks, I got evaluated for autism (without knowing that's what I was tested for) as well as a few physical things, such as my hearing impairment and chronic headache. And those tests led to an official Asperger Syndrome diagnosis, when I was 16, by the very end of year 2005. I also got diagnosed with borderline psychosis and mild depression, and got pumped full of anti-depressants and anti-psychotic (neuroleptic) drugs. Then my mom finally told me that she basically always knew about my autism, and I was really pissed at her for not having told me before. I resented my autism diagnosis right from the start, and the older I got, the more I resented it. Never identified with it, only ever saw it as a huge burden.

Then throughout the rest of my teens, I went to a school for neurodivergent people (basically upper high school) but still flunked it. I was a complete and utter mess, and got little to no actual therapy. They just kept shoving me around from one psychiatric department to another, due to my comorbid issues, no one could help me, it seemed. Every once in a while I'd make another half assed suicide attempt to make them take me seriously, which only worked for a few months at a time. In total, I've made 19 suicide attemps over 12 years. Oh lord, psychiatry was so bad!

Adulthood came along and I got benefitted with sickness compensation, and got my first apartment at age 20. It didn't go great. I accidentally flooded it and had to move out, and didn't manage to keep it clean or anything while I lived there. I was barely functional and alcoholic, constantly self-harming, just to try to manage attending school. Despite getting help from caretakers offered by the state (?) weekly, I was really dysfunctional. I switched apartments several times, and kept flunking school while trying to live my miserable life, always hanging by a thread. Until I moved back to my parents at age 23. They had moved to a miserable island far away from all my friends. Got an apartment on that island close to my parents, but my issues continued being the same level of awful, up until about age 27.

What this has to do with my autism is that... uh, I basically understand it as that it impedes on my executive function really dramatically, and like although I can physically do pretty much anything, mentally I just somehow can't. Especially repeatedly, and often enough. Like I can't keep any routine for the life of me, not even simple shit like sleep cycle, eating habits, brushing my teeth, etc. Let alone school or a job, or even hobbies. Everything is infrequent and too seldom, if at all. So everything in my life keeps falling apart as I basically have no foundation to stand on, and I get sensory overload suuuuper easily. So like just going shopping/cleaning/laundry/hobbies/school/anything for half an hour can drain me significantly and make me incapable of managing doing anything else for the rest of that entire day. It's very hard for me to explain, but it's like I only ever have 3 spoons per day, but most things requitre 10+ spoons, so I go backwards on my energy resources a lot and end up having to rest for DAYS after just one hour's activity.

At age 27 I ditched the social service caretakers, as they were seriously depriving me of my privacy while being largely unhelpful, and I began to finally try to pull myself together. I still get a lot of help from my mom, with anything from paying my bills and grocery shopping, to driving me places and dealing with soul-sucking authorities for me. This takes off a lot of the burden and allows me to manage doing at least a few things on my own, like working out, cleaning (yay I manage keeping my apartment clean nowadays!), laundry, occasional shopping, art projects, online socialising, etc. I still go to therapy biweekly but it's still largely unhelpful. At least I managed to make them stop tossing me around between departments like a football though, and I'm still gonna try to get some proper trauma therapy, and maybe also look into that adhd group I was promised last year, if it'll ever resume again post-corona...

I've still never had a job in my life and still have incomplete grades. But I got permanent sickness compensation now, so that's neat. At least I don't have to worry financially. I'm also trying to get started with some "work training" stuff which is basically "pretend work" for people who can't work, just to have something to do. I'll most likely be granted acces to that. However, it seems irony is that most of those are located out in the middle of nowhere where no buses go, and I can't afford a fucking car or driver's licence because I can't work. Mom probably won't drive me several times a week for that. Fucking fantastic. Makes me almost wanna kill someone... argh! Those little things really piss me off.

Life is absolutely not going the way I want and I blame my autism for it, mostly. I am drowning in frustration, and my anger issues making me scream my lungs out in pure despair, shows that. I'm considered offically disabled due to my autism, and it just fucking sucks ass. How lonely, under-stimulated yet easily over-stimulated, bored, meaningless and unfulfilled my life is. There are far more severely autistic people out there who somehow manage to live far more functional lives, and I'm jealous of that. I dunno how to break free from this misery. It feels like the only thing I've ever managed to accomplish in life is transitioning genders, and making art that I don't wanna sell. I wanna have a "normal" job, a car and driver's licence, I wanna have cats and a social life, I want parties at night clubs again, I want hobbies outside of my home; hookups, friends and lovers; I want to be able to have a functional romantic life with someone I can marry and start a family with.

But is any of that ever gonna happen? I hope so, but it feels bleak. Because my autism feels like such a huge burden on my life, and a huge hindrence to my dreams and goals... like I'm over 30 already and still a disabled and having my mom living half my life for me, miserable mess and not given any useful therapy, I'm left to my own vices to figure out how to adult... Because of all that, I hate my autism and I wish there was a cure, I swear to fuck. So for your question, how I deal with it: not fantastically. Not sure if you wanted a relay of my entire life, but I hope that’s okay! Didn’t know how else to answer your questions.