#Spondi

[bellobambino]

[infiniterichesinalittleroom]

It can be easy to get caught up in the plethora of horror stories on the internet. When my spondy went bad on me last year (23M) it was completely devastating as a young athletic person. Seemingly all I could read on the internet was that I was destined to chronic pain and a desk job for the rest of my life. That representation was terrifying, inaccurate and completely destroyed me until I realized the silent majority of fusions are highly successful. Hoping this can help others who find themselves in the same place!

LUIGI MANGIONE

[shelbycragg]

hi friends i haven’t been posting much art on here, i have still been in a ton of pain and it’s looking likely its an autoimmune arthritis of the spine and pelvis called ankylosing spondylitis which is good and bad news of course, it means if i can get on the right meds i can get my pain down. bad news is i have anky LOSING spondy loser spine of pain

here in the US it takes a very long time to get a proper diagnosis and it has taken 5 months of severe pain to get to this point.

unfortunately i need to be reach out for mutual aid from our community as this has put me out of work for almost half a year and we are struggling. my partner brian is also sick and unable to work and while we are doing all we can to get support it just isnt enough to keep us afloat until one of us can get better enough to work. danny is also looking for work so if anyone wants to hire an amazing animator hit him up!!

if you wanna help us out with life expenses while i wait for medical appointments you can donate at paypal.me/shelbycragg , anything helps

once i’m feeling better i will be reaching out to people who donate to see what i can do about drawing something for you but i can’t guarantee my ability to work until i start to improve medically.

thank u love u all take care of yourselves! 🤗 im going to try to work on a painting and backlogged commissions as soon as i possibly can 🙏

[mangionebabymama]

omg gamer lu feeling bored and lonely at 2am so he starts to play one of his fave games…then he sees that you’re online, and you must have been looking at his status too because you immediately message him “can’t sleep either?” and he’s grinning :((((

Asking him, “Is it the insomnia or were you hoping to see if I was up?” and he replies “both” 💔💔💔💔💔💔💔

I am genuinely curious if he ever developed friendships through online in spaces (especially with how genuine and supportive he was on the Spondy Reddit threads) if he ever got burnt out from his extroversion but still wanted to continue his sociability through other interests. I’m the same way. I love being around people, but I love being by myself, and I about have the same amount of online and in-personal relationships in my life

[jjkbambi]

Do you know why reddit took down his account ? At first I thought it was because he posted something that could be traced back to the case but then I saw the things that people archived it doesn't seem so ? Most of his presence is in about 3 different chronic health issues' sub reddits - Spondy, visual snow and brain fog, and the rest is random stuff like pokemon and traveling. No trace of him being a troll or bullying others either, it were either comments from him asking advice or sharing his own.

And I think they took down his insta and fb too, all this for someone who hasn't even been convicted yet ? But other famous people who are in jail still have all their socials up.

a spokesperson for the social networking site told ABC News and The New York Times that as per Reddit policy, any account "that may potentially be related to suspects in high-profile criminal investigations" gets deactivated.

im assuming a similar policy is within instagram though i swear i saw something suggesting because it was a high traffic, unverified account, they took it down.

was on twitter when his page went down. elon replied to a tweet asking why and he just replied he had nothing to do with it/he was looking into it. i don’t recall musk stating a reason as to why, i assume similar circumstances

[chronicallyblogged]

Hes disabled??? All I've seen is people thirsting over him while he looks miserable

I saw your comment on the post about Luigi Mangione 😭 I don't blame you for not knowing, most people don't even mention it. Yeah he has spondy which resulted in debilitating chronic back pain, his spine is misaligned, then he had an accident which further exacerbated it, left him bed ridden for weeks often after that. Had to get surgery to have 4 screws in his back, the surgery didn't go well as far as I remember.

Yeah that and chronic visual snow and brain fog which he attributes to the back issue.

But yeah people be thirsting over that miserable guy in agony with no access to pain meds at all.

Oh man that's horrible! Thank you for informing me

[nearlydark]

I came clean to my pole teacher about my back injury (I have a spondy/it’s broken at my L4/L5), saying that I should probably stay away from back bending and focus more on getting my core strength back. And she responded with “you know your body best, if a move or warm up doesn’t feel right or seem right then don’t do it/we can do alternative moves” and I don’t know, in that moment it occurred to me that I don’t in fact have to push myself until I break. I have nothing to prove. To anyone. I am just trying to have fun and I can take my time. And I think that’ll be easier for me to do once my home pole is set up bc I can just play around with the movements and shapes, get skills gradually, and do awkward choreo for my neighbors lmfao

[tinkerotr]

flaring so bad i googled my anky spondy again to see if there’s any new tips and tricks to help manage the pain.

nothing new in terms of info but i did find a little visual that i like

[boobachu]

Also if twitch glitches, if it's because twitch is doing this BS then you go to troubleshoot mode, go to twitch, close twitch and turn off troubleshoot mode, when firefox reloads you go to ublock and update ALL used scripts, then when you go to twitch the spondy reward system should work and you have no troubles. If it doesn't you can try adding "deleting cache" to the beginning of these steps but honestly twitch has been having network troubles since October and even people who are too lazy to adblock have had troubs soooope. Otherwise I've ONLY had trouble with twitch so hopefully that helps if you're having troubs with youtube

youtube is pulling this bullshit again

praying for the firefox gods to save me once more...

[bellobambino]

when did lu hurt his back, and when did he spend time in hawaii? wondering about his ambient temperature preferences.

He already had spondy/ spondylothesis it's a disease, normally starts showing symptoms in your teens , his spine was half inch misaligned and according to him, he dealt with that, brain fog and visual snow ( can be seperate issues or physical manifestation of severe pain ) since his teenage years.

He went to Hawaii to work after his master, he was there till April '22 so he must have gotten there some time in 2021.

While in Hawaii he went on a beginners surfing lesson which exacerbated the spondy and left him bed ridden, shortly after he slipped on something and fell and that fucked up his lower area including hips and thighs even more.

jesus. thank you for the lore, i appreciate it.

[frogmuse]

Vis ma vie de Spondy 😪

[boobachu]

If people kill themselves then there will be less people begging for a job and then they'll have more bargaining power and J.C. Penny will lose a spondy.

breakup songs are so lame now sorry i feel like every charting breakup song you hear these days is like waah you left me but whatever you sucked anyway and im way too hot for you and too cool. why cant anyone be miserable anymore. no more im killing myself because you left music on the radios?!?!

[mangionebabymama]

Ugh i love Lu he’s so funny and silly thats my bbg fr <3

Anyways tho how do you think Lu would be with a gf who also has back pain?? (# i fell flat on my back at 17 and now have chronic back pain lmao)

also u might know who i am so hi if u do 🫶🏻

He is baby girl, just look at that little youthful, boyish n cheeky smile on that face of his that makes you wanna squish it !!!!!

I’m so sorry to hear that happened to you, and I’m sorry it’s exacerbated into that now. Hugs to you, friend 🥺🫂 I can relate to what you’ve gone through. I started to experience lower back pain at the end of my sophomore year of hs, and soon learned that I was diagnosed with spondylolysis, which is a stress fracture (a crack) in the bony ring in the spine. If left untreated, it can then progress into spondylolisthesis. It sucked. Not only did I have pain in my lower back, but it was there in my hips and pelvis—sometimes, my pelvis would come out of alignment and that was a whole another story.

I have no doubt in my mind that for him, having a girlfriend who also suffers from back pain, would surprisingly make his life consisting of living through spondy a little easier and a lot less terrifying. No, it wouldn’t take the pain and physical injury away in any possibly scientific form, but it would take him out of the place of mental solitary that he’s not going through it alone and indeed, someone knows exactly how he feels. If he had to be forced to struggle all by himself, he’ll do his best to make the most of it—but if he’s got you by his side, and you by his, maybe it’s not so bad after all, when you have each other to support and take each of other.

I’m a Cancer sun, so my intuition has yet to fail me, so I think I have a pretty good idea who you may be. ily 🫶🏽

[pankajakasthuri]

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[lilyhubmore2life]

Excellent Dining: Discover the Magic of Spondi Restaurant in Athens

[rgr-travel-food]

Spondi Restaurant