#curefa

[chicanayr]

Craving Acceptance

I want someone to love me for me

I’m exhausted of being rejected for something I can’t control

why do I even keep trying?

why can’t I be accepted?

although, I can’t blame them

for, I haven’t accepted myself yet

how could I?

how do I accept my body betraying me

i fucking can’t

16 fucking years

and I’m just living with my retarded body

it’s not orthodox

I know other people who’ve had no problem accepting this horror

why the fuck is it so hard for me?

I guess, I’m only a bothersome burden

in all reality, I’m not worth loving

people say "you’re supposed to love yourself first"

but how do I love something I hate?

with a lump in my throat, I fucking ask you how?

a helpless, gross, futile thing deserves only neglect

as much as it burns my chest

yet, my goddamn heart believes otherwise

the war between my heart and brain is a real issue

i wish my heart would be cut out

it brings a sting I just want to throw up

i don’t know how to get rid of this pique

I tried numbing the cramps in my heart but it doesn’t last

it hurts too redundantly

i merely crave the acceptance I can’t give myself

[bradjforth-blog]

Even if you have a neuro disorder you got to work!! #fightdisease #fitness #health #healthforce #pilates #yoga #curefa

[alexdimattia]

I don't post enough about things that matter... Today is national Rare Disease Day. When I graduated college I got a bike and started doing charity rides. I signed up for the Friedreich's Ataxia (FA) @rideataxia, and rode, without knowing a single person with the disease. The second year I put together one of the largest teams in the ride, but still, I knew no one with FA. I did my best to raise money and awareness but the third Year @christinaroselogan reached out to me on social media and I finally had a friend to ride for. I guarantee there is someone in your community suffering with a rare disease; diseases that seldom get the funding and ultimately the attention they need to make progress toward a cure. I encourage to get out, make a friend and become part of the fight. #RareDiseaseDay #CureFA #FriedreichAtaxia @curefa_org (at New York, New York)

[trikrisk]

Time for a great morning ride for a good cause #rideataxia #curefa @cheesyriders @baseperformance @kmfperformance @team_zoot #baseperformance

[jordan-forth]

Motivational Mondays! Breakfast of Champions! www.jordanforth.com #goals #frda #neuro #curefa #breath #father #daughter #child #childhood #obese #family #yoga #pilates #deadlift #fitness #health #kettlebell #qigong #strength #stronger #taichi #trainer #wellness #workout #noexcuses🚫 #kailuakonahawaii (at Kailua-Kona, Hawaii)

[catherinelogan]

Thank you always and forever @mindykaling for your constant support and love!!!! Cannot wait for tomorrow's @rideataxia at @mcccpa ! Together we can #curefa #rideataxiaphilly2017 #mindykaling #mindykalingismyspiritanimal @curefa_org

[just-yesenia-blog]

Relatives

Friedreich’s Ataxia is the cousin of ALS

[chicanayr]

Say you went to the doctor and you were diagnosed with a muscle condition that gets worse over time. You are going to have it for the rest of your life. You are also told that you will require a walking device or wheelchair in a matter of 5 to 7 years after your diagnosis. Then you were told there is no cure or set treatment, just the ability to manage the symptoms that may come along with it. You were also told that the only thing that can help slow progression is physical activity. The repetitive phrase between you and your main neurologist is, “if you don’t use it you lose it.” Meaning, if you don’t use a certain muscle for a while, your body will most likely forget how to use it in a matter of months or any long period of time without any practice. Same for walking and most other major movements.

What would be your reaction? How would you cope? Would you stay positive? Would you feel envious, seeing people enjoy what you can’t? Would you want to go out? Would you be anxiety and depression free? What could other people do to help you emotionally? (Btw I have already been told "I would of killed myself so)

[bradjforth-blog]

Having a disorder that affects my coordination, I wonder if it's harder to do the exercise or the exercise while taking a picture LOL #fa #friedrichataxia #curefa (at Greenville, South Carolina)

[keyboardwaffles]

Happy to participate in this skate to raise awareness of FA (Friedreich's Ataxia) by raffling off a KWI. FA is a neuromuscular condition that slowly takes away the ability to balance and walk. There is currently no cure. To learn more, visit www.cureFA.org/donate #teamadriana #curefa #northwellicecenter

[jordan-forth]

Motivational Mondays! Fight the Neurological Disorder, Friedrich Ataxia with fitness and nutrition. www.jordanforth.com #goals #frda #ndd #curefa #breath #father #daughter #child #obese #family #yoga #pilates #deadlift #fitness #health #kettlebell #qigong #strength #stronger #taichi #trainer #wellness #workout #noexcuses #kailuakona (at Kailua-Kona, Hawaii)

[catherinelogan]

Today is International Ataxia Awareness Day!!! Please help my family and I by sharing this post of @christinaroselogan , and raise awareness for those diagnosed with #friedrichsataxia @curefa_org @rideataxia #curefa

[zacharydanger]

Team Bike Mart knows how to party. #WeAreRBM #CureFA #hardstyle http://ift.tt/2nqJzwq

[chicanayr]

I think I’m doing fine most of the time

[bradjforth-blog]

#stretched and open up those #meridians #fightdisease #curefa #fitness #pilates #posture