#bladdertraining

[incurableoptimistest1994]

Look who’s up and dressed in actual clothes for the first time post catheter removal... also, look who’s WEARING TIGHTS!!! First time in 13 years I’m tube free. It’s both incredibly unsettling, And unbelievably freeing. Seems ridiculous to feel emotional over something as simple as wearing tights, but I am. It’s the first of many firsts that will happen over the next few days and weeks... and the first item crossed off my Easter Bucket List! The list is mostly about doing things I couldn’t do with tubes in me. Life is really exciting right now guys 😁! #lookwhoswearingclothes #upandatem #postcatheterremoval #bladdertraining #intermittentcatheterisation #palliativecarewarrior #feelingfree #tubefree #imwearingtights #firstoflotsoffirsts #lifeisexciting #thisiswhathappylookslike (at Llansamlet) https://www.instagram.com/p/BwhaMeDlBm0/?utm_source=ig_tumblr_share&igshid=12r4aue5pmx0d

[practicallyperfectpt]

Yes or no folks... Do you pee even when you don't have to? Maybe to avoid having to go in public or before leaving the house? That last trip right before bed just in case? Did you know that isn't great for your bladder and can actually confuse it. Well, now you do! #nojustincasepee #bladdertraining #practicallyperfectPT https://www.instagram.com/p/B-pgFvCJNu3/?igshid=1h7gbjshz1ahh

[aaronharrell]

When you are excited to see your mom after a week and a half but dad didn't stop the car for three hours… #holdit #dontpee #bladdertraining #reunited (at Boise Airport)

[incurableoptimistest1994]

Good morning ☀️! So we had a better night that last night, because less times getting up for spasms/seizures/pain relief (only twice!), but we were still up four times for me to pee... yesterday we thought it was the alcohol that kept me up and down all night, but I didn’t drink yesterday?! So no idea why I was peeing so much! This peeing business is weird, y’all! #goodmoring #notamorningperson #coffeecoffeecoffee #nottheworstnightever #notthebestnightever #bladdertraining #intermittentcatheterisation #chronicpain #seizures #spasms #medsmedsmeds #mymummyismynightnurse #sleepoverwithmum #shesamazing😍 (at Llansamlet) https://www.instagram.com/p/BwltQuzFN2U/?utm_source=ig_tumblr_share&igshid=1jmh25dj9rcjo

[incurableoptimistest1994]

Guess who’s bladder is being a little bitch? Mine, it’s my bladder. Had to stop at the bloody services on the way home 🙄! #bladdertraining #neuropathicbladder #mybladdersbeingalittlebitch #hellobridgendservices (at Bridgend) https://www.instagram.com/p/Bxh8tVpBbBh/?igshid=v8cn4copk4w9

[incurableoptimistest1994]

I’m extremely wobbly and stiff on my feet tonight, so it’s the first time one of the nurses, Carol-Ann, has had to accompany me to the toilet 🚽 and I just want to say I’m feeling incredibly grateful to have such kind, patient, skilled staff taking such good care of me ❤️ Btw, we call our little middle of the night wobbles The Toilet Tango 😂! #thetoilettango #middleofthenightthoughts #gottapee #bladdertraining #intermittentcatheterisation #palliativecarewarrior #wobblywarrior (at Cardiff) https://www.instagram.com/p/BxWQ5pgBC-f/?igshid=166soem25zciz

[incurableoptimistest1994]

So me and mummy had a bad night; lots of up and down for peeing, pain relief and spasms. Today, we’re using our appropriate mugs that announce we are not morning people 😂! #notamorningperson #readthemugs #badnight #bladdertraining #intermittentcatheterisation #seizuressuck #spasmssuck #chronicpainsucks #upallnight #knackered #mymumismynurse #ilovemymummy❤️ (at Llansamlet) https://www.instagram.com/p/BwjUh28lWzC/?utm_source=ig_tumblr_share&igshid=gf383zx7rttk

[incurableoptimistest1994]

So we’ve had our first Bad Night of bladder training/intermittent catheterisation. Went to bed at 1amish, been up SIX TIMES to pee since then, and up four times for pain relief and anti spasm meds. We’re both knackered. Chill day today for us! #nosleepforus #upallbloodynight #bladdertraining #intermittentcatheterisation #chronicpainsucks #chronicspasmssuck #seizuressuck #firstbadnight #chilldayforustoday #knackered #mummyandamycwtches #makesthingsbetter (at Llansamlet) https://www.instagram.com/p/BwjJP3VFoxo/?utm_source=ig_tumblr_share&igshid=1atcgpwj4tedp

[incurableoptimistest1994]

‪Feeling all emotional 😭 my nurses dropped off my first delivery of catheters and they’ve drawn a cartoon of me as a fairy 🧚🏻‍♀️ on the box 📦 MY HEART 💖‬ ‪#bladdertraining #intermittentcatheterisation #palliativecarewarrior #nursinghomefam #nursesareamazing ‬ (at Llansamlet) https://www.instagram.com/p/BwiMdEClFgC/?utm_source=ig_tumblr_share&igshid=4t6geuvn3cw7

[incurableoptimistest1994]

So in all the chaos I actually forgot I had this photo; this is Team Lets Get That Indwelling Catheter Out And Get Amy-claire Peeing!! It’s me, my amazing mum @caroline.davies350 and the absolutely incredible nurse, who spent most of the day getting us comfortable and on track with bladder training, intermittent catheterisation, and peeing in general. She was incredibly patient, kind and understanding. When I’d had my tube out and actually managed to pass some urine naturally (thanks to the Botox in my bladder) I got really emotional and had a little cry 😭. It was just such a big moment; the first time in 13 years that I didn’t have a tube in my body! The nurse herself actually had a cry when we were leaving and we had a team high five and hug... she said we were inspiring and amazing 😭❤️ I am forever and always an advocate for how incredible the NHS is; especially the people they employ. We couldn’t have done this without this incredible nurse getting us stared. Big thank you to the urology unit at UHW ❤️ #teamamyclaire #letsgetyoupeeing #bladdertraining #intermittentcatheterisation #thenhsisamazing #nursesareamazing #nursesareangels #sograteful (at University Hospital of Wales) https://www.instagram.com/p/BwfCVcGlOSt/?utm_source=ig_tumblr_share&igshid=cw7o6k7teuyn

[incurableoptimistest1994]

I am absolutely loving this beautiful, sunny ☀️ weather, and am taking full advantage of it by spending the afternoon in the garden 🌿🌹 admittedly in my pjs, but they are pretty new pjs! I’m reading, drawing, and we’re listening to my dad DJ some banging tunes... I hope you’re having as good a Easter weekend as me and my fam 💖 My bladder training and intermittent catheterisation is going super well btw! #beautifulweather☀️ #itsactuallysunnyinwales #spendingtheafternooninthegarden #chillinginthegarden #inmypjs #newpjs #theyrepretty #palliativecarewarrior #bladdertraining #intermittentcatheterisation #easterhols #atmumanddadshouse #thisiswhathappylookslike❤️ (at Llansamlet) https://www.instagram.com/p/BwettENl5bC/?utm_source=ig_tumblr_share&igshid=5mwrbcz0c6a6

[incurableoptimistest1994]

I am absolutely loving this beautiful, sunny ☀️ weather, and am taking full advantage of it by spending the afternoon in the garden 🌿🌹 admittedly in my pjs, but they are pretty new pjs! I’m reading, drawing, and we’re listening to my dad DJ some banging tunes... I hope you’re having as good a Easter weekend as me and my fam 💖 My bladder training and intermittent catheterisation is going super well btw! #beautifulweather☀️ #itsactuallysunnyinwales #spendingtheafternooninthegarden #chillinginthegarden #inmypjs #newpjs #theyrepretty #palliativecarewarrior #bladdertraining #intermittentcatheterisation #easterhols #atmumanddadshouse #thisiswhathappylookslike❤️ (at Llansamlet) https://www.instagram.com/p/BwetmgklbcA/?utm_source=ig_tumblr_share&igshid=yapvl7dasttr

[incurableoptimistest1994]

Good morning ☀️! How is everyone this lovely sunny (here in Wales, at least!) Saturday morning? I’m really good; I only peed ONCE last night! This is a really good sign my bladder training and intermittent catheterisation is going very well 😁🙌🏻🎉! #goodmorning #howareyou #itsabeautifulday #ionlypeedonce #bladdertraining #intermittentcatheterisation #palliativecarewarrior (at Llansamlet) https://www.instagram.com/p/BweNSobFuxn/?utm_source=ig_tumblr_share&igshid=16ru3mpe13jco

[incurableoptimistest1994]

Good morning! Guess who’s had an absolutely fantastic nights sleep and only went to the toilet ONCE last night?? ME!!! This bladder training and intermittent catheterisation is going SO WELL; only a couple days in to being catheter free and I only peed once last night! I’m honestly SO CHUFFED 🙌🏻🙌🏻🙌🏻🎉🎉🎉!! Pretty sure my mum/night nurse is chuffed I wasn’t climbing over her all night too 😂!@caroline.davies350 #goodmorning #wehadagoodnight #ionlypeedoncethistime #bladdertraining #intermittentcatheterisation #itsgoingsowell #chuffed (at Llansamlet) https://www.instagram.com/p/BweEPSLFAQB/?utm_source=ig_tumblr_share&igshid=5s9ehtfeg0dp

[incurableoptimistest1994]

#100happydayschallenge today I’m super happy that I made it all the way to the garden 🌷 from the toilet 🚽!! And I’m happy it’s so sunny ☀️ and that I got to see @alicemorgan1999 and @tommorgan03 💖 #100happydays #bladdertraining #intermittentcatheterisation #igotthis💪 (at Llansamlet) https://www.instagram.com/p/Bwc-4WIl-7g/?utm_source=ig_tumblr_share&igshid=7t0etei8rix4

[incurableoptimistest1994]

Look who’s actually outside! I mean, I’m only in the garden in my pjs, but it’s not the toilet, and that’s something! #bladdertraining #intermittentcatheterisation #palliativecarewarrior #imactuallyoutside #inthegardeninmypjs #chillin (at Llansamlet) https://www.instagram.com/p/Bwcd5adlrqf/?utm_source=ig_tumblr_share&igshid=zfy9thvok77