#ShowYourRare

[prathimahospitals]

𝐑𝐚𝐫𝐞 𝐃𝐢𝐬𝐞𝐚𝐬𝐞 𝐃𝐚𝐲

Uncommon strength, Uncommon fight Striving for True Equality Worldwide

For Any Appointment Booking: 📅:: https://prathimahospitals.com/book-appointment/ 📞:: 733 733 6600 | 733 733 6603

[heterohealthcareofficial]

🌍💙 Embrace the extraordinary on Rare Disease Day! Join the global movement for equality, healthcare, and hope. Let's stand together, raise awareness, and make a difference in the lives of those facing rare challenges. Every voice counts!

[digital-bud]

29th February | Rare Disease Day

🟢 Rare Disease Day 🟢 Rare Disease Day, observed on the last day of February each year, is dedicated to raising awareness about rare diseases and their impact on individuals’ lives. This global initiative emphasizes the need for greater research, understanding, and support for those affected by rare diseases. Rare diseases, often overlooked due to their low prevalence, deserve attention to ensure…

[aslsuzyq]

#showyourrare Thursday 2-28-19 is “Rare Disease Day” -Share that you are RARE!! Also please use #WeAreRareRASEforCRPS &/or #WeAreRarePeopleInPainUnite #rsd #crps #crpshope #eds #eds4 #chiari #dysautonomia #pots #chronicillness #sibo #ra #invisibleillnesses https://www.instagram.com/p/BuaacYHnq0s/?utm_source=ig_tumblr_share&igshid=68a4tivxlkbf

[seloseppitelodissi]

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A post shared by Elisa Neri (@lebuonecosedipessimogusto)

#MAIPIUINVISIBILI #lipedema #lipoedema #lipedemafighter #notmyfault #showyourrare2019 #rarediseaseday #rarediseaseday2019 #showyourrare #comitatoimalatiinvisibili #imalatiinvisibili #themisunderstoodfat #chronicillnesses #malattiecroniche #sovrappeso #obesità #lipedemaitalia #lipedemaitaly #lipedemanotjustfat #comitatoimalatiinvisibili #imalatiinvisibili #comitatoimionlus #orfanididiagnosi #malattierare #malattieinvisibili #raredisease #rarediseaseday #rarediseaseday2019 #senzadiagnosi #invisibleillness #undiagnoseddisease #showyourrare #showyoucare https://www.instagram.com/p/BuZ0iUXoz-e/?utm_source=ig_tumblr_share&igshid=1ve0zaxozmmm1

[valkyrie1031]

Celebrating #rarediseaseday at the @lmhfoundation #vegasrare5k. #LaurensJourney #ACureforLauren #avmawareness #AVM #arteriovenousmalformation #raredisease #showyourrare #showyourstripes #vegascaresaboutrarekids2020 #onehill #littlemisshannah (at Cornerstone Park) https://www.instagram.com/p/B9Kl433Hd4Y/?igshid=13oo60ga1dq5v

[luizsimim]

CORRIDA RARA BH @corridararabh (@get_repost) ・・・ 😋 E na hora da fome ou da sede... vai ter os food trucks na Corrida Rara... . . @incrivelburger @sacramentobeertruck @choppartesanaldoze MM Lanches @tapiocariataki Food Truck @megachurrosgourmet . . #corridarara #5k #cidadeadministrativa #pelacausadasdoencasraras #corridararabh #rarediseaseday #JUNTOSporFABRY #JUNTOSporPOMPE #MexasePelaEM #penseGAUCHER #menkes #showyourrare #souesportista #decathlonbrasil #euamoesporte #umminutopelavida #foodtrucknapraçabhmg #vemprarua #querofestas #foodtruck #beertruck #adorotudoisso #soubh #belotur #vemcomagente #lugardegentefeliz #açaiemcamadas #topshake #topshakeft (em cidade administrativa Tancredo Neves) https://www.instagram.com/p/B9DWuc0BAkZ/?igshid=1t7l5u0e733la

[thesagaofkat]

One year, a broken foot, and two rare chronic illnesses later, here I am again back stage and ready to dance my heart out. Proof you can’t keep this kitty down for long. #showyourrare #danceislife (at Visual and Performing Arts Center) https://www.instagram.com/p/ByV0uHTgpm8/?igshid=b80zvarbat9t

[authoramandaleigh]

Today is Rare Disease Day!!  In the United States, a rare disease is defined as a condition that affects fewer than 200,000 people. Since these diseases are so rare there is little to no government funding for them. How can you help, then? You can go to NORD’s website to educate yourself about rare diseases and find ways to take action.  I have a very rare disease called Nephropathic Cystinosis. One thing you can do tonight to help is to purchase this book. Strength: Lives Touched by Cystinosis. It’s a collection of personal essays from those of us with Cystinosis as well as friends, family and caregivers. In addition to spreading awareness, all of the proceeds go to the @cystinosisresearchnetwork!! You can find the link to their website, as well as NORD’s in my bio. #showyourrare #careaboutrare #shareyourrare #cystinosis #rarediseaseday2019  https://www.instagram.com/p/Bucyy94Ax3H/?utm_source=ig_tumblr_share&igshid=1v9ebiamenlcf

[dreamgreatdreams]

#Repost @elisabethparker with @get_repost ・・・ It’s World Rare Disease Day and the last day of Noonan syndrome awareness month. What we want you to know about Noonan syndrome is that it is a serious, multi-system disorder that affects everyone differently. For Ezra, his greatest challenges have been related to leukemia (JMML), various surgeries, small stature, food allergies, frequent sickness, and vision. However, he is tenacious and resilient and is currently thriving as a kindergartener! He is smart, sassy and funny - he loves Batman, legos, coloring, books and movies...and even though he is small for his age, we hope you will never underestimate him or treat him differently than any other almost 6-year-old. We believe that awareness leads to compassion and inclusion, and ultimately to action, research, treatments and cures. Noonan syndrome is apart of a larger group of rare conditions called the RASopathies - we are passionate about supporting research for these conditions via @rasopathiesnet. ❤️💙 . If you’re wearing jeans today to show your solidarity for the rare disease community, thank you! We’d love to see you post a picture of you wearing them in your feed or in your stories! Tag me: elisabethparker and add the Extraordinary Ezra hashtag so we can follow along. 👖💓 . Check out my stories later today as I share some friends from our amazing rare disease community! “Alone we are rare, together we are strong.” 🦓🧬🥰 . . . . . WRDD2019 #rarediseaseday #rarediseaseday2019 #showusyourstripes #strongertogether #communityovercompetition #community #littlestwarrior #advocatelikeamother #tbt #thursday #globalgenes #showyourrare #ittakesavillage #mytribe #family @shinelightonrarediseases @globalgenes @nord_rare @rare_advocates (at Beaverton, Oregon) https://www.instagram.com/p/BucjqlTjZYz/?utm_source=ig_tumblr_share&igshid=clng18rabq4p

[lullaby85]

[elrinconcitodesan-blog]

Hoy es el día mundial de las enfermedades raras, esas enfermedades silenciadas no sólo por la sociedad sino por el Estado, ya que la inversión destinadaa I+D+i es irrisoria. Para solucionar nuestros problemas de salud tenemos que invertir en investigación, hoy son muchos los afectados de estas enfermedades pero mañana quizás puedas ser tú, un familiar o alguien cercano. Tenemos que tender una mano y visibilizar estas enfermedades porque no son números, estadísticas o nombres muchas veces impronunciables, sino que son muchas más que eso, son seres humanos que sufren y padecen enfermedades que quizás con investigación puedan revertir algunos síntomas o incluso algunas curarse en un futuro. Por ellos, por su lucha. #enfermedadesraras #masinvestigacionparamasvida #rarediseaseday #share4rare #showyourrare #diamundialdelasenfermedadesraras #pacientes #familias #enfermos #patients #families #suport #investigación #showyoucare #soporte #investigation (en L'Hospitalet de Llobregat) https://www.instagram.com/p/BubpvmlFi-j/?utm_source=ig_tumblr_share&igshid=iqha2txexnfj

[mamacravings]

Having a rare disease sucks. Straight up. It just is what it is. This week was an example of such suckage. I was rejected from a medical study, because those neurologists couldn't even with my brain. Not many people have heard of lupus anticoagulant. Even less have been diagnosed with it. I am one rare, sparkly unicorn. I am a survivor. I am a person who is living with a rare disease. #showyourrare  #theelitesuite #houston #southernmama #natural #coffee #yogamama #yogamom #namaste #healthy #balance #hippie #hippiemama #goalgetter #motherhood #momlife #boymom #breastfeeding #normalizebreastfeeding #beyou #beauthentic #followyourarrow #goalgetter #bestlife #organic #bebrave #doitscared #5secondrule #faith #lionheartedaf https://www.instagram.com/p/BubfkPiHpBB/?utm_source=ig_tumblr_share&igshid=c4ccz9v0zqc5

[seloseppitelodissi]

#ShowYourColors #RareDiseaseDay2020 #ShowYourRare #ShowYouCare #ShowYourSupport #RDD2020 #RareDisease #UndiagnosedDisease #MalattieRare #IMalatiInvisibili #OrfaniDiDiagnosi #ComitatoIMIOnlus #ComitatoIMalatiInvisibili #liolipedemaitalia #lipedema #lipoedema #lipedemaitalia #lipedemaitaly #lipedemanotmyfault #sovrappeso #obesità #obesity #overweight #lipedemaawareness @comitato_imi @liolipedemaitalia https://www.instagram.com/p/B9KstODo1rk/?igshid=14vvfu76iyrv4

[boorinho]

Today is rare disease day. I have one. Do some research today. Let it be your learning for the day. https://www.rarediseaseday.org/page/news/today-is-rare-disease-day-2019-0 #showyourrare #showyourrare2019 https://www.instagram.com/p/BubLN-Rl5BfHwjU_dDaFdKWYoCDu6RFt8r-lm80/?utm_source=ig_tumblr_share&igshid=dozxce25btvh

[achinglonging]

For those of you that don’t know Summer, she’s my 2.5 year old little firecracker. She has the curliest curls, the biggest brown eyes, the sweetest little singing voice and the biggest baddest attitude known to man. She also has a rare disease. So rare that we don’t actually have a name for it yet or much of an idea as to what it is. It’s tough, so tough I don’t actually have enough time to go into it. But that doesn’t matter because despite all of her struggles, she’s so loving and happy and she brightens the lives all everyone around her with her infectious smile. She’s made such huge progress in the last few months alone, I can’t wait to see her learn more and more. You’re my hero kiddo ❤

To learn more about Summer and her story, you can click through to my Instagram profile where there's a link you can click to follow her journey to get moving.

#showyourrare #rarediseaseday https://www.instagram.com/p/BubDbE1BHp4/?utm_source=ig_tumblr_share&igshid=phikz6i86mcp