#funding for liver transplant in india
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transplants-india · 7 months ago
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The Role of NGOs in Supporting Organ Transplant Patients
In India, the journey through an organ transplant is fraught with not just medical challenges but also financial hardships. This is particularly true for major procedures like liver and kidney transplants, which can be prohibitively expensive. Thankfully, numerous non-governmental organizations (NGOs) play a crucial role in easing this burden. These entities provide essential support ranging from financial help for liver transplant patients to assistance in navigating the complexities of organ donation systems.
Financial Help for Liver Transplant Patients Liver transplants are among the most costly medical procedures in India, with costs ranging anywhere from 12 to 25 lakh rupees. NGOs dedicated to supporting organ transplants often step in to offer financial aid to those in need. They work by raising funds through donations, charity events, and partnerships with corporate sponsors. This financial support can cover everything from pre-surgery tests and the transplant operation to post-operative care and medications, significantly reducing the financial strain on patients and their families.
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Financial Help for Kidney Transplant Patients Similarly, kidney transplant patients can benefit from the concerted efforts of NGOs. For instance, a single kidney transplant can cost between 5 to 20 lakh rupees, depending on various factors like hospital charges and post-transplant medication. NGOs facilitate access to funds through direct financial assistance or by helping patients set up crowdfunding campaigns. Crowdfunding for organ transplant expenses has emerged as a popular and effective method to gather communal support. Platforms like Ketto, Milaap, and TransplantsIndia are frequently used to reach wide audiences who are willing to contribute small amounts that collectively cover a substantial portion of the transplant costs.
Organ Donation NGO in Mumbai Mumbai, a hub for medical treatment in India, is home to several prominent NGOs focused on organ donation and transplant support. These organizations not only provide financial aid but also work tirelessly to increase awareness about the importance of organ donation. According to the National Organ and Tissue Transplant Organization, the organ donation rate in India is about 0.65 per million population, which is considerably lower than in many Western countries. Mumbai-based NGOs conduct workshops, informational campaigns, and registration drives where individuals can sign up to be organ donors, thereby increasing the donor pool and potentially saving countless lives.
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Crowdfunding for Organ Transplant Crowdfunding has revolutionized how financial help for organ transplants is gathered. NGOs often guide patients through the process of setting up a crowdfunding page, crafting the campaign’s message, and promoting it on social media to ensure it reaches a wide audience. This method not only raises the necessary funds but also spreads awareness about the patient’s specific needs and the broader issue of organ donation.
Organ Donation and Transplant Awareness Beyond financial assistance, educating the public about the benefits of organ donation is another critical area where NGOs contribute significantly. They strive to dispel myths and misconceptions associated with organ donation through community engagement activities and partnerships with healthcare providers. Their efforts ensure that more individuals become aware of how their decision to donate organs can save lives.
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Conclusion
NGOs play an indispensable role in supporting organ transplant patients in India. From providing financial help for liver and kidney transplants to fostering a greater understanding and acceptance of organ donation, these organizations are vital in making organ transplants more accessible and less burdensome. Their work not only aids in saving lives but also in nurturing a culture of giving and compassion within the community. For anyone looking into options for an organ transplant, connecting with a relevant NGO can provide not just financial relief but a support system through one of life’s most challenging periods.
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sayyourprayers · 1 year ago
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Doctors Have Said That Only A Liver Transplant Can Save My Child! - Ketto
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indiamedicaltourism · 10 months ago
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Bone Marrow Transplant Cost in India
A bone marrow transplant is a medical procedure that substitutes bone marrow that has stopped producing sufficient healthy blood cells with viable blood-forming stem cells. A bone marrow transplant is commonly referred to as a stem cell transplant.
Bone marrow refers to the spongy, fatty tissue within your bones. The components of the blood it produces include:
Red blood cells transmit nutrients and oxygen across the body.
White blood cells, which help the body resist illness.
Platelets, which are primarily responsible for clot formation.
During a bone marrow transplant, the damaged stem cells are replaced with healthy ones. This enables your body to produce sufficient red blood cells, platelets, or white blood cells to avoid anemia, bleeding problems, or infections.
Healthy stem cells could emanate from a donor or even from your own body. In such situations, stem cells can get extracted or developed before undergoing chemotherapy or radiation therapy. Then, the healthy cells are preserved and used in transplants.
Bone Marrow transplant cost in India
Bone Marrow transplant price in India usually varies from 15 to 40 lakh rupees. The cost of a Bone Marrow transplant in India varies by several elements, including the transplant category, the donor form, the complex nature of the transplant operation, and the healthcare facility where the transplant is happening. This price includes the expenses of the transplant operation, hospital stay, lab testing, pharmaceuticals, and other associated expenses.
It's important to consider that a bone marrow transplant in India costs considerably less than it would cost abroad. This is because highly qualified doctors and modern technology are more affordable in India. Therefore, consider looking at all of the alternatives if you're searching for an inexpensive bone marrow transplant in India. However, you must ensure you get the best possible treatment and medication at a cost you can bear.
Best Bone Marrow transplant hospitals in India 
Several government-financed and privately funded amenities in India conduct bone marrow transplants. The best Bone Marrow transplant hospital in India guarantees that patients obtain top-notch treatment. The Apollo Hospitals, Fortis Hospitals, and Tata Memorial Centre are some of the best hospitals for Bone Marrow transplants in India to perform this surgery. These hospitals satisfy the standards by providing top doctors access to state-of-the-art equipment and facilities.
Best Bone Marrow transplant Doctor in India
Bone marrow transplantation is a life-saving treatment that regains the haemoglobin levels of someone with Fanconianemia. This kind of transplant necessitates outstanding surgical ability and skills, as well as appropriate healthcare supplies, post-operative surveillance, and care. TheBest Bone Marrow transplants doctors in India specialise in bone marrow transplants are generally readily accessible and very skilled. The following are some of Best Doctors for Bone Marrow transplant in India:
Dr.GeetaKadayaprath of the Max Super Speciality Hospital in Vaishali, Ghaziabad
Doctor Rahul Bhargava
Doctor Nitin Sood
 Al Afiya Medi Tour is a leading medical tourism company in India. We offer medical tourism services such as finding the right doctor, the right hospital, and cost estimation for medical treatment in India for foreign patients. Some of the main countries are Bangladesh, South Africa, Egypt, Uganda, Zambia, Sudan, Dubai, Namibia, Iraq, Kenya, Saudi Arabia, Ethiopia, Nigeria, and so on. We provide free medical assistance for TURP surgery cost, lung cancer treatment, stomach cancer treatment, ovarian cancer treatment, liver transplant cost, blood cancer treatment, the best hospital for heart valve replacement, arthroscopic surgery, best liver transplant hospital, brain tumor surgery, cosmetic andplastic surgery, heart surgery, spine tumor surgery,lung transplant, liver transplant treatment, knee replacement surgery, hip replacement surgery, best bone marrow hospital, etc.  If you are searching for free medical and healthcare consulting to find the best hospitals and top doctors and surgeons in India for any treatment then contact us- Alafiyameditour.com.
Source: https://alafiyameditour1.blogspot.com/2023/09/bone-marrow-transplant-cost-in-india.html
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filaantrocrowdfunding · 2 years ago
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Crowdfunding for bloodthirsty inherited disease - Thalassemia
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Thalassemia is an inherited blood disorder. It affects the production of haemoglobin that the body naturally produces otherwise, causing reduced red blood cells. Haemoglobin is a protein present in the blood cell. It enables your red blood cells to carry oxygen throughout your body, supplying the other cells with nutrients.
What happens if you have Thalassemia?
Your body and bone marrow produces less healthy haemoglobin proteins and healthy red blood cells if you have thalassemia. Anaemia is a condition whereby there are inadequate red blood cells. Lack of healthy red blood cells can deprive your body’s cells of the oxygen they need to create energy and thrive since red blood cells have an essential function in delivering oxygen to the tissues of the body.
What are the symptoms of Thalassemia?
Thalassemia comes in various forms. Your condition’s kind and severity will determine the indications and symptoms you experience.
Signs and symptoms of thalassemia include:
Facial bone deformities
Weakness
Fatigue
Pale or yellowish skin
Dark urine
Abdominal swelling
Slow growth
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What is the treatment for Thalassemia?
Treatment for patients with mild thalassemia trait isn’t necessary.
Treatments available for moderate to severe thalassemia include:
Frequent Blood Transfusions
Blood transfusions are usually necessary for more serious conditions of thalassemia, possibly every few weeks. Iron accumulates in the body as a consequence of blood transfusions over time, which can injure the heart, liver, and other organs.
Stem Cell Transplant
A stem cell transplant generally referred to as a bone marrow transplant, can be an option in some scenarios. It can minimize the need for lifelong blood transfusions and medicines to control iron excess in children who have severe thalassemia.
But how to afford these expensive yet life-saving treatments? At such times, what people do is, mortgage or sell their ancestral property or belongings and are found to be in debt later. Now that the world is expanding, you can find ways to fund even prolonged expensive medical treatments.
Crowdfunding is a way that can assure paying for expensive medical treatments like bone marrow transplants. Long-Medical crowdfunding is a social cause that has received considerable donations from kindhearted people all around the world. People in India who are in desperate need of financial support for medical treatments can do so by joining crowdfunding platforms to raise funds necessary for the patient’s care. medical treatments that also include transplants without you selling your valuables.
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Shazin is Waiting for a Life-Saving Bone Marrow Transplant. Help Him!
Mohd. Shazin is 16-year-old son of Mr. Abdul Gafoor and Mrs. Sahida hailing from Kannur, Kerala. Shazin was diagnosed with Thalassemia Major, a blood disorder when he was one year old. Since then, blood transfusions every two weeks have been necessary for him to survive.
Shazin often falls sick with a high fever, cough and cold, his body is growing weak and has to miss school and other activities most days. The doctors at Narayana Hospital, Bangalore have proposed a Bone Marrow Transplant worth Rs. 25,00,000/- (Rupees Twenty-Five Lakhs Only)
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Life Dependent on Blood Transfusions, Save 10-Year-Old Kirti Lokesh
Kirti Lokesh, a ten-year-old child, has been cursed by Thalassemia Major. His childhood has been caged because of this disease. It all started when Lokesh was two years old. What started as a mere fever turned into an unimaginable catastrophe. Soon, he started losing strength in his body, and he shrunk into skin and bones. After undergoing numerous tests, Lokesh was diagnosed with this bloodthirsty disease. The only way to free him from pain is through a bone marrow transplant. But the transplant comes with a price tag of Rs 35,00,000/- (Rupees Thirty-Five Lakhs). Kirti’s father, Keerthi Balaji is an auto driver in Visakhapatnam, Andhra Pradesh. He barely earns enough to feed his family of five. Somehow he has managed to arrange some amount for his treatment. But right now he has exhausted all sources of funding.
Please donate as much as you can for the sake of Lokesh. His life is in your hands right now.
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spectruminsurance10 · 2 years ago
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Compare & Buy The Best Life Insurance Policies In India
In Exchange For A Premium, The Insurance Company Agrees To Pay A Lump Sum To The Policyholder After A Specified Period Of Time Or Upon The Death Of The Insured Person Under The Terms Of A Life Insurance Contract. Financial Security Is Provided To You And Your Family By Life Insurance. Some Life Insurance Policies Also Provide Optional Add-ons, Including Benefits For Critical Sickness, Unintentional Death, And More. It Is Impossible To Exaggerate How Important Life Insurance Is For Safeguarding The Financial Security Of Your Loved Ones.
What Other Kinds Of Life Insurance Policies Are There?
Types of life insurance in India 
Term Life Insurance: It Is An Insurance Contract With A Set Duration That Is Time-limited.
Whole Life Insurance: It Is A Lifetime Insurance Policy, But It Only Pays Out When You Pass Away Or When The Policy Matures, Whichever Happens First.
Child Life Insurance: A Form Of Insurance Policy Called Child Life Insurance Covers Kids Up To A Certain Age.
Joint Life Insurance: The Insurance Coverage You Receive Is Called A Joint Life Policy And Is Based On Who Dies First. It Is A Payment That An Insurer Gets In The Event That His Other Insured Companion Passes Away During The Time Frame.
Money Back Insurance Plans: In A Money-back Plan, The Insured Person Gets A Percentage Of The Sum Assured At Regular Intervals, Instead Of Getting The Lump Sum Amount At The End Of The Term. An Endowment Scheme That Offers The Advantage Of Liquidity.
Wealth Insurance Plans: Wealth Insurance Guarantees That You Will Get A Lump Sum Of Money When The Policy Matures.
Guaranteed Income Insurance Plans: As Their Name Suggests, Guaranteed Income Plans Offer Life Insurance With Recurring Guaranteed Payouts And Maturity Advantages.
Retirement Insurance Plans: After Your Working Income Quits, Retirement Plans Are Insurance Policies That Are Intended To Give You Financial Security. You Can Choose To Get Monthly Pension Benefits By Purchasing Annuity Plans With The Money From Your Retirement Plans.
Critical Care Insurance Plans: Health Insurance Programmes With Fixed Benefits Called "Critical Illness Health Plans" Provide Coverage For A Certain Set Of Critical Illnesses. Cancer, Heart Attacks, Strokes, Major Organ Transplants, Liver And Lung Failure, Multiple Sclerosis, And Others Are Among The Main Illnesses Covered.
Group Term Insurance Plans: One Term Insurance Contract Is Provided To Cover A Number Of Persons Under Group Term Life Insurance.
Why Do You Need To Buy The Best Life Insurance?
A Vital Component Of Your Financial Plan Is Life Insurance, Which Enables You To Ensure The Future Security Of Your Loved Ones. In The Event Of The Policyholder's Untimely Passing, Buy The Best Life Insurance Serves To Reduce The Likelihood Of Financial Hardships For The Policyholder's Family. Because It Combines The Investing And Insurance Components Of A Policy, Life Insurance Is One Of The Most Crucial Financial Planning Instruments On The Market. Life Insurance Is Necessary To Manage Finances For Your Children's Education, Create A Future Savings Plan So You Have A Reliable Source Of Income After Retirement, And Make Sure You Have Additional Income In Case Your Earning Capacity Is Limited Due To A Major Illness.
Benefits Of Life Insurance Policies
Many Benefits Come With Life Insurance. Check Out A Couple Of Them:
Financial Security: Products For Life Insurance Policies Can Give You And Your Loved Ones Financial Stability. By Selecting A Sizable Life Insurance Policy, You May Ensure Your Family's Financial Security And Ensure They Can Continue To Live Well Without You.
Retirement Planning: You Can Create A Retirement Fund By Using Life Insurance Products Including Annuity Plans, Savings Plans, Endowment Plans, And Others. These Programmes Help You Secure Your Retirement With Sufficient Funds And Provide A Guaranteed Income Upon Maturity.
Tax Savings: Plans For Life Insurance Provide Numerous Tax Advantages To Encourage Better Savings. In Accordance With Sections 80c And 80d Of The Income Tax Act Of 1961, The Premiums Paid Are Tax-deductible. In Most Circumstances, The Maturity Benefits Are Also Tax-free Under Section 10(10d).
Wealth Creation: You Can Accumulate Funds And Grow Wealth Over Time With The Aid Of These Life Insurance Programmes. Plans For Life Insurance Can Be Utilised To Store Money For Future Requirements. They Provide Choices To Address Various Risks And Objectives.
Disciplined Investment: Plans For Life Insurance That Require Regular Premium Payments Foster Financial Responsibility. With A Variety Of Products, Including Unit-linked Life Insurance Plans, Guaranteed Savings Insurance Plans, Endowment Plans, And Others, They Provide Distinctive Investment Opportunities For Every Type Of Risk.
Conclusion
A Comprehensive Financial Plan Must Include Buy The Best Life Insurance And Best Health Insurance Coverage. In The Event That You Pass Away Or Become Unable To Work, It Might Assist To In Financially Support Your Family. An Online Insurance Site Aggregator Called Policybachat Assists Its Customers In Choosing Insurance Products Online Based On Their Needs. Please Visit Our Portal To Compare Insurance Plans Offered By Major Life Insurance Policies Providers And Choose The One That Best Meets Your Needs.
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invetsmentsandmore · 2 years ago
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theyknowthatweknow · 4 years ago
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Please help this lady's son receive a transplant from his father & survive liver disease! - Ketto
"Allah, I have never asked anything from you, but today, despite all your blessings my first and only son is in great danger.
We never expected that the joy of having a child would vanish so soon.
It has only been 5 months since his birth and he is fighting a deadly disease.
A life in danger. How it all started...
My husband was out at work, Ayaan was sleeping peacefully and I was getting chores done. Then out of nowhere, I heard my baby crying. I rushed over to calm him down and noticed that his body temperature was really high.
A thermometer recorded his temperature at 102 degrees celsius.
Terrified, I called my husband home.
We rushed him to the hospital, the doctors prescribed medication but we didn’t notice any improvement in the days that passed.
Instead, I noticed his stomach swelling and his body turning yellow. Clueless, we took him to a different hospital.
Thankfully the doctors were really helpful and took him in immediately. They ran some tests and walked out to us after an hour.
The look on the doctor's faces told us something was very wrong. At that moment, we knew our prayers had not been answered.
"The high fever and swelling in your son’s abdominal region is owing to a failing liver. Your son needs an immediate liver transplant. We are sorry to inform you but without the urgent transplant your son might not survive. We will test to see if you’re a donor match. Let's hope for the best," said the doctors.
Like a hard slap across my face, these words shifted the world beneath my feet. Nothing seemed right.
Then, after a series of tests…
My husband matched as a donor. Relieved, he’s ready and willing to donate a part of his liver to save our baby boy.
I could finally see a ray of hope when reality smashed us again. My son's treatment will cost GBP 22,778.00. An amount we could never dream of.
I am a housewife and my husband sells books. He earns Rs 7,000 a month. His income isn't stable and we have no means to fund our son's treatment.
We need you to help save our son. Please, consider taking a minute to donate to Ayaan. A minute of yours can help Ayaan get minutes of a lifetime."
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zanypaperprince · 4 years ago
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Best Liver Transplant Hospitals in India
It was the most difficult time of my life says the father of Baby Maya Nyambura, Citizen of republic of Kenya (In Swahili it's Jamhuri ya kenya). Isn't it the hardest thing in our lives to deal with a situation wherein a family member is seriously ill?  I am certain it is for maximum number of people reading this article, the same was the situation of Mr. Joseph, father to a four year old Baby Maya.
Maya was diagnosed with end stage liver disease also called chronic liver failure in the year Jan 2019 at a hospital in Nairobi, Kenya. The family visited the best of the gastroenterologist in kenya look for possible treatment locally in their own country, every single medic they met gave them whatever best possible they could do for the child, however, it is painful to say that it was not enough. The child needed a treatment which is for extreme conditions and that treatment was liver transplant.
There were multiple meetings organised by the family for discussions related to treatment and  on raising funds for treatment and the day family realised that she doesn't need anything less than a liver transplant as that was the only option left to save the life of Baby Maya, In the family meeting on a sunday evening at the residence of Mr. Joseph, discussions related to liver transplant happened and all the well wishers present their contributed whatever little they knew about the treatment called liver transplant.
Now, the question how to find best liver transplant hospitals in India, many who were part of the meeting had been to india for some or the other treatments but not specifically for liver transplant. It was a very confusing state for everyone to decide on how to move ahead with process as nobody had a clue about liver transplant hospitals in India.
Fortunately, one fine day Mr. Joseph visited a local hospital to collect a report of the test which was done few days ago, while he was sitting in the waiting area, he saw a young woman with her kid and the two of them were talking something of India.
Mr. Joseph was in a poor state of mind and body and he had to gather all the courage to ask the woman, Have you been to India Madam? The lady replied with a smiling face 'yes', we just came back few days back from New Delhi, India. She told Mr. Joseph that she visited one of the for liver transplant of her child. Mr. Joseph was very excited to know her experience in India and also about the hospital and treatment process in India. He wanted to know which one is the best liver transplant hospitals in India ?
The lady shared contact of GHN Healthcare and said these guys are very professional and experienced to offer you hand holding assistance throughout your treatment journey.
Mr. Joseph was very much relaxed to have a reliable contact in India in order to organise for them to get the best hospital, cost, arrangements of visa letter, airport pickup, fixing up appointment and booking for accommodation etc. Once he connected he was guided on steps to follow in order to get the best liver transplant hospitals in India and the process for them was made very easy and swift for them to travel at the earliest for treatment of Baby Maya Nyambura.
Finally, Baby underwent liver transplant surgery at a leading hospital in New Delhi, the capital city of India with some of the world renowned hospital. She got discharged in a stable condition post transplant, stayed in India for a month for the follow ups and then travelled back to Kenya.
Mr. Joseph & the wife wrote an email after going back, Travelling to a strange place is very stressful but when God connects you with reliable, credible and people with good intentions, you feel very light and they make you feel at home. They were incredibly thankful to the whole team of GHN Healthcare for offering them hand holding assistance in India. For more details about Best liver transplant hospitals in India. click here
For any enquiry related to "best liver transplant hospitals in India"
WhatsApp us  for Liver Transplant Helpline (International Patients): +91 9818857545
You can also mail us at [email protected]
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uicscience · 4 years ago
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Top: Dr. Damiano Rondelli; above, sickle cells under a microscope.
CRISPR technology to cure sickle cell disease at UIC
University of Illinois Chicago is one of the U.S. sites participating in clinical trials to cure severe red blood congenital diseases such as sickle cell anemia or Thalassemia by safely modifying the DNA of patients’ blood cells.
The first cases treated with this approach were recently published in an article co-authored by Dr. Damiano Rondelli, the Michael Reese Professor of Hematology at the UIC College of Medicine. The article reports two patients have been cured of beta thalassemia and sickle cell disease after their own genes were edited with CRISPR-Cas9 technology. The two researchers who invented this technology received the Nobel Prize in Chemistry in 2020.  
In the paper published in the New England Journal of Medicine, CRISPR-Cas9 Gene Editing for Sickle Cell Disease and β-Thalassemia, researchers reported gene editing modified the DNA of stem cells by deleting the gene BCL11A, the gene responsible for suppressing fetal hemoglobin production. By doing so, stem cells start producing fetal hemoglobin so that patients with congenital hemoglobin defects (beta thalassemia or sickle cell disease) make enough fetal hemoglobin to overcome the effect of the defective hemoglobin that causes their disease.  
The advantage of this approach is that it uses the patient’s cells with no need for a donor. Also, the gene manipulation does not use a viral vector as with other gene therapy studies but is done with electroporation (quick production of pores into the cells with high voltage) which is known to have low risk of off-target gene activation, according to Rondelli.  
Sickle cell disease is an inherited defect of the hemoglobin that causes the red blood cells to become crescent-shaped. These cells can lyse and obstruct small blood vessels, depriving the body’s tissues of oxygen. The disease can cause extreme pain and damage the lungs, heart, kidneys and liver. Beta thalassemia is a blood disorder that reduces the production of hemoglobin — the iron-containing protein in red blood cells that carries oxygen to cells throughout the body. In people with beta thalassemia, low levels of hemoglobin lead to a lack of oxygen in many parts of the body.
The first two patients to receive the treatment have had successful results and continue to be monitored. Rondelli is on the steering committee for an international clinical trial, with UIC being the only site in Chicago. Although the trial is at an early stage and the first patients will be followed for some time before expanding the numbers worldwide, UIC will be among the few sites ready for this treatment.
“It is a great privilege for UIC to be part of this international study and I hope that in the future we will have our own patients undergo this procedure,” Rondelli said.
“UIC and UI Health is an ideal place for any cellular therapy in sickle cell disease because of our experience and success in stem cell transplantation in these patients. In fact, over 75% of sickle cell patients can be cured with a transplant, and we have already done over 50 cases,” he said.  
While a full-match donor is still the first line of treatment, finding a compatible stem cell donor is challenging. For this reason, many centers including UI health have developed strategies to successfully utilize donors who are only 50% compatible, called haploidentical donors. However, according to Rondelli, in about 30% to 50% of the patients, there are still multiple barriers that can limit the possibility of a donor-derived transplant, such as a family donor availability, or the presence of antibodies in the patient caused by many prior red cell transfusions, that would reject the donor stem cells.
“This gene-editing procedure has the potential to overcome all of these. Cells of the same patient can be manipulated and can be transplanted without the risk of rejection or to cause immune reactions from the donor (graft-versus-host disease),” said Rondelli. “For the almost 900 patients with SC coming to our hospital, this should be great news.”
Patients who in the future will participate in the trial will have cells sent to the CRISPR manufacturing site where the cells undergo genetic editing. Patients then receive chemotherapy prior to the edited stem cells being re-inserted into their bloodstream.  
Researchers hope this treatment can be a game-changer for world health. Sickle cell disease and beta thalassemia and other congenital blood disorders are major diseases in the world. Rondelli said 5 million people only in Nigeria suffer from sickle cell disease, and many others in Africa. Also, currently, 30% of transplants being performed in India, which has 1.3 billion people, are to treat severe beta thalassemia, he added.
“The hope is that this treatment will be accessible and affordable in many low-middle-income countries the Middle East, Africa, and India, and have an important impact in the lives of many people in these areas,” said Rondelli.
The CRISPR-Cas9 Gene Editing for Sickle Cell Disease and β-Thalassemia research paper was authored by Haydar Frangoul and Jennifer Domm of the Sarah Cannon Center for Blood Cancer at the Children’s Hospital at TriStar Centennial, Nashville; Akshay Sharma of St. Jude Children’s Research Hospital, Memphis; David Altshuler, Brenda K Eustace, Julie Lekstrom-Himes and Angela Yen of Vertex Pharmaceuticals; Martin Steinberg of Boston University School of Medicine; Yi-Shan Chen, Tony Ho, Andrew Kernytsky and Sandeep Soni of CRISPR Therapeutics, Cambridge, Massachusetts; M. Domenica Cappellini of University of Milan; Franco Locatelli of Ospedale Pediatrico Bambino Gesù Rome, Sapienza, University of Rome; Juergen Foell and Selim Corbacioglu of University of Regensburg, Regensburg, Germany; Rupert Handgretinge of Children’s University Hospital, University of Tübingen, Tübingen, Germany; Josu de la Fuente of Imperial College Healthcare NHS Trust, St. Mary’s Hospital, London; Stephan Grup of Children’s Hospital of Philadelphia, Perelman School of Medicine at the University of Pennsylvania, Philadelphia; Antonis Kattamis of University of Athens, Athens; Amanda Li of BC Children’s Hospital, University of British Columbia, Vancouver; Donna Wall of Hospital for Sick Children-University of Toronto; Markus Mapara of Columbia University, New York; Sujit Sheth of Joan and Sanford I. Weill Medical College of Cornell University, New York; Mariane de Montalembert of Necker-Enfants Malades Hospital, Assistance Publique-Hôpitaux de Paris, University of Paris; and Damiano Rondelli, University of Illinois Chicago.
Funded by CRISPR Therapeutics and Vertex Pharmaceuticals; ClinicalTrials.gov numbers, NCT03655678 for CLIMB THAL-111 and NCT03745287 for CLIMB SCD-121.
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transplants-india · 9 months ago
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Honoring Heroes: Odisha CM Recognizes Organ Donors with State Honors
Organ donation is a massive problem in India. There are hundreds of thousands of people who need organ transplants in Mumbai to stay alive. But there are way more people who need transplants than there are organ donors. So many people are stuck waiting, hoping an organ becomes available in time. The biggest need is for kidney transplants - that's what most people are waiting for an organ donor.
Overcoming Barriers: Education and Financial Support There are a few reasons why there aren't enough organ donors in India. Many people don't understand its importance or have misconceptions about it because of cultural/religious beliefs. The cost of transplant surgeries is also really expensive for many families. Some organizations are already working on this. A transplant organization in India provides money, counseling, and other support to transplant patients and their families. The MOHAN Foundation is a non-profit organization that spreads awareness about organ donation and helps set up transplants across India.
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Odisha's Pioneering Initiative In the middle of all this, the state of Odisha in India has done something remarkable to honor organ donors. The Chief Minister there, Naveen Patnaik, made it so that organ donors get treated with special honors - like really important or famous people. This includes things like a 21-gun salute, having their body wrapped in the Indian flag and other ceremonies. The families of organ donors also get financial help for kidney transplants in India and are recognized yearly on World Organ Donation Day. It's a big way to show how much organ donation is appreciated.
A Powerful Message and Ripple Effect Odisha's new policy for honoring organ donors is a compelling statement. It says that organ and tissue transplantation in India is an incredibly heroic and respectable thing to do. By giving donors the same types of honors as famous or important people, the government recognizes their selfless sacrifice and how their decision saved lives. This doesn't just honor the donors and their families. It could also inspire more people to become donors themselves. If it motivates others, it could lead to a lot more organ funding for liver transplants in India over time.
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Transplant Facilities in Mumbai There are some good places to go for people in Mumbai who need information about organ transplants or are considering becoming organ donors. The Lilavati Hospital & Research Centre has programs for liver and kidney transplants. Global Hospitals Parel can do transplants for different organs, too. There's also an organization called Jeevan Aarogya that is run by the Maharashtra State Government. Their goal is to educate people about organ donation in Mumbai and get more donors signed up. They do a lot to spread awareness about this important cause.
A Step Towards a Brighter Future Odisha's giving state honors to organ donors is a huge deal that could really increase organ donation across India. By honoring the amazing sacrifices donors make and supporting their families, the government is helping create a future where more lives are saved through organ donation. With the massive shortage of organs in India, this pioneering approach from Odisha gives people hope.
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fuckyeahmichaeljackson · 6 years ago
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Michael Jackson once said he would slit his wrists before ever hurting a child. I believe him. Here’s a few examples of his humanitarianism:
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In 1985, Michael Jackson and Lionel Richie wrote the song 'We Are The World’ together in order to combat poverty in the Third World. The record sold over ten million copies worldwide and raised $63 million+ for humanitarian aid in Africa and the US.
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February 6th, 1988. ‘Man in The Mirror’ entered the pop charts. Jackson donated all of his royalties from the single to Camp Ronald McDonald for Good Times, a camp for children who have cancer.
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December 1988. Jackson paid a visit to 12 year old David Rothenburg, later known as Dave Dave. who was hospitalised after being doused with kerosene and seriously burned by his father five years previously. Despite an estimated fifty operations, Rothenburg remained disfigured. The star paid for all necessary further operations. They remained friends and Dave Dave said Michael was like a father to him.
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7 February, 1989. MJ visited the Cleveland Elementary School in Stockton, California. Three weeks earlier, a gunman had open fired 100 bullets in the school playground, killing five children and wounding 39 others before turning the gun on himself. Jackson spent time comforting the children and helping them to think positively again.
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Eight-year-old Thahn Tran, who had lost his younger brother during the massacre, spoke about the effect MJ’s visit had on him: “I didn’t want to go back to school, but Michael made it all right again. If he goes there, it must be safe. Michael is my friend and I’m very glad.”
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May 6th 1992. Michael paid the funeral costs for 9 year old Ramon Sanchez. Sanchez was killed by a stray bullet during the Rodney King riots in California and the boy’s parents could not afford to bury him.
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November 25th, 1992. Michael granted the wish of young David Sonnet, who he met through the Make A Wish Foundation, an organisation that grants wishes to terminally ill children. Sonnet had suffered a brain aneurysm at the age of 8, leaving him unable to talk or walk. Jackson invited the boy and his mother to his Neverland home and later, his mother credited the singer’s music for helping her son to recover from a coma.
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In December 1993, Jackson and his newly formed 'Heal the World Foundation' supported the UK’s 'Operation Christmas Child’ in airlifting over 100,000 gifts, toys, sweets, pictures and school items to needy children in Sarajevo.
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1994. Michael Jackson and Lisa Marie Presley met a four year-old boy in Budapest. Bela was diagnosed with a congenital liver disease that discolored his skin and prevented him from digesting food. Without a transplant, doctors gave him one year to live. The estimated cost for the transplant was $120, 000. MJ pledged funds from Heal the World, the charitable foundation he created in 1992 to cover all expenses related to Bela’s transplant. Bela is alive and well and says he cried like he lost a father when Michael died.
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February 1995. MJ made a private request to attend the funeral of Craig Fleming, a two year old boy whose mother threw him over the side of a Los Angeles bridge along with his four year old brother before jumping to her death. The mother and four year old survived. Jackson contributed towards the surviving youngster’s medical expenses and founded a special trust fund for his ongoing care.
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November 1, 1996. Michael Jackson donated most of the proceeds from his HIStory concert in (then) Bombay, India, to the poor. When travelling from the airport, he stopped the car several times to dance with, pick up and hug people on the streets.
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Later this same month, he visited an orphanage and a school for blind children in Thailand. At the orphanage, he distributed toys and gifts to the children before leaving a donation of $100,000. An orphanage spokeswoman at the time said, “They don’t know him as a pop star. To them he is just a very nice man who came here to offer hope.”
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Michael was a humanitarian. He was just a good, kind, over trusting man. He just put his faith and trust in the wrong people.
There’s so much we don’t know because people are always coming forward of the kindness he gave them, but you can read some more of what he did here:
https://www.scribd.com/doc/14283749/Michael-Jackson-s-Humanitarian-Efforts-1979-2003
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indiamedicaltourism · 11 months ago
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Best Cancer Hospitals in India
There are several best hospitals in India that are known for their expertise in cancer treatment. Though, the rankings of hospitals can change time to time. It's essential to do your own research and consult with medical professionals before making any decisions. Some of the best cancer hospitals that were considered among the best for cancer treatment in India are given below-
Apollo Hospitals, Chennai: Apollo Hospitals is a well-known private healthcare chain in India, and their Chennai branch has a dedicated cancer institute known for its multidisciplinary approach to cancer care.It is the best cancer hospital in India.
Artemis Hospital, Gurgaon: This hospital is equipped with advanced technology and a team of experienced oncologists, making it a preferred choice for cancer treatment.
Fortis Memorial Research Institute, Gurgaon: This hospital has a comprehensive cancer treatment department with a team of experienced oncologists and modern facilities.
Max Healthcare, Delhi: Max Healthcare is another prominent private healthcare provider in India, with a strong focus on cancer treatment, including surgery, chemotherapy, and radiation therapy.
All India Institute of Medical Sciences (AIIMS), Delhi: AIIMS is a premier medical institute in India and has a dedicated cancer center that offers advanced treatments and research opportunities.
Tata Memorial Hospital, Mumbai: This is a pioneer in cancer treatment and research in India. It's a government-funded comprehensive cancer center known for its state-of-the-art facilities and experienced oncologists.
Rajiv Gandhi Cancer Institute and Research Centre, Delhi: This hospital specializes in cancer treatment and research, offering a wide range of services across various cancer types.
Christian Medical College (CMC), Vellore: CMC is a highly respected medical institution with a comprehensive cancer center known for its quality of care and research contributions.
The best hospital can vary depending on the specific type of cancer, treatment options, location, and personal preferences. It's important to consult with oncologists, get second opinions, and consider factors such as treatment success rates, patient reviews, and the hospital's infrastructure before making a decision. Additionally, newer hospitals or institutions that have made advancements in cancer treatment after my last update might also be worth considering.
 Al Afiya Medi Tour is a leading medical tourism company in India.  We are offer medical tourism services in India foreign patients. Some of the main countries are Bangladesh, South Africa, Uganda, Zambia, Namibia, Iraq, Kenya, Ethiopia, Nigeria, and so on. We provide free assistance for TURP surgery cost, lung cancer treatment, breast cancer surgery cost, stomach cancer treatment, ovarian cancer treatment cost, liver transplant cost, best hospital for heart valve replacement, liver cancer treatment cost, bone marrow transplant cost,prostate cancer treatment cost, arthroscopic surgery, best liver transplant hospital, brain tumor surgery cost in India, kidney transplant, liver cancer treatment, aplastic anemia treatment cost, best bone marrow hospital, acute lymphoblastic leukemia treatment cost etc.  If you are searching for free medical and healthcare consulting to find the best hospitals and top doctors and surgeons in India for any treatment then contact us- Alafiyameditour.com.
Source: https://bestmedicaltourismcompanyinindia.blogspot.com/2023/08/best-cancer-hospitals-in-india.html
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filaantrocrowdfunding · 2 years ago
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How Crowdfunding is Helping to Pay for Liver Transplants
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The liver is the body’s second-largest solid organ. It performs multiple functions and is vital for digestion. It liver processes and balance nutrients from the blood that comes from the intestines and stomach. It also metabolises drugs into forms that are easy to use for different parts of the body. Hepatitis, Cirrhosis, Liver Cancer, Hemochromatosis, Wilson’s disease, and a few others are all liver diseases proven to be fatal.
There is a multitude of reasons that cause these diseases. A viral infection, autoimmune problems, consumption of too much alcohol and fatty foods, and consuming too many toxins, and drugs are various causes of liver diseases that are fatal.
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A liver transplant is a treatment which has to be resolved quickly, especially in infants and young children who have a lower immune system than adults. According to the Directorate General of Health Services, 200,000 of the 2,60,000 deaths caused by liver diseases may be directly related to liver failure, and an unbelievable 10–15% of these lives may have been saved if a liver transplant had been provided in a reasonable timeframe.
But how to afford a liver transplant? At such times, what people do is, mortgage or sell their ancestral property or belongings and are found to be in debt later. Now that the world is expanding, you can find ways to fund even prolonged expensive medical treatments.
Crowdfunding is a way that can assure paying for expensive long-Medical Treatment. Medical crowdfunding is a social cause that has received considerable donations from kindhearted people all around the world. People in India who are in desperate need of financial support for a liver transplant can do so by joining crowdfunding platforms to raise funds necessary for the patient’s care. medical treatments that also include transplants without you selling your valuables.
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Aditya Needs A Liver Transplant To Survive. Help Him!
“My son is suffering from a disease I cannot even pronounce. He has blisters on his joints they say. His liver is severely affected. Doctors say he needs a treatment that would cost Rs. 16,50,000/-. I am a daily wage labourer and earn only Rs. 450/- per day. My wife used to work on a farm but had to leave that work to look after Aditya. The amount required is too much to arrange for us, and I have spent every penny I had with me on my son’s treatment so far. I do not think I will be able to gather this sum of money in my whole life! I need your help to save my son. I want to see him happy and healthy. Please help me!”
-Mr. Dadasaheb Raut
Aditya deserves a second chance at life, please help him.
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An Urgent Liver Transplant Will Set Little Gourav Free From All His Sufferings; Help Him!
Gourav, a 10-year-old boy from Madhya Pradesh is suffering from Biliary Atresia, a liver disease. He started living a difficult life full of hospital visits and medicines after he was diagnosed with it when he was just two months old. He is currently taking treatment at Rela Hospital and needs a liver transplant worth Rs. 22,50,000/- (Rupees Twenty Two Lakhs Fifty Thousand only). His father is the sole breadwinner in the family and earns a minimal income that barely supports their monthly expenses. Please help Gourav so he is free from this dreadful cage.
Visit https://filaantro.org/fundraiser/view/help-gourav-rao to help Gourav
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krishnamaheshwari30098 · 3 years ago
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Crowdfunding in health sector
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What is crowdfunding?
Crowdfunding is a worldwide concept that has a long history and several roots, it is when the crowd collects or donates funds to a campaign for a certain cause. It can be generalized into 3 sections, the first section is of the individuals, group of individuals or organization starting the campaign, the second section is of the people who support the needy or support the cause and contribute funds for the campaigns, and lastly and most importantly the medium in most cases it is the website that brings both the donor and receiver party together. One of the notable impacts of offline crowdfunding has been the assembling and installation of the Statue of Liberty where the government of the United States of America was not able to provide funds for the project of the monument and through a newspaper advertisement, 160,000 citizens came together to fund the project.
Crowdfunding in the Health Sector
Crowdfunding in the health sector is used to raise funds for medical care or related expenses. In recent years, crowdfunding gained admiration especially in countries without universal healthcare coverage. Though, these universal healthcare coverages do not cover the medical charges of everyone. The same goes with the health insurance funds as they too do not cover all medical expenses. With the help of crowdfunding, it becomes easier to raise funds online for patients who cannot raise funds for their treatment.
It is a fantastic platform for receiving funds without even taking loans or paying EMIs. Investments or donations are usually made through online platforms, which then organize and manage the funds. The Healthcare sector is one of the domains that benefit the most from Online Crowdfunding platforms, largely because numerous patients (the crowd) have a humanitarian interest in healthcare issues and often show compassion to the patients. In Crowdfunding, neither the campaigner nor the donor has any age, religion, caste, creed, or relation barrier. The true purpose of the campaign is to raise funds without any restriction. According to the article by Entrepreneur India, Healthcare crowdfunding is growing enormously as crowdfunding platforms are raising crores of rupees every week for medical causes.
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You may have come across ads on the internet that displays messages that say “My child's life is at stake, please help me or my baby will lose her life". They are followed by images of a critically ill person and his or her sorrowful family members. These intensely touching cases are usually a form of crowdfunded healthcare i.e. raising funds online to pay for someone’s medical expenses. Unfortunately, it is often the only option left for people who are in dire need of medical funds.
According to an article in "The Hindu", in the year 2015, a Hepatologist (liver surgeon) and her team at Aster Hospital in Bengaluru were most likely the first doctors in India to set up a campaign on a crowdfunding platform for a transplant. The transplant was of a Foundry worker’s daughter who wasn’t able to pay for the transplant which made Dr. Asthana and her team reach out for the option of crowdfunding. She explained, “It was unacceptable that a foundry worker’s daughter would not get her transplant because her father earned just ?7,000 a month. We have the facilities”.
Since 2013, Dr. Asthana has been working with private foundations and CSR teams of corporate hospitals to fund liver transplants. In 2018, 51 liver transplants took place and among these transplants, seven of them were crowdfunded.
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Simran Ansari, an 8-year-old young girl, caught fire from garbage burning nearby while she was returning home from the grocery shop. She tried to stop the fire but failed to do it on her own. Soon she was found and was immediately rushed to the nearby “ Family Care Hospital” where her treatment was started. She suffered from a total of 48 % burn which critically affected her waist, feet, leg, and her back. She was instantly taken to the ICU. As she was unable to breathe, she was helped with artificial ventilators, for her nutritional needs she was dependent on saline drips. Her condition was critical for her age. Due to the intense burn skin grafting was needed to be carried out. Her father is the sole breadwinner of the family and he was a taxi driver so he couldn't bear the expenses of his daughter’s treatment. Taking into consideration the situation Family Care Hospital reached out to the Child Help Foundation where the partial cost of the treatment was successfully raised on the crowdfunding platform. After a month of prosperous treatment was entirely recovered and now is back to her normal life. Who would have taught that with help of the crowdfunding platform we could save lives!
Sashi Gupta, (another great example of how crowdfunding helps in raising funds) a 3-year-old baby boy of Amit Gupta (father) who is a driver, and mother Arti Gupta who is a homemaker. Sashi is the youngest child with two elder brothers. At the age of 2-year-old, he started falling ill often. When his parents took him to the local physician and provided him with the prescribed medicines he used to get better for a few days but then soon fell ill again. This process continued till one day his mother noticed dark spots developing on his body. His parents got worried and rushed him to the local hospital where he went through a couple of tests. When the tests returned it was confirmed that Sashi had blood cancer. For his treatment, he was shifted to Rainbow Children’s Hospital, where they were informed that the estimated cost of his treatment would be around 6 lakhs. As his father is the sole income producer in the family of 7, it is out of the question for him to cover the cost of his son’s treatment. With the help of Rainbow Children’s Hospital, Sashi’s family came forward to ask for the funds needed for their child’s treatment on Filaantro (Crowdfunding platform) through the Child Help Foundation. Sashi is still in need of treatment and you can save his life, click on the link to support Shashi fight the battle.            
https://filaantro.org/fundraiser/view/shashi
Crowdfunding has proved to be a blessing for projects in life sciences or other similar projects which lack enough funds. It saves time from tedious paperwork and helps upfront without any returns. Funding study projects that could direct to better treatments or find cures for deadly diseases. The crowd reaches together to support fund solutions for the world’s most dangerous and virulent diseases. Multiple biotech companies need tens of millions of money before they can get their products to the market, these amounts can make a big difference at the beginning of the journey of a young biotech startup or the existing research. Example
Urodelia, a biotech startup developing innovative drugs against cancer fund (€800,000 raised).
Antabio, a biotech startup developing innovative drugs to treat antibiotic-resistant bacterial infections (Source: over blog).
Sometimes, it is difficult for these companies to raise capital for continued development. It is a great opportunity for new investors to invest in companies working on treatments close to their hearts. Some families who have or know cancer patients, won’t hesitate to invest in a company working to find a cure for the disease.
Crowdfunding is proving to be a salvation in the healthcare sector, especially for scientific study and research projects which require excessive funding. Projects that are more helpful than commercials, such as research on cancer treatments, and the other most deadly diseases which require widespread research for finding cures and possible treatments.
FUNDS
On the crowdfunding websites, the individual requesting funds explains his/her need and submits the required documents. The documents are then cross-checked with the hospital before putting up the case on the website to verify the documents and prevent scams from happening.
There are certain ways in which you can obtain reach on a particular campaign, medical cases usually have a constrained time frame with a large number of funds needed. This requirement varies as per the patients' needs and the donors can contribute without any limit. But, it is uncommon for a campaign in crowdfunding to fund the entire cost of the treatment as there are certain risks associated with the online methods. to understand the risks read "Understanding Crowdfunding".    The average campaign adds up to 40% of donations such as trust, government funds such as the Chief Minister's relief funds, as well as the hospital’s own CSR funds. But in a few extremely sensitive cases 100% of the donations are raised by crowdfunding platforms.
Hence, crowdfunding has revolutionized the healthcare industry, not only through funding research projects but also in a way saving and enhancing the quality of lives and reaching out to those who are in desperate need of getting treatments and paying their medical bills
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anitakumarigrewal · 3 years ago
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Rise in Awareness of 3D Printing Technology Expected to Drive Asia-Pacific 3D Printing Materials Market: Ken Research
3D printing is one of the fastest growing technologies and is being rapidly adopted technology for manufacturing and other applications by various industries. The 3D printing materials market generates widespread growth owing to a plethora of features including reduced risk error, cost-effectiveness, and high preference for mass production.  3D printing materials market is extrapolated to record a high CAGR caused by growth in popularity across diverse applications during the forecast period. Introduction of new printing materials for instance metals may further boost the growth rate of the 3D printing materials market. Additionally, growth in adoption of 3D printing technology in the medical field to create artificial organs like cardiac tissues, kidney cells, human liver and other human organ tissues for transplantation is fueling the growth of 3D printing material industry.
As per analysis, Asia Pacific 3D Printing Materials Market 2020-2030 by Material Type, Material Form, Technology, Use Type (Commercial, Personal), Application, Industry Vertical, and Country: Trend Forecast and Growth Opportunity the key companies operating in the Asia-Pacific 3D printing materials market include CRP Technology Srl, CRP Technology Srl, Arkema Group, Koninklijke DSM N.V., 3D Systems Corporation, BASF, EOS GmbH Electro Optical Systems, Hoganas AB, Mcor Technologies Ltd., CRP Technology Srl, LPW Technology Ltd., Shenzhen eSUN Industrial Co., Ltd, Materialise, Solidscape Inc., Sandvik AB, SLM Solutions GmbH, Solvay, Formlabs Inc., Stratasys Ltd. and among others. These renowned players consistently aim to focus on product development, novel product launch and improve their existing portfolios to increase their customer base & strengthen their market-position through partnerships & collaborations which further provides them growth opportunities for geographic expansion.
3D printing technology is segregated as component, technologies, applications and end-user industries. Determined by the component type, product type is segregated as industrial and personal 3D Printers. Additionally, the plastics, polymer, metal & alloys and ceramics are the significant sub-segments of 3D-printing material types available in the regional market. In addition, based on technology type, 3D printing is segregated as selective laser sintering fused deposition modeling, electron beam melting, stereo lithography, and laminated object manufacturing technologies.
Rise in funding in Research & Development (R&D) initiatives, followed by favorable government policies and growth in industrial base are some major factors, which are responsible for growth of the Asia-Pacific 3D printing materials market. Furthermore, rise in concept of dental 3D printing and launch of dental-labs has completely revolutionized the 3D printing technology in healthcare sector, in turn displaying the promising advancements in the field of medical and dental sectors.
For better investigation & penetration of 3D printing solutions, Asia-Pacific 3D printing materials market is segmented into distinct region and countries like India, China, Japan, South Korea, Malaysia, Singapore, and Rest of Asia-Pacific. Asia-Pacific is likely to register the drastic advancement during the forecast period owing to influx of numerous players, strong expertise in 3D printing technology coupled with rise in expenditure on 3D solutions. It is predicted that future of the Asia-Pacific 3D printing materials market will be bright as a result of presence of various automotive manufacturers and rise in need for better passenger vehicle designs with advanced infotainment systems during the forecast period.
For More Information, click on the link below:-
Asia Pacific 3D Printing Materials Market Research Report
Related Report:-
Global 3D Printing Materials Market 2020-2030 by Material Type, Material Form, Technology, Use Type (Commercial, Personal), Application, Industry Vertical, and Region: Trend Forecast and Growth Opportunity
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Global Chronic Granulomatous Disease Market Expected Growth 2027
Market Scenario:
The Global Chronic Granulomatous Disease Market is expected to grow at a steady pace over the forecast period. The chronic granulomatous disease is a rare inherited disorder which is passed on from parents to their children. People with this disease have weak immune systems which leave their body vulnerable to chronic inflammation and frequent bacterial and fungal infections. The symptoms of this disease develop in the infancy or in the early childhood. The symptoms of this disease vary from person to person. Some common signs and symptoms may include frequent bacterial and fungal infections, swollen lymph nodes, persistent diarrhea, abscesses involving liver, lungs, spleen, bones, or skin.
Factors such as the growing prevalence of rare diseases, increasing expenditure on healthcare sector in the developed economies, and increasing research and development activities are anticipated to drive the growth of the market. However, expensive diagnostic tests and lack of awareness about the disease in the developing and underdeveloped economies may hinder the market growth over the forecast period. For instance, the cost of genetic testing ranges from USD 100 to USD 2,000.
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Key players
Pfizer, Inc., InterMune, Inc., Novartis AG, Lonza Group, GlaxoSmithKline Plc, Eli Lilly and Company, Janssen Pharmaceuticals, Merck KGaA, Osiris Therapeutics, Inc, JCR Pharmaceuticals Co., Ltd., Maxcyte Inc., and Horizon Pharma Plc are some prominent player in the market.
Segmentation
The global chronic granulomatous disease market has been segmented into type, diagnosis, treatment, and end user.
The market, on the basis of type, is segmented into X-linked chronic granulomatous disease and autosomal recessive chronic granulomatous disease.
The market, by diagnosis, has been segmented into neutrophil function tests, genetic testing, prenatal testing, and others.
The market, by treatment, has been segmented into infection management, interferon-gamma, stem cell transplantation, and others. The infection management segment has been further segmented into trimethoprim, sulfamethoxazole, itraconazole, and others.
On the basis of end user, the market has been segmented into hospitals, clinical laboratories, and others.
The market has been segmented, by region, into the Americas, Europe, Asia-Pacific, and the Middle East & Africa. The chronic granulomatous disease market in the Americas has further been segmented into North America and South America, with the North American market divided into the US and Canada.
The European chronic granulomatous disease market has been segmented into Western Europe and Eastern Europe. Western Europe has further been classified as Germany, France, the UK, Italy, Spain, and the rest of Western Europe.
The chronic granulomatous disease market in Asia-Pacific has been segmented into Japan, China, India, South Korea, Australia, and the rest of Asia-Pacific. The chronic granulomatous disease market in the Middle East & Africa has been segmented into the Middle East and Africa.
Regional Market Summary
Geographically, the Americas is anticipated to dominate the global chronic granulomatous disease market owing to a well-developed healthcare sector, rising prevalence of rare diseases, steady growing occurrence of chronic granulomatous disease (CGD), and relatively large number of research and development activities. According to an article published by the National Center for Biotechnology Information (NCBI) in 2017, the incidence of CGD in the US is around 1 in 200,000 to 1 in 250,000 births.
Europe is expected to hold the second largest position in the chronic granulomatous disease market. The market growth in this region is attributed to the rising prevalence of rare diseases and increasing research and development activities. According to the Eurostat, the gross domestic expenditure (GERD) on R&D was EUR 303 billion in the year 2016.
The chronic granulomatous disease market in Asia-Pacific region consists of countries namely China, Japan, Republic of Korea, India, Australia and Rest of Asia-Pacific. Asia-Pacific is anticipated to be the fastest growing region in the market due to continuously developing economies, rising prevalence of rare diseases, growing awareness about rare diseases, and increasing government funding for the healthcare sector.
On the other hand, the Middle East & Africa has the least share of the market. Majority of the market of this region is expected to be held by the Middle East region due to a well-developed healthcare sector, and growing prevalence of CGD and growing government initiatives for the healthcare sector. As per to an article published in the National Center for Biotechnology Information (NCBI) in 2017, the incidence of CGD is 1 in 70,000 in the Israeli Arab population.
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