#clotlife

[tracyarrowsmith]

It’s a Big Day at the Big Fig! Black Panther got a new 50 ft. tether and a clean bubbler. #clotlife

[swimmiey]

I'm just not feeling well the last few days. I'm struggling to breathe, my lungs are hurting so bad and it feels like I just don't get enough oxygen. It's pretty humid out and I hope that's what's making my lungs hurt. My INR wasn't in range last week, it was way to low, so I'm also scared it might be a new cloth/pulmonary embolism. Also the pressure in my head is getting worse. I have a pretty bad headache, I'm throwing up constantly, I'm nauseous, blurry vision and times I can't use my right arm. But they can't do an LP anymore, because the risks of stopping my anticoagulants (blood thinners) and getting new clots are just to high and they don't want to risk it. I'm just so fed up and feeling devastated. I'm so ready to get some relief and just feel even the tiniest bit better. Some days I just don't know how to do this anymore. I'm so tired of not being able to sleep, having a non stop headache, pain in my lungs, short of breath.. this isn't living anymore it's just surviving. Might call my GP in the morning to see if there's anything we can do to make it more manageable. Hopefully I can get some sleep soon, because I'm so extremely tired and I haven't been sleeping very well the last few weeks. 💊💊💊💊💊💊💊💊💊💊💊💊💊💊💊💊💊 #chronicillness #chronicpain #invisibleillness #intracranialhypertension #iihsucks #electrolyteimbalance #keeplifeflowing #pulmonaryembolism #clotlife #clottingdisorder #shuntlife #shuntproblems #spoonielife #totiredtofunction #totiredtosleep #headachefromhell #lungpain #lumbarpuncture #chronicfatigue #chronichope #childhoodcancersurvivor #pseudotumorcerebri #butyoudontlooksick #sickandtiredofbeingsickandtired #anticoagulant #ithurtssobad #ithurtstobreathe #itneverstops #iwanttolivenotjustsurvive #spoonie

[tracyarrowsmith]

My Dentist sent me this beautiful bouquet!!! #clotlife (at The Big Fig)

[tracyarrowsmith]

I’m dialing down my home oxygen concentrator to 2.5 liters - all on my own accord - I don’t see a doctor again until June. I started on a 5 in the hospital. #progress #clotlife (at The Big Fig)

[tracyarrowsmith]

I made myself something to eat! #nogas #clotlife (at The Big Fig)

[tracyarrowsmith]

Happy Mother’s Day!!! #clotlife (at The Big Fig)

[tracyarrowsmith]

Salmon in the toaster oven!!! #clotlife (at The Big Fig)

[tracyarrowsmith]

Wyatt Day!!! #clotlife (at The Big Fig)

[tracyarrowsmith]

Lunch in the backyard! #clotlife (at The Big Fig)

[tracyarrowsmith]

Getting my backyard time on. #clotlife (at The Big Fig)

[tracyarrowsmith]

Thank you grandma @carol.b.dunn for the 🌽 - contributing to the random Yellow Day! #clotlife (at The Big Fig)

[tracyarrowsmith]

Party of One! #clotlife (at The Big Fig)

[tracyarrowsmith]

Saturday morning Wyatt time! ❤️#clotlife (at The Big Fig)

[tracyarrowsmith]

It’s Pizza Friday!!! What’s better than Cathy delivering a @zacharyspizza Deep Dish? A second great friend, @miamarcal bringing a @cheeseboardpizza too!!! 🍕❤️#clotlife (at The Big Fig)

[tracyarrowsmith]

Heavenly Wednesday: Wyatt, Shandong dumplings from @sarahnidy, and Hazel. #clotlife (at The Big Fig)

[tracyarrowsmith]

Thank you to @paulraymondt for the @colecoffeeinc Mexican beans. My morning cuppa Joe will be extra special tomorrow! ☕️ #clotlife (at The Big Fig)