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amandaray-nature-vs-nurture · 4 years ago

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Take a Mosey on Down the Diagnosis Trail

Was I depressed? How depressed? Was it “clinical” or “seasonal” or “major”? From what I remember, at first I was clinically depressed. Sprinkle some Zoloft on it.

I didn’t like taking the Zoloft and whatever else I was prescribed; didn’t like the notion of having to take pills to be “normal”. As I know now, that is not an uncommon sentiment. I am pretty sure I was diagnosed within those same few years as having some anxiety disorder, but it was not an “official” diagnosis at first. I remember going back and forth with trying to accept this diagnosis and take my medication when I was supposed to. I had access to the internet back then, but it wasn’t like it is now. Not for most of us, anyway. We didn’t think of searching for things online and definitely couldn’t just type a vague idea in the web address bar and get anything other than an error message. Back then, free AOL CD’s were everywhere by the thousands and I began collecting them by the pounds in my bag and would just hide them in random places all over any house or place of business I found myself at.

Within the same year of being released after my first committal, my sister got arrested after snitching on her own damn self and my mom and I moved to a one road, one grocery store, no red-light town. We lived in an itty-bitty house, my window looking out onto a massive lot for semi-trucks to back up and turn around in (at least, that’s all they ever did right there) at the cotton factory. I could jump out of my window and be in said lot before I even completed taking a single step. There were adventures to be had there many intoxicated nights (one more serious than the rest), of the infinite types of adventures that would have resulted in death in most other instances. I’m lucky to be alive. “Lucky” doesn’t even begin to describe it. I hear stories about young women or men just being in the wrong place at the wrong time, or making risky decisions, and not making it out alive -- and I feel like absolute shit knowing that I dodged so many bullets and they did not.

So, as I was saying, my mom and I lived in this house -- just us -- and things steadily devolved. Meaning: there was absolutely zero psychiatric care during that time. Loads and loads of self-medication, and lots of Live LiveJournal-ing (I have tried to recover the account, to no avail). Our house was the house for getting fucked up. It makes my heart palpitate and my guts twist to write this, so I am lucky (there’s that word again) that this is not a story detailing many of the happenings of that wretched place, or any of the wretched places that came after. This house is where my addict tendencies became known to me in a way, and where I developed an eating disorder.

I was never diagnosed with an eating disorder, but my best friend at the time Meghan and I would see who could go the longest without eating while taking fists full of diet pills (I always gravitated toward Metabolife) that we’d stolen up the street. We lived for the Pro-Ana sites/blogs that were around back then and used their tips and tricks and thin-spiration images daily. We ended up purging together after eating anything. We’d drink hot water and punch each other in the gut after jumping around for a while. We were competitive regarding things like who could get the next bone to be more pronounced, and how much we were able to purge vs how much we ate/drank, clothing size, weight, measurements, our side-effect symptoms of whatever we were taking or doing or just the whole mess in general, who bruised easier, who cut the most, the deepest -- who cut the most fucked up saying into which area of skin and using what -- and even our stools (speaks incredible volumes about your diet).

Meghan and I were extremely codependent. I spent those years with her cycling through an infinite amount of possible diagnoses, but I was never helped in any way. I remember a few episodes of psychosis or mania or whatever it was that are mixed with significant chunks of amnesia in my memory. When I think back on the few close friendships I had as an undiagnosed and untreated (or wrongly diagnosed and wrongly treated) person, I imagine that to the people who found themselves stuck in my orbit -- the people who found themselves hypnotized by my incredible vulnerability mixed with utter recklessness and abandon… it must have been awful for them. Especially when they eventually snapped out of their trance and saw what was happening to them because of my disastrous and dangerous ways. My willingness to go as low as one could imagine, at the blink of an eye. I annihilated souls one at a time -- but, for the very clear record, they were always willing participants. I never forced anyone’s hand. Maybe I obliterated the very essence of people, but by that point, they all chose their fates to be intertwined with my own.

In that itty-bitty house next to the cotton factory, my mom ended up abandoning me with a guy I had been dating for a couple of weeks, at most, and his mother ended up taking me in. I only have a few solid memories of that traumatic experience, as well as for the years that ensued at Robert’s house. I lived there, hurting myself in secret and having panic attacks and floating through the world only kind of remembering getting from one year to the next. There was more self-medicating and spiraling. Some cock fights. What I am saying is, there were a whole lot of years that I went untreated.

The next diagnosis that I remember is a Bipolar Disorder diagnosis. I have no idea if I was allegedly Bipolar I or II, but there were other diagnoses such as Obsessive Compulsive Disorder, Generalized Anxiety, Panic Disorder, and PTSD. Everyone uses OCD so loosely, “Omg, I know; I’m (or someone else they know is) so OCD about…” That, or they think that everything I do is going to be immaculate and organized; perfect. They don’t talk about the intrusive thoughts or the weird obsessions that no one can know about or the compulsive rituals we do that often have nothing to do with anything but if they don’t get done, something awful will happen and it will be all our fault. I remember when I was young I had the literal Fear of God in me. I was obsessed with death and Heaven and Hell. Thought about it all the time. I was told that God heard our thoughts and that he could always see us. Every night when I would lay down to go to bed, I forced myself to think of every single possible infraction I made that day and to beg God’s forgiveness for it while clutching my Precious Moments Bible. I lost a lot of sleep due to this and so it became increasingly more difficult to stay awake each night. I would pinch and scratch and slap myself to stay awake and beg for forgiveness. At some point I also began praying for the health and safety of every single family member I could think of and then for the health and safety of every person I could recall in my memory from being out and about during the day. I spent entire nights probing my memories for every possible soul who needed my prayers in order to be safe. I had to cycle through them, imagining God cupping his hand down around their home like a shield to keep bad guys from breaking in and to keep fires from happening or violent weather or someone from inside the home from hurting them or aliens from abducting and probing them (Fire in the Sky ruined my life that extra layer) or just whatever else my mind could come up with to be terrified of happening. I had to do this, and I had to do it as many times as humanly possible every night. I would, of course, pass out sometimes. I’d awake with a jolt and grab for my Bible. But, wait… what if it is upside down?! I would think. Surely there are crosses and other things within this Bible that would only invite evil and ensure my spot in Hell if inverted?! And so I would get up, turn the light on, and check. Getting out of bed every time I was unsure whether or not the Bible was facing the correct way was exhausting -- more exhausting than this whole thing already was. I came up with a solution: tie a cord from the string on my light to the rail of my daybed. That barely lasted a night because I was convinced -- despite the cord being nowhere near slack enough -- that the shit would get wrapped around my neck and kill me (and I would likely die with an inverted Bible in my hands, before I could finish my prayers). Solution? Super-glue a penny into the top left corner inside the front cover of the Bible so that I could just feel in the dark which way the hateful thing was facing. Problem solved (still have the thing).

The next diagnosis I had was Bipolar with Rapid Cycling (maybe some of the readers can see where this is going at this point). Also, the PTSD was bumped up to C (complex)-PTSD. I was put on mood stabilizers, lithium, some new anti-psychotic that was promoted as something else through the commercials on television and anxiety medications. I was in my early twenties at this time. Maybe mid. No later than mid. I had lost my mind after the death of a loved one and uprooted my life with Aidyn to move to Savannah at the petitioning of a couple I had met while I worked at Taco Mac. The wife worked there with me, and the husband came up to see her a few times. He was a tattoo artist and had found work in Savannah. They had outed themselves as swingers to me and requested my presence in their bed more than once. Oh, and they were also the most intensely religious people I’d ever met in real life. I was told that I’d have a job in the tattoo shop so I talked a coworker, Christine, into going down there with me to scout an apartment and “interview” at the shop. Fast forward to meeting my husband and a while with him, having Shane -- There’s a whole lot of dirty and dangerous detail in there, with another couple of stints in hospitals, and a whole lot of Ambien being used for everything but sleeping before this point, but they’re not important to this story.

I have just brushed over something here that is a big issue: skin picking. Excoriation. That has been a daily habit ever since I can remember. I think I have glossed over it so far now because it is not an issue which we are currently dealing with and focused on, but it has gotten so bad on a number of occasions that we couldn’t even go in public. That is not specifically my thing and so I am not very familiar with it, but I do have access to some of the memories we have about it.

After a couple of stays in jail and yet another hospital stay, I had the diagnosis of Schizoaffective Bipolar Disorder with Psychotic episodes. That one got me to the medications I am currently taking. All of my previous diagnoses still stand. I hit one of my bottoms during this time. There’s a whole lot more that I don’t remember than I do.

A few more stays in jail and a few years of sobriety later, and I had a diagnosis of DID. Dissociative Identity Disorder. I am still navigating that one. I’ve definitely been back forth and all around with this. I have mapped out a timeline of sorts in a journal, and it’s astounding how much sense this diagnosis makes. Finally: A diagnosis that actually fits all the way around. It is still quite alarming, and I am still trying to establish good communication between alters within my inner world and be more okay with referring to us as us or we or a system. We know now that the path we took could have never led us anywhere but here. We understand that only due to our most recent move to a place where we are safe with the kids, were we able to come forward and be known.

DID is a disorder rooted in trauma, and usually only makes itself known after the system has moved away from the direct influence or vicinity of the family member, caregiver, or other person (or people) who make it unsafe for parts of the system to be known. They were birthed by severe trauma and have existed for strictly covert missions to protect the other parts. Walls of amnesia are typically built up around the fractured pieces of personalities (this is always done at a young age -- usually sometime before seven to nine years old -- before personalities integrate into one personality), and stay up and operational in order to keep awareness of the trauma from reaching certain parts. When there’s no longer present and persistent perceived danger, these alters are often left with not knowing what to do with themselves and questioning their own validity and justification for living in an environment where no one needs to be protected. They have been operating within the system for so long in their own way of doing so, and the reactions of parts and systems to no longer being actively life-saving vary widely. They will reach out knowingly or not, and sometimes a system will even break down.

My story is not atypical. It is a classic story of a journey down Diagnosis Trail through the mental healthcare system. The average amount of time for people to get to a correct diagnosis of DID is seven years after initially becoming a patient within the mental healthcare system. Finding professionals who are willing to diagnose and treat dissociative disorders is a challenge, because despite the presence of the diagnostic criteria in the DSM-5 and clear cut texts on the treatment of DID, there are many people out there who have so little experience and knowledge of our disorder that they don’t “believe” in it.

This was my diagnosis journey, made intelligible and digestible as I could manage. I know that I touched on several different stories, and I definitely had to skip over so many significant times that came up as I was writing. I mean, I summed up multiple years at a time with just a couple of sentences, some of the time without even one actual meaningful memory to go with them. That’s what this blog is going to be for, in part; though, most of the details of my life are going to be published in my Memoirs. Thank you for reading and feel free to email me with or comment below any questions, comments, or concerns.

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