#between the bladder issue and the gallbladder issue and the fucked to periods right now i don't need another medical crisis

[jedi-bird]

Thought something I ate yesterday irritated my mouth, but I'm pretty sure now that it's the stupid wisdom tooth on the right side trying to come in again. Eating hurts and I'm very tired. Didn't need this on top of all the other issues I'm trying to deal with right now.

[serpentiana]

Long one here but my personal story of having Endo:

I was diagnosed with Deep Infiltrating Endometriosis stage 4 after my 4th laparoscopic surgery. They used a Da Vinci machine and operated on me for 5 hours. Everyone was aware I'd be under for maybe an hour, max two. It wasn't expected they'd find so much. This time they decided to look past my pelvis. Come to find out wow I'm not lying about my pain to every single human being wow im not going insane holy shit. They found webbings into my abdominal region, around my gallbladder (which was removed), some around my pancreas, webbed against my intestinal tract, some was even found inside my bladder. My mother took me to different urologists and gynocologists for multiple years until she gave up and started to think I was faking it. It was hard to be listened to. Especially when I began having a job. And ontop of it, my periods and ovulation were physically killing me more and more each year. It was only until I turned 23 that I learned about all of this. There really isn't enough awareness for any of it.

This is a serious issue that I wish I got assistance for. Filing for disability is not even realistic for me. I don't have the funds to pay a lawyer to fight for my case after being denied. The pain truly knocks me off my feet. I've had some of the most deafening screams come out of me, and it really is just that bad. I've cried for days in pain, popping menstrual relief pills, losing feeling in my legs, dragging myself to the bathroom, biting my shirt in pain during the middle of the night, profusely sweating and passing out on the toilet, just fainting right then and there, no matter if I was in a public area or at home. I barely managed my symptoms. As someone with a life-long struggle of an ED, I relapsed after my surgeries telling myself that maybe if I reach a weight where my period is gone I won't feel that pain anymore. So I lost my period. And I lost way more than that. It never fully took the pain away, it only gave me an excuse to deteriorate myself.

It's hard for me to write this without getting emotional because I just turn a blind eye to it. When I'm driving it'll make me pull over. On a highway which is fucking terrifying and I've had to do that on the way to work. I gave up fighting after being told consistently I was showing up late for no reason, and due to poor attendance because this condition is chronic 3 weeks out of the month for me normally, I made a company suffer and I prided myself on my work ethic. It was a huge blow to my confidence and my mental health spiraled since it got worse. I have adhesions now from all the surgeries and I have to get those removed too because they can stick my organs together what fun

I'm in the process of getting another ovarian cyst biopsied this Friday since the weight of this one seems to be twisting down my tubes and growing rapidly. There is no end in sight for me as birth control conflicts with my meds, and Orilissa is just NOT good for my health especially since I'm anorexic currently and I suffer with osteopenia. The rest of the injections/medicines (which are few and far between) also conflict with my health. I could get a hysterectomy but I'm almost 25. I've been advised for safety and health concerns to wait until I'm 30.

All in all, this condition can be debilitating to say the least.

Please note: Stage I to Stage IV does not mean someone with Stage I isn't suffering as much as someone like me with Stage IV. I know a woman who has Stage IV like me, but she rarely has pain outside her normal period and manages just fine. In fact, she was even able to concieve a child. In my case I suffered my first miscarriage back in December. All cases are different. But all are still just as valid.

If you have friends, family, or anyone you know who suffers with Endometriosis remind them it's awareness month. They'll probably feel more inclined to educate you and may even feel validated and seen for what they suffer through. We don't feel heard very much, as with most invisible chronic pain sufferers. Take care of yourselves. All of you are so much more than your invisible pain. You are NOT a burden.

hey so it’s march now aka the beginning of endometriosis awareness month and i feel obligated to remind you that debilitatingly painful periods are not normal. if you or someone you know is ending up sick or bedridden every month, you are not crazy and deserve medical attention from someone who will take you seriously