#had to go by my last name most of my life bc every classroom ive been in had at least another person w the same name

[heir-of-the-founders]

I dont give a fuck anymore jesus christ i need yall to see this

Asdfghjkl its so hard to explain the amount of fucking hypocrisy in this video jesus.

Dont let the cleanliness fool you. Its a shithole.

The gym doesnt have an ac system but we can afford a giant (and by giant i mean ive never seen one this size before) touchscreen tv next to the auditorium and to have the 30 (that's not an exaggeration) tvs playing the fucking school news 7 times an hour every hour (they gloat about it but also gloat that we're the most watched student news in the state)(like no dip dumb dumb you play it 4800 times a damn day) and decals on the stairs and to completely revamp the auditorium.

They also cant be bothered to actually clean the fucking music wing. Theres these weird box couch things in there. Someone spilled a drink behind one. It took them a month AND being notified by other teachers bc students literally cant get a hold of janitorial at all ever. Fuck, freshman year a bird got inside and fucking died on the stairwell. Took 2 hours for the bird to be gone and 2 fucking weeks for the blood to be cleaned up. There was literally fucking blood on the windows and floor. Someone put notebook paper down so we didnt get blood on our shoes.

Oh! And when the band teacher mr swenson left he got replaced with henson and instead of giving him a new plaque they literally just taped an h over the sw with printer paper.

The head of the school board for my county literally got caught using the school credit card to go to hooters and buy alchohol but i guess nobody reported him bc that was freshman year and im a sr now and hes still head of the board.

Also, a few years ago (maybe it was only last yr i dont remember) during the march for our lives thing, a girl was organizing a protest and the hicks (for the people who dont know, those are the people that like,, kin the south. They literally wear plaid button ups and tuck their shirts into their too high jeans with giant belt buckles and wear cowboy boots and have confederate flags on their trucks, its ridiculous) the hicks literally kicked her and pushed her and spit on her in the halls for so long and it was so bad that she ended up not coming to school for like two weeks. But nobody got in trouble even though we have cameras literally everywhere.

My math teacher doesnt have a math degree. Well, shes not my math teacher anymore but like. She admitted to our class that she has no idea what shes doing. She yells at kids when they correct her. I literally transferred from algebra 2 to the algebra 2/ trigonometry mixed course in the middle of the year because it was taught by a different teacher and it made more fucking sense.

My english teacher sophomore year didnt have an english degree. He had a math degree. He also taught statistics. But that course was dropped when he retired jr yr. We literally didnt even read anything the whole thing was bullshit. He also had us say ubuntu (taken from wiki- Ubuntu (Zulu pronunciation: [ùɓúntʼù]) is a Nguni Bantu term meaning "humanity." It is often translated as "I am because we are," ) every day before class. it was weird.

Also the theater heads (the special ed teacher and 2 sports coaches) would like constantly yell at the theater kids to not bring any food or drink into the theater bc of like mice and shit but would then eat a pizza and drink coffee

Oh! Speaking of mice. The STEM classroom had this weird ass ceiling where it was like a platform of tiles hanging from the real ceiling and like it wasnt over the whole thing and we had a mouse problem in the school and sometimes the mice would get up there and sometimes you could hear them crawling around in the middle of class. There were also just like. Mouse traps. All over a lot of rooms.

One of the english rooms had a window thats inside and faces under a stairwell.

Oh and all that glass? Yeah, theres more and none of its bulletproof.

The pe teacher has a record of calling students whores and telling them theyre not going anywhere in life in front of the entire class bc the student didnt bring pe clothes. Its happened to both of my sisters and also a few friends. Ive seen it happen too. Amongst other things. Also, her office connects to the girls changing room and theres a window into it? And like the window is kinda covered up but with this weird material that has holes all over it. I dunno its just really creepy.

And like i guess last year the special ed teacher (one of the theater heads) got caught cheating on her husband (the freshman spanish teacher) with the (recently) retired freshman american history teacher. Mr s (the husband) and mr b (the side hoe) had rooms across from eachother. And now mrs s lives in Florida and mr s is just. Gone.

The excel head (like the head of the gifted kids program i guess?) Broke one of the 3d printers bc she was messing with it and then blamed it on a student and got the entire excel programs 3d printer privileges revoked. They even caught it in camera and she didnt get in trouble.

Sophomore year everyone called the science teacher daddy to the point that he just left.

The school has 3 elevators (required by law) and theyre kinda fucked up but i didnt realise it until i started using them regularly. First, there is a single thing in one if the elevators that says the last time they were inspected was 2014. Theres the main building elevator, the freshman building elevator, and the okd elevator, which is the only one that goes to the 3rd floor.

The old elevator is like. Really old. Like. Its manual. And you can touch the walls of the elevator shaft when yr moving. Also like. One half of the elevator just. Isnt covered. You also need a key to operate it and they dont give the keys out to the students so you either need to talk to the nurse before hand (and she always forgets) or try to find a janitor. Which. Only way to the 3rd floor. Elevator wise anyway. Which sucked wheb i had win time (like a mandatory study hall where you sign up for different teachers every day depending on 'What I Need', hence the name) on the 3rd floor bc sometimes mandatory stuff was scheduled up there. Which. Yay.

And the freshman building elevator fuckin,, it fuckin shakes. Like. Just. Its like turbulence. Its terrifying and ive genuinely thought i was about to die a few times.

People also use the elevators to vape bc the only one you need an adult for is the old one. This is evident by the smell.

Thats all that i can think of atm bc its 3am and i might delete this later but yea fuck my school

[faunina]

Alphabet tag

I got tagged by @saaya-ryuzaki! brace thineselves for a long post

a// age: 20 years! its the oldest ive ever been

b// birthplace: a sleepy rural town in nothern germany

c// current time: 3:49pm

d// drink you last had: water, i guess?

e// easiest person to talk to: HM i think that title would go to. @saaya-ryuzaki and @keshiik, also my roommate

f// favorite songs: i could not honestly answer this if my life depended on it but uuuuuuuuuuhhhhhh ive been on a dodie trip lately and Absolutely Smitten is the cutest, most wholesome shit ever

g// grossest memory: HM. cant say i remember more than like,,, the sensation of it but. when i was a little kid, i was dead afraid of vomiting, so i would try to keep it in with all my might. and you know that thing that happens when u turn the water tap all the way up and then try to keep it closed with your hand?? yeah.

h// horror yes or horror no: horror definitely when the mood strikes, altho i gotta say that i enjoy thriller shit more than pure mind-numbing gore

i// in love: with the world and myself, next

j// jealous of people: generally not. i think if i DO get into situations where that would happen (say... smartswise in the classroom) im more likely to get down on myself and my abilities

k// kids of your own someday: for sure, but unless ive conquered my pregnancy/childbirth fears until then theyll all be adopted af

l// love at first sight or should i walk by again: LOL walk by again, but like, every day for the next three years lmao

m// middle name: lydia! after my granny

n// number of siblings: 4 sisters total, and im number 4 outta the 5

o// one wish: wish i wasnt extremely stupid sometimes

p// person you last called: my sister anna and that was. almost 2 months ago

q// question you always get asked: “and what are you gonna do with that degree once youre done :)” do i LOOK like the oracle of delphi???

r// random fact about you: im a complete tab hoarder, and once i cleaned out my mobile chrome browser and ended up counting around 450 open tabs. half of those where on ao3, and a fifth was wikipedia articles and wiktionary entries.

s// song you sang last: NFWMB by hozier, that shit slaps hard as hell

t// time you woke up: 8:00am and i wish it werent so

u// ultimate favorite color(s): blue and green for sure

v// vacation destination: switzerland and sweden, off the top of my head. switzerland is just BEAUTIFUL and ive been to sweden once but i was so small i cant remember it which SUCKS. but also like. italy, france and greece, mostly bc of my love for The Classics™

w// worst habit: chewing the skin off my lips and also procrastination

x// x-ray: a couple for braces, one on the wrist once after a small accident, and one? torso one?? but i was like 7 and genuinely cant remember what that was about

y// your favorite food: WHAT kind of question honestly. hm hm, spaghetti is an eternal go-to, but also like. anything my grandma cooks lol

z// zodiac sign: sun scorpio, moon aries, rising sagittarius

i taggeth!!! no one rn bc im procrastinating and REALLY should get some work done also i dont feel like it. BUT you are all very heartily invited to do this if u want!

[presumenothing]

Oh my god, dude.... Soul mate ask... Can I ask for 23 KaiShi (I'm so in love with this pairing, you've ruined me.)

(soulmate AU prompts)

regret nothing until it is too late, then regret e v e r y t h i n g

this turned out more ai-centric than anything else lmao, mea culpa. scenes not in chronological order, will probably rework/expand later bc i feel

.

23. the one where once you meet your soulmate, it’s physically uncomfortable to be apart from them for too long.

.

v.

In most regards, Ai supposes, she could have done worse than having the Kaitou Kid as her soulmate.

It might’ve been Edogawa instead, for starters, and while that isn’t in itself a problem it’d still mean seeing more dead bodies than she really cares for.

(Though if Kuroba tries to talk her into moving to Ekoda again, Ai isn’t going to be responsible for what she does in response.

It’s mostly his fault that they ever met anyway, so as far as she’s concerned he can either move to Beika or deal with the consequences.)

iv.

Shiho has never put much stock in the concept of soulmates.

She’s well-acquainted with the scientific evidence, obviously. Extensive research in the field continues to be ethically controversial, but studies have sufficiently demonstrated the correlation between separating certain pairs of people for extended periods of time and the associated physiological effects: increased heart rate, shallow respiration, heightened levels of cortisol. The evidence is convincing, though the particulars differ, and no rigorous theory of the bond has been developed thus far.

What she questions are the psychological effects people often discuss. Nothing ludicrously precise as telepathy – those claims had been thoroughly debunked in the ‘80s, even if urban legends still circulated to this day – but instead a whole host of subtler effects, with the most commonly cited one being empathy connected to strong feelings.

It seems fallacious, though, to assume that such a bond would entail any emotional connection, beyond the effects of cognitive dissonance working to smooth over a relationship enforced by proximity.

At any rate, as far as Shiho’s concerned, her soulmate – if she has one, since the conditions make it difficult to conclusively prove whether or not every individual has a soulmate – is better off staying away from her, for both their sakes. The last thing she needs is to be bound down geographically, let alone to any single individual, and unless her hypothetical soulmate is in the Organisation as well she doesn’t see how the situation can be tenable anyway.

(She rarely spends time around people anyway, so it’s not like it matters all that much, really.)

iii.

If nothing else, being an elementary schooler means that people assume by default that she hasn’t really thought much about the concept of soulmates yet, let alone had a chance to meet her own.

Ai is more than fine with that. She still believes that the entire phenomenon of soulmates is more trouble than it’s worth, and becoming Haibara Ai has only served to further cement that opinion, if anything.

(The professor had asked her about it once, near the beginning, followed a few days later by Edogawa when he’d stopped tiptoeing around her like a bomb set to explode at any moment. The detective hadn’t bothered couching it as an indirect question, of course, but she understood the intent all the same, as well as their relief when she’d answered in the negative.

You couldn’t very well sever a bond with just a change of name, after all, and Edogawa is very fortunate that Mouri Ran isn’t his soulmate, because there wouldn’t have been any hiding from that.)

ii.

Akemi doesn’t share her opinions, of course.

Shiho watches her sister talk animatedly over dinner, eyes alight with excitement, about an old school friend of hers who’d just found her soulmate, and wonders if she should hope for Akemi to find her own as well.

(Sometimes, she wishes that she’d thought to ask.)

i.

Ayumi and the others are chatting about soulmates during lunch break one day, Edogawa chiming in every now and then with the occasional correction when their chatter veers too far from the facts, when Genta asks, “How d’you even know so much about soulmates anyway, Conan-kun?”

Edogawa laughs in the way he does whenever he’s trying to redirect someone’s attention. “Ah, Ran-neechan and Sonoko-neechan talk a lot about it, that’s all!”

The kids nod, satisfied by this answer, but it’s like a switch flicks on in Ai’s mind – because Genta has a point, and Ai can’t believe she hasn’t noticed it before.

She knows almost everything Edogawa has mentioned so far, that much is true, but that’s largely because she’d just about gone through the existing literature with a fine-toothed comb to check for anything that could potentially interfere with the apoptoxin’s effects.

Even so, Edogawa’s mentioned details that even Ai herself isn’t aware of, and while she can testify to the fact that teenagers talk incessantly about the possibility of meeting their soulmates, as far as she knows neither Mouri nor Suzuki have found theirs yet.

She does at least wait until they’re out of the Detective Boys’ earshot before asking the increasingly apparent question. “You do have a soulmate, don’t you, Edogawa-kun?”

He’s clearly prepared for it, though, because he doesn’t even hesitate before answering. “I told you, Ran’s not my soulmate.”

…Edogawa is a terrible liar. Nevertheless, Ai looks away, pretending to drop the subject as she thinks – it has to be someone in the know, and the answer is startlingly obvious once she thinks about it.

Ai can feel herself smirking. She can’t help it. “So, how is it, having Hattori-kun as a soulmate?”

That makes Edogawa choke on the orange juice he’s drinking, which is all the confirmation she needs. Serves him right for forgetting that he’s not the only one capable of detective work here, Ai thinks with vindictive satisfaction.

(Then, of course, Ayumi manages to convince her to attend a Kid heist less a week later, and – well.

Ai believes in karma even less than she does soulmates, but the irony is almost enough to convince her otherwise.)

0.

The rooftop is freezing.

It’s not snowing, at least, but the gusts of biting wind aren’t much of an improvement.

Today’s heist is the third she’s attended so far, though Ayumi had still been surprised when Ai said that she was planning on coming along – she’d promptly proceeded to power excitedly through the afternoon’s classroom cleaning, dragging the boys along in her wake.

(Ai had ignored Edogawa’s obviously amused glances all the way to the heist site. His deductions aren’t completely off-track, after all, since she is developing an interest in Kid, if not for the reasons he apparently assumes.

It’s not at all surprising for an elementary schooler to be a Kid fangirl, after all, and Ai’s been careful to cultivate her attention gradually enough to avoid suspicion.

At any rate, it’s almost a blessing in disguise that Ai’s bonded to one of the few people even less likely than herself to want a soulmate known. Kid, at least, might not have enemies that would cheerfully take a soulmate ransom if given the chance, but Ai isn’t planning on taking risks either way.)

She tightens the scarf around her neck, grateful that she’d thought to dress in warmer clothing today, and tries to occupy her thoughts with figuring out whether she can gauge Kid’s proximity from how she’s feeling.

As a distraction from the weather, it’s resoundingly unsuccessful, but her mental map narrows abruptly just as Kid slips through the roof access door, jams the lock firmly closed, and turns towards her.

(His cape flares dramatically with the motion. Ai gives him an unimpressed look.)

“Good evening, ojousan.” The magician doesn’t sound surprised, but that means little for someone who isn’t fazed by Edogawa’s soccer missiles. “Should I assume that your presence means what I believe it does?”

“I certainly hope so,” Ai says, her tone perhaps more curt than the situation calls for, but she’s been waiting for a long time and it is cold. “You might not agree, but I’d hate to be stuck with someone of subpar intelligence.”

Amusement flickers across Kid’s expression. “That’s a tall order, but I’ll do my best. Does tantei-kun know?”

It’s a question Ai expects, so her answer comes readily enough. “I haven’t told anyone, but I’d give it three weeks at most before he figures it out, though the sheer unlikelihood of this situation might throw him off for a while longer. Either way, I don’t have any plans to assist Edogawa-kun in catching you with this, to answer your actual question.”

“The inadmissibility of soulmate bonds as evidence in court notwithstanding, I suppose?” Kid asks lightly, and Ai shrugs. It’s not like either of them actually believe that the detective would do anything based on such a tenuous thing without amassing further evidence, anyway.

“If you get caught on your own, that’s frankly none of my business,” she replies blithely, crossing her arms. “Though at least you’d have a regular visitor in prison, if that’s any consolation.”

Kid hums noncommittally as he holds tonight’s heist target up to the moonlight. “Not that I wouldn’t appreciate the company, hypothetically speaking, but if you could consider bringing chocolate?”

Ai raises an eyebrow – she hadn’t pegged the magician to be a chocoholic, though perhaps she should have, assuming that he kept up an active civilian life alongside his night persona – when there’s the recognisable crackle of Edogawa’s shoes powering up in the near distance.

Kid somehow manages to cross the span of the rooftop in the few seconds it takes for a soccer ball to force the door open, revealing Edogawa behind it, dart watch already aimed and ready to fire.

Before the detective can say anything, though, Kid smirks visibly under the shadow of his hat and speaks, loud enough to be heard over the wind even from several metres away. “Looks like you got beaten to the punch this time, tantei-kun!”

Edogawa glances over at her in disbelief, though his watch doesn’t waver from its target. “Haibara? How’d you manage to get up here so quickly?”

“Wouldn’t you like to know, meitantei-san?” Ai quips right back, already turning to leave. “I’d be more worried about your quarry getting away if I were you, though.”

The detective blanches at the reminder and turns back immediately, but Ai doesn’t need to look over her shoulder to know that Kid’s used the distraction to slip away – on his glider, probably, from the vague sense of steadily increasing distance between them.

She tucks her hands back into the welcome warmth of her coat pockets as she glances up anyway, her gaze tracking the white triangle across the night sky.

“Better luck next time, Edogawa-kun,” Ai says with a complete lack of sincerity, and leaves him alone on the rooftop, staring after her in confusion.

(She doesn’t miss the smooth edges of a card in her right pocket, of course, but waits until Agasa fetches them home before taking it out.

Black ink stands out starkly against the plain rectangle even in the dim moonlight – one sentence followed by a Kid caricature:

Don’t be a stranger! O_^

Ai rolls her eyes – if Kid is actually expecting her to follow him across town he’s got another think coming – before putting the card away in her top drawer and locking it.

The feeling from earlier is faint now, not registering as discomfort so much as an indefinable pressure, but as far as she can tell, Kid has mostly stopped moving some considerable distance away, though she can’t pick out the direction he’s in.

The scientist in Ai is increasingly tempted to study the boundaries of this, now that she has herself as an immediately accessible test subject, but she contents herself with the one experiment she can run immediately.

Ai silences her other thoughts as completely as she can, and focuses her mind on one sentence.

Don’t leave your heist targets with me, Ai thinks, emphatically, with all the annoyed exasperation the sentiment deserves.

She’s fully planning to drop the jewel in Edogawa’s school satchel once she gets the chance, obviously – no one needs to know that it was in her left pocket at some point, and it wouldn’t be the first time a heist target has been returned to Nakamori-keibu via detective.

But still. It’s the principle of the matter, and if Ai has no choice but to attend Kid heists regularly now she’s going to do it on her own terms.)

.

(“Are you alright, Kaito-bocchama?” Jii asks in concern when Kaito shivers, and he can only shrug cluelessly in response – the Blue Parrot is warm, the chocolate in his mug more so.

None of it explains why he’d felt a sudden chill down his spine, unless Akako is up to something again.

Kaito really hopes she isn’t.)

[yeont4n]

Answer all!!

here we fuckn goooooooooo

we are bulletproof: if you could be any superhero, who would you be and why?

u kno that 1 girl from sky high whose only power was shapeshifting into a hamster? her. no reason

no more dream: if you woke up tomorrow to be incredibly famous, how would you react?

id go check my mailbox to collect all my free promotional gifts and then prolly fake my own death

i like it: if you could reverse any moment in your life, what would that moment be? 

there’s 1 thing but im not rlly gonna expose myself like tht on here smh

n.o: biggest pet peeve?

loud chewing/loud eating,,,,,,

we on: how do you deal with people who don’t like you?

i dont deal wit it lmfao it’s not my business who likes me n who doesn’t unless someone’s being particularly vocal about it:// in that case i’d prolly jus laugh about it

if i ruled the world: what would you do if you found out that you were an heir to a wealthy kingdom?

lmfao. idk tbh prolly decide which breed of dog i wanted to be known for loving

coffee: what’s your coffee order?

i dont order coffee often buh somethin w a lot of sugar.

cypher pt. 1: if you had to be part of a kpop group, what position would you want to be (i.e. leader, visual, lead vocal, dancer, rapper, maknae, etc.)

maknae i guess? how about staff

rise of bangtan: when and how did you get into the king and legends, also known as bangtan sonyeondan?

i saw a video of yoongi performing intro:nevermind in like 2015 n was :o ! buh never looked into it. in 2016 i saw the fire and bst dance practice vids and was like :0!??? but again, never looked into it. then finally spring day/not today mvs dropped n i FINALLY looked into who these boys were n jus fell down an ever spiraling rabbit hole.. now we here

satoori rap: what does home mean to you?

a feeling. i mean i have a few physical manifestations of the concept of home: my town, my school, my house. things i can return to. but really it’s a feeling isn’t it?? safety, familiarity, comfort, fondness

boy in luv: when you are interested in someone (romantically, sexually, etc.), does your behavior change?

yeah probably altho i dnt have many data points to go over rn

just one day: who would you want to spend the last day of your life with?

yall expectin me 2 say bts buh id want 2 be wit my friends n family . bts can b there 2 if they want

tomorrow: goal that you would like to achieve within the next year?

get into..... college.....

cypher pt. 2: one thing about yourself you wish people would appreciate more?

i never express appreciation n all that verbally thru words or physically thru touch buh i have my own ways of showin tht i care n i guess it dont count if i dont communicate explicitly like: hey ilu ! . what happened to actions speak louder than words smh

spine breaker: what is your weakness when it comes to spending money?

makeup!!!!!!!!!! >

jump: favorite childhood memory?

getting my dog tina!!!!

miss right: what is your ideal ‘type’?

physically i tend 2 like the boyish types likkee think taehyung inu era i guess. boy next door vibes; ive never rlly been into the macho build or the preppy, neat look, or the rough around the edges, angsty shithead badboy exterior model like i like my boys S.O.F.T.! puppy-ish!

personality wise i guess jusssss idk i’m gonna copy n paste a list of qualities i look 4 in a partner that i wrote for a different ask game a while back: Sense of humor, openmindedness, compassion, reliability, ability 2 communicate directly/emotional maturity, ambition/drive/work ethic, etc.

i like it pt. 2: dream date? 

yall prolly expecting me to say smthn like staying in n watching movies n eating junk but i’d prolly wanna go out n do smthn ngl. not a movie where u can hardly even speak or a dinner date where u feel trapped n stiff buh smthn fun n mildly competitive n engaging ??????? although jus chillin dont sound so terrible either

danger: have you ever had a near-death experience?

kinda not really it was on hampton beach n i had an allergic reaction but i wasnt on death’s door or nuthn

war of hormone: most embarrassing moment?

i bled thru my fucking pants in like 7th grade n it got on the chair! it was bad lol i was jus talking about this w my friend n she was like “yeah i remember that haha:)” shut up caitlin

hip hop lover: three songs that are meaningful to you?

moonlight sonata, ballade no. 1 in g minor, bts’ entire discography ties for 3rd

let me know: are you good at keeping secrets?

no lmfao . keeping my own, sure.

rain: most spontaneous thing you’ve ever done?

some words that have never been used to describe me, grace: spontaneous, easy going, flexible. the most impulsive thing i’ve done is prolly take a random sidestreet omw home just for the heck of it lol

cypher pt. 3: favorite outfit to wear?

cute jeans w a belt, a crop top. white adidas. i like dresses too tho!! n i really like layered clothes (a mock turtle neck under a slip dress or like a pinstripe button up under a babydoll fit blouse. i jus think it’s fuckin adorable)

blanket kick: longest time you’ve spent lying in bed (sleeping or not)? 

prolly 2 or 3 days

24/7 = heaven: what are you most looking forward to?

fuck i rlly dk . doesnt that suck??

look here: do you have any hidden talents?

i can burp on command lmfaoofdj

second grade: proudest accomplishment?

dont ask me this if u dnt want to be made uncomfortable by how genuinely unproud of myself i am lol

i need u: are you in love?

wit k*m t*aehy*ng? yeah.

hold me tight: does physical contact comfort you?

no........... maybe i havent found the right person but it’s not my cup of tea generally speaking

love is not over: ever had your heart broken?

no but now i know what i can look forward to haha

dead leaves: how loyal are you?

im rlly loyal if that commitment is mutual. w my family i’m ride or die i’ll fuck anyone up who comes for my asshole brother idc!!!!!!!!!

move: last time you cried?

cant remember,, i dnt cry much. prolly watching reply 1988 when bo ra and her dad were exchanging letters on her wedding day.

butterfly: most beautiful thing you’ve ever seen?

his name looks similar to my url thats the only hint im giving

run: do you like traveling? if so, where? what’s your dream vacation?

i dnt really like travelling tbh but i do wanna go back to korea one day. not necessarily as a tourist but as a diasporic korean person myself

ma city: if you could live anywhere in the world, where would it be?

idk. i cant imagine not living in the states tbh but i also cant say i love it here either

baepsae: do you vote and/or keep up with politics?

i can’t vote but i’m in my school’s youth vote committee which runs debates for local elections and registration drives at the end of the year. i kept up with politics a lot more last year but after the election i jus got 2 bitter. i know what’s going on but only sort of surface level smh

dope: what did you want to be when you were younger? how does it compare to what you want to be now?

i wanted to be a teacher lmfao and i wanted to commute to college n save $$ bc i was a practical little fucker even when i was 6. these days i’m not that interested in teaching bc a) i’d be objectively bad at it and b) i was a classroom mentor for elementary schools and... realized i can’t work w kids tht small every damn day i’d rlly snap

fire: are you a spontaneous person?

no~

save me: your favorite place on earth?

rn??? m y bed

young forever: what is one movie from your childhood that you will always treasure?

august rush lol

boys with fun: you’re going on a roadtrip with seven other people– dead, alive, fictional, real, famous, or not. who are they, and why?

really......... seven other people:)? guess.

converse high: how many pairs of shoes do you own?

12??? 3 are the same black heel lmfao n a lot i havent worn in years but i still technically own them. i rlly b wearing the same 4 pairs in a cycle n 1 rotten bleach stained soggy mess for work shoes.

whalien 52: weirdest thing that has ever happened to you? alternatively, weirdest dream you’ve ever had?

weirdest dream i ever had was way too long to type out n had way too many references to people in my personal life to ever be interesting lmao

house of cards: when was the last time you felt sexy?

HAHAHAHAAHAHHAHAAHHAAH?????????????????

boy meets evil: have you ever committed a crime? if so, what was it? alternatively, what is the worst thing you have ever done?

does speeding count smh.

blood, sweat, & tears: kinkiest kink you have?

rolling eyes emoji. pass!

begin: who are you most grateful for in your life?

my parents!

lie: biggest fear?

real talk? failure. abandonment but i’m adopted, how cliche. also bugs

stigma: would you rather know the date of your death or the cause of your death?

date of death bc if i knew the cause but not have any indication of when it’d hit me, i’d be a paranoid agoraphobic wreck for the rest of my life

first love: do you believe in soulmates?

yes but i also believe you can have more than one! and that soulmates aren’t exclusively romantic

reflection: if you could tell your past self one thing, what would it be?

get ur fucking bangs cut

mama: are you good at giving advice?

yeah i think so

awake: if you had to be a flower, which flower would you be?

lazy daisy

lost: how good are you with directions? do you get lost easily?

horrible horrible horrible. directionally challenged. i can’t even find my way to the fucking grocery store down the road on my own. if i ever missed an exit on the highway you’d never hear from me again, i could never find my way back without a gps. i’m dead serious

cypher pt. 4: what do you do to treat yourself or relax?

take a bath or a long long shower. eat smthn warm, drink tea, do a face mask, change my sheets n snuggle up watchin a drama or movie or playin sims

am i wrong: you wake up one morning in the hospital, knowing only your name and a single memory from your life. what is that memory?

wtf how do i answer this lmfao how wud i know lol

21st century girls: do you prefer texting, calling, or video chatting?

texting! calling if it’s a long story though

2!3!: your favorite thing about bangtan?

their modesty and grace ! they’re a true underdog success story >

spring day: who do you miss right now?

uhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh

not today: what are your procrastinating right now?

math summer work smh

wings: on airplanes, do you prefer the window seat, the middle seat, or the aisle seat?

window seat!

you never walk alone: how many people do you trust with your life?

4?

[jm-fan-street-team]

On Monday morning, February 6th, a message came into our email Inbox that had us sobbing and smiling simultaneously.

In honor of the upcoming RARE DISEASE DAY, February 28, 2017, we’d like to share the full contents of said letter with you all (see below the squiggly line).  

Because this letter moved us so very much, we donated all of our Etsy store profits for January 2017 to The Isaac Foundation’s MPS II Fund, in honor of Trey Purcell and John Mayer fans around the globe.  They totaled $56.02 USD, or $71.31 in Canadian dollars.

This donation brings the total we have raised for The Isaac Foundation and MPS kids to $7,404.05. 

Here’s the letter, and it’s a MUST READ.

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Dear Trey and MPS II enthusiasts!

Enthusiasts may not be the preferred word- I’ve used “supporters” in the past- but sometimes you’ve got to keep it light in the often very dark world of MPS II. Plus, if you’re a Trey enthusiast, you’ve gotta be an MPS II enthusiast- they go hand in hand.

I hope this e-blast finds you well and living an uneventful and content life! One of the many things I’ve learned living with MPS II in my life is that uneventful and content is AMAZING. “Eventful” for people in our world means emergencies and surgeries and progression and sadness and fear and loss. There I go jumping into “deep and dark” right off the bat! But that’s the way it is with MPS II, so thanks for supporting us despite, with and through that. Us MPS folks get real quick.

In the past few months I’ve started a number of blogs that got interrupted by life, so I’ll give you a shortened version here, followed by information about our yearly Vancouver Scotiabank 5K & ½ Marathon fundraiser! Here goes:

One of Trey’s biggest changes in the past year is starting school- high school no less (Trey turns 13 on March 1, which is INCREDIBLE). Trey homeschooled until now. The elementary public school system in BC is just not set up for a kid like Trey. Trey wants to be included, but can’t do anything at grade level, so he would have been pulled out of class for almost everything, which would have been sad and hard. I found a high school program though, that is basically a mini Special Ed school within a larger public school. Kids in the Special Ed program can be integrated into things that they can participate in meaningfully, and stay in the Special Ed classrooms for things they can’t. The neat thing is, because the program is so big, even when Trey isn’t integrated, there’s a bunch of other kids around, so he’s not alone or isolated.

I am IN LOVE with the program. The highlight of the program is that the woman in charge of Trey’s program SEES Trey. She sees the well-intentioned, good-hearted, kind, friendly, generous and beautiful kid that is my son. She doesn’t see only the kid who tells adults “you have to go” when he wants understandable control and independence over his life or a kid who most of the world sees as disabled. Another aspect of the program that I am so grateful for is that they REALLY understand teens with intellectual disabilities. I didn’t realize until Trey joined this program, how lost I felt and how much there is to learn for a mom of a teen with special needs. I was clueless. Imagine transportation, friendship, going on outings and joining programs without an adult who knows Trey well, using a public restroom, and puberty (to name a few) for someone who is intellectually a young child and doesn’t understand all the social intricacies of our culture. It’s complex, sometimes scary and wonderfully heart-warming. I am on board with this journey. I LOVE the families we have met. They get me, they get us. I’ve always had my MPS II dragon moms (and a few dads too ☺) to talk to and support me, but they are far away and can’t get together very often for playdates. We’re finding community here. For his 13th birthday party, for the first time ever, we are inviting Trey’s FRIENDS to his party. HIS friends.

For medical updates, Trey continues to receive weekly IV Enzyme Replacement Therapy (ERT) and monthly IT ERT which is still in clinical trial- no major updates there.  We also still have our every 6-12 month doctors appointments, which goes hand in hand with anticipation and trepidation. The spinal cord in Trey’s neck is compressed enough from build-up that he can no longer ski, toboggan, skate, do gymnastics or anything else with a risk of falling. Falling risks paralysis. This is obviously hard news to bear, but in the scheme of MPS, it is literally not the end of the world like MPS can be (AND it doesn’t require surgery at this point), so we are grateful and find joy in other activities. Trey also received a new port last July for his IV infusions; his previous port lasted something like 8-years, so it did him well.

And last but not least in the updates of our family, another discovery for me: raising siblings to a child with a rare and progressive disease. Avery is currently participating in a sibling support group for kids with special needs, which is a big deal. Our family is so used to our family that sometimes we forget just how different our family is from most. We can’t play family board games or do family puzzles or go on family bike rides or go on family vacations with any kind of ease or relaxation. We can’t leave anything lying around the house without it getting broken. Avery and Sadie get frustrated often- it SUCKS when you forget and leave something out only to discover it ruined- which needs validation and leads to conversations about compassion, empathy, and all of our differences and strengths and weaknesses. On the flipside, they patiently help with shower routines, shoe tying, reading, buttering toast, and are scared of what might happen to Trey and worry about how they will support him once Ryan and I can no longer do so. There are a lot of things coming up for Avery and Sadie having a sibling with MPS, but I am learning and we are talking. They are (Raleigh too- she gets a LOT of love from Trey ☺) are incredible siblings.

I’ll wrap this up and get to the Scotiabank Run. On Sunday, June 25, we’re running in the Vancouver Scotiabank 5K & ½ Marathon to raise funds for MPS II Research. If you’d like to join us and run in the 5K or ½ Marathon, shoot me an email at: purcelldeb@gmail.com. If you’d like to donate, please go to: www.treypurcell.com. There is a donate button on the right side of the page. 99% of donations go to research. Not all charities can say this!

Since 2007 when our family began the MPS II Research Fund, our fund has grown. A number of Canadian MPS II families have joined our fund and The Isaac Foundation, and are organizing their own fundraisers. Jack Higginson lives with MPS II and his family is organizing a gala on April 29 in Peterborough, Ontario. If you’re in the area, their huge extended family is one to meet (they’re funny and loving and passionate and real), and all proceeds go to MPS II! See their website for more details: http://www.jacksjourney.ca/

With love and endless gratitude for your support, Deb, Ryan, Trey, Avery, Sadie and Raleigh

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The MPS II Research Fund is administered through The Isaac Foundation for MPS Treatment and Research, charitable business number 80693 0079 RR0001.

We are proud that 99% of all money donated goes directly toward research projects that aim to find a cure for MPS diseases. Last year, the MPS II Fund provided grants totalling $50,000 to two innovative gene-therapy projects specifically aimed at finding a cure for MPS II.

For more information about the MPS II Fund, visit us on the web at www.treypurcell.com.  To visit The Isaac Foundation's Official Charity site, please visit www.theisaacfoundation.com.

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NOTE:  We are an informal group of worldwide John Mayer fans who came together in support of The Isaac Foundation.  Please see our Full Disclaimer in the right margin of our page.