#helpashleymeettaylor

[ashleyhlovestay]

So I just got tickets to “Lover Fest East“ at Gillette Stadium Night 1 for my mom, sister @nhett, and I!! Our seats are Section 133, Row 4, Seats 1-3. My dream is to meet my idol @taylorswift. I have a chronic pain disease called Reflex Sympathetic Dystrophy so I live in excruciating pain everyday.  I had to give up nursing school because of this disease.  I also have Rheumatoid Arthritis and Trigeminal Neuralgia. I have a pain pump and a neurostimulator along with a lot of other medications. My story is in the first picture.  Taylor and her music gets me through the daily flares. I don’t have much to look forward to but meeting Taylor would help me so much. Please tag Taylor and Taylor Nation and share this, thank you!! Please help me get this to Taylor! Thank you so much! 💜🦋🌈 @taylornation @tree-paine

[nhett]

My name is Nicole Hettenhausen. I am 23 years old, and I am from Illinois. I am reaching out in the hopes of helping to make my sister’s dream come true. My older sister, Ashley, is 26 years old, and she has lived with a chronic pain disease known as Reflex Sympathetic Dystrophy (RSD) or Complex Regional Pain Syndrome (CRPS) since she was 12 years old.

RSD is a chronic disease that is caused by any sort of trauma to bodily tissue. This rare disease causes the nerves in your body to misfire, sending constant pain signals to the brain. It has been described numerous times as feeling as if your body is on fire 24/7. The disease usually starts in one area, most commonly a limb, and ultimately spreads throughout the body to other limbs and vital organs. According to the McGill Pain Index, RSD is significantly more painful than fractures, amputations, non-terminal cancer, and childbirth. What is terrifying about this disease is that suicide rates are high for people who suffer from it.

When Ashley was 12, she was attending a tennis summer camp, and one day she sprained her ankle; that was all it took for the disease to appear. It started out in her ankle and eventually spread throughout the leg and foot, to the other leg and foot, to both of her arms, to her face, and, most recently, to her eyes. Since then she has also acquired other diseases in addition to RSD including: Rheumatoid Arthritis, Trigeminal Neuralgia, Mitral Valve Prolapse, Postural Orthostatic Tachycardia Syndrome, and Raynaud’s Syndrome.

Since Ashley was diagnosed with RSD, she desperately wanted to be a nurse so she could help relieve other people’s pain. She struggled with the pain throughout high school and had to drop out when she was one class short of getting her Associate’s degree before attending Goldfarb School of Nursing. Her pain escalated to the point that she could hardly put any weight on her feet. She had to give up her job and her dream of being a nurse because she couldn’t stand for long periods of time. Ashley was put on disability and lives at home with my parents and me.

Because Ashley could no longer go out except for doctor’s appointments, her only friends outside of our family have become people she has met on Facebook groups for people who suffer from the same disease. They have been a much-needed blessing for Ashley and my family. We continuously worry about her depression since she does not leave the house except for appointments.

As a family, we do as much as we can to help distract Ashley from her constant, burning pain, but there is only so much we can do. There are many times when we feel helpless. What has immensely helped Ashley through the pain over the years has been Taylor Swift. She inspires Ashley to keep fighting through the pain. My sister has gone to every one of her concerts held in St. Louis, and her dream is to meet her idol and receive a hug from her. She wishes to tell Taylor her story and how much her music means to her. My parents, Ashley, and I have even taken to social media platforms to try to get her attention. We have made crazy videos telling Ashley’s story and her wish, and while many people like, comment, and retweet, we have had no success in reaching her. We created #HelpAshleyMeetTaylor and use it on every video and post we make, but it seems to be of no avail.

I realize this is a very long shot, but all I want is for my sister’s dream to come true. I love her so much, and I don’t know what I would do without her. She is the strongest, kindest person I know and still manages to smile through the pain. She has such a generous, caring heart and always puts others before herself. I am so proud to have her as my sister, and I know that having the chance to meet Taylor in person would give her a lifetime of happiness.

@taylorswift @taylornation @ashleyhlovestay @tree-paine

[ashleyhlovestay]

[ashleyhlovestay]

"You're my, my, my, my lover". Ending “Lover” Release Day with a “Lover” Release Party!  My dad, sister, Nicole, and I all drew hearts around our eyes to resemble @taylorswift 's on the "Lover" album cover. We all love you so much Taylor! My dad even said he would let me draw 2 hearts because he knows how much I love you. I love all these songs and, in my opinion, it's your best album yet. Best part yet...YOU OWN YOUR WORK!! 🎉🦋🌈🎼 @taylornation @tree-paine @nhett

[ashleyhlovestay]

Just made it to Target to pick up my copies of “Lover”. I'm SOOO excited!!! I love every song especially "I Forgot That You Existed" & "Cruel Summer" @taylorswift !! Your best work yet & YOU OWN IT!!! 🙌 Love you @taylorswift !! 🥰🦋🌈🎼 @taylornation @tree-paine @nhett

[ashleyhlovestay]

Just got my hair done. I FINALLY am back to blonde!!!! I absolutely LOVE it!! Thank you so much Heather!! You did a fabulous job!

So, of course, every photoshoot is a @taylorswift photoshoot. My life would be complete now if I could meet @taylorswift .💜🦋🌈 @taylornation @tree-paine @nhett

[nhett]

PLEASE READ & SHARE!!! #HelpAshleyMeetTaylor

@taylorswift My name is Nicole Hettenhausen. I am 22 years old, and I am from Illinois. I am reaching out in the hopes of helping to make my sister’s dream come true. My older sister, Ashley (@ashhettenhausen13 ), is 26 years old, and she has lived with a chronic pain disease known as Reflex Sympathetic Dystrophy (RSD) or Complex Regional Pain Syndrome (CRPS) since she was 12 years old.

RSD is a chronic disease that is caused by any sort of trauma to bodily tissue. This rare disease causes the nerves in your body to misfire, sending constant pain signals to the brain. It has been described numerous times as feeling as if your body is on fire 24/7. The disease usually starts in one area, most commonly a limb, and ultimately spreads throughout the body to other limbs and vital organs. According to the McGill Pain Index, RSD is significantly more painful than fractures, amputations, non-terminal cancer, and childbirth. What is terrifying about this disease is that suicide rates are high for people who suffer from it.

When Ashley was 12, she was attending a tennis summer camp, and one day she sprained her ankle; that was all it took for the disease to appear. It started out in her ankle and eventually spread throughout the leg and foot, to the other leg and foot, to both of her arms, to her face, and, most recently, to her eyes. Since then she has also acquired other diseases in addition to RSD including: Rheumatoid Arthritis, Trigeminal Neuralgia, Mitral Valve Prolapse, Postural Orthostatic Tachycardia Syndrome, and Raynaud’s Syndrome.

Since Ashley was diagnosed with RSD, she desperately wanted to be a nurse so she could help relieve other people’s pain. She struggled with the pain throughout high school and had to drop out when she was one class short of getting her Associate’s degree before attending Goldfarb School of Nursing. Her pain escalated to the point that she could hardly put any weight on her feet. She had to give up her job and her dream of being a nurse because she couldn’t stand for long periods of time. Ashley was put on disability and lives at home with my parents and me.

Because Ashley could no longer go out except for doctor’s appointments, her only friends outside of our family have become people she has met on Facebook groups for people who suffer from the same disease. They have been a much-needed blessing for Ashley and my family. We continuously worry about her depression since she does not leave the house except for appointments.

As a family, we do as much as we can to help distract Ashley from her constant, burning pain, but there is only so much we can do. There are many times when we feel helpless. What has immensely helped Ashley through the pain over the years has been Taylor Swift. She inspires Ashley to keep fighting through the pain. My sister has gone to every one of her concerts held in St. Louis, and her dream is to meet her idol and receive a hug from her. She wishes to tell Taylor her story and how much her music means to her. My parents, Ashley, and I have even taken to social media platforms to try to get her attention. We have made crazy videos telling Ashley’s story and her wish, and while many people like, comment, and retweet, we have had no success in reaching her. We created #HelpAshleyMeetTaylor and use it on every video and post we make, but it seems to be of no avail.

I realize this is a very long shot, but all I want is for my sister’s dream to come true. I love her so much, and I don’t know what I would do without her. She is the strongest, kindest person I know and still manages to smile through the pain. She has such a generous, caring heart and always puts others before herself. I am so proud to have her as my sister, and I know that having the chance to meet Taylor in person would give her a lifetime of happiness.

- Nicole Hettenhausen

[ashleyhlovestay]

I can’t believe “Lover” has been out 1 month! This album means so much to me. I love every song on it. My favorites are “Cruel Summer” and “London Boy”. I could be in so much pain from my Reflex Sympathetic Dystrophy and I turn on “Lover” and my pain has decreased. Thank you @taylorswift for sharing your heart with us in these songs! I love you so much and I hope I will meet you this era! 😘💜🦋🌈 @taylornation @tree-paine @nhett

[ashleyhlovestay]

Can’t believe it’s been 2 weeks since “Lover” has been released! I love every song that @taylorswift created on it. My favorite is still “Cruel Summer”. Love you so much @taylorswift !! 🦋🌈💝 @taylornation @tree-paine @nhett

Stay tuned to my IG (@ashleyhettenhausen) live/stories in about 5 minutes for a live tour of my renovated and newly decorated room. I will also show some of my Taylor merch.

[ashleyhlovestay]

“I’d be a fearless leader. I’d be an alpha type. When everyone believes ya. What’s that like?” This is just one of my many @taylorswift posters in my room. Love you so much @taylorswift !!! 🦋🌈💘🎼 @taylornation @tree-paine @nhett

[ashleyhlovestay]

Wow, I can’t believe it’s been 11 years today since “Love Story” was released! This picture was from the “Speak Now World Tour” in St. Louis. “Love Story” is still one of my favorite @taylorswift songs. I could listen to it on repeat, (which I do 😉). I love®, see what I did there? 😆 Anyway, I love seeing “Love Story” evolve every tour as @taylorswift changes it slightly but it’s still the same song I love. Congrats on 11 years of Love Story Taylor!! Love you so much! 😘💜 @taylornation @tree-paine @nhett

[ashleyhlovestay]

I’m in awe that this actually happened. Thank you SOOO much @taylornation ! I was told by Jill that they followed me awhile ago and she thought I knew, lol. 😂 I know now and am so grateful for my friends that got me to this point. Thank you SOOO much! Love you all!😘💜🦋🌈 @taylorswift @tree-paine @nhett

[ashleyhlovestay]

I need to calm down because it’s 9 DAYS until “Lover” !!! Love you so much @taylorswift !!! 🥰🦋🌈🌴🎯 @taylornation @tree-paine @nhett

[ashleyhlovestay]

We’re 6 DAYS away from hearing the full @taylorswift “Lover” album!! Ahhh!! I’m in love with her new song “Lover” so I can’t wait to hear all the other songs. Love you so much @taylorswift !! 💞 @taylornation @tree-paine @nhett On another note, here’s an update on my surgery recovery. I’m about 12 days out and still in a lot of pain which is to be expected because this was a big surgery. I also have these new sores on my lips that developed after the surgery that are a pain. So went to the oral surgeon yesterday and he said I’m looking good and I’m going to look even better once the swelling goes down.

[ashleyhlovestay]

[nhett]

Happy 27th birthday, Ashley!!! I have always looked up to you; you are my role model. You are so strong and can have the will to laugh through your constant pain. I wish I was as strong and as caring as you! I love you so much! 💖😙👩👭 #happybirthday #HelpAshleyMeetTaylor #rsdawareness #colortheworldorange @taylorswift @taylornation @treepaine https://www.instagram.com/p/B4fjctSn0JJ/?igshid=1cnd0o4ryxo8x