#and im pretty sure the chest pain was fibro

[listen-to-the-inner-walrus]

calling nhs 111 is great because in the first two minutes, youre told that you can do this online three times.

like buddy, i get it, ive tried 111 online and they tell me to call 999 immediately.

[badfey]

is there anything u wish u had known pre-top surgery? I’m trying to schedule mine next yr and I’m worried I rushed into picking my surgeon even tho I looked at a Lot. I’ve got a list of questions to ask but curious if there’s anything you can think of! Thanks, if u get a chance to reply 🥺

firstly congrats and good luck with your top surgery, i hope the wait goes quickly!!

There were a lot of things i wasn’t expecting about top surgery - not necessarily that i wish i’d known in advance, just that i didn’t anticipate. I wrote a document of them not long after surgery which ill post soon and link back to here :) right now ill go through the main stuff i wish i had known, and any questions i had (under a cut because it got long)

Stuff I Wish I’d Known

Some of this depends on how your surgeon does things. I had 6 days before my post-op appointment w chest reveal. 

That first week is tough. Ymmv, but for me it was really hard. I knew that post-op depression was a thing, i didn’t realise what it would feel like. For me it was a lot of being tired and not being able to sleep because of not being able to get comfortable (having to sleep elevated for a few days & pain), so getting more tired and bored but too fatigued to do anything in that classic frustrating cycle. Once i slept decently for the first time i felt human again (nytol is a lifesaver). It’s also tough bc ur sweaty n uncomfortable and u haven’t showered or taken off the post-op binder for a week, and with the dressings and swelling it doesn’t feel like its really happened yet? After chest reveal thats a lot easier

Sometimes moving around you’ll feel something like pull or pop and you get so so paranoid about pulling a stitch i seriously thought id pulled a stitch but its usually like the dressings adhesion or something, you don’t need to freak out. My best friend here was this uk trans fb group because i could search and find years of posts with ppl having the same problems, or ask and ppl would give advice and calm me down, so it’s good to join a community like that ready for if you inevitably get stressed about something (also good for post-op boredom)

You cant use your arms to move. Sounds obvious but like i never realised how much i reflexively rely on using arms to move sitting positions on a bed, and how you need to pay attention to override that impulse. 

Peeing after anesthetic is weirdly hard. It really helps if you practise consciously releasing the specific muscles to pee beforehand 

I was so hungry. I got fed sure (great food too) but i wish i had taken snacks. 

Questions to ask

Im gonna list some stuff that you may already know/have on your list but it might help fill any gaps :) 

When are your post-ops? Are they included in the surgery price? Mine were at 6 days (chest reveal) and 8 weeks (normally 6 weeks but my surgeon was on holiday lol) and both included in the price of surgery (which is standard for here i think). Its good to have rough timeframes in advance so you can plan around it.

Ask about revisions - are they included in the price, what is the timeframe you can get revisions for, how you would start the revision process if you need it? Hopefully you won’t need it but its important to know just in case & so you don’t need to worry about it. I think my surgeon got a bit touchy when I brought up revisions but i was just clear that if I’m getting this surgery and paying a lot of money for it i need to know this stuff in advance which as a professional he should be fine with.

Can you have a say in scar shape and/or nipple size? Usually you can, and this is often at the pre-op when they draw all over your chest before surgery. Don’t feel like you can't weigh in - this is your chest. Also even at consultation they might be able to give you an idea of what your scar/s will look like. 

If you’re getting nipple grafts, ask about their graft success rate!! I was super stressed about my nipples falling off, but my surgeon said that even though stats say about 10% of nipple grafts r unsuccessful, in practise he sees a much smaller percentage than that, and even ones that do reject often grow back (lmk if u wanna know more what i mean) or can just be easily touched up with tattooing. Also if theres anything they recommend for graft success.

Does your surgeon recommend using arnica? Arnica is a homeopathic remedy for bruising, swelling, and wound healing. There’s differing views on whether it actually works, but in my case i took arnica tablets 1 week before and 2 weeks post-op and i think it really helped. They also tasted nice. Some people use arnica gel to aid healing once you can start massaging. 

Where will you be for overnight recovery? Will you be on a ward or in a room? Do you have access to a TV? Do you have access to a plug socket or charging point? Do you get wifi? Chances are you’ll be bored at some point over the time you’re in there, especially if you struggle sleeping. It’s good to know whats available in advance so you can come with things to keep you entertained. 

Does your surgeon use drains? You probably already know/have an idea of this bc its something a lot of ppl consider when choosing surgeons, buts its good to know if you don’t. Also, it can change - I chose my surgeon partially because he only uses overnight drains so you don’t have to deal with them in recovery. When i was there i found out he has stopped using drains altogether for smaller guys so i never actually had them (pleasant surprise). 

Does your surgeon want you to wear a post-op binder? Do they supply the binder? Post-op binders r a good idea they stop swelling soo much, so even if your surgeon doesn’t recommend it i’d definitely ask if it’d be safe for you to wear one. You can't wear regular binders. If you’re sourcing your own, again trans groups r great bc they can give local recs and lots of people sell/pass on their old ones. I am happy to give anyone recs, but they’re all uk based. 

How will you communicate with nurses post-op? Most people don’t live too near their top surgeon, so you’ll probably check-up remotely. I just sent nurses emails of my nips and incisions and anything i was worried about the healing of and they’d let me know if it looked okay. 

If you have any conditions/disabilities/illnesses, ask if they’ve ever operated on someone with them/similar before. I have fibro + hypermobility and tbh it was reassuring to hear him talk about experiences other patients with chronic pain had had before and how they coped.

Okay sorry that was really long, but its pretty much everything i could think of question wise! I hope it helps! Let me know if there’s any other questions you have at all :)