#cervical instability and fibromyalgia

[helenwhiteart-blog]

Cervical instability at the core of fibromyalgia?

I just want to pick up the thread of cervical instability and its relationship with chronic pain again, as written about just the other day in the context of covid (having found numerous suggestions that covid can aggravate or even instigate cervical instability). In particular, I want to look at how this one, often unnoticed, structural issue might very well be lurking there right at the very…

[thebibliosphere]

Hey Bibliomom. So I've had CFS/ME for the past 13 years or so, and I've only just been diagnosed. My feelings on being confirmed to have an incurable disorder rather than something that is in my head(and a personal deficit that I am therefore theoretically capable of overcoming) are... Complicated. Can you recommend any support groups/groups for people trying out and reporting on the effects of various treatments? I have been taking LDN for a few months, and I've recently started on bi-weekly b12 shots. I know it's to be expected but I always feel so gutted when a new treatment doesn't just... Fix Me. I'm looking into mestonin, stellate ganglion blocks, and getting my microbiome mapped and altering my diet based on that. It's all so much money and spoons for a complete crap shoot every time. Have any particular treatments worked well for you?

Unfortunately, there is no Fix Me cure for Me/CFS, there’s just things that help and maybe increase your baseline of wellness. Chief among them, resting while in an active flare to avoid PEM (Post Exertion Malaise.). You can do all the fanciest most expensive treatments, but if you’re not resting enough to avoid PEM, you’re just throwing money away.

The jury is still out between my doctors on whether I have ME/CFS. Some say no because I got substantially better after pernicious anemia treatment and that fatigue is a symptom of Ehlers Danlos Syndrome, and what I have is chronic fatigue, not chronic fatigue syndrome.

Some of my other doctors say that’s just splitting hairs. Especially when we now know I have multiple genetic disorders that were made infinitely worse following viral infections and other physical injuries.

Either way they all agree that avoiding PEM is vital at all costs. This means tailoring my physical rehab to very specifically to not push beyond my limits. If I wake up more tired than usual, I cancel physical therapy that day because going through with it can set me back days, sometimes even weeks.

We’ve also found that stabilizing my neck through physical therapy has been beneficial, as cervical instability and things like tethered cord syndrome have also been linked to ME/CFS (Jennifer Brea is a famous example.)

I’m also being assessed this week by a neuro-eye specialist to see if there’s something wrong with my eyes that a regular eye doctor might miss, just on the off chance that a misalignment is the cause of my chronic migraines, and potentially a lot of fatigue as well.

Other than that I take a crap ton of methylated micronutrients under doctor’s orders because my body struggles with the methylation process, and also I just don’t absorb food properly thanks to the EDS and MCAS, so I’m pretty much always deficient in something. Also making sure I’m properly hydrated at all times helps. It’s amazing how crummy low electrolytes can make you feel, even when you think you are adequately hydrated.

As for groups, I find the r/cfs subreddit helpful. The r/CFSplusADHD has also been helpful, though less active. Other than that I recommend following along with the ME Action Network. They post a lot of research and can be a good way to find other people in similar situations.

And to answer your other question about mast cell stabilizers: I rotate between Cetirizine and Levocetirizine at the moment (both h1 blockers), and also Famotidine (h2) when needed. I don’t find Famotidine as effect as Ranitidine, but unfortunately, Ranitidine is still off the market due to a recall concerning product instability.

I’ve also found Ketotifen (h1 blocker) helps to reduce my fibromyalgia type pain, but unfortunately I don’t tolerate it very well and it makes my migraines worse. Same with Cromolyn Sodium. That one actually brought me out in hives when I tried the oral route, but I suspect the dosage was too high. I tolerate the eye drops though.

I also take a high dose of Vitamin D3 every day under doctor’s orders. That has really helped my mast cell symptoms over the last year. It’s amazing what being low on Vit D can cause to fuck up in your body.

Other than that it’s avoid triggers, avoid stress and get plenty of rest.

I hope that helps.

[covidlongbrawler]

There's a joke in my chronic illness Facebook groups that autoimmune disorders are "buy one, get four."

It's like this. I have Ehler Danlos Syndrome or EDS, a condition where my collagen is fault. Because of this, valves in my veins and arteries don't shut properly so I also have thoracic outlet syndrome, where too much blood goes to my feet when I stand up. The blood falling out of my brain and to my legs makes me dizzy and can make me blackout, a condition known as POTS. My body tries to counteract the low blood pressure, so I have an extremely high heart rate. (We're talking 160 bpm just from walking to the bathroom. And I'm 27.) The valve at the top of my stomach is weak because of having EDS, which results in GERDS and heart burn. Possibly related, I have endometriosis, which might be from retrograde menstruation (basically menstruating into your abdominal cavity), but no one is really sure what causes endo. My joints are weak because of my EDS, and my top two vertebrae have dislocated as a result, which causes my brain stem to be twisted, a condition called cranial cervical instability. (No, I'm not kidding.) The twisting of the brain stem means that my nerves and autonomic nervous system are all fucked up, and this might explain my anxiety, depression, and fibromyalgia. (This isn't well understood so my doctors aren't certain.) It definitely is causing joint pain, POTS, tinnitus, and constant fatigue. Of course, fibromyalgia also leads to chronic fatigue syndrome and they're often comorbid.

I started having health problems when I got COVID and it spiraled to all of these. Prior to 2020, I only had anxiety, depression, and endometriosis. (I probably still had fibro and EDS but it was subclinical.) Having an infection that triggered my EDS to be severe instead of mild and ignorable created this big ass cascade of problems.

"wHaT aRe ThE cHanCeS tHaT sOmEoNe HaS sO mAnY cOnDiTiOnS at oNcE?"

It's very common for people who have one thing off in their bodies to have a lot more things off in their bodies as a result of the root problem.

The human body is a highly complex and delicate interconnected web of different systems. Usually when one (1) thing is tilted a little to the left, a ton of other shit falls off the shelf along with it. <3 You can't be this fucking stupid and loud simultaneously, pick a struggle. <3

[cripplecharacters]

Mods

[Large Text: Mods]

Bee

[Large Text: Bee]

Hello, I'm bee (she/her) and I'm a bi ace gal with epilepsy. My seizures are considered generalized and I'm nearly 4 years seizure-free (yay). My epilepsy is still around though it more so plays a part in causing headaches and the now occasional migraine. I'm a full-time college student and I work as a cashier part-time. I have loved creative writing for a long time, and I also greatly enjoy fashion, cooking and reading!

Faelan

[Large Text: Faelan]

Hi all! I'm Faelan, and my pronouns are they/them. I'm a speculative fiction writer, artist, ferret aficionado and former federal public servant! I am Autistic and have inattentive type ADHD as well as dyscalculia. I developed fibromyalgia in early adulthood due to a serious physical injury, which causes all kinds of fun neurological problems and chronic pain.

Frog

[Large Text: Frog]

Hi! I'm Mod Frog (he/him, ey/em) and I'm a fulltime wheelchair or cane user with neurological issues and chronic pain which may or may not be migraine-related. I'm also autistic, have C-PTSD + DID, and am on the schizospec. I've been writing disabled characters based on my own experiences my entire life, and I'm very excited to be able to help others with their characters! My favorite genres are fantasy and sci-fi, and I'm passionate about showing that characters who use wheelchairs can be involved in the adventure scenes, too.

Lane

[Large text: Lane]

Hi! I’m Lane and I’m a bi woman who uses she/her pronouns. I have ADHD and have been blind since birth from LCA (Lebers Congenital Amaurosis). I have a career in Blindness education and customer service, and I’ve been heavily involved in blindness community as a member and elected leader for about 10 years. I’ve also got depression, anxiety, and some Az Yet undiagnosed issues with low blood pressure/hypotension. I am a massive sucker for all things cat and spend most of my free time playing D&D. You can find me on basically every platform as Ask a Blind Person!

Nugget

[Large text: Nugget]

Hello! I’m Nugget (aroace, she/her), and I am a longtime creative writer with a love for all things fantasy and sci-fi. My other hobbies are videogames, boardgames, reading, movie/TV-watching, and learning. I am pursuing a career in mechanical engineering. I have social and generalized anxiety, as well as mild depression and chronic pain resulting from injury.

Roman

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Hey, I’m Roman, previously known as Becca! I love writing, reading, Twenty One Pilots, and superheroes. I’m working on becoming an EMT and am a very queer idiot. I am HoH/Deaf, schizophrenic (schizoaffective disorder), asthmatic, and have essential tremor and arthritis as well as PCOS and C-PTSD. I’m also mildly colourblind. My pronouns are they/them.

Sasza

[Large Text: Sasza]

Hi! i am sasza and i use he/him pronouns. i am a disabled artist who loves to write and draw characters like me!  i am autistic, (mild) intellectually disabled and have several physical conditions like dyspraxia, severe hyperkyphosis, fourth cranial nerve palsy (a rare condition causing double vision, chronic pain and minor facial difference among other things) and hypermobile joints. i also have an undiagnosed disorder that causes me to have motor tics

Teeth

[Large Text: Teeth]

Hello! My name is Teeth, and my pronouns are it/its; I have no preference for backup pronouns, use whichever is easiest. I’m a multimedia artist whose work often focuses on identity and perception. I have h-EDS, which mainly affects my mobility, and causes instability in my cervical spine, in addition to POTS and MCAS. I am autistic, and have BPD, OCD and C-PTSD.

Tyler

[Large Text: Tyler]

Hey! I’m Tyler. I’m chronically ill, trans and neurodivergent. I’m the host of a medically recognized DID system and have autism, ADHD, BPD, C-PTSD and anxiety. My physical conditions are currently undiagnosed but I have tics, severe joint pain and weakness, issues with walking and standing as well as chronic pain, migraines, nausea, etc. Basically just pick any part of my body at random and I probably have an issue with it. I use mobility aids to get around in day to day life and use a cane or rollator when out of the house.

Mason

[large text: Mason]

Howdy! I'm Mason, a bi transmasc nonbinary person. I'm schizoaffective (depressive type), and have a myriad of health conditions including fibromyalgia, frequent migraines, IBS, tachardyia, ovarian cysts/endometriosis and a hypermobility disorder currently undiagnosed but suspected EDS. I also have generalized anxiety disorder and cPTSD. I'm a playwright who focuses on disability and a part time cane and brace user.

[newhologram]

New's floor desk FAQ!

Floor Desk video links: •TikTok •Tumblr •Twitter •YouTube •Instagram Floor Desk part 2 (setup update) •TikTok •Tumblr •Twitter •YouTube •Instagram Thank you for all the comments and shares on my accessible floor desk setup tiktok. I'm glad so many people are inspired and brainstorming how to change their space. →𝐅𝐢𝐫𝐬𝐭 𝐚𝐧 𝐢𝐧𝐭𝐫𝐨 𝐭𝐨 𝐨𝐫𝐢𝐞𝐧𝐭 𝐧𝐞𝐰𝐜𝐨𝐦𝐞𝐫𝐬: My name is 𝐍𝐞𝐰 and I do disability/chronic illness awareness content, vlogs, Let's Plays, J-pop translations, and more. I've only recently started putting focus on shortform tiktok content. If tiktok brought you here, hi and thank you!! Please make sure to check my other socials for more content.

😇If you find this information helpful or enjoy my content, please share and consider becoming a Patron or tipping via ko-fi. https://linktr.ee/newhologram

★彡

♿Backstory in case it's useful for anyone to relate their health problems to the possible benefits of a floor desk:

I'm a spoonie. My main diagnoses are ulcerative colitis, type 2 narcolepsy, fibromyalgia, myalgic encephalomyelitis, and a cluster of spinal issues (upper cervical instability, osteoarthritis (bone spurs), degenerative disc disease, 2 bulging discs in the neck, scoliosis, 2 tailbone injuries as a teen that still give me trouble) Update: turns out my mysterious severe back pain was actually most likely endometriosis. Back pain isn't always actually the back!

Though I lived with a lot of random chronic health issues since childhood, it was in 2013 when my body seemed no longer able to keep up, and my level of functionality went from rough and miserable to me needing the ER multiple times a year for horrible high pain levels. It's now my 9 year anniversary (2022) of being "officially" disabled (really, many of us were always disabled but didn't get the support we needed and then ended up even more disabled as adults). I really can't sit up for long without bad consequences and using my arms/hands gets torturous fast. I can't work much right now. Even going to the movies is very painful for me and requires recovery time after. To go to my day job or even visit someone for a few hours requires me to pack a lot of items just to manage my pain, most of which is in my spine and radiating out into my limbs (nerve pain is brutal.) So I spend a lot of time flat on the floor at work and wherever, honestly. Thinking back, I've had back, shoulder, and neck pain since I was 7 years old. There are many microtraumas throughout my life that I'm guessing may be responsible for the accelerated degeneration of my intervertebral discs, and the atlas subluxation, but another part of it was bad posture--from not just being neurodivergent and standing/sitting awkwardly to begin with, but being completely attached to being on the computer all day and night to cope with life, trauma, etc, meant sitting for long, long periods of time in the same position at my desk. Forward head posture doesn't take long to start messing with your health. I've devoted a lot of time and effort to correct the curvature of my neck. It's hard work, but I'm still in so much pain, because it's only one piece of the spinal puzzle. (Working on my posture didn't heal my discs, big surprise. More on that another time.) Please feel free to ask more questions wherever and I can add them to this list!

Q: What inspired you to make this change? At the beginning of lockdown, my day job was trying to think of ways to have us work from home long-term. It didn't end up working out, but it made me rethink my space since I was anticipating working long days in my room. I saw a random health video in which someone's advice was to "sit on the floor as much as possible." And then I remembered all the pictures I'd seen of Japanese teenagers rooms, where they had a small desk on the floor to do homework, play video games, etc. My host family had a more Western-style house but I still saw so many things that were done on the floor. It made sense, since whenever I took a break from the computer because I was in too much pain, I always went straight to the floor. At work, I'm on the floor as soon as the director calls cut. I remembered learning more about how many different cultures still mostly sit on the floor, and how easily babies can squat and move around on the floor as well. I thought back to being a kid, sitting on the floor in front of my TV to play video games. I tried to squat and immediately fell over. Then I watched a video called Why We Sit On The Floor (Furniture-Free Living) and was immediately convinced. Since then they've made a follow-up video: Sit On the Floor, Improve Your Health | Floor Chair & Desk Setup (Guide)

Here's an additional video I saw recently: Minimalist Desk Setup | Floor Chair & Desk (Weird.)

Q: Where did you get the desk and other items?

I bought the wood and paint for the desk and it was built for me by a family member. After spending time researching, brainstorming, and sketching, I was going to buy a Japanese style floor desk on etsy (I can't find the exact seller, sorry!), or maybe even try to order one from Ikea in Japan. I would've spent about $300-$500 which was going to be rough to pay off.

So cute.

But my family member suggested saving money by building it, since it was a pretty simple design. So I spent even more time taking measurements to be absolutely sure I was going to be comfortable with the height. Sit on the floor and mime like you're typing on a keyboard. I based the height around that initially, but with my butt on a pillow, so I got it higher, which ended up not being a comfortable height for the keyboard. More on how I adjusted this in a second.

Luckily someone already had the most perfect easy DIY desk instructions to base all of this around as well: Simple Floor DeskIn total, for the wood and the paint of the desk itself, I spent $116. Here are the other items in my setup:

Reclining floor chair Not sure if they have pink in this one right now but there are other versions in pink.

Giant mousepad Keyboard Keyboard tray Tray for food Lap desk The initial look was actually this:

⁽ᵀʰᵃᵗ ʳᵘᵍ ᵈⁱᵈ ⁿᵒᵗ ˢᵘʳᵛⁱᵛᵉ ᵃ ʸᵉᵃʳ ᵒᵐᵍ⁾

I had thought sitting in the chair fulltime and using the keyboard that way was going to work for me, but it ended up being awkward and painful too. The goal was to CHANGE my sitting posture. So I got the pink tray to put under the desk as seen in my tiktok and it worked out perfectly. I still can't sit up for very long but I try to do a little a day so my back muscles don't atrophy too much from all the reclining. I spend most of the time reclined. The very morning of my tiktok post, I was gifted a really cool lap keyboard tray. It has a cushion so it's comfortable, as well as a pull out mouse pad/tray on either side, a phone slot, and iPad slot, and a removable light. I've been loving using this to be able to sit up and use my keyboard with my back supported when I can't sit directly on the floor anymore but I'm not quite ready to recline yet. It's also great for writing in my planner at night. (pics/video soon)

Q: Don't your legs fall asleep constantly?

They did way more at my regular desk. At least on the floor I can constantly change my position and relieve it, so it's not really an issue anymore. Q: What's the brand of the posture corrector you're wearing in the tiktok?

It's by Vicorrect. I did a short tiktok about it too! I'm 5'0" and ordered the small/medium size. •TikTok •Tumblr •Twitter •YouTube •Instagram Q: Where did you get the star blanket? It's from Daiso, but I got it many years ago. Q: Where did you get the shark sweater I have no idea, it's almost 10 years old. T_T Sorry Q: You said your bed was also on the floor, where did you get it?

It's a Japanese futon set. I've had it since late spring 2020 and it's holding up great. I try to air it out in the sun every few weeks to keep it fresh and healthy. Q: In your 2nd floor desk video, you use some kind of tool on your neck. What is it? It's a myofascial release tool, I use it to break down calcified adhesions in my fascia as well as to release muscle spasms. It's small-sized FasciaBlaster. This product is marketed for cellulite (I do not recommend using it for that) but I knew it would be perfect for me to manage my neck and shoulder pain on the go. I tend to use actual gua sha tools more than this though (every day after my bath). My recommendation is to look into stone gua sha first. I have stainless steel gua sha tools that are amazing but they're a little more hardcore and will leave darker marks. Don't do gua sha if you have issues with blood clotting!! Do your research and consult with your doctor.

Q: I have xyz spinal problems too, would this be good for me?

I can't say for sure what will work for you. This setup is definitely not for everyone. It took a little bit of trial and error at first to get this setup working for me at max. I would say take your time testing things out temporarily on the floor before making any big decisions. Also remember that a new desk is not going to be a magic fix to your spinal issues. It might help a lot, and also give you more freedom when flaring like it does with me, but good posture and movement habits have to be worked on as well. ⭐This includes sleep posture! I did a video about how I sleep with my spinal issues too. •TikTok •Tumblr •Twitter •Instagram The cervical pillow featured in this tiktok is a SleepRight. Also, stop looking down at your devices!!! I know this is tricky especially if our pain makes it hard to hold things up at a healthy angle but looking down so much contributes to forward head posture. Be mindful that you also don't recreate that posture when you're reclined and looking at your devices. I always angle myself so that I'm looking UP at my ipad/phone. I try to be really careful about it, because even just a few minutes of looking down has my neck screaming. ⁽ᵂⁱˡˡ ᵃᵈᵈ ᵐᵒʳᵉ ᵈᵉᵗᵃⁱˡ ᵗᵒ ᵗʰⁱˢ ᵃˢ ˢᵖᵒᵒⁿˢ ᵃˡˡᵒʷ⁾

[exoskeletonned]

9 Jan 2020

My last personal post detailed my symptoms and how they were getting worse; that was on January 2nd. Well, on the 6th they got bad enough that I had to go to the emergency room.

My muscle spasms were particularly bad in my neck, face, and chest, and they got to the point where they were cutting off my airway and choking me. Also, my entire right side went numb. The whole not-breathing thing was particularly concerning, which is what ultimately sent me to the ER. I was worried that the symptoms were due to cranio-cervical instability, and the doctor ordered a CT angiogram of my neck and head so he could see both my vertebrae and brainstem/brain/blood vessels/other soft tissues. Turns out I was fine structurally, but something was still definitely funky neurologically.

I ended up getting a diagnosis because the doctor went over my entire history and saw that I’d had ongoing symptoms like this for 3 years. I was kind of incredulous because it had gone undiagnosed for so long, but here I am! Anyway, my diagnosis is Functional Neurological Disorder. Here’s the Wiki link but the tl;dr is that my nervous system is structurally intact, but functionally a wreck. In other words, it’s full of misfirings and miscommunications even though there’s no one particular source of injury (sort of like fibromyalgia, which I also actually have).

The only treatment is physical therapy, occupational therapy, and talk therapy - so basically, a lot of different therapies. There’s also pain meds, if your particular FND symptoms cause pain, which mine do on occasion, but I don’t think I’m going to need pain meds for mine. I’ve also been scheduled for a full neuropsych evaluation, both for good measure, and to hopefully determine what particular therapies I might benefit from.

In the meantime, it’s good to know that my neck isn’t too unstable and that my neurological symptoms aren’t due to something that’s actively dangerous.

(My current symptoms are hemiparesis, AKA paralysis on one side of my body; overall weakness/numbness; blurry vision; light sensitivity; hearing loss; balance loss; foot drop; frequent headaches and migraines; dysphagia/trouble swallowing; and muscle spasms, both dystonia and myoclonus.)

[freakhalestorm]

This month is awareness month.

Many conditions have may as their awareness month.

Ehlers danlos syndrome is one of them. A hidden yet painful condition where the average wait for diagnosis is about 18yrs.

We call ourselves zebras. Docs are taught when u hear hooves it's horses not zebras, meaning the symptoms are usually because of a common health issue. Many with eds are misdiagnosed or labelled as attention/drug seekers before diagnosis.

We aren't just a bit bendy either.

We deal with chronic pain, dislocations, poor/slow healing, fragile skin that tears easy, risk of organ rupture, chiari malformation, cranio cervical instability, arthritis, fibromyalgia, mental health issues... The list goes on.

My docs don't know much about it and their information is now out of date as of 2016.

Fibromyalgia and eds are the reasons i am going AWOL for more than a day, this time of year in the UK the weather is a bit undecided. So it can be sunny in the morning yet raining in the afternoon, chronic pain like mine reacts badly to weather changes. I have also deteriorated, my right shoulder is now in constant pain; I'm likely dislocating it in my sleep and not noticing. Yes that happens alot though it's usually a finger or ankle.

It's genetic, there's no cure. I can only treat symptoms and injuries.

Thanks to the blogs and the FB page i admin I'm more stable mentally.

I'm grateful for your patience and understanding when i need time offline to sort out, flares not nice to me. It's like the pain of a broken bone minus the broken bone. Lol.

May this year be kind to you.

Kat

[goofygargoyle]

I don't have Fibromyalgia Syndrome

my symptoms don't fit that

I have Cervical Medullary Syndrome.

from 18 to 28 I saw "Fibromyalgia Specialists" who were abusive to me. they didn't listen to me when I explained my symptoms (because my symptoms didn't fit they just pretended those symptoms didn't exist). Among a bunch of verbal abuse and ...

10 years. 2 years ago I learned that I have Cervical Medullary Syndrome-- basically the same list of symptoms that come with craniocervical instability, but in my case my Cervical spine is stable but there's something loose in my skull.

So when DrM insisted I have Fibromyalgia Syndrome-- literally not listening as I explain how I don't AND not listening when I asked what the treatments he wanted to try were-- I had to end the call. And now I gotta hope DrJ will do a videocall with me and talk about what to do next instead of siding with the asshole he'd sent me to.

Maybe I can ask Dr LostWoods if he has any idea of a doctor I can go to if DrJ doesn't listen

[mrissakay27-blog]

Websites Eveyone Should At Least Skim: IMPORTANT

These websites provide potentially life-saving and valuable information about important diseases that don’t get a lot of attention. Please read, educate, and reblog. If I would’ve had this info available when I needed it, I could’ve got the help I needed much sooner.

Websites with info about diseases you should learn about.

Dysautonomia International

https://www.dysautonomiainternational.org

This website provides information about dysautonomia, which is malfunction of the autonomic nervous system. Many people have dysautonomia and do not know it, do to a lack of knowledge on the medical practioners side.

Please check out if:

- You faint

- You are frequently dizzy

- You have a diagnosis of anxiety that you don’t feel is right

- You have migraines

- You have unexplained heart problems

Ehlers-Danlos Syndromes

https://www.ehlers-danlos.com/what-is-eds/

This website provides excellent and accurate information about Ehlers-Danlos Syndrome, which is a genetic connective tissue disease. Ehlers-Danlos is severely underdiagnosed and can be debilitating. If you are “double jointed” please, please, please check out this website.

Please click this link if you:

- Are double jointed

- Have chronic pain

- Have a diagnosis of fibromyalgia along WITH over-flexible joints

- Have chiari malformation, gastroparesis, dysautonomia, cervical cranial instability, scoliosis, kyphosis, mitral valvue prolapse, vision problems, aortal dissection, etc.

- Dislocate or subluxate (partially dislocate) joints

- Have poor wound healing and velvet like skin

- You know someone who has any of this

Gastroparesis

https://www.g-pact.org/gastroparesis/symptoms

https://www.niddk.nih.gov/health-information/digestive-diseases/gastroparesis

These websites provide info about gastroparesis, which is a condition where the stomach is paralyzed and can’t move food at a normal pace. People with gastroparesis experience pain, nausea, bloating, and other symptoms after eating. Not everyone with gastroparesis is thin and some people are overweight because of gastroparesis but a common symptom is weight loss or weight gain.

Please check out these links if:

- you have trouble gaining or losing weight

- You have stomach pain chronically

- You have severe nausea

- You vomit frequently, especially if you vomit undigested food

- You have bloating after eating or you look “pregnant” after a meal

- You have bathroom problems

- You have unexplained GI symptoms

- You have diabetes, had an infection, no longer have a pancreas or gallbladder, or you’ve had abdominal surgery.

Superior Mesenteric Artery Syndrome

https://rarediseases.info.nih.gov/diseases/7712/superior-mesenteric-artery-syndrome

There are few internet resources availabilie about SMA syndrome but this website is one of the best. SMA syndrome is essentially a obstruction in the intestines caused by an artery pressing against another artery and preventing food from moving through properly. SMA is rare and SMA is dangerous. A common cause is weight loss, but it has other causes.

Please click this link if:

- you are having pain after eating

- You are have nausea after eating

- You have food intolerance or an intolerance to tube feeds (if you are tube-fed)

- You lost weight prior to your symptom onset

- You cannot maintain your weight

- Vomiting

- Google if: you want to see interesting looking CT scans on images

Depression

https://www.nimh.nih.gov/health/topics/depression/index.shtml

https://psychcentral.com/lib/telephone-hotlines-and-help-lines/

https://adaa.org/living-with-anxiety/ask-and-learn/resources

https://nndc.org/resource-links/

https://suicidepreventionlifeline.org

https://www.nami.org

Here are resources about depression and links to places to find care.

Please check these if:

- You are depressed

- You need more accurate information about depression

- You need someone to talk to

- You want to help someone who has depression get the care they need

[tcm-acupuncture-herbal-supplies]

Orthopedic Braces and Rehabilitation Supports for Effective Pain Relief

Musculoskeletal pain has become so common in the modern world that either you may have it or you know someone suffering from it. Whether it is pain of the neck, shoulder, back, knee, ankle, or any other body part, you should never ignore it. Body ache, muscle tenderness, and joint stiffness mean your body needs additional support.

Now, this support can be in the form of support braces. In the past, physiotherapists had to use rigid braces for injuries and medical conditions. However, modern supports and braces come in many shapes and sizes. In addition to using them for acute injuries, many medical experts now use supports for chronic pain as well. So, whether you have suffered from an occupational or athletic injury or you have a medical condition such as arthritis or fibromyalgia, rehabilitation support braces can help you in alleviating the pain.

Supports and Braces: Placating the Pain Effectively

You can use orthopedic supports and braces for treating multiple ailments including osteoarthritis, muscle sprains, muscle stiffness, muscle spasms, tendonitis, etc. It also helps with reducing numbness in limbs and eases stress and anxiety.

>>Support braces provide warmth and support, thus reducing the inflammation in the affected body part.

>>Warm temperatures allow muscles to relax and alleviate joint stiffness.

>>Orthopedic rehabilitation supports promote blood circulation by dilating the blood vessels and help muscles in getting enough oxygen and thus, promote the reduction of lactic acid build-up.

>>They improve the mobility of the affected body part and prevent further injuries.

>>Your physiotherapist may suggest support braces for better stability and a faster healing process.

>>As modern-day supports are comfortable to wear under clothing, you will be able to go about your normal routine without any trouble.

What are the Different Types of Orthopedic Braces and Supports?

With the advancement in modern technology, you will find a wide range of self-heating supports and braces available on the market. Made with heat-sensitive materials such as tourmaline and ceramic, the braces offer enough heat to the body part to alleviate pain. And, because they are non-electric devices, you can use it anywhere you want.

1. Neck Supports

Often times, you may feel stiffness and pain in the cervical vertebrae. To soothe the muscles of the neck area and help joints with faster recovery, your physiotherapist may suggest you buy neck support. It is ideal for treating cervical pain, bone spurs, and stiffness in the neck.

By opting for self-heating neck braces, you will be able to improve blood circulation and balance the energy flow of the body, thus leading to better well-being and improved health.

2. Shoulder Supports

Ideal for inflammation, pain, and instability of the shoulder, shoulder supports are available in many sizes to cater to a large number of patients. By providing stability to the shoulder joint, the supports help in quick recovery. They also improve posture and thus, help in avoiding future injuries.

3. Elbow Supports

Also called compression elbow sleeves, elbow supports are useful in stabilizing the elbow joint and alleviate pain. Whether you are suffering from tendonitis, tennis elbow, golf elbow, or any other type of elbow pain, elbow supports will relieve pain and allow you to focus on your routine activities easily. In addition to pain relief management, many athletes prefer using elbow supports to improve their range of motion and enhance their performance.

4. Wrist Supports

You may have noticed many badminton players, tennis players, bodybuilders, weightlifters, and other sportsmen use wrist supports and braces. It is because the wrist braces help in stabilizing the wrist and offer maximum support. Wrist supports are also suggested by medical professionals when patients are suffering from acute or chronic wrist pain. You can choose auto-heating wrist braces to compress the wrist and provide the required amount of heat to the affected area. It will expedite the healing process.

Note: Due to the rising cases of carpal tunnel syndrome, specialized carpal tunnel wrap is also available to help patients with the pain, numbness, and tingling in the hand and arm.

5. Back and Lumbar Supports

From sciatica, scoliosis, herniated discs, ligament damage, muscle sprain, nerve injuries to osteoporosis, there are multiple reasons to back pain. By using lumbar and back supports, you will get immediate pain relief. Back supports are ergonomically designed and offer enough stability to help you perform daily movements without any trouble.

6. Knee Braces and Supports

Old age, sports injuries, or accidents: knee braces help the patient walk without excruciating pain. From self-heating knee supports that combine the benefits of piezoelectric and thermoelectric therapy to compression knee sleeves for ligament injuries, muscle strains and sprains, you will find many types of knee supports to address the varying needs of patients.

7. Ankle Supports

Many patients suffer from weakened ankle joints following surgery or injury. Physiotherapists recommend using auto-heating ankle supports for treating their injuries along with other problems such as muscle sprain, muscle strain, Achilles tendon, plantar flexion, etc. The self-heating supports are designed for therapeutic warmth and sufficient compression to alleviate pain and aid in faster recovery.

Seek an Expert for Effective Pain Relief

Orthopedic braces and rehabilitation supports are easily available in department stores, pharmacies, and e-commerce websites. But, instead of making a quick purchase, it is essential to get to the root of the problem. For effective pain relief management, you need to consult an expert physiotherapist. The medical professional will be able to tell you what kind of therapy is required in your situation.

Special care should be taken while wearing orthopedic braces and supports. You cannot wear braces for a longer duration of time. A gradual increase in wear is necessary to avoid red marks and pressure sores on the skin. Ideally, support braces should be worn during waking hours, unless suggested otherwise by your medical expert.

Additionally, ensure thorough cleaning of the braces because you will be wearing them regularly. Sweat, dirt, and dust may accumulate quickly and if you do not clean them, it will lead to skin infections.

[helenwhiteart-blog]

Is limbic retraining any use for structural chronic pain such as EDS? (Spoiler: yes!)

Is limbic retraining any use for structural chronic pain such as EDS? (Spoiler: yes!)

Its been a while since I’ve written for this blog because I’ve been deeply into the process of following the Gupta Program limbic retraining since February and wanted to give my all to that…ongoing. I’ve seen massive improvements in many area of my health management, far too many and particular to me to itemise and, of course, this doesn’t mean I don’t continue to have the occassional flare-up of…

[dandydoodlezart]

PLEASE READ BELOW: Harriet @zebra_spine is raising money for vital spinal surgery - C0 - C2 cervical spine fusion, with removal of the lateral mass of the C1 to free the jugular vein. The cost of the surgery is £36,859. GOFUND ME link in her bio @zebra_spine This is her statement: The surgery is sadly not yet available on the NHS due to the additional health needs of Ehlers Danlos Syndrome. However there are so many patients like me, paving the way by undergoing this surgery privately in the UK, or overseas. The community hope this will be something available for everyone soon. I’m currently bedbound, I have partial parlaysis of my body from the neck down. The hope is this surgery will stabilise my head and neck enough to take the repeated constant injury away from my spinal cord and brain stem. As well as restoring blood flow to my brain and normalising the excess pressure in my skull creating intracranial hypertension and herniated cerebral tonsils. I suffer with, Ehlers Danlos syndrome, craniocervical instability, Intercranial hypertension, jugular vein stenosis causing venous congestion of my brain, cerebral spinal fluid leaks due to years of high pressure which comes out of my nose and into my ears. Before this I was a full time drug and alcohol recovery worker, with my own caseload of patients. Becoming this ill, and the gaslighting and negligence I’ve faced from health care professionals has been soul destroying but has fuelled my desire to get better and get back to work, supporting humans in need. #fundraiser #health #chronicillness #eds #ehlersdanlossyndrome #spoonie #spoonielife #spinalfusion #surgery #gofundme #donate #donatetoday #helpingothers #disabilityawareness #disability #spinalsurgery #digitalart #illustration #spoonieart #fibromyalgia #myalgicencephalomyelitis #chronicpain #ableism #charity #bedbound #edsawareness #ehlersdanlos #ehlersdanlosawareness https://www.instagram.com/p/B8hGKU7A_yl/?igshid=1kh3tfxhdo3fg

[eds-zebra-warrior]

2021 Ehlers Danlos Society Awareness Month (Day 2 Prompt: Diagnosis)

Ehlers Danlos syndrome is associated with over 250 possible comorbidities which means it's not unusual for an EDS patient to have 20, 30 or more medical conditions prior to receiving a diagnosis and 50 plus over a lifetime. EDS is a genetic connective tissue disorder which affects different types of connective tissue depending on the subtype of EDS you are diagnosed with and gene mutation you possess. That being said, Connective tissue makes every single part of the body, at least in part. Connective tissue resides in all of your organs, including but not limited to, your brain, heart, liver, kidneys, esophagus, stomach, intestines, lungs, mesentery, and every other organ you can think of. It's also a building block of other parts of the body such as bones, bone marrow, blood vessels, blood cells, Lymphnodes, Lymph fluid, the spinal cord, joints, tendons, ligaments, disks, nails, hair follicles, skin, nerves and much much more so as you can see, if there is something wrong with your connective tissue, all of the places that its located in are fair game and prone to problems. Most of us are diagnosed with a psychosomatic disorder at some point because doctors believe our symptoms are in our head for sometimes decades and it's not unusual to be diagnosed with a lot of the comorbidities caused by EDS before finding a doctor who can connect the dots and properly diagnose Ehlers Danlos Syndrome. I was diagnosed with a lot of my comorbidities before or around the same time I was diagnosed with EDS. I will list as many of my medical conditions as I can remember at the time however most of these I do not list on my medical bracelet as some are minor or do not cause other issues so would be irrelevant in an emergency. My conditions include but aren't limited to the following:

Ehlers Danlos Syndrome

Systemic Mastocytosis

Gastroparesis

Postural Orthostatic Tachycardia Syndrome

Addison's Disease

Autonomic Neuropathy

Polyneuropathy

Small Fiber Neuropathy

Complex Regional Pain Syndrome.

Celiac Disease

Neurocardiogenic Vasovagal Syncope

Common Variable Immune Deficiency

Neurocardiogenic Vasovagal Syncope

Bradycardia

Supraventricular Tachycardia

Paraplegia

Degenerative Disk Disease

Scoliosis

Osteoporosis

Hypovolemia

Hashimoto's Thyroiditis

Atrophy

Kyphosis

Myalgic Encephalomyelitis

Heart Murmur

Congenital Heart Defect (Unspecified)

Complex Cyst in Breast

Schmorl's Node between T-12 and L-1

Craniocervical Instability

Atlantoaxial Instability

Basilar Invagination

Low Lying Tonsils (tonsils in brain not throat)

Cervical Anterolisthesis

Dystonia

Vaginismus

Hyperhidrosis

Fibromyalgia

Psoriasis

Epileptic and Non-epileptic Seizures

Hypoglycemia

Interstitial Cystitis

Obsessive Compulsive Disorder

Complex Post Traumatic Stress Disorder

Depression

Blunting of the Costophrenic Angles

Pleural Thickening

Hiatal Hernia

Beginning Stage Glaucoma

Myopia (Legally Blind)

Traumatic Brain Injury

Dyslexia/Dyscalculia

Attention Deficit Disorder (Non Hyperactive)

Auditory Processing disorder

Mild Sensorineural Hearing loss in right ear

Heal Papules

[jasonattaman]

New Post has been published on Dr. Attaman and Dr. Cartier | Pain Management Physicians | (425) 247-3359

New Post has been published on http://bit.ly/2TXeeW6

Conditions

Everybody Experiences Pain!

Do you have acute or chronic pain? If so, you are not alone. Virtually all adult humans experience a significant painful issue at least a few times in their lives. It is an unfortunate reality of being a modern human.

You may be experiencing whiplash pain and headaches after a motor vehicle accident a few weeks ago and wondering why you have pain if your MRI is normal and your doctors have told you everthing “looks ok.” You might have had pelvic surgery 10 years ago and have been suffering from excruciating daily pain for the past decade, and have seen dozens of specialists, none of whom have any diagnosis nor treatment for you. You might be a teenager whose parents asked him to pull a fencepost out of the yard and have been having horrible low back pain for 3 years and all the physicians you’ve seen have said you’ll simply “grow out” of the pain. Maybe you’ve played a lot of tennis and now have a simple case of tennis elbow.

In most cases, pain will come and go in a fairly short time. Sometimes however, it sticks around and will not go away no matter what you do. You’ve seen your physical therapist many dozens of times, had chiropractic for months, tried multiple different medications, and even seen surgeons who tell you there is no surgery to correct your painful issue, or worse yet; that the surgery they performed on you “looks great” and they have no idea why you still have pain. You are unable to participate in your hobbies because of the pain, you are depressed and it is affecting your relationships. Nobody has ever given you a real diagnosis and told you what is causing your suffering.

Where do you turn when you are in this situation?

This is where we come in as Pain Medicine physicians. Our entire lives are dedicated to diagnosing and treating the most simple to most complex painful and non-surgical orthopedic problems.

The sub-specialty of Pain Medicine is a recognized field for physicians to train in. Dr. Attaman and Dr. Cartier are both fellowship trained and board certified in this sub-specialty. Fellowship training is the very highest level of training a physician can complete, and only a small percentage pursue it.

The most important step in treating painful issues is a proper diagnosis. Therefore when if you visit us, we will perform a very detailed history and physical with you, and review your outside imaging reports and physician’s notes so that we know what has been tried and failed in the past. We will spend more time with you than virtually any other physician you have seen, and you will see a physician only; no “mid-level” professionals such as Physicians Assistants nor Nurse Practitioners. Our goal is to think outside the box and figure out your specific diagnosis so we may offer the most appropriate treatments.

We are medical detectives!

We diagnose and treat every form of acute and chronic pain issue, from a simple twisted ankle to chronic cancer pain. We can help with very simple and very complex cases.

Here are some of the more common conditions we see, though this is not an exhaustive list:

Headache Pain Syndromes Headache arising from Whiplash Headache arising from the upper neck Acute Herpes Zoster (Shingles) of the Trigeminal Nerve Migraine Headache Tension-Type Headache Cluster Headache Swimmer’s Headache Analgesic Rebound Headache Occipital Neuralgia Ice Pick Headache Supraorbital Neuralgia Chronic Paroxysmal Hemicrania Hemicrania Continua Charlin’s Syndrome Sexual Headache Cough Headache Hypnic Headache Nummular Headache Post – Dural Puncture Headache

Facial Pain Syndromes Trigeminal Neuralgia Temporomandibular Joint Dysfunction Atypical Facial Pain Hyoid Syndrome Reflex Sympathetic Dystrophy of the Face Ramsay Hunt Syndrome Eagle Syndrome Atypical Odontalgia Burning Mouth Syndrome Nervus Intermedius Neuralgia Red Ear Syndrome Glossopharyngeal Neuralgia Supraorbital Neuralgia Infraorbital Neuralgia Mental Neuralgia Facial Nerve Pain

Neck and Brachial Plexus Pain Syndromes

Cervical Facet Syndrome Cervical Radiculopathy Cervical Post Laminectomy Syndrome Cervical Hypermobility Cervical Instability Fibromyalgia of the Cervical Musculature Cervical Strain Longus Colli Tendinitis Cervicothoracic Interspinous Bursitis Brachial Plexopathy Thoracic Outlet Syndrome Spasmodic Torticollis Cervicothoracic Interspinous Bursitis Scapulocostal Syndrome Parsonage-Turner Syndrome Hyoid Syndrome Omohyoid Syndrome Neck-Tongue Syndrome Sternohyoid Syndrome

Shoulder Pain Syndromes

Degenerative Arthritis of the Shoulder Acromioclavicular Joint Pain Subdeltoid Bursitis Bicipital Tendinitis Adhesive Capsulitis of the Shoulder Biceps Tendon Tear Supraspinatus Syndrome Rotator Cuff Tear Deltoid Syndrome Teres Major Syndrome Scapulocostal Syndrome Supraspinatus Tendinitis Infraspinatus Tendinitis Subacromial Impingement Syndrome OS Acromiale Pain Syndrome Pectoralis Major Tear Syndrome Suprascapular Nerve Entrapment Snapping Scapula Syndrome Quadrilateral Space Syndrome Labral Tear

Elbow Pain Syndromes Arthritis Pain of the Elbow Tennis Elbow Golfer’s Elbow Distal Biceps Tendon Tear Thrower’s Elbow Anconeus Syndrome Supinator Syndrome Brachioradialis Syndrome Ulnar Nerve Entrapment at the Elbow Lateral Antebrachial Cutaneous Nerve Entrapment At The Elbow Osteochondritis Dissecans of the Elbow Olecranon Bursitis Pronator Syndrome Cubital Bursitis Anconeus Epitrochlearis Triceps Tendinitis Radial Tunnel Syndrome Cubital Tunnel Syndrome Driver’s Elbow Anterior Interosseus Syndrome

Wrist Pain Syndromes

Arthritis Pain of The Wrist Carpal Tunnel Syndrome Flexor Carpi Ulnaris Tendinitis de Quervain’s Tenosynovitis Arthritis Pain at the Carpometacarpal Joints Ganglion Cysts of the Wrist Ulnar Tunnel Syndrome Cheiralgia Paresthetica Trigger Wrist

Hand Pain Syndromes

Trigger Thumb Trigger Finger Sesamoiditis of the Hand Carpal Boss Syndrome Dupuytren’s Contracture Erythromelalgia Boxer’s Knuckle Triangular Fibrocartilage Tear Syndrome (TFCC) Scapholunate Ligament Tear Syndrome Lunotriquetral Instability Pain Syndrome Kienböck’s Disease Extensor Carpi Ulnaris Tendinitis Flexor Carpi Radialis Tendinitis

Chest Wall Pain Syndromes

Costosternal Syndrome Manubriosternal Syndrome Intercostal Neuralgia Diabetic Truncal Neuropathy Tietze’s Syndrome Precordial Catch Syndrome Fractured Ribs Post-Thoracotomy Pain Devil’s Grip Sternoclavicular Syndrome Postmastectomy Pain Sternalis Syndrome Manubriosternal Joint Syndrome Xiphodynia Serratus Anterior Muscle Syndrome Slipping Rib Syndrome Winged Scapula Syndrome Thoracic Spine Pain Syndromes Acute Herpes Zoster of the Thoracic Dermatome Costovertebral Joint Syndrome Postherpetic Neuralgia Thoracic Vertebral Compression Fracture Abdominal and Groin Pain Syndromes Rectus Nerve Entrapment Syndrome Ilioinguinal Neuralgia Genitofemoral Neuralgia Anterior Cutaneous Nerve Entrapment Radiation Enteritis ACNES Syndrome

Lumbar Spine and Sacroiliac Joint Pain Syndromes

Lumbar Radiculopathy Low Back Pain Sciatica Latissimus Dorsi Syndrome Spinal Stenosis Arachnoiditis Discitis Sacroiliac Joint Pain Diffuse Idiopathic Skeletal Hyperostosis Spondylolisthesis Ankylosing Spondylitis Superior Cluneal Nerve Entrapment Syndrome Lumbar Myofascial Pain Syndrome Lumbar Paraspinal Compartment Syndrome

Pelvic Pain Syndromes

Osteitis Pubis Pudendal Neuralgia Gluteus Maximus Syndrome Piriformis Syndrome Ischiogluteal Bursitis Endometriosis Pelvic Inflammatory Disease Interstitial Cystitis Testicular Torsion Levator Ani Syndrome Gluteus Maximus Pain Syndrome Gluteus Medius Syndrome Gluteal Bursitis Clunealgia Nutcracker Syndrome Orchialgia Vulvodynia Prostatodynia Levator Ani Pain Syndrome Proctalgia Fugax Paroxysmal Extreme Pain Syndrome Coccydynia Post Laminectomy Syndrome Adjacent Segment Disease

Hip and Lower Extremity Pain Syndromes

Arthritis Pain of the Hip Hip Labrum Tear Snapping Hip Syndrome Iliopectineal Bursitis Ischial Bursitis Meralgia Paresthetica Phantom Limb Pain Trochanteric Bursitis Transient Regional Osteoporosis Psoas Bursitis Iliopsoas Tendon Rupture Femoral Neuropathy Saphenous Neuralgia Obturator Neuralgia Adductor Tendinitis Iliopectinate Bursitis Snapping Hip Syndrome

Knee and Distal Lower Extremity Pain Syndromes

Arthritis Pain of the Knee Avascular Necrosis of the Knee Medial Collateral Ligament Syndrome Medial Meniscal Tear Anterior Cruciate Ligament Syndrome Jumper’s Knee Runner’s Knee Suprapatellar Bursitis Prepatellar Bursitis Superficial Infrapatellar Bursitis Deep Infrapatellar Bursitis Osgood-Schlatter Disease Baker’s Cyst of the Knee Pes Anserine Bursitis Common Peroneal Nerve Entrapment Tennis Leg Tibiofibular Pain Syndrome Jumper’s Knee Semimembranosus Insertion Syndrome Coronary Ligament Strain Breaststroker’s Knee Quadriceps Expansion Syndrome Runner’s Knee Snapping Pes Anserinus Syndrome Iliotibial Band Bursitis Fabella Syndrome Hamstring Tendinitis Pes Anserine Bursitis

Ankle Pain Syndromes

Arthritis Pain of the Ankle Arthritis of the Midtarsal Joints Deltoid Ligament Strain Anterior Tarsal Tunnel Syndrome Posterior Tarsal Tunnel Syndrome Achilles Tendinitis Achilles Tendon Rupture Subtalar Joint Pain Midtarsal Joint Pain Posterior Tibial Tendinitis Achilles Bursitis

Foot Pain Syndromes

Arthritis Pain of the Toes Bunion Pain Morton’s Neuroma Interdigital Burstis Freiberg Disease Plantar Fasciitis Sesamoiditis Calcaneal Spur Syndrome Mallet Toe Hammer Toe Anterior Talofibular Pain Syndrome Accessory Navicular Pain Syndrome Fibulocalcaneal Pain Syndrome OS Trigonum Pain Syndrome Bunionette Pain Sesamoiditis Metatarsalgia Submetatarsal Adventitial Bursitis Morton’s Neuroma

Generalized Pain Syndromes

Ehlers Danlos Syndrome Peripheral Neuropathy Complex Regional Pain Syndrome (CRPS) Reflex Sympathetic Dystrophy (RSD) Motor Vehicle Accidents Whiplash

[tihorsonawane-blog]

Dr Varsha Kurhade-Spine pain,Back pain, Sciatica Treatment in Pune

Welcome to Painex, India's Most Advanced Pain Management Clinic

At Painex clinic, we offers highly specialized, non-surgical treatment for low back pain, sciatica, herniated disc or slipped disc, knee pain, ankle and heel pain, spine pain, shoulder pain, sports injuries, severe headache, post surgical pain, diabetic neuropathy, postherpetic neuralgia,Abdominal pain, trigeminal neuralgia or facial pain, cancer pain, whole body pain or fibromyalgia in Pune. Living with chronic pain is challenging.Your evaluation process with us may include a full medical history, detailed clinical examinations in short, whatever it takes to get to the root of your symptoms. We will establish the root cause of your problem and customise a pain treatment plan to suit you.

We are firm believers in the concept of “Total Pain”, thus propagate holistic pain management through a Multimodal, Multidisciplinary, Non-Surgical approach.

 Our Specialities

  Neuropathic pain conditions

Neuropathic pain can result after damage or dysfunction of the nervous system. Pain can rise from any level of the nervous system. These levels are the peripheral nerves, spinal cord, and brain. Pain centers receive the wrong signals from the damaged nerve fibers. Nerve function may change at the site of the nerve damage, as well as areas in the central nervous system (central sensitization).

Neuropathy is a disturbance of function or a change in one or several nerves. About 30% of neuropathy cases is caused by diabetes. It is not always easy to tell the source of the neuropathic pain. There are hundreds of diseases that are linked to this kind of pain.

More: Best Knee Pain Treatment in Pune

  Abdominal Pain

Just about everybody at one point or another will experience abdominal (belly) pain. Most causes of abdominal pain are not serious and can be readily diagnosed and treated. However, abdominal pain can also be the sign of a serious illness, and it is important that you learn to recognize which symptoms are severe and when to need to specialist consultation.

In many cases even after performing surgery for primary disease like tumor or infection, pain persists for months (persistent post - surgical pain), not responding to regular medicines.Once this initial evaluation has been completed, your doctor may tell you to undergo some tests to help him or her make the diagnosis. These may include blood or urine tests, barium swallows or enemas, an endoscopy, X-ray, or ultrasound.

  Spine Pain & Sciatica

Spine pain is a very common complaint. According to recent statistics, approximately 80% of adults in the India will experience some form of back pain during their lifetime. Spine and Back pain is a common reason for missed time from work and is a leading cause of work-related disability claims.

We at Painex provides team of best back pain doctors which take care of your Spine and Back pain treatment in pune.

  Causes of Spine Pain:

The Spine is a complex structure that is comprised of muscles, tendons, ligaments, bones, and intervertebral discs. Problems in any of the structures that make up the spine can result in back pain. The spine is divided into four regions: cervical (neck), thoracic (upper back), lumbar (lower back), and sacral region.

The most common causes of upper and lower back pain are due to strained muscles and ligaments, which can result from heavy lifting, improper lifting, abrupt or awkward movements, poor posture, or muscle spasm.

The most common causes of upper and lower back pain are due to strained muscles and ligaments, which can result from heavy lifting, improper lifting, abrupt or awkward movements, poor posture, or muscle spasm.

More: Sciatica And Spine Pain Specialist in Pune

  Cancer Pain

Among patients with cancer, pain is one of the most feared symptoms. Pain may occur in greater than fifty percent of patients with cancer. Physical pain may lead to impaired function, psychological distress, and interruption in daily activities. Pain can occur as a result of the cancer itself or from the cancer treatments such as surgery, radiation, and chemotherapy. Strategies for treating cancer pain include medical management, psychological support, palliative care, and procedures.

  Types of Cancer Pain::

Pain From the Tumor:

Cancer can grow locally to invade structures such as bones, nerves, tissue and organs. Cancer can also metastasize and invade structures remote from the actual cancer. The pain may vary depending on the structure involved.

Pain From Treatment:

Cancer treatment includes chemotherapy, radiation therapy, and surgery. While these treatments are potentially life-saving, each has its unique set of side effects. For example, chemotherapy can cause muscle pain and neuropathy (damage to the very small nerve fibers.

Post-Surgical Pain:

Following surgery, pain occurs as a result of tissue injury and subsequent inflammation. In most circumstances, this pain improves as the tissue heals. But few cases it persists beyond expected duration of recovery and becomes chronic pain.

  Headache Migraine

Migraines are headaches that cause throbbing or pulsating pain that is usually limited to one side of the head. These headaches affect everyone differently, with some people experience mild to moderate migraines lasting for only a half hour, and others battling debilitating pain for hours or even days on end. Not everyone is prone to migraines; and of those who are, the cause is not known. However, certain factors like stress, anxiety, and poor sleep patterns can contribute to the frequency and severity of migraine pain. Most people never know when a migraine coming, but a small percentage are forewarned with vision disturbances just a few minutes before headaches begin.

We at Painex provides team of best back pain doctors which take care of your back pain treatment in pune.

 Sports Injuries

It's important to seek help from an expert who is familiar with the full spectrum of shoulder problems and treatments. Our pain specialists will review conservative treatment approaches such as physical therapy, pain relievers and injections. Surgical consultation for options including arthroscopic, rotator cuff and shoulder surgery, if indicated as crucial.

Shoulder pain and injuries are extremely common – whether due to exercise, age, overuse injuries or trauma. In fact, they account for nearly 20 percent of visits to the doctor’s office. When shoulder pain interferes with your ability to do the things you need to each day, its time to seek medical advice.

  Conditions: Arthritis,  Rotator cuff tendonitis and tear,  Bursitis,  Impingement syndrome,  Instability,  Frozen shoulder,  Labral tears

[podcastdx]

Ehlers Danlos Syndrome EDS

TRANSCRIPT

Ron: [00:00:30] Hello and welcome to another episode of podcast DMX. The show that brings you interviews with people just like you whose lives were forever changed by a medical diagnosis. [00:00:40][10.4]

Lita: [00:00:41] I'm Lita. [00:00:42][0.2]

Ron: [00:00:43] I'm Ron. [00:00:43][0.2]

Jean: [00:00:44] And I'm the guinea pig. [00:00:45][1.0]

Lita: [00:00:47] Collectively we are the hosts of podcast D X this podcast is not intended to be a substitute for a professional medical advice diagnosis or treatment. Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or a treatment. And before undertaking a new health care regimen and never just regard professional medical advice or delay in seeking it because of something you have heard on this podcast. [00:01:16][29.6]

Jean: [00:01:18] Now on future episodes we have many interesting people to speak with about a wide variety of different medical conditions and diagnoses but in this episode we will be discussing a rare set of disorders that fall under the category of Ehlers Danlos syndrome which we will abbreviate from this point forward as E D S. [00:01:39][20.9]

Ron: [00:01:41] E D S or a group of connective tissue disorders that can be inherited and are varied both in how they affect the body and in their genetic causes. They are generally characterized by joint hyper mobility that is joints that stretched further than normal, skin hyperextensibility. Again, skin that can be stretched further than normal, and tissue fragility. There are 13 subtypes, each one being diagnosed through genetic testing. The hyper mobile type does not have a genetic marker identified just yet. This type is diagnosed by a physician using something called the Beighton Scale, which includes a variety of tests to give reference to the amount of hyper mobility involved in the patient. The connective tissue of a person with EDS is not structured the way it should be. Some or all of the tissue in the EDS affected body can be pulled beyond normal limits which causes damage connective tissue can be found almost anywhere. It can be found in the skin the muscles tendons in the ligament the blood vessels the organs in the gums the eyes and so on you get the picture. [00:02:58][77.6]

Lita: [00:02:59] That's right. Run. I bet you got that right off the EDS Society website. [00:03:03][4.1]

Ron: [00:03:04] Was it that obvious? I wanted to make sure that we were giving the most accurate definition to the listeners out there. The link for EDS Web site along with more detailed information regarding EDS can be found on our Web site PodcastD X dot com. [00:03:21][16.9]

Lita: [00:03:22] Well now that we know the definition of EDS, I guess it's time to point out the actual symptoms that a person with us experiences. The first is typically joint hyper mobility loose or unstable joints which are prone to frequent dislocations and or a subluxations, joint pain, hyper extensible joints., (they move beyond the joints normal range) and early onset of osteoarthritis. [00:03:52][30.1]

Ron: [00:03:55] Lita, what's the difference between a dislocation and subluxation. [00:03:57][2.2]

Lita: [00:03:59] Well a dislocation is defined as the separation of a human body's two bones from a joint or area where the two bones come together. In time, if treated incorrectly. It can lead to ligament or nerve damage, which will hinder the patient's body movements. A partial dislocation is referred to at times as a subluxation. This is the result of an incomplete separation of the bones that come together at the joints. [00:04:28][29.1]

Ron: [00:04:30] Wow. Either way they both some pretty painful. [00:04:32][1.9]

Lita: [00:04:32] They sure do. Pain is a huge problem with EDS. It can also turn into a chronic early onset debilitating musc, musculoskeletal pain similar to fibromyalgia. Another common issue with EDS is a skin related problems. It's very common to have fragile skin that tears or bruises easily, bruising may be severe. Severe scarring, slow and poor wound healing, even following a surgery, scars can reopen after you think they were healed. Other problems can occur within the body due to lack of collagen and or ligaments support. Things like frequent hernias, digestive problems, mitral valve prolapse, scoliosis, uterine fragility, and gum disease. [00:05:24][51.8]

Ron: [00:05:26] That certainly is an incredible array of symptoms. And this disorder is not curable but it is managed with medication physical therapy and rest. So now that we have laid some of the background for our listeners at home it is time to introduce today's guest who unfortunately deals with EDS on a daily basis. Our own co-host here podcastDx, Jean Marie. Could you please explain a little bit about your journey with EDS?. [00:06:00][33.8]

Jean: [00:06:01] Sure. I didn't know what it was but I've been, but I knew that I had some issues with my joints stability and such for some time. When I was little, I was always very "bendy" and my hip will go out of joint just walking and my shoulders would come out of joint several times, and I've had some other issues but I've had some severe problems with it as well, but most of my issues were later in life. [00:06:30][29.2]

Ron: [00:06:32] So the first symptoms that when you were much younger you said about your hip. [00:06:37][5.3]

Jean: [00:06:38] Well I would say that although I recognize that there was something going on I didn't understand what. How complex and difficult the situation was and that I had EDS until much later in life, in my 30s. [00:06:52][14.3]

Lita: [00:06:53] Is it common for people with EDS to get a diagnosis of fibromyalgia. [00:06:57][3.3]

Jean: [00:06:58] Sure. I mean you have joint issues and joint pain is often common in eds. So you may be diagnosed with fibromyalgia but it's actually a connective tissue issue when it comes to eds and you could also have an issue with your vascular system which is a subset of eds. [00:07:18][19.5]

Lita: [00:07:18] Okay. And how do gastrointestinal problems. Irritable bowel or Gerd. How do those play a part with EDS? [00:07:27][8.2]

Jean: [00:07:27] Well since your gastrointestinal system is comprised of connective tissue it can be affected by eds. So in your nerves are also surrounded by connective tissue. So since your gastrointestinal system works on a umm [00:07:43][16.0]

Lita: [00:07:49] The pulsing of the muscles that move the product through the gastro system right? [00:07:55][6.0]

Jean: [00:07:55] Right. That's all influenced by your nerves. And it's not something that you can control. It's an autonomic function and it's controlled by your nerve. So if your nerves are affected by your eds then your gastrointestinal symptoms are affected by that as well. And did I mention brain fog. I think brain fog is a part of eds. [00:08:13][17.7]

Lita: [00:08:13] yes I know I know. [00:08:14][1.0]

Ron: [00:08:16] Well I know your symptoms have changed over the years. This is based on surgery's medication changes etc. etc.. How would you say that eds affects your lifestyle right now. [00:08:27][11.6]

Jean: [00:08:28] Well I have to make different modifications and accommodations for eds. Yes I have to take into account that my. For example I my hip might come out of joint and I do utilize different. Things to try to reduce the number of incidents I have. [00:08:45][16.7]

Lita: [00:08:46] OK. Well since this is you know this is EDs Awareness Month as you know. Are you up for that EDs challenge that they've been talking about. [00:08:54][8.1]

Jean: [00:08:55] Nope [00:08:55][0.0]

Lita: [00:08:58] (laughter) Good. Let's do a lightning round. I'll ask the questions and you'll have 15 seconds to answer before I go on to the next one. [00:09:04][6.4]

Jean: [00:09:05] Great. [00:09:05][0.0]

Lita: [00:09:05] . Ron you'll keep time. You're ready. [00:09:07][1.9]

Ron: [00:09:08] I Certainly am. whenever You're ready. [00:09:09][0.9]

Lita: [00:09:10] Jean said she's not ready. [00:09:11][1.5]

Ron: [00:09:12] Well you're ready Ready or not. [00:09:13][0.9]

Lita: [00:09:13] That's right. OK. Question 1 What type do you have. [00:09:17][3.5]

Jean: [00:09:17] Hyper mobile. [00:09:18][0.3]

Lita: [00:09:19] And when were you diagnosed. [00:09:19][0.8]

Jean: [00:09:20] Several years ago before my cranial cervical fusion in New York. [00:09:23][3.1]

Lita: [00:09:25] OK. Do you have any comorbilities. [00:09:26][1.4]

Jean: [00:09:28] Yes I have pots which we discussed on a prior episode. I get migraines. I have several hernias. I have an issue with my gastro parasen, paracentesis there say that three times fast. I have thyroid disorders tinitis in my ears cranial cervical settling and cranial cervical instability which has been repaired with a number of different titanium accessories, syncope is lipo edema, latex sensitivity I get PVCs with my heart. Now I have celiac disease and I have difficulty swallowing just to name a couple of related issues. [00:10:05][37.7]

Lita: [00:10:06] Hey Ron I think we have a client here that we can use for a lot of future podcasts [00:10:10][4.1]

Jean: [00:10:11] Oh no no no no. There are many other people that want to get on the show. [00:10:14][3.3]

Lita: [00:10:14] OK. All right. Question number four do you have any mobility aids that you use. [00:10:20][6.0]

Jean: [00:10:21] I do. There are some are unusual but it's difficult. For example for me to squeeze a bottle. So when it comes to toiletry products and things of that nature I use a pump. [00:10:31][9.7]

Lita: [00:10:31] OK. [00:10:31][0.0]

Jean: [00:10:32] Because that makes it my life much easier and I join up to worry about my fingers going out of joint. I also make sure that I you know I have trecking polls to assist when I'm walking and if need be I also use a wheelchair when I know when that comes. [00:10:46][14.6]

Lita: [00:10:48] To much walk. [00:10:48][0.5]

Jean: [00:10:49] And yet when walking becomes too much I wear very comfortable shoes that offer a great deal of support. And I just try to take it easy and rest. [00:10:58][9.5]

Lita: [00:10:59] OK. What do you use for pain management. [00:11:01][2.1]

Jean: [00:11:02] Anything I can. I've taken everything from fentanyl to oxycodone and I have recently submitted my application for medical marijuana for the state of Illinois. So I'm looking forward, looking forward to trying that as well. And then I also use things like distraction music. I'll read books listen you know watch movies spend time with my family spend time in the garden and I try to you know alleviate my pain through other techniques as well. [00:11:33][30.7]

Lita: [00:11:34] And pet therapy. [00:11:34][0.8]

Jean: [00:11:35] And pet therapy yes. [00:11:36][0.6]

Lita: [00:11:36] Can't forget Buddy and Gi.Gi.. [00:11:37][1.0]

Jean: [00:11:38] Nope. [00:11:38][0.0]

Lita: [00:11:39] Have you had any surgeries do to eds. [00:11:41][1.8]

Jean: [00:11:41] Yes yes. My , when walking my ankle. the tendons and ligaments tore off my ankle. So they had to be repaired. And I have not yet had my other ankle repaired but there is a similar situation there. And I also had a cranial cervical stabilization procedure to try to keep my neck stretched to its full full height. And it added a nice little inch to my height. [00:12:08][27.0]

Lita: [00:12:09] OK. Have you had any hospital stays. [00:12:11][1.9]

Jean: [00:12:11] Yep. One or two variety of reasons. [00:12:14][2.5]

Lita: [00:12:14] What types of specialists do you have. [00:12:16][1.5]

Jean: [00:12:17] I have a specialist for everything from my vision. So I have a neuro ophthalmologist straight down to my toes and I have an orthopedist that works specifically on ankle repairs. [00:12:31][14.1]

Lita: [00:12:32] OK. What is your funniest EDS story. [00:12:34][2.8]

Jean: [00:12:35] Before I knew I had eds I would entertain people by moving my hair around and it looks like it's a wig because I can move it so much because of the flexibility. So it's a little bit unusual. [00:12:46][10.4]

Lita: [00:12:47] Mm hmm. Excuse me. What was your worst doctors experience. [00:12:51][4.1]

Jean: [00:12:52] I had an orthopaedic surgeon told me that my shoulder blade was fine because I hadn't fractured my clavicle which I didn't realize in order to hurt your shoulder blade. You have to fracture clavicle but I don't think that's the case. And indeed I needed extensive repair to my shoulder blade and had to have two major procedures for that. [00:13:11][19.0]

Lita: [00:13:11] Okay. And what was your best doctors experience. [00:13:14][2.6]

Jean: [00:13:14] I have amazing GP's that juggle all of the specialists that I have and they're able to consolidate everything and handle all of my new and unusual conditions. [00:13:29][14.0]

Lita: [00:13:30] OK so you say the gps would be the best. [00:13:32][1.9]

Lita: [00:13:33] Yes. OK. Do you consider your she's doing pretty good on time. [00:13:36][2.8]

Ron: [00:13:36] She is. [00:13:36][0.3]

Lita: [00:13:37] Do you consider yourself. [00:13:37][0.6]

Jean: [00:13:38] Since I forgot where I put my my notes. This must be an off the cuff. Yeah. Yeah. [00:13:43][5.0]

Lita: [00:13:43] Do you see. Do you consider yourself disabled. [00:13:45][1.6]

Jean: [00:13:46] No. No. I may be differently abled. [00:13:48][2.3]

Lita: [00:13:49] Have you experienced ableism. [00:13:50][1.5]

Jean: [00:13:52] is that like Cain and Abel ism or. I don't know what it was. [00:13:55][3.2]

Lita: [00:13:55] This was one of the questions on the I'm assuming a challenge. [00:13:58][2.6]

Jean: [00:14:00] I don't know. [00:14:01][1.1]

Jean: [00:14:01] I do know that when I'm sitting in using my wheelchair sometimes people don't look at me or talk to me they'll talk to whoever is assisting me at the time and I find that disconcerting and that I've had issues in certain situations where I can't speak to someone and it does because it's the desk is so high and when I'm going on a tour of a museum it's difficult because you know you're trying to see everything. It's just there's challenges in that regard but nothing too horrific. [00:14:31][29.4]

Lita: [00:14:33] What is something that you wish everyone understood about eds. [00:14:36][3.6]

Jean: [00:14:37] oh... About Eds. [00:14:38][0.6]

Lita: [00:14:38] Yes. [00:14:38][0.0]

Jean: [00:14:38] Yeah. You say because you really do have to narrow it down that you can't necessarily see what's wrong. So if I am parking in utilizing a handicapped parking place it might be because my hip has popped off the day. And you might not be able to see that because you know you can't see that and you can't see other issues. But I do need assistance from now, you know every now and again and. Yeah. So just you can't always see what's going on with somebody. [00:15:04][26.1]

Lita: [00:15:05] So it's an invisible illness. [00:15:06][1.0]

Jean: [00:15:06] It can be. It can also be a very visible illness because I do have quite a few scars. And it takes me a very long time to heal. So in that regard you can see it. But yeah most of the time you cant tell what's going on. [00:15:18][11.3]

Ron: [00:15:18] From the naked eye if people don't get you in a wheelchair they think you're fine. [00:15:21][2.9]

Jean: [00:15:21] Yes. Yes and I could very well be passing out or having a syncapal episode at any moment and that's very frightening. [00:15:29][8.0]

Lita: [00:15:31] True true it scares the heck out of me I know. [00:15:33][2.5]

Lita: [00:15:34] Sorry Mom. Yeah. Yeah. If you could rid yourself of one EDs symptom which would it be. [00:15:40][5.9]

Jean: [00:15:42] I guess the gastrointestinal complications I've been told that I should really have my colon removed and that's not something I'm jumping for joy about so certainly I'd want that corrected. And I guess any of the. [00:15:55][13.3]

Lita: [00:15:56] No one one, you see how, she's that, now she's losing the trick. [00:15:59][3.5]

Jean: [00:16:00] Well yeah. All right all right. Any. But yeah. OK. [00:16:02][2.6]

Lita: [00:16:03] Just one. Well that wraps up today's session. If you have any questions or comments related to today's show you can contact us at podcast D X at yahoo dot com through our Web site podcast D X dot com at our Facebook page at Instagram or Twitter. [00:16:22][18.8]

Ron: [00:16:23] And if you have a moment to spare please give us a five star review on I tunes podcast app. [00:16:29][5.6]

Jean: [00:16:30] And thank you to all of our followers on Instagram. We really appreciate the feedback. And on Facebook I love all the feedback there as well. And the Twitter followers too, have to give you guys a shout out into all of our other podcasters out there who have given us praise and assistance and encouragement. We appreciate you guys. [00:16:49][19.5]

Lita: [00:16:49] Yes we are. We're. moving... (forward) [00:16:49][0.0]

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