#grief for myslef as i was before i began experiencing symptoms
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Last year around this time my mom asked me if halloween was my favorite holiday (it is) and why. My dad jokingly answered that it's the only widely celebrated holiday in the US That doesn't have Christian roots (cue conversation about Christianity adopting/stealing celebrations and traditions from other cultures) which yeah true and fair and probably a small part but my actual reasoning (at the time i was thinking about how autism affects my life and always has) was that its a time when we celebrate the weird and different and macabre we embrace the other at halloween and as someone who always felt very other it was nice to not have to work as hard to fit in because the weirdness was celebrated
Anyway I had a horrible day of pain and brain fog and began thinking about it in the similar but different lens of chronic illness or disability and wrote this little piece. The first draft was close to unintelligible due to the aforementioned brain fog but has been edited and is brought to you now by insomnia
Why do i love halloween?
Maybe its because
I could be a zombie
The way my body falls apart beneath me. no thoughts push through the fog in my head. no feelings exist but a resigned numbness as my shambling limbs fail to go through even the most basic of functions.
I could be a vampire
The way i sleep all day in an attempt to regain energy i never had to begin with and because of the blood i drink when my lips dry and crack. what does it matter if its my own?
I could be a witch
The way my medicine cabinet looks like it should belong to someone 3 or 4 times my age and how i keep trying potion after potion and pill after pill hoping something will help.
I could be a corpse
The way my skins pales and hands freeze and cheeks hollow because i cant eat and how my joints ache in protest to even the slightest movements.
I could be a werewolf
The way my body changes so quickly and so completely because of factors i cannot control. I dont recognize myself in a mirror and my abilities are miles away from what they might've been before. I can barely remember before.
I could be a ghost
The way i hover transparent barely able to interact with my surroundings. never fully there even on my best days. how i wail and moan through the night when i cant sleep because of the pain.
Maybe i love halloween because I fit in here, with all the other monsters.
Is this a poem?
A love letter?
A rant?
I dont know.
You decide.
Everyone from doctors to strangers get to judge and make decisions about my body .
You might as well have my writing too.
While we're at it,
When i die,
Take my bones.
They can be the skeleton on your front porch steps.
#feech rambles#feech writes#poetry?#poetry#chronic illness#lupus#halloween#monsters#editing this i also thought of that one post thats like goddammit is this about grief again?#and ya know what it is#grief for myslef as i was before i began experiencing symptoms#grief for all the things i cant do#grief for the future i mightve had#but also grief for my mother and grandmother#the difference it mightve made in their lives to not jave this disease#grief for how they never got both and#only either or#grief for all that couldve been but wont be#eventually ill learn to accept it and move on#but today#today it hurts
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