#also my chronic illness and pains are like by no means *gone* lol they’re still here but. like.

[hopecomesbacktolife]

one thing strange about being chronically ill, with fluctuating ability, and growing up poor, and then being slightly less poor as an adult, is that like. growing up, you kind of learned how to just, deal with your chronic pain, right? maybe you took some tums and some ibuprofen or acetaminophen when it got bad, or you found out that a heating pad helped, but that was about the extent of it.

and then, as an adult, you found yourself with a job that let you afford to get that $14 pillow for between your knees when you sleep on your side. or, you let yourself buy that knee brace, the brand name one, too, because the off brand one didn’t have specialized pressure points and you hoped the extra $3 for the brand name would be worth it, maybe the specialized pain needs specialized aid, right?

you also, over time, invest in a couple forms of mobility aids, telling yourself it’s okay, that even though you don’t need them every day, that on the days you do, it’ll feel better to have help— and you find that they’re invaluably useful on the days that you need them, making tasks that before, were just straight up not an option during the severe flares, something you now can still have the option of doing. it’s still not easy, per say, but doable is a huge difference.

maybe you even see a doctor for your chronic illness, and it turns out that while there’s no daily treatment or remedy, there’s actually a medication you can take during the more severe flare ups that helps bring you closer to your baseline again!!

and like. suddenly these aches and pains, these radiating discomforts have these mitigating measures that you hadn’t even known existed— through no fault of your parents! just that as an adult with more money than you had as a child and with the power of agency to self-advocate that your adult self has, suddenly there’s Options TM for dealing with the pains. everything isn’t fixed but having mitigation measures is still wonderful!!!?!?!

anyways all of this to say, this isn’t even anything life threatening or requiring intensive care but it’s amazing what having a few more $ can do in terms of providing your body with comfort and tools to help you navigate your ongoing pains. and all this to say especially that this is one of 1047583939919483 reasons why medical care and medical aids need to be free, because tools to lessen the pain someone experiences in life shouldn’t be on a pay-to-play basis, my teen body was no less deserving or in need of assistance than my adult body, both of them deserve to have the access that adult me has, and people in every economic situation deserve to be able to lessen their pain and find tools to provide relief for chronic illnesses. this stuff should be accessible to everyone.

[nuclearnerves]

INCOMING VAMPIRE AU THOUGHTS

Don't mind me I'm finally getting the ideas I had on this shit out so I can actually go forward with developing it as an AU. It's my usual mixup of fps protags, Gordon Guy and John, but I'm starting with Gordon as the Vampire and Guy as the Vampire Hunter.

absolute beast of a wall of text under the cut

What If Being A Vampire Literally Sucks All The Time Forever like chronic pain sucks. like THAT level of sucks. Like Here's what I was thinking of. Being a vampire isn't just "being alive forever but you need to drink human blood" It's like Oh man I have some lore you look at vampires and their main thing is that they're blood suckers right so lets start with a corpse dead body. cadaver. no longer with us. just some rotting meat. The brain needs oxygen as fuel. The blood supplies the oxygen through blood. The blood is pumped through the heart. The blood is made by your bone marrow. You die. Your heart stops beating Blood stops pumping Brain no longer has oxygen to think marrow stops making blood thats standard! Now, becoming undead, as a vampire, is a little more complicated. The long and short of it is: your body is FIGHTING ACTIVELY to be alive against all odds and wins every time (immortality), but it hurts the whole way

I have the gist of it. It's like. Your heart stops. By all means, you should be dead. but the magic kicks in, and you're still thinking. Your brain is still sending signals to your muscles to move. But using what oxygen to move? whats burning in you? You don't know but you know it's just enough to get to your next meal. So you ferociously eat something, and then find you can't swallow. You can't make saliva. You barely have the energy to chew, and once you DO get something in your stomach, it immediately comes back up. Why can't you feel your pulse? What's going on? You're out of options so you figure you might as well just lie down and die. You're too tired to keep going anyway. So you do, you lie down, and you close your eyes, and you quietly hope that death is as peaceful as sleep. You realize you've actually been moving around without breathing, which makes sense because you can barely flex your diaphragm for more than a shaky wheeze. How are you thinking with such little oxygen? But as you fade from consciousness, you can feel something in you, and it's so upset, it's crying, it's filled with grief, and you instantly can tell it's your skeleton. It's your bones. You're distraught down to your marrow. You're dying. You're dying! Your heart stopped and you have no more blood! You need blood! You need blood to move! To breathe! To think! You try to breath deep again for the voices in your bones, trying to comfort them, to sooth them with the repetitive motion in your lungs, trying to fill yourself with anything but grief, but they keep wailing. We make the blood, our creation, our child, what we put all of our work into is gone! gone! gone! We need it back! Anything! All of it! Find it! Bring it back to us! We're hungry! WE'RE HUNGRY!

and once you find yourself too exhausted to listen, to think, how badly you wish just to die already to cease hearing this wailing, you find your body moving without you. And it's hungry and it's searching and it's crawling on all fours and it misses its beautiful red life that made it feel so full before and it needs it back, and the next thing you know you're desperately grabbing anything with blood in it and shoving it in your mouth in a desperate attempt to sooth this cry for life, you don't want to die, you don't want to die, you worked so hard to keep up this body and craft it and LIVE with it and you're not going to go, and even when you try, even when you try to lay down and die, your body refuses, it takes the reigns, and it keeps up the work itself with or without your help. And it's not until your stomach is full and your teeth are stained and you feel a pulsating burning in your bones that you snap back awake, completely conscious, just fine. You're lucid, you don't feel any more pain. Everything around you is dead and drained and messy and your heart still isn't beating. but you can breathe now and holy shit you guess you literally need to kill to survive and the less you eat and the more you starve yourself the worse it gets when your body finally decides to take recourse.

my idea was like. "the vampires curse is actually stored in the bones, thats why the teeth get so sharp and also theres a connection between blood and bones with the creation via bone marrow" its literally like i was sitting there thinking "no no no, whats it like to be a vampire. what neurosis would you develop. How would you panic? What are common mistakes beginner vampires make" which, by the way, gordon is a beginner vampire

so now you gotta factor, what blood lasts for how long? how long can you go between meals? not only that, but what creatures satisfy the urge? How long can you go avoiding human blood? Does it work like drugs where you develop a resistance to the high, or is it like food where it will keep you moving until you eat again? How the fuck are you gonna get your hands on blood? Can you just eat raw meat? Does that count? and thats where im at lol

OKAY now. now thoughts on beginning scenes of vampire au

So my idea was this Doomguy is a vampire hunter independent and one of his buds says that some freak scared and almost attacked his daughter when she got too close to his old abandoned laboratory up the hill and hes like “he might be… you know… a problem. if you needed a lead” and guys like yeah i fuckin hate the undead ill kill this dude so he busts into old lab space and sees so many dead animals its actually mostly Bones and pelt that hes seeing piles of feathers etc so hes like yeah this is all telltale signs of vampire uhhh hes introduced to gordon SOMEHOW im not totally sure of the details but the working idea i have is guy falls into a trap gordon devised that restrains him suspended in wire or something and gordon like. limps/stumbles into the room and this dude looks haggard he’s breathing heavy, his cheeks are hollow, he’s bug-eyed and shaking while looking at this massive wall of meat in his trap and he bares a bunch of hideous teeth and grits them and looks like hes really struggling with somethin... Like if these dudes don't know each other then Gordon might give in and try to drain Guy, and Guy would absolutely do anything in his power to turn this new vampire into ash, im thinking the inclusion if g-man as a coven leader can fix both issues.

i like the idea of guy falling into gordons trap and gordon thinking about what to do with him before gman shows up and whisks gordon away for a “meeting” while complimenting him on his good work catching the most feared vampire hunter in the country and gman just leaving guy suspended in wires that he has to fight his way out of. Instant situation defuser.

Guy ends up needing to take care of other monsters before going back to Gordon, and he DOES plan to go back to gordon, because no vampire is a good one, especially not one associated with the fucking head of a coven, but next time he sees Gordon, Gordon helps him out of a scrape by attacking and draining a combine who was going to take Guy out or something and escaping before Guy can catch him, or otherwise seeing Gordon do something good with his insane undead powers and like, the third time he meets up with him is when they can actually talk, and Gordons fuckin SO haggard, he’s not even fighting back and he’s even going as far as to say “just make sure theres nothing of me left when you’re done, I don’t want anyone else getting hurt”

Side Note: Guy has a bunch of scarring on his body from dealing with vampires, cops, ghosts, werewolves, anything violent that kills people. I'm playing with the inkling of an idea that he has Divine Blood in him, so that any time something undead bites him or tries to drink his blood, it burns. We'll see.

Side Note 2: now i really like the idea of the combine actually being an organized faction of vampire hunters that are WICKED crooked and exploit people for all their worth in exchange for their “safety” when they kill a vampire They’re essentially loansharks and Guy fucking hates them and hates the name theyve given to vampire hunting

Side Note 3: You've probably noticed that I haven't said anything about John yet! He's in this too. His species is a surprise but I need to get to him later I have an idea for where he came from (Cortana too)

I still need a good reason for Guy to not instantly kill this vampire, if not it's just gonna be "Gordon Freeman escapes the countrys best vampire hunter like a seventh time" every time they meet and they end up being rivals. And it gives Guy enough time to look past the whole "undead monster" thing and start looking at the "Oh this dude figured out how to fight his ridiculous craving for blood in a way more humane than most and is actually staying out of peoples way and keeping to himself. Guess he's not that big of a threat but I still need to keep an eye on him in case he loses it. Turns out he's got a family (Probably Alyx, Eli, Issac and Barney) who's been lookin for him and cares about him as well, don't wanna hurt them". I like the idea of them ending up needing to team up to take out undead together.

And that's what I got so far!!!

[lightspren]

Year End 2017 Wrap Up

I’m gonna be straight up honest with y’all, I almost didn’t do one of these for this year because this year has sucked horrifically and I just didn’t see a fucking point. But I’ve done one every year for like, at least four years now, and it’s tradition, and I for some reason feel it’s important, so by damn I’m gonna look back on my text posts from the year and my memories of what I was doing and see what happened this past year.

Jan 2017 - Was beginning my last ever semester of undergrad this month. At this point I still thought I’d be going to grad school hahahah so much can fucking change in a few months. Started my AC sideblog so that’s cool. and even this far back (: we still see me struggling with debilitating pain (: which has been a trend ever since I’ve been doing these year summaries I think, is seeing how bad my pain was throughout the year. jfc. looks like I was struggling with some depression symptoms here too, go fucking figure. I had an interview for grad school too and we know how badly that went…

Feb - Here’s where I decided I thought i might be on the autism spectrum. I now think I was wrong on that self dx, but you know, journeys of self discovery are important and all that. but here’s lots more pain and tired and “brain not working” which was lots of depression symptoms I believe, sigh I let that get bad for a while there. Oh and then I learned I didn’t get into that grad school I got the interview for.  so yeah that was Feb in a nutshell l o l

Mar - Breath of the Wild came out this month and dominated my life for a month or two, I still love this game very much and it’ll always hold a special place in my heart, ti’s just so good and sweet and lovely. I still haven’t even really beat it LOL and I need to but. still. that’s never been the most important part of Zelda games to me. OOO THO I had beginnings of existential crises this month!! cause I was getting so bogged down in my thesis research and didn’t know if research was what I wanted to do forever and ever anymore!! isn’t that fun!! (it was not fun). but the rest of this month seems like. a whole lot of bitching about pain. paaaain pain pain. like holy jesus bitching about pain. maybe if I printed off all these posts and gave them to my doctors they’d believe I have a problem LOL.

Apr - So I had shitty dr appointments that further hurt my chronic illness identity, and then other Ongoing Identity Crisis because of not getting into grad school and wanting a job in which I could help people. this is the month I in earnest started applying for jobs; research tech jobs mostly, but some adjacent jobs too (don’t remember what exactly). I didn’t branch out very far at this point though cause I was still McFuckin Terrified. and then I realized that I didn’t want to leave hundreds of miles away for work, cause as much as a lot of the culture of southern Appalachia can suck sometimes, it’s still home, /my/ home, and I don’t want to abandon it. I know I freaked out a lot about getting my thesis done and presented this month too bc I was soooOooOOoO unmotivated to do that shit LOL like. whew. did not want to, did not care any longer, but still had to do it.

May - GOT MY FIRST EVER TICKET LOL THAT FUCKING SUCKED SO BAD. sigh. otherwise I was mostly vague as SHIT with stuff this month. I know I graduated, didn’t walk though cause I could not give less of a fuck at that point. I applied for every job I could find that I remotely qualified for that was close enough I was willing to move to. I even had a Skype interview for one, either this month or in April. it fell through, of course.

Jun - One of my very first June posts is “who the fuck am I/how do I become who I want to be” LOL so that identity crisis was still rip roaring obvs. then that time when I tried to explain disability stigma to one of my previous (cishet white male) bosses. Had another phone interview this month for another job I didn’t get lmfao. Pretty sure this is the month where I started applying for mental health case management jobs, like a bunch of them, at different locations all in the company I’m currently in.

July - So I think it must have been around the beginning of this month that I had my first in person interview? I bombed that one hardcore. didn’t stop another location from interviewing me though, and I got a second interview with them, which I then proceeded to fail because I had no prior experience. It was brutal LOL. and the new person started at my old job, and I had to start training her, and that whole situation was just awkward and weird and Undesirable. to the maaax. it was this whole ordeal too where they’d scheduled my last day to be the 28th of July, so that’s what I was planning on and like, focused on… but then it turned out my coworker got national guard orders and had to be gone two months, so instead of having newbie there by herself, they were like (to me) “hey… just wanna… chill for two months longer or until you find a job…” which was admittedly hella cool of them.

Aug - Lots of blogging about pain, lots of general vagueblogging. I did announce publicly on tumblr that I’m intending to convert to Judaism so that’s still cool, and still a thing, even if life has been repeatedly crotch-punching me so I haven’t been able to make much actual progress on it. but then, I had the interview for my current job. that i somehow passed with flying colors. And my asthma started getting worse, and I started getting soooooo so done with my old IT job, but I /got my new job/. ALSO THIS MONTH WE GOT RADS MY SWEET NEW BABY so now our family is made of me, my husband, and two kitties.

Sept - September. Oh, September. started out so innocently, with starting orientation for my new job. I was all starry eyed and hopeful for the new job because I thought that it was a perfect home for me. then I got there. started doing things. realized that I was terrified of trying to meet my new coworkers and learn their dynamics. realized I was terrified of trying to meet my new supervisors/superiors and learn their expectations. realized that in general I just didn’t know the culture of the place at all and that fucking /terrified/ me. and then the job itself, the job itself was something I’d never done before, had no experience in /whatsoever/, had no FUCKING clue what I was doing. I was a fish out of water with no bloody idea where I was going, and hoooboy. I almost quit by the end of September, I truly did.

Oct - tw: miscarriage at end of month I started therapy for my anxiety!!! yay!!!! I had a lot of adapting to work in this time too that I didn’t really talk much about on tumblr too I think. I mean I was learning a lot, I was meeting more of my clients, some even time. I was still terrified, especially of my other coworkers because I didn’t know them or understand them, but even at that, I was learning. [Stop reading if you need to avoid tw miscarriage and skip to Nov.] The other horrifically sucky thing to happen in Oct happened not to me, but to my sister. She’d found out a few months perviously that she was pregnant, at 37 years old. they’d just recently gotten all the genetic testings back and found out they were going to have a girl. unfortunately though, the baby stopped developing at 15w. my sister discovered this at what would’ve been 17w. she had to have surgery to remove the baby. she’s still recovering from this trauma, she’s heartbroken and just. very upset. I’m still upset for her too.

Nov - Last month I was doing ok I think. I was doing pretty well at work, kinda just coasting along but mostly getting the hang of things. Therapy had been helping I think; it’d been teaching me somethings, mostly only small differences but I think having someone to talk to had been helping frankly. Work was going well, and we’d decided to start looking for a house to /buy/ (realtor.com) but hadn’t hired a realtor yet. probably for the best. as it turns out now…

Dec - Fuck you, December. the good news is, my new job’s health insurance kicked in Dec. 1st. which is great, considering I got admitted to the hospital  Dec. 7th, a Thursday. the Monday prior I’d tried to pop a zit, no big deal. WRONG. it got infected. not just any old infection, though, oh no. FUCKING MRSA. so I got cellulitis in my face, my whole right side of my face swelled up three times the normal, I got MRSA/pneumonia in my lungs, I had MRSA in my bloodstream. when I came in the ER I had very low blood pressure and heartrate of 130, so I was septic. like. shit was going down. I stayed in the hospital 6 days, and they released me with a PICC line and having to do vancomycin (really strong IV antibiotic) twice a day via the line. I went back to work too early for two days, but saw my PCP on the third day and he put me off that again. /Then the chest pain started/. I assumed it was a side effect of the vancomycin, since back and chest spasms/pain are a listed side effect, but NO, apparently NOT, at least not to this DEGREE. The home health pharmacy, who I called to ask about it, called the on-call at my PCP, who advised to go to the ER to get checked for a “pulmonary embolism.” Doesn’t sound scary at aaaaaaaaaall. Get in ER, go through the whole terrifying ordeal, CT scan, x-ray, shit and shebang - what do you fucking know. I have a septic embolism. very rare. much wow. fuck me. so here I am, once again, in a fucking hospital room, tied up to IV antibiotics, at the end of Christmas day. At least they’re keeping the pain meds going now. Oh at one point my kidney function tried to drop, then it turned out I had a pleural effusion so they drained 550cc (half a liter) of fluid off my lungs (painful as fuck let me tell you). Ended up spedning 5 days total in the hospital, home now, but still in like. the same amount of pain as when I went in. Having to fight with so many things to get medicines sorted and shit. while feeling like shit too. everything is awesome.

So that’s it. 2017. That doesn’t even get into the way 2017 has sucked on a global, non-personal scale, that’s just how it’s sucked on a mostly-immediately-personal scale, and I’ve even left out some of the immediately personal ones I think. and that’s just the shit I remember LOL jesus christ. I really need to do an effigy burning of this year.

[traumaticexperiences]

anonymous: i think it's abuse, but i'm not quite sure.

so, years ago, middle school-early high school, my mom got more physical.  Used to grab me by the arms or shoulders, if she grabbed by arms + dug her nails in i would too. one time she slammed me against a wall and started hitting/punching? me (cant remember entirely).  didnt leave marks like bruises or anything, just red fr little while. eventually she got less and less physical, and then hasn’t hit me in… idk, awhile.  at least a year probably.  But was this physical abuse?

aside from that, ever since i can remember, she has a horrible temper.  Calls us all names.  When I was younger, elementary school-ish, I remember calling my cousin a bastard.  I didn’t know it was a bad word because my mom called me + my brothers that sometimes.  I figured it wasn’t as bad as “bitch” because she said it less, or something.  She has called me names like that, and worse things like “cunt” countless times.  Same w my brothers.  But a lot of times we get into a screaming match and I say mean things too.  but I think that’s a newer development.  Eventually I got fed up of taking it and started yelling back instead of crying and just letting her make me feel like shit.  I remember a time in elementary school she told me to go drown in the shower.  I remember because I was in some fandom chat room thing and I was sad, and I told them what she’d said and they (mostly older kids, teenagers) were all horrified and comforted me and stuff.  

Also I’m a lesbian, and this was a five-ish year long ordeal that began with her first stealing my phone in 8th grade-ish and reading my text to a friend saying I thought I was bisexual.  It was turned into me “hurting her” because she couldn’t handle it being in “her family”.  She wanted me to just try being with a boy.  I never have and never will.  After getting a girlfriend in senior year of highschool, and after she talked to some close friends of hers, she became more accepting.  But before then, and even after that point sometimes, she’d still call me a dyke when she was mad, usually over my appearance.

Which always has been and apparently always will be a huge thing for her, too.  I don’t like makeup much.  I’m pretty feminine but I don’t really do my hair or makeup ever.  I just brush my hair, that’s about it.  This always upsets my mom.  My grandpa who recently died was in the hospital a year or two ago, and she yelled and screamed at me before we went to visit him the first time because after she asked me, I told her I wasn’t intending to put on makeup.  She was telling me she never wanted to be seen in public with me if I didn’t have makeup on, telling me I “look like a piece of shit without it,” etc.  In high school she’d often have to pick me up because of doctor’s appointments (I have many physical disabilities/ am chronically ill / have mental illnesses) and so often she wouldn’t even say “hi,” or “how are you,” but rather her first thing would be “Wow, all these other girls come out of school looking so wonderful, I want to cry when I see that disheveled mess is my daughter.”  I remember so many times doing my best not to cry in the car, looking out the window at the clouds or the sun thinking it would help me not to cry because that was letting her win or whatever, or at least I thought so.  I would just say “I don’t care” over and over again because arguing with her obviously did no good and just made her yell more.  But even though I really have no desire to do my hair and makeup every day and look super pretty, her comments did get to me.  I’m a freshman in college right now and sometimes I’ll apologize to my best friend / roommate for looking like shit and she’ll have to really convince me that I don’t.  My mom’s disparaging comments really stick with me even now.  I’ll walk out the door and feel super self conscious and have my mom’s words echoing in my head but still not actually do anything about it (do my hair, or makeup, that kind of thing).  

But I’m not perfect.  I forget things a lot.  Like if she tells me to do something I might just forget to do it.  Or if she wants me to clean and I just can’t find the motivation to do it.  Or if I do it but I don’t do it well enough.  It gets into this awful cycle where I don’t do something and she gets mad, and then I get depressed so I just lay on my bed and do nothing, therefore making her more mad, etc etc.  It’s hard because she has chronic pain too from a surgery that went wrong like 16 years ago that messed up her leg.  

And when she’s nice to me, I really do love her.  She’ll help me calm down from panic attacks and she brings me to doctors and gets me the medicines that I need.  I was in the hospital a month or so ago and she drove down to my college (4 hours away) at midnight just to be there with me since I had to stay overnight.  

It’s like, I know she loves me.  And the first few weeks of winter break back in December were good.  But if I stay home long enough she goes back into how things were before I left for college.  Eventually the honeymoon sort of phase wears away, and she’s back to treating me like shit, and I’m back to wanting to go away to college again.  Right before I went back to college I remember she said something about how I do nothing for her no matter how she talks to me, “whether she’s nasty or sweet as pie to me”, and I responded in frustration that she was always nasty to me.  And at that moment I was doing dishes as she told me to do, and she came up next to me and started slamming dishes down and told me to get out of her sight, to not do the dishes and to do them later when she was gone so she didn’t have to see me.  But at that time, she was trying to get off of cymbalta, which apparently has horrible withdrawal symptoms.  So I guess it made her temper even worse.  When she was slamming stuff I flinched, I really thought she was going to hit me (she hadn’t in a while).  But she didn’t.  But I still flinch at sudden movements in daily life–yesterday in the dorm bathroom as I walked out, someone walked in, and I flinched really violently just because I hadn’t seen them coming (pretty embarrassing lol).  

Also not sure how common this is, but when other people around me get into arguments I get really anxious?  My best friend’s family treats me like their own, and her cousin+cousin’s husband took us out for dinner, and on the way home they got into a disagreement and I got unbearably anxious, I actually had to do deep breathing exercises to try and keep myself calm.  I get kinda anxious just thinking about it.  The people involved have never yelled, they’re always super nice to me and each other–it was a perfectly civil disagreement that they were in, just very passive-aggressive tbh.  But it never escalated.  They just kinda bickered and then we got to our destination and they solved the problem, and that was that.  

I don’t know where I’m going with this.  That first thing I mentioned, about her shoving me against the wall, happened like 5 years ago.  I thought I was over it until I tried explaining it to my best friend and ended up a sobbing mess in the process–I couldn’t even talk.  I angrily mentioned it to my mom at some point more recently and she laughed at me, saying she “barely touched me” and making fun of me in front of my brother, who joined in saying how ridiculous I was being and laughing at me.  That experience has made me really question everything, to be honest.  My mom has a lot of shit to deal with, and I’m not the best daughter in the world, far from it.  I get good grades but that’s about all I’m good at, all I can be counted on for.  Or at least that’s how it seems to me.  I can’t tell if how she treats me is normal, and I’m overreacting, or if it’s abusive, or if she’s just angry at me and I deserve it.  Any advice on that front?  I’m sorry this got so long.  

It would be nice if this is anonymous.  But could you tag it as “mint” so I can find it if you make it anonymous?  Thank you.  And thank you for running this blog.

////

yes, what you're describing is abuse! grabbing you, and punching strikes as a really hateful and cruel physical abuse, only a person who really wanted to hurt you would do such a thing. Being called names also comes from a hateful place, and it can hurt so much when it comes from a parent, because they're not supposed to hate you, they're supposed to care, calling you names shows that they didn't care at all, they saw you as something that is there for them to hurt. Presenting your sexual orientation as something hurtful to them is so cruel and vicious, they wanted you to feel horrible about who you are! As if something is wrong with that! I'm really glad you never want to be with a boy. Calling you names for merely being who you are is really hurtful, again, something she does only to harm you. Hatred over your appearance is also something really abusive and crushing, it can affect you really deeply that people can hate you merely because they don't approve of the way you look, and that's terrifying, even more when it comes from a family member. She made you feel like she'd rather have someone else for a daughter, merely because of your looks, that is just too cruel. It doesn't matter if you're perfect or not, you haven't deserved this kind of abuse, someone who cares about you would never do any of those things, because they shouldn't think that you deserve to be hurt. Helping you calm down and bringing you medicine are such basic things, it's really not much, even if it means much to you because you don't really get much affection so even the smallest gesture can feel like love. You deserve more than that. Your mom is abusive and a few basic things she does can't change that. I don't believe a person who hurts you that badly can truly love you and care about your well being. You can't just love a child when you feel like it, and then hate it when you feel like hating it. That's sick. It seems you recognized the cycle of abuse and you know what's going on. I'm glad you're so bright and know a lot of things are wrong. You are scared of her. You're anxious in arguments. She's obviously capable of hurting you a lot, and you know it's not safe for you around her. It's really painful to live around a person like that, and you shouldn't be subjected to that.Probably the most scary thing is how she pretends nothing happens, minimizes the pain she caused to you and tries to excuse her actions and gaslight what you know happened. That kind of psychological abuse can drive a person crazy, and you shouldn't be put thru that, just for the sake of her getting away with it.

[not-poignant]

Speaking of the stomach symptoms that Ef has to go through, how do you cope with your own symptoms and do you have any protips for dealing with the pain?

Hi anon!

This one's tough, because the cause of the pain can be so multi-factorial. Digestive issues - for the best pain treatment and management - require:

1. A diagnosis 2. Understanding your allergies and intolerances*** (and they are not the same thing) 3. Understanding your triggers

The thing is, a diagnosis can be as good as a cure for some people who are lucky enough have treatable digestive conditions. A person with a finicky digestive system who learns they're gluten intolerant has a cure, even if it's not an easy one (avoid all gluten - symptoms and pain gone! Huzzah!)

Anyone who is having difficult digestive times should, imho, never just leave that as something to self-diagnose and just accept. I get diagnosis is a matter of privilege in some cases, but where it's not, this is one area where you don't want to fuck around and find out. There are literally hundreds of different things it could be, all with different treatments, medications, options, and supports out there. And I do know people who've ended up with severe autoimmune conditions and losing like, feet of their intestinal tracts, or cancer-like conditions, because of chronic diarrhea in particular, because they just 'waited' on the pain they were experiencing in their digestive tract.

And then the rest of this post is mostly like, 'I can't help you because bodies are diverse and 'stomach symptoms like Ef' means hundreds to thousands of different illnesses and hell, I've suggested pain management techniques in that story that you can try right now, and also I can't tolerate any pain treatments so good luck anon but I got nothing.' But like, the long scenic route version.

I can't speak to your issues, anon, because I don't know what your diagnoses are. There's not really many 'idiopathic digestive issue' diseases, but there are a lot of chronic illnesses that can be diagnosed through exclusion that can't be cured. But again, of those - and there are many - I don't know what yours are. And what I have, may not apply to you. It may not even apply to someone with exactly the same symptoms I do.

A person having Efnisien's symptoms could just have some intolerances that could be easily cured by avoiding those foods. Another person might have cancer. Like...you'd be amazed how many diseases cause non-specific and painful cramps and diarrhea. Sometimes it seems like all of them can.

For example, one of my many digestive illnesses is severe medication resistant gastro-esophageal reflux disease. Everyone in my family on my mother's side has it to varying degrees.

My grandma has needed to have two Nissen fundoplication surgeries to survive it, and has taken a proton-pump inhibitor since they were invented to manage it (since the 1980s), and because she's been taking a PPI for 40+ years, her stomach is now also riddled with hundreds of (so far) benign polyps and cysts as a result of the medication that she must take.

She avoids certain foods that I don't have to avoid, but I also need to take more medications than her, my food triggers are different to her food triggers, my brother's food triggers are different to my food triggers and he has the same disease and presumably, with a very similar genetic make up because it comes through the family line. His is very severe like mine, and nearly caused esophageal cancer for going so long untreated (the medication to treat has side effects, but leaving medication-resistant GERD alone can cause cancer of the throat and esophagitis, which my brother has been diagnosed with). My sister also has it. My Mum's is very mild, and she just has to avoid certain foods but needs no medications. And so on and so forth.

So how I manage the pain of just that one digestive disease - for I have more than one - (PPI and H2 receptor antagonist, certain food avoidance, no NSAIDs at all) is different to how my grandmother manages the pain (two surgeries, food avoidance that I don't have to avoid, PPI only), is different to how my mother manages the pain (food avoidance only, and different foods to me), is different to how my sister manages the pain (heat packs). Even the specialists we see are different, and our doctors suggest different management protocols. In that sense, I'm lucky, because my GERD can be medicated and I can generally enjoy eating and not choking on my own stomach every single night. Though I still have 'breakthrough days' where I do wake up choking on my own stomach acid, and have a sore throat / cough for the rest of the day.

So like, I can't take anti-inflammatories for the pain because that affects the stomach lining and mine's already fucked from GERD, but you might be able to. I can't take Buscopan for the pain, but you might be able to. I can't take Immodium on bad days, but you might be able to! Don't get me started on opioids or tramadol, it is very much like my body wants to suffer sometimes, the way I can't tolerate meds that are specifically for pain management. :/ I highly recommend looking up some support groups for the diagnosis/es you have, and seeing what people are recommending.

Because I don't tolerate almost all painkillers, I can't take any pain relief for my digestive illness/es (of which there are like...four, not including doctors thinking that my genetic cancer is causing some of it too, which is just a whole lot of oh well) that isn't just paracetamol (acetaminophen) which doesn't work.

There are no medications that help my chronic diarrhea at the moment, because it doesn't seem to be an autoimmune disease (at least so far, despite flagging for mild autoimmune stuff in every bloodtest I've ever had since I was 18 years old, but that's another story), but if yours is autoimmune in nature, there will be options that aren't pain-medication that may help you, and anything that helps with symptoms also, by default, helps with pain.

Some of my symptoms/pain is stress-triggered (my PTSD and my tumours can cause massive and unusual amounts of adrenaline to dump through my system, and one of the side effects of adrenaline entering the system is diarrhea - it's part of the flight/fight response: digestive disturbance). Therefore, less stress would certainly help me. But one of my specialists just laughed at me gently when I asked him how people stress less. You have to be awfully privileged financially to even try, even without a diagnosis of PTSD. And my tumours will still likely do this to me for the rest of my life, whenever they just feel like manufacturing hormones. They're neuroendocrine tumours, they want to fuck up my hormonal system, lmao.

Basically, anon, your question is kind of too vague to suggest much more than what's in Falling Falling Stars - perhaps some pain killers, perhaps some food avoidance, perhaps some heat or cold packs. Who knows? I have no idea what your diagnoses are, what you can tolerate, and I know what other people use for support, I can't, so I can't speak to how good those things are.

I'm going to level with you, anon. I have no protips for dealing with the pain aside from sucking it up and dealing with it, because I have almost no other options myself except to develop a high pain tolerance (which I have, which is terrible, because it means I wait too long to see doctors for very serious issues, and this has fucked me over more than once - one of my specialists literally yelled at me for it only last year: 'WHY DIDN'T YOU COME IN SOONER, DO YOU NOT TRUST US' which was great).

I'm really hoping you are not in my situation, because my 'dealing with the pain' is a version of 'I am in moderate to significant and sometimes severe pain 24/7 and no one can do anything to help me.' I wish it was only my digestive issues causing that, but the Fibromyalgia is certainly part of that. Sometimes the only way to deal with pain is to see a psychologist, and learn how to live with pain.

Find the support groups for your illness/es anon, they will have big personal lists that everyone is doing, they will be highly diverse and everyone will be doing something different for pain management, from ketamine infusions, to low-dose naltrexone, to ultrasound therapy, to heat packs, to a billion different medications, some for pain, some for your diagnosis. Having a diagnosis will help, because there are medications for specific diseases and disorders, someone with Crohn's will be on a very different cocktail of drugs compared to someone with IBS-D type compared to someone with IBS-mixed type, compared to someone with food intolerances.

And if you're lucky, your issues will be caused by intolerances, in which case you have a cure, even if it's an inconvenient one. But that cure (avoiding the food) can permanently remove the pain in some cases.

I'm sorry I can't be more help. There's just...thousands of things that can cause diarrhea and stomach cramps, and thousands of ways to manage those things. It's too nonspecific, beyond what I've already suggested in Falling Falling Stars. And anything more than that comes with side effects, and it's not good to already strain a digestive system that's strained, when you can potentially avoid it.

*** Please remember that there is almost no way to know your intolerances except through a food elimination diet, and anyone trying to sell you a blood test that tells you otherwise (i.e. naturopaths) is a fucking charlatan. There are, I believe, only 2-3 intolerances that can be read through blood test, one of them is lactose. There is no such thing as an accurate 'intolerance blood panel.' And only an allergist can diagnose allergies (with the exception of coeliac and again probably lactose issues lol), and finally, allergy =/= intolerance. Elimination diets should be overseen with the help of a doctor or specialist or dietician, because they are difficult to do and can cause or exacerbate eating disorders and disordered eating. I am not a doctor, always talk to your doctor about this stuff first, if you're concerned.

[traumaticexperiences]

Anonymous:i think it's abuse, but i'm not quite sure.

so, years ago, middle school-early high school, my mom got more physical.  Used to grab me by the arms or shoulders, if she grabbed by arms + dug her nails in i would too. one time she slammed me against a wall and started hitting/punching? me (cant remember entirely).  didnt leave marks like bruises or anything, just red fr little while. eventually she got less and less physical, and then hasn’t hit me in… idk, awhile.  at least a year probably.  But was this physical abuse?

aside from that, ever since i can remember, she has a horrible temper.  Calls us all names.  When I was younger, elementary school-ish, I remember calling my cousin a bastard.  I didn’t know it was a bad word because my mom called me + my brothers that sometimes.  I figured it wasn’t as bad as “bitch” because she said it less, or something.  She has called me names like that, and worse things like “cunt” countless times.  Same w my brothers.  But a lot of times we get into a screaming match and I say mean things too.  but I think that’s a newer development.  Eventually I got fed up of taking it and started yelling back instead of crying and just letting her make me feel like shit.  I remember a time in elementary school she told me to go drown in the shower.  I remember because I was in some fandom chat room thing and I was sad, and I told them what she’d said and they (mostly older kids, teenagers) were all horrified and comforted me and stuff.  

Also I’m a lesbian, and this was a five-ish year long ordeal that began with her first stealing my phone in 8th grade-ish and reading my text to a friend saying I thought I was bisexual.  It was turned into me “hurting her” because she couldn’t handle it being in “her family”.  She wanted me to just try being with a boy.  I never have and never will.  After getting a girlfriend in senior year of highschool, and after she talked to some close friends of hers, she became more accepting.  But before then, and even after that point sometimes, she’d still call me a dyke when she was mad, usually over my appearance.

Which always has been and apparently always will be a huge thing for her, too.  I don’t like makeup much.  I’m pretty feminine but I don’t really do my hair or makeup ever.  I just brush my hair, that’s about it.  This always upsets my mom.  My grandpa who recently died was in the hospital a year or two ago, and she yelled and screamed at me before we went to visit him the first time because after she asked me, I told her I wasn’t intending to put on makeup.  She was telling me she never wanted to be seen in public with me if I didn’t have makeup on, telling me I “look like a piece of shit without it,” etc.  In high school she’d often have to pick me up because of doctor’s appointments (I have many physical disabilities/ am chronically ill / have mental illnesses) and so often she wouldn’t even say “hi,” or “how are you,” but rather her first thing would be “Wow, all these other girls come out of school looking so wonderful, I want to cry when I see that disheveled mess is my daughter.”  I remember so many times doing my best not to cry in the car, looking out the window at the clouds or the sun thinking it would help me not to cry because that was letting her win or whatever, or at least I thought so.  I would just say “I don’t care” over and over again because arguing with her obviously did no good and just made her yell more.  But even though I really have no desire to do my hair and makeup every day and look super pretty, her comments did get to me.  I’m a freshman in college right now and sometimes I’ll apologize to my best friend / roommate for looking like shit and she’ll have to really convince me that I don’t.  My mom’s disparaging comments really stick with me even now.  I’ll walk out the door and feel super self conscious and have my mom’s words echoing in my head but still not actually do anything about it (do my hair, or makeup, that kind of thing).  

But I’m not perfect.  I forget things a lot.  Like if she tells me to do something I might just forget to do it.  Or if she wants me to clean and I just can’t find the motivation to do it.  Or if I do it but I don’t do it well enough.  It gets into this awful cycle where I don’t do something and she gets mad, and then I get depressed so I just lay on my bed and do nothing, therefore making her more mad, etc etc.  It’s hard because she has chronic pain too from a surgery that went wrong like 16 years ago that messed up her leg.  

And when she’s nice to me, I really do love her.  She’ll help me calm down from panic attacks and she brings me to doctors and gets me the medicines that I need.  I was in the hospital a month or so ago and she drove down to my college (4 hours away) at midnight just to be there with me since I had to stay overnight.  

It’s like, I know she loves me.  And the first few weeks of winter break back in December were good.  But if I stay home long enough she goes back into how things were before I left for college.  Eventually the honeymoon sort of phase wears away, and she’s back to treating me like shit, and I’m back to wanting to go away to college again.  Right before I went back to college I remember she said something about how I do nothing for her no matter how she talks to me, “whether she’s nasty or sweet as pie to me”, and I responded in frustration that she was always nasty to me.  And at that moment I was doing dishes as she told me to do, and she came up next to me and started slamming dishes down and told me to get out of her sight, to not do the dishes and to do them later when she was gone so she didn’t have to see me.  But at that time, she was trying to get off of cymbalta, which apparently has horrible withdrawal symptoms.  So I guess it made her temper even worse.  When she was slamming stuff I flinched, I really thought she was going to hit me (she hadn’t in a while).  But she didn’t.  But I still flinch at sudden movements in daily life–yesterday in the dorm bathroom as I walked out, someone walked in, and I flinched really violently just because I hadn’t seen them coming (pretty embarrassing lol).  

Also not sure how common this is, but when other people around me get into arguments I get really anxious?  My best friend’s family treats me like their own, and her cousin+cousin’s husband took us out for dinner, and on the way home they got into a disagreement and I got unbearably anxious, I actually had to do deep breathing exercises to try and keep myself calm.  I get kinda anxious just thinking about it.  The people involved have never yelled, they’re always super nice to me and each other–it was a perfectly civil disagreement that they were in, just very passive-aggressive tbh.  But it never escalated.  They just kinda bickered and then we got to our destination and they solved the problem, and that was that.  

I don’t know where I’m going with this.  That first thing I mentioned, about her shoving me against the wall, happened like 5 years ago.  I thought I was over it until I tried explaining it to my best friend and ended up a sobbing mess in the process–I couldn’t even talk.  I angrily mentioned it to my mom at some point more recently and she laughed at me, saying she “barely touched me” and making fun of me in front of my brother, who joined in saying how ridiculous I was being and laughing at me.  That experience has made me really question everything, to be honest.  My mom has a lot of shit to deal with, and I’m not the best daughter in the world, far from it.  I get good grades but that’s about all I’m good at, all I can be counted on for.  Or at least that’s how it seems to me.  I can’t tell if how she treats me is normal, and I’m overreacting, or if it’s abusive, or if she’s just angry at me and I deserve it.  Any advice on that front?  I’m sorry this got so long.  

It would be nice if this is anonymous.  But could you tag it as “mint” so I can find it if you make it anonymous?  Thank you.  And thank you for running this blog.

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yeah your mom roughly grabbing your arms and shoulders and slamming you against the wall and punching you sounds terrifying, the fact that it didn't leave marks and bruises just shows that she wanted to hurt you, but didn't want any proof of it left over that could be used against her. it's horrifying. It is physical abuse, and even if it lessened it's likely because physical abuse is used to permanently keep someone scared, intimidated, and obedient, being abused this way in the past is enough for long term consequences, so they don't even have to hit you in the present because your body remembers abuse from the past and is ready to obey them in order to avoid more!

Name calling is abuse, and being told to drown in a shower was basically telling you to die, holy shit, that's horrible! I'm glad you got some comfort afterwards, that's really traumatic.

Refusing to acknowledge your sexual orientation and then using it as an insult is crazy abusive, it sounds like she really hated you and everything you are. Also that is a lot of abuse just over your appearance, the worst is comparing you to others as if you're inferior or something to be ashamed of, it's awful! It's severe emotional and psychological abuse, and it's no wonder you were doing your best not to cry, and still don't feel like your appearance is good enough. You're in the right here, not wasting your time to adjust your appearance to how others would prefer is good! looking the way you feel comfortable is the best decision for you, and your mother had no right to dictate it or to shame you for it, you're a human being, and that matters more than your appearance, and anyone using your appearance to imply that you're less is dehumanizing you, and negating your worth as a human.

You don't have to be perfect in order not to be abused, and even if there were some times where she wasn't abusing you as much, it just means she is able of not abusing you, but she still abused you all the other times. Not abusing you or being nice to you for a short while is absolutely no excuse for abusing you the rest of the time. She sounds really terrifying and it's dangerous to believe she loves you, i don't think someone who cares even slightly about your well being could ever hurt and abuse you this much.

For abuse survirors it is common to get scared and anxious when getting into arguments because in the past you were taught that arguing risks abuse, risks someone accusing you of provoking them or being at fault because you didn't just do as you were told. After that, even if you were in a civil argument it would be scary. Your brain gathers all information about arguing and if there was danger in the past, it expects danger in the future, and sends out warnings and anxiety whenever you have to argue.

It's hard to ever be over someone who you love and trust shoving you against the wall. It's terrifying to just know that person is capable of that, of wanting to hurt and scare you that much. And your mom is gaslighting you and pretending it didn't happen because she knows it was abusive and cruel, and she doesn't want to deal with consequences of that. I'm glad you're questioning everything, and you don't have to consider what your mom has to deal with, this is about you, and how your mom affected you, and what is the shit YOU have to deal with, because of her. You don't have to be counted on for anything, you're a human being, not a tool, not a robot, not there to be of service to others. You deserve good things even if you don't bring profit and good things to others. I don’t know about advices, but I hope you keep questioning your mom’s intentions and actions and do what’s best for you, regardless of what she wants. Remember your life belongs to you, and you do not have to live for her and her ideas of what you should be. If you feel you could be happier without her dragging you down and burdening you, try to get free. Good luck.