#cleftie power

[passionslikemine]

I am a cleftie myself and I’m always super happy to see actors with visible clefts/cleft scars. If you tell me that a show contains a character with a cleft who isn’t meant to be a freak or a monster, then you have essentially guaranteed that I will watch it.

[cleftmomph]

Cleftmom confessions: Things ive learned that I wish I knew before. A list from a mom of special kids❤️ I actually dont know how to address this list, I think I've realized these because I have 2 kids with "special" needs. But it may also apply to moms in general, Im sure all of us will have one or two of these thoughts or circumstances in our crazzzy momma life☺️ 📌I am not INVINCIBLE I need God. I am nothing - this is not because Im bring myself down, but because I am humbling myself. Im surrendering. I am nothing in this world compared to His greatness. Given how well nourished, well educated, or how powerful, how big your house is, you are nothing without God. YOU NEED HIM. Crazy as it may sound but with all the fear I felt, the next thing I realized/felt was this. I was HUMBLED. I know He's caliing me. I was reminded of how great he is and who am I in this world. This is why 2 COR 12:9 is one of my fave verses: But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me 📌Take one day at a time I know you have so much to give, but I also know theres only so much you can take. We have limits, we are mortals, remember? If you will look past your now, sometimes it gives you serenity. Skipping the harder days, the surgeries etc. The power of hope. But in your darker days, when its just hard to find aomething to make you move forward, remember you have now, and what you do today, now, is what matters. Enjoy it, days goes by faster than you think. With all the hustle and bustle of this generation, sometimes its hard to remember this. But until your child hits another milestone, you wont stop to enjoy life and savor that moment with your kid. You will realize that they're growing too fast and there's that pinch making you ask "why so fast?". And then there's this joy, the assurance that they are doing well coz they're hitting those milestones just in time, sometimes a lil early, sometimes a lil late, but what the heck, they DID and that's what matters. Savor the moment🙂 📌Cliché as it may sounds: things will get better This!!! This cliche was pressed on me numerous times already. This is proven. I want to say by me, but well... i'd be lying, and you know it coz you've been there, done that😂 When reassuring new cleft parents I always say this line, which maybe doesn't help much hehe (but I know they'll realize one day that it's true😎). It's just hard to look beyond the firsts, beyond the uncertainty specially if the mom has not yet delivered. I totally understand that (i've bern there, didn't believed this line as well😂😂😂). But the most recent encounter with this lesson was because of our Jacob. I still get hotheaded while on our review sessions (di po ako ipokrita 😂), but he makes me more proud because of that. Because as I always say, he tries, he tries his best! Before, during his exams week, review sessions would be after school till bedtime and it wasn't even enough parin --- That's with prior review sessions pa. Before he cant even read a story book, it would take us an hour or two to finish those short stories. Before during exams He wont have time to do his kumon booklets anymore. But he did improved. He did better in reading books, he's good in math, he gets perfect scores in exams. Recently was his summative exam, he was able to finish reviewing all his subject before exam week started. so it was just a quick review for him during exam week. I felt how positive he is, how confident he is now specially in math and reading. I felt how happy he was that he could still do other things after reviewing. Things got better for me, but more for Jacob.❤️ 📌Downing moments are vital You wont have glorious days without your gloomy days. They make your success more sweet. If you let them eat you whole, you'll lose. Don't let trials win, empower your will to get back on your feet. Some days are harder, but that's what make you tougher. 📌You have to be worry sometimes ...So you wont put your guard down. 📌You need Two words:CLEFT TEAM If it would be possible go to them. NCF / PBM. Period! Google will help you with what a legit cleft team consists of💪🏼 📌This prayer help me calm myself❤️ I want to share it with you because in times my heart is in trouble, And I would say this prayer I would instantly feel calm. So much betteeeer❤️ The serenity prayer God grant me the serenity To accept the things I cannot change; Courage to change the things I can; And wisdom to know the difference. Living one day at a time; Enjoying one moment at a time; Accepting hardships as the pathway to peace; Taking, as He did, this sinful world As it is, not as I would have it; Trusting that He will make all things right If I surrender to His Will; So that I may be reasonably happy in this life And supremely happy with Him Forever and ever in the next. Amen. 📌God's plans for you is bigger Learning about Gabbie's cleft hit me hard. I comfort myself knowing that God has His plans and He definitely know better. It's really hard to know what it is, its hard to foresee but He asked me to have faith, Even as small as the mustard seed. I know my faith is far bigger than a mustard seed, because you know what, never as in NEVER He has forsaken me! JER 29:11 For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future. Prov 3:5-6 "Trust in the LORD with all your heart and lean not on your own understanding; in all your ways submit to him, and he will make your paths straight. 📌Go with your instinct Mother knows best. Also, this means you are the one responsible for your parenting style. Don't let others pressure you into a parenting style that is not YOU. You be the kind of mother YOU want to be, not the society, your doctor, your priests, you family ask you to be. You are the only person who knows what's best for your child😉 listen to their opinion or advice, pick what suits you, junk what's not and move on. Don't let them and their side comments affect you inside. 😉 📌Google will bring you horror, dont let it. Use it to your advantage. I will be honest, researching made me anxious. By the time we discovered Gabbie's a cleftie we only have around 8weeks to prepare for her special needs. I havent joined any support group, i tried searching but didnt found one (till gabbie was 2months old ata) so I have no clue what's the best kind of surgeon to go to, what will she need etc. google would redirect me to cases from across the globe, Mostly US, many patients in the US had over 10 surgeries, so yes, that scared me. Ear tubes, yup they did scare me - alot!!! Repeated palatoplasty? Complications per age, complications during surgery.... hell yes!! Speech problems?! Heart problems and syndromes!????! Like whaaaaatttt!!! I want to give birth already just to find out if she has any of it!!! But the internet provided me a vital information for our cleft journey - name of our surgeon. Dr. Glenda De Villa ❤️ learned what bottles we need, what to look out for, that yessss, I could breastfeed!!!🙂 the internet also provided the criteria of a CLEFT TEAM/CLEFT CENTER, and Dr. De Villa's team is a SURE WIN!💪🏼 📌You have to love your doctor. Trusting your surgeon is vital. After meeting her, my worries just fluffed their way out of my chest. She's an inspiration. She's also the one who told us about NCF. If not for her and our trust to her, our family won't have the privilege of knowing those who are behind NCF and their patients ☺️ 📌You are not alone I repeat. YOU.ARE.NOT.ALONE I treat my co-cleft moms and dads as my family. No one could understand me than someone who's going Through a journey like us. Yes, our families and friends are backing us up, they're always there. Always. But the STRUGGLE IS REAL! Haha there are certain things no one could relate to unless they have a "special" child. Noordhoff Craniofacial Foundation patients have a support grp - https://www.facebook.com/groups/IbahagiAngNgiti/ And https://www.facebook.com/groups/CleftSupportGroupPH/ is open to all clefties and their families 🙂 📌Be thankful. You are blessed. I always say God gives the hardest battles to His bravest soldiers. Wonder where our cleftstrong babies got their strength and spirit? Its from US, their parents. I was also in doubt at first😁 God chose us for a purpose. Be proud of the privilege and responsibility that God entrusted us🙂 1 thess 5:18 give thanks in all circumstances; for this is the will of God in Christ Jesus for you. Stop self blaming. Dont be too hard on yourself. Stop asking yourself if you did something wrong during your pregnancy. Accept that you too have shortcomings, and that's ok. Your kids still love you just the same because you are morethan ENOUGH!❤️ *list to be updated, usually in the wee hours of the morning I cant sleep.😂