#gastroperesis

[boymilf]

army of ten million ants on their way btw.

[weed-cat]

had my colonoscopy and endoscopy today. not nearly a big enough deal to justify the panic attack i had last night. Might have gastroperesis, pretty hyped that they actually found something weird.

[kiki-strike]

Eating Oreos on the floor for breakfast. Flooreos. Surely this will have no negative effects on my digestion.

[ashenmem0ries]

back at it again with a Zio Patch (Heart Monitor) a little over 1 year after the first 🫠

Waiting on Cardiology, GI AND Rheumatology Specialist referrals in Seattle

Taking nearly 30 pills/vitamins/supplements every single day

Spinal Tap coming in a week

POTS, Dysautonomia, Fibromyalgia, Gastroperesis, Ehlers Danlos Syndrome, Polyarthraglia, Vertigo, MCAS, ME/CFS and maybe more diagnosis to slap on🙃

[theautisticsimmerslashwriter]

hey y'all! i know i only have like. 10 followers but i need help with something.

tldr : need new wheelchair. scroll down for link :3

i need a new wheelchair. I’m moderately-severely disabled with eds, fnd, gastroperesis, etc etc. my parents say i have to pay for it myself, but i have no job (can’t go out to work due to no transport) so i set up commissions for art + writing. anything helps - the wheelchairs im looking at are either £400 or £700.

i hopefully will be able to get it before september. as tesco says, any little helps.

sky's ko-fi

[doelet444]

sui ideation tw | I absolutely don’t mean to be triggering if this may be sensitive for you, if so please skip this read.

These past 5 years have been very painful and things aren’t going to get better. I have been weighing in on if it’s really worth it, and it’s not, but I stay because I don’t want to hurt my mom and the few people left in my life. Living with schizo-affective bipolar, panic disorder, endometriosis, immunodeficiency, pots, chronic fatigue, gastroperesis, nerve damage throughout my body that has caused a multitude of problems, I’m worried I may have stomach cancer and am going in for an endoscopy in 5 days, have been in severe pain for months. The endometriosis and the cysts, the intense chest pains and heart attack scares from pots, my stomach issues, my psychiatric issues & psychosis, have all put me in the hospital multiple times and when I’m not in a crisis I’m rotting in bed. I went from being a physically very healthy kid to a 22 year old in a wheelchair so fast.

They always say “it gets better, don’t give up” there are ups and downs, but I have been suffering from panic attacks since I was little, depression began at age 9-10, I have been persistently struggling for more than half my life, circumstances progressively and rapidly worsening. People who say “it gets better” may have not been in a major depressive episode for 5, 10, years or even decades straight. I have been heavily medicated since i was 15 and I can say my depression is completely treatment resistant. I have tried every method under the sun aside from electroconvulsive therapy. It hasn’t gone away no matter what I’ve done, my illness is parasitically ingrained into my DNA, which is why I’m a bit of an antinatalist, anyway, My brain is fried and foggy from all the meds, I’m a zombie but utterly unstable and experience severe withdrawal without them (thanks big pharma)

It frustrates me when ppl say “they took the easy way out” or “they were a complete coward to do that” but a lot of people genuinely wait years deciding and weighing in all of their years of physical, emotional and psychological pain, logically knowing it will be like this for the rest of their life, and decide to free themselves of it all. I absolutely do not advocate for it, but I empathize so much and would never blame victims. Not everyone who commits is delusional-y impulsive and selfish about it as people try to make it out to be.

Having bipolar, even when I’m having stable day, I always have the guarantee that it will always become significantly worse and stability does not last. Knowing that often puts me in a persistent sense of dread and anxiety, I don’t feel that I can ever be at peace. it’s just how living with the illness is.

Living through this I’ve firmly come to believe one of two things, either god isn’t real, or if god exists, he is an incredibly cruel entity.

To be clear this isn’t me saying goodbye or anything, I just really, really wish I was gone. I’ll keep living until it’s my time but this is exhausting. Apologies for sounding so un-demure I’m just feeling like, actually really really bad lately.

[kibblemode]

having gastroperesis makes me feel like ive been cursed by an evil witch. oh you like eating? too bad cunt curse of feel so sick forever be upon ye

[bishiglomper]

Second time seeing my new GP. Saw my lab results last night so i thought i was gonna get the third degree about my eating habits... But she said everything had actually slightly improved since last time. Except my A1C. That was bumped up to 7.0. Which is.. okay. 👀💧

Told her I think the ozempic was giving me a major sweet tooth and its made eating meat hard. And sissy mentioned my stabbing tummy. But that hasnt happened in a few days.

But she was about to stop the ozempic because stabbing in the left side and intolerance to meat means gastroperesis. Which would be bad. I explained my thing with meat was more of an autistic burnout feeling, not that it hurt my tummy.. So I get to keep it. For now. 👀

I'm only 5lbs away from the weight i decided i would be happy with. Like lemme have that, yeah? 😅

She wants to take me off some meds. She said looking at my med list made her nauseous. Ive been on half of those for over a decade so a revamp is overdue. Especially since now im on 2 blood pressure pills and its starting to run a little low..

And FINALLY

A doctor whos wants communication from my other doctors. And not just to send me away to them to have them deal with me.

I have to sign 5 release forms so she can see what all the specialists have done so she can make informed changes. Like my diabetic meds are broken up between 3 docs, none of which were really from endocrinology lmao

Also i told her i hated cardiology and that they were useless. So once she gets those records we said she could play with my heart all she wants. Maybe since she'll have a full picture she wont just tell me to exercise my tachycardia away. 🙄

I also got a flu shot and my depo. So yay.

I had to do the mental health assessment. My sister was with me. That was kind of funny. She had opinions. 😅

Its hard to answer things like that because i am depressed and anxious, but about very specific things. 🤔 like my dysfunctional body. And the house.

In other news, I really need to do laundry. I wore this new bra i had picked up at a thrift store. I thought it was a sports bra, but now im thinking it might be some kind of compression top.

Its very comfy. I like it. Might live in it. 🤔

Normally i wouldn't want to squish my boobs but as long as it doesnt make my gut stand out, i really dont care if i dont have boobs. 🙃

[radioactivemushroomman]

Had to see a colorectal specialist and while the good news is they don't think I have cancer, the bad news is they suspect I have Crohn's and gastroperesis

[impossiblepluto]

Oh my goodness, I would be fascinated by the blood glucose management project. I also work with two providers who do steroid injections for pain management and neither has a very good process or instructions for managing blood sugars post procedure. While these injections aren't long-term like you are seeing, we have heard from patients ending up in the ED.

(And with the added complications of often taking patients off oral doses of medication which oof, don't get me started on the newer GLP1 and SGTL-2 meds which are great but bad news bears in a surgical setting because of the gastroperesis effects)

I have always been frustrated by diabetic management in an inpatient setting so I would be very excited about this project.

Also, most projects require an interdisciplinary team approach so I don't feel like a nursing focus is the incorrect way of looking at it but I guess I understand your instructors wanting you to practice branching out.

That is quite a large amount of volume to inject. Subcutaneous sounds extra awful. 😬😬

I am always astounded when the instructions are just like "give" without any additional instructions on how. I think the project would be fascinating as well. I have worked on a few other projects that because I'm newer to periop I have been able to question whereas other nurses who have done thus for 20 years have gotten used to "this is how I do it" even if they don't know the why's behind it

Mass transfusion documentation is the worst. I also really hate our code documentation flowsheet. It feels jumbled in my brain

I'm sure as you get more into clinical more ideas will jump out at you but you've got some great ones already

Okay! Now it's your turn! Tell me about your DNP project (or any of your dream projects) that you could share at a conference

Loadedddd question, haha!

I technically don't have to land on a project until this coming Spring term (April 2025), but I have been thinking about it. Since my DNP is associated with also becoming an NP, our instructors would like us to focus on how to implement things on the provider side of things versus nursing (though I think that is a bit unfair, considering the majority of my knowledge is nursing, and I'm also here to improve patient lives and outcomes, not just the provider process... but ya know).

So far my ideas include the process of implementing and managing blood glucose in stem cell transplant patients who have acute/chronic graft versus host disease, are in the inpatient setting, and are on high-dose steroids. Steroid-induced DM, or just exacerbate someone's DM! Right now, it is pretty well known that we are okay with blood glucose levels below 180 (typically between 140-180 is tolerated), but steroids make life a lot more tricky, especially when these patients can be on these steroids for *months*. I'm hoping I get to do a rotation on the transplant unit to find out their process (since I don't currently work there). This one is directly tied to how providers order and institute blood glucose management (insulin, sliding scales, etc), and I believe we can always do better when it comes to managing blood glucose.

My second idea (that likely has NO literature on it whatsoever, so it is unlikely to be a process I get to change any time soon, plus it is directly tied to nursing medication administration and not the provider side of medicine) is how we administer Daratumumab (a monoclonal antibody for multiple myeloma). It is frequently given as a subcutaneous injection these days (IV formulation still available), and it is 15 mLs over 5 minutes into the stomach once a week for about 8 weeks, then every two weeks for another 8 weeks, and then once a month until progression of disease. In this case, as someone who has given this drug hundreds of times at two different institutions, I wanted to see if I could implement a new quality improvement on how the drug is administered (a straight needle versus a butterfly needle).

Anecdotally, I have heard from nurses and patients that the butterfly needle is typically preferred. Some patients reported decreased discomfort with the butterfly needle, both during administration and hours after, and others didn't even notice. If you push the med too fast (15 mLs is a lot at once!), there can be discomfort. As for the nurses, we have better control over the syringe and have better ergonomics with a butterfly needle. When using a straight needle, you are holding the needle and syringe up against the skin and are leaning over the patient, which can be uncomfortable for the back and shoulders. You have the ability to sit back more and have more steady control over pushing the syringe when utilizing the butterfly needle. (We typically taped the butterfly needle down, which I think also decreases unnecessary needle movement). At least from what I have seen, there is no standard across the board for administration (just subcutaneous into the abdominal area).

I would love to compile some data on patient and nursing feedback on both administration techniques to get the ball rolling (but it sounds more research-based than quality improvement, and I guess I kind of disagree, but my instructors would argue with me... especially after this summer term. However, it is nursing-focused, not provider-focused, and there is unlikely to be any literature (multiple myeloma is a very small subset of blood cancer, and I pigeon-holed myself on data during my first research course in this program. I ran with it, but it was slim evidence to work with, and it was just around multiple myeloma and stem cell transplantation. I doubt anyone has even considered nursing preference in administration technique for one specific immunotherapy drug *laughs*). I'll get to this one day! Unfortunately, while I talked about it a lot with my fellow nurses in both Denver and here in Portland, I never had a way to implement a change or gather data (though before I left Denver, we changed from the straight technique to the butterfly needle. No idea what data was behind it, but the pharmacy drew up the drug and provided it with the butterfly needle. Daratumumab isn't hazardous, so my Portland job just gave us the bottle, lol)

I am also interested in palliative care (though that might be a project too big to chew for the size we have to limit ourselves to. My mentor Patti literally did her project on the barriers to mass transfusion protocol documentation. All she did was obtain qualitative data from the trauma ICU nurses voluntarily). Our mock project for our quality improvement course this summer was on palliative care in heart failure, and I know my classmate wants to take that and run with it. I also am far more interested in palliative care in oncology. But I couldn't say what I would want to do for a project other than something in palliative care and oncology.

Our instructors (and the class ahead of us, haha) would also love it if we took a previous project and continued it, but none of the current third years have a project I want to continue (no oncology!). I don't want to do a project I am not invested in or interested in.

I may come up with other ideas once we get further into our management courses and start clinicals in February (kajsdlkfjklajsdfl), but I am pretty passionate about DM treatment/management, stem cell transplants, oncology, and palliative care.

(I almost signed up for the elective about submitting abstracts and posters, but I chickened out and went with Institutional Racism. As I said, I have lowered my expectations, lmao. It has been a weird year. I have met some very impressive nursing greats - I effing met the creator of the Tanner's Model of Clinical Judgement. Mind. Blown!)

[bree-fighting-4-mylife-1979]

I found this ... and it really resonates with me and i bet a lot of fellow suffers with Eating Disorders !!! Recovery is hell because you are going against everything that your Disorder is telling you too do. Its much more than food or supplements!!! Or units of Energy I’m trying not to use the C word and not the swear word, because I know it upsets a lot of people especially a very special young women ... and you know who you are !! It’s all the destructive behaviours and abuse of things that literally destroy your body !! I know in May 2015 my Large Bowel Perforated, Medical term for blew a hole in it due to years of prolonged Laxative Abuse !! I ended up having my whole large bowel removed and a Stoma fitted !! I had it for 2 years until they reversed it and I have had Nothing but problems since and a subsequent 5 more Emergency surgeries!!! My Pancreas is destroyed from being so underweight for so many years , Kidneys , Liver , Heart , Bones and Even my Brain has been affected. Plus my Stomach with the #gastroparesis and my 2 immune system disorders !! My message from this post is for the Family & Friends Of Suffers ... Support your loved ones the best way you can . And if they tell you something.. take it in or if you are doing something too upset them .. don’t take it too heart ... suffered with Eating Disorders are all very different. But I know one thing we are very sensitive.. please don’t think it’s you . And Nobody can punish someone more with an #eatingdisorder more than we punish and blame and beat ourselves up !!! In a lot of ways we are our own worst enemy ... with a Disorder that is killing us !! Advise from someone whom has suffers most of my life . Tolerance, understanding, patients, love , forgiveness and just Support!! #anorexianervosa #anorexianervosarecovery #eatingdisorders #edrecovery #tolerance #patients #forgiveness #supportyourlovedones❤️ #chronicillness #chronicallyill #lupus #addisonsdisease #adrenalinsufficiency #gastroperesis #spoonie #lifeofachronicallyillperson 💯✌️♥️ (at Sydney, Australia) https://www.instagram.com/p/B0SJaR1HxpCuDoJ3gQ3WgZ6Lw9pUux3oc_U_d00/?igshid=1pmn10tdvpkkz

[canagirl95]

My MD/GP awareness bands were delivered today. $6.45 on Amazon #MuscularDystrophy 💚 #MD 💚 #Gastroperesis 💚 #GP 💚 https://www.instagram.com/p/CQmv3DplmYa/?utm_medium=tumblr

[amphisia]

A short list of ways to add some magic to your every day life (for disabled folks):

-say a blessing over your pills

-draw a sigil on the bottom of your cane; every time your cane strikes the ground your sigil is strengthened

-charge your electrolyte drink in the moon

-embroider sigils on your wheelchair cover

-let your energy/pain levels guide you in your day; listening to your body is indeed a form of magic

-bless your medical cannabis or other medicinal herbs

-draw sigils on yourself using pain cream or other topical medication

-charge your bottle of distilled water in the moon/sun before using it in your CPAP

-set intentions into braces (strength & support are some of my favorites)

-bless any & all mobility aids to help you

-use your pain when hexing or cursing

-ward your insulin pump against occlusions or failure

-set the intention of dumping the shit in your life when you empty your ostomy

-when using counter maneuvers for POTS, visualize yourself being grounded & connected to the earth

-use the extended digestion time with gastroperesis as a multiplier for kitchen magic

[crazycrippledqueer]

seeing other people talk about ways to regain spoons is so disheartening. they talk about things like soothing walks, dancing around, crafting, journaling, etc. everything they talk about as restful or rejuvenating is either impossible for me or costs energy (spoons). and it’s just, idk. i hate the constant reminder of how disabled i am even compared to other disabled people. i never join these conversations because i don’t wanna be a debbie downer but damn. it just sucks. i wish there was a way for me to regain spoons. best i can do is try not to overspend, cause there’s no regaining once they’re lost. and the only way to avoid overspending is to spend all day laying flat in bed (impossible with gastroperesis) with all the lights turned off, noise canceling headphones on, doing absolutely nothing. and of course there’s only so much of that a person can take before it’s just too much.

[squirrellygirlart]

UPDATE ON MOM

Hey everyone! I know I haven’t responded to everyone who messaged me on my call for help post, but I want you to know that I read everyone’s advice, thoughts and suggestions! Thank you all so much for your continued support and interest in my mom’s health!

I know it has been a while since I really posted any news, so I thought I would take a moment to do that while my mom is sleeping. So- last Tuesday, August 18, 2020, my mom was admitted to the hospital on recommendation from her Gastroenterologist. And about time too- in the two weeks before my post for help, my mom had become increasingly weak, lethargic, and delirious/confused. Since being in the hospital, they have run a plethora of tests, but all they have identified is sinusitis- they have eliminated a great deal of the things we were worried about however, including gastroperesis(sp?), several autoimmune disorders, celiac(sp?) disease, and others that I can’t recall at the moment. ((Heads up I am very tired.)) I have stayed with her since the first night she was admitted, whit two breaks at home because I was getting run down. My mom has become increasingly frustrated and combative, especially regarding her care, and has lashed out at me several times... which isn’t totally unexpected, but it still is scary. For the first few days they had her on alternating doses of potassium and magnesium sulfate, as both were critically low due to how sick she has been. After the first 2 days, they wanted to go ahead and put in a feeding tube, because while she was tolerating water, tea and some juices, she still was unable to eat and growing weaker by the day.

She was very resistive to the idea, as she has lost two family members to aspiration while in hospital, and she herself almost died when she was younger after gauze they had packed in her nose slipped loose and got caught in her esophagus. It was only two days ago that she relented, and after a failed beside attempt, they put one in today during an endoscopic procedure. ...she hates it. But, she is FINALLY getting nutrients. Aside from choking on and spitting up her meds tonight, she seems to be tolerating the feeding tube well, which gives me hope that she might start to recover.

They still aren’t entirely sure why she is unable to tolerate food by mouth, but the are pretty sure it has to do with either neuro-pathological causes and/or the sinusitis, as it can change they way things taste and cause thick secretions of mucus that make it difficult to swallow. They also have her on zinc, as that can change the way food tastes as well, and her’s was looooow. 

Not sure how much longer she will be in hospital, but it’ll be a few more days at least.After that, they have recommended her to a skilled nursing facility of her choice- because in the past 3-4 days she has gotten so weak that she can’t get up on her own, can barely stand long enough with support to transfer to her rollator (seated/rolling walker) and is barely staying awake throughout the day. Her confusion has gotten to be pretty severe, although I attribute some of that to being in unfamiliar surroundings...

It’s not perfect, but it is progress. Please keep her in your thoughts everyone.