#Muscular Dystrophy awareness week
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Alrightyyy! It has hit 1 month on this blog (6 days ago) I am so happy that I've stuck to this lol and that I get to share my thoughts till the end of time or my time at least (woah that was dark let's dial it down just a notch!) to start I am very weak and I have ALS just a perfect combo if you ask me ;) Continuing on my job that no one knows about. I do speaking engagements for those living with ALS (Amyotrophic Lateral Sclerosis), SMA (spinal muscular atrophy), and DMD (Duchene muscular dystrophy). I do this to raise awareness and share stories of my life living with ALS! But since I do have ALS and it's a progressive disease I thought why not see what strength I'll be by the seven speaking engagements scheduled :) So let's see here's a list!
• 1st speaking engagement - December 20th 2024 - 2.8Oz arms , 3% head , 9% breathing (plus losing speech in a week)
•2nd speaking engagement - July 20th 2025 - 2.2Oz arms , no speech , 8% breathing, 1% head
•3rd speaking engagement - February 20th 2026 - 1.5Oz arms , 6% breathing, 0% head
•4th speaking engagement - September 2026 - 0.8Oz arms , 5% breathing, 0% head
•5th speaking engagement - April 2027 -0.3Oz arms , 3% breathing (pacemaker) 0% head
•6th speaking engagement - November 2027 -0.0OZ arms 2% breathing ( would stop driving my Sip N puff)
•7th speaking engagement - June 2028 O% arms, 1% breathing (sadly last speaking engagement)
Thank you all for sticking throughout this long month!
Love y'all 💝
Img desc #1: doc and her wife Emmie is seen in a photo together doc is seen beaming with joy as her Atrophied hands rest on the joystick of her electric wheelchair doc is seen wearing a dark blue short-sleeved shirt and has a pair of thin metal glasses on her face Emmie her wife is seen smiling peeping into the frame while wearing a white short-sleeved shirt Emmie is in her electric wheelchair they are near a building as a beautiful sunset is happening behind all the trees and bushes
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Alrightyyy! It has hit 1 month on this blog I am so happy that I've stuck to this lol and that I get to share my thoughts till the end of time ends or my time at least (woah that was dark let's dial it down just a notch!) to start I am very weak and I have ALS just a perfect combo if you ask me ;) Continuing on my job that no one knows about. I do speaking engagements for those living with ALS (Amyotrophic Lateral Sclerosis) SMA (spinal muscular atrophy)and DMD (Duchene muscular dystrophy) I do this to raise awareness and share stories of my life living with ALS! But since I do have ALS and it's a progressive disease I thought why not see what strength I'll be by the seven speaking engagements scheduled :) So let's see here's a list!
• 1st speaking engagement - December 20th 2024 - 2.8Oz arms , 3% head , 9% breathing (plus losing speech in a week)
•2nd speaking engagement - July 20th 2025 - 2.2Oz arms , no speech , 8% breathing, 1% head
•3rd speaking engagement - February 20th 2026 - 1.5Oz arms , 6% breathing, 0% head
•4th speaking engagement - September 2026 - 0.8Oz arms , 5% breathing, 0% head
•5th speaking engagement - April 2027 -0.3Oz arms , 3% breathing (pacemaker) 0% head
•6th speaking engagement - November 2027 -0.0OZ arms 2% breathing ( would stop driving my Sip N puff)
•7th speaking engagement - June 2028 O% arms, 1% breathing (sadly last speaking engagement)
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Holidays 9.30
Holidays
Agricultural Reform Day (Sao Tome and Principe)
Arizona Monsoon Season ends
Army Incompetence Day
Birth of Morelos (Mexico)
Botswana Day (Botswana)
Boy’s Day (Poland)
Chewing Gum Day
Day of Hungarian Folktales (Hungary)
Day of Justice Bodies Employees (Kazakhstan)
Day of Libraries (Ukraine)
Do Something Wacky With A Grandparent Day
E-mail Debt Forgiveness Day
Flag Day (Palestine)
Frisbee Day
GFWC (General Federation of Women’s Clubs) National Day of Service
International Blasphemy Rights Day (a.k.a. Blasphemy Day)
International Podcast Day
International Recovery Day
International Thunderbirds Day
International Translation Day (UN)
Jalal ad-Din Mohammad Balkhi Day (Tajikistan)
Jananeta Irawat Birth Day (Manipur, India)
José María Morelos (Mexico)
Kokkeisetsu (Japan)
Liberation Day (Abkhazia)
Limb Girdle Muscular Dystrophy Awareness Day
Monkey Bars Day
National Black Funding Day
National Chewing Gum Day
National Day of Remembrance for Indian Boarding Schools
National Kratom Day
National Love People Day
National Microcephaly Awareness Day
National Mud Pack Day
National Nonspeaking / Nonverbal Awareness Day (UK)
National Pet Tricks Day (UK)
National PrepareAthon! Day [also 4.30]
National Puppy Mill Survivor Day
National Security Officers Day (Turkmenistan)
National Sporting Heritage Day (UK)
National Teach Spanish Day
Neonatal Intensive Care Awareness Day
Orange Shirt Day (Manitoba, Canada)
Parsnip Day (French Republic Day)
Peon Day (Warcraft)
Pink Out Day
Rabbit Rabbit Day [Last Day of Every Month]
Recovery Day (Canada)
Rumi Day
Secretary Day (Venezuela)
Terpsichore Asteroid Day
Thunderbirds Day
Time For Yoga Day
Truth and Reconciliation Day (Canada)
World Pole Dance Day
Food & Drink Celebrations
Austrian Beer Day (Austria)
Extra Virgin Olive Oil Day
Hot Mulled Cider Day
National Hot Mulled Cider Day
National Soufflé Potato Day
World Stroopwafel Day (Netherlands)
Independence & Related Days
Botswana (from UK, 1966)
Republic of Abkhazia (from Georgia, 1983) [unrecognized]
Tinakula (Declared; 2020) [unrecognized]
5th & Last Monday in September
Family and Community Day (ACT, Australia) [Last Monday]
Meditation Monday [Every Monday]
Meatless Monday [Last Monday of Each Month]
Monday Musings [Every Monday]
Moody Monday [Last Monday of Each Month]
Motivation Monday [Every Monday]
Weekly Holidays beginning September 30 (Last Week of September)
Active Aging Day (thru 10.6)
Culpeper Downtown Restaurant Week (Culpeper, Virginia) [thru 10.6]
Taco Week (National Harbor, Maryland) [thru 10.6]
Festivals Beginning September 30, 2024
Mariachi Festival (Hayward, California)
Valley of the Moon Vintage Festival (Sonoma, California)
Feast Days
Aequinoctium Autumnale II (Pagan)
Anthony Green (Artology)
Blue-Feathered Swallowing Swallow (Muppetism)
Camilla D’Errico (Artology)
Cutting the Neck (Celtic Book of Days)
Edgar Parin d'Aulaire (Artology)
Ellen Chang (Writerism)
Emmanuelle Houdart (Artology)
Epitaphia (Festival Honoring the Souls of Warriors; Ancient Greece)
Feast of Soma (God of Ambrosia & Immortality; India)
Festival of Drunkenness (Ancient Egypt)
Festival of Tereteth (Goddess of the Coconut Toddy; Yap Island, Micronesia)
Gregory the Illuminator (a.k.a. the Enlightener; Christian; Saint)
Honorius of Canterbury (Christian; Saint)
Jerome (Christian; Saint)
John Waters Day (Church of the SubGenius; Saint)
Laura Esquivel (Writerism)
Medetrinalia (Fruits Offered to Goddess of Medicine; Ancient Rome)
Molière (Positivist; Saint)
Plan for the 31st if September Day (Pastafarian)
Ridiculous Excuses Day (Pastafarian)
Say Goodbye to Summer Day (Starza Pagan Book of Days)
Simon of Crépy (Christian; Saint)
Tales of Kelp-Kori’s Second Visit Yet Again (Shamanism)
Ta-Neshisi Coates (Writerism)
Truman Capote (Writerism)
Lucky & Unlucky Days
Taian (大安 Japan) [Lucky all day.]
Uncyclopedia Bad to Be Born Today (because Green Day fans will never leave you alone.)
Premieres
Adjustment Team, by Philip K. Dick (Short Story; 1954)
Alias (TV Series; 2001)
The Ascent Of Rum Doodle, by W.E. Bowman (Novel; 1956)
Ballonland (a.k.a. The Pincushion Man; Ub Iwerks ComiColor Cartoon; 1935)
Barefoot Gen, Vol. 1: A Cartoon Story of Hiroshima, by Keiji Nakazawa (Manga; 1973)
The Bible (Revised Standard Version (RSV) translation; 1952)
The Big Chill (Film; 1983)
Bird (Film; 1988)
Blueberries for Sal, by Robert McCloskey (Children’s Book; 1948)
The Boy Friend (Broadway Musical; 1954)
Car Talk (Radio Series; 1977)
Cheers (TV Series; 1982)
The Clock Store (Disney Cartoon; 1931)
Con Man (Web Series; 2015)
Dad, Can I Borrow the Car? (Disney Short Film; 1970)
Death Valley Days (Radio Series; 1930)
Entergalactic (Animated Film; 2022)
The Family of Pascual Duarte, by Camilo José Cela (Novel; 1942)
Fantasy, by Mariah Carey (Song; 1995)
50/50 (Film; 2011
The First Bad Man (Tex Avery MGM Cartoon; 1955)
The Flintstones (Animated TV Series; 1960)
Garden Gopher (Tex Avery MGM Cartoon; 1950)
Go Away Stowaway (WB MM Cartoon; 1967)
Grand Ole Opry (TV Series; 1950)
The Graveyard Book, by Neil Gaiman (Novel; 2008)
The Greatest Game Ever Played (Film; 2005)
Happy Days (Ub Iwerks ComiColor Cartoon; 1936)
Into the Blue (Film; 2005)
Little Women (Novel; 1868)
Louis Armstrong Plays King Oliver, recorded by Louis Armstrong (Album; 1957) [1st stereo album]
Love for Sale, by Tony Bennett (Album; 2021)
Luke Cage (TV Series; 2016)
The Magic Flute, by Wolfgang Amadeus Mozart (Opera; 1791)
Marvel Rising: Secret Warriors (Animated Film; 2018)
Methuselah's Children, by Robert A. Heinlein (Novel; 1958)
Miss Peregrine’s Home for Peculiar Children (Film; 2016)
Mister and Mistletoe (Fleischer/Famous Popeye Cartoon; 1955)
Murder, She Wrote (TV Series; 1984)
Nebraska, by Bruce Springsteen (Album; 1982)
One Mother’s Family (MGM Cartoon; 1939)
The Oyster (Super Chicken Cartoon; 1967) [#4]
Pandora’s Box, by Alexey Pajitnov (Video Game; 1999)
Pink in the Woods (Pink Panther Cartoon; 1978)
Porgy and Bess, by George Gershwin (Opera; 1935)
The Queen (Film; 2006)
The Rifleman (TV Series; 1958)
The Robe, by Lloyd C. Douglas (Novel; 1942)
The Saint in Europe, by Leslie Charteris (Short Stories 1953) [Saint #30]
Scooby-Doo! And the Monster of Mexico (WB Animated Film; 2003)
A Separate Peace, by John Knowles (Novel; 1959)
Serenity (Film; 2005)
Shine On, by Jet (Album; 2006)
The Steeple-Chase (Disney Cartoon; 1933)
Theme From Shaft, by Isaac Hayes (Song; 1971)
Too Pink (Pink Panther Cartoon; 1978)
To the Manor Born (UK TV Series; 1979)
Ungawa the Gorilla God (George of the Jungle Cartoon; 1967) [#4]
Yogi’s Great Escape (Hanna-Barbera Animated TV Special; 1987)
You, Me and the Apocalypse (UK TV Series; 2015)
Today’s Name Days
Hieronymus, Urs, Victor (Austria)
Felicija, Grgur, Jerko, Jeronim (Croatia)
Jeroným (Czech Republic)
Hieronymus (Denmark)
Kaur, Kauri, Tauri (Estonia)
Sirja, Siru, Sorja (Finland)
Jérôme (France)
Hieronymus , Urs, Viktor (Germany)
Stratonikos (Greece)
Jeromos (Hungary)
Gerolamo (Italy)
Abgara, Elma, Lamekins (Latvia)
Bytautė, Jeronimas, Sofija, Žymantas (Lithuania)
Hege, Helga, Helge (Norway)
Grzegorz, Hieronim, Honoriusz, Imisław, Leopard, Sofia, Wera, Wiera, Wiktor, Wiktoriusz, Zofia (Poland)
Grigorie (Romania)
Lubov, Nadezhda, Vera (Russia)
Jarolím (Slovakia)
Jerónimo, Sofía, Sonia (Spain)
Helge (Sweden)
Jerome, Jeronima, Gerome, Geromino (USA)
Today is Also…
Day of Year: Day 274 of 2024; 92 days remaining in the year
ISO: Day 1 of Week 40 of 2024
Celtic Tree Calendar: Gort (Ivy) [Day 2 of 28]
Chinese: Month 8 (Guy-You), Day 28 (Ding-You)
Chinese Year of the: Dragon 4722 (until January 29, 2025) [Wu-Chen]
Hebrew: 27 Elul 5784
Islamic: 26 Rabi I 1446
J Cal: 4 Orange; Foursday [4 of 30]
Julian: 17 September 2024
Moon: 4%: Waning Crescent
Positivist: 22 Shakespeare (10th Month) [Palestrina]
Runic Half Month: Gyfu (Gift) [Day 9 of 15]
Season: Autumn or Fall (Day 9 of 90)
Week: Last Week of September/1st Week of October
Zodiac: Libra (Day 8 of 30)
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Holidays 9.30
Holidays
Agricultural Reform Day (Sao Tome and Principe)
Arizona Monsoon Season ends
Army Incompetence Day
Birth of Morelos (Mexico)
Botswana Day (Botswana)
Boy’s Day (Poland)
Chewing Gum Day
Day of Hungarian Folktales (Hungary)
Day of Justice Bodies Employees (Kazakhstan)
Day of Libraries (Ukraine)
Do Something Wacky With A Grandparent Day
E-mail Debt Forgiveness Day
Flag Day (Palestine)
Frisbee Day
GFWC (General Federation of Women’s Clubs) National Day of Service
International Blasphemy Rights Day (a.k.a. Blasphemy Day)
International Podcast Day
International Recovery Day
International Thunderbirds Day
International Translation Day (UN)
Jalal ad-Din Mohammad Balkhi Day (Tajikistan)
Jananeta Irawat Birth Day (Manipur, India)
José María Morelos (Mexico)
Kokkeisetsu (Japan)
Liberation Day (Abkhazia)
Limb Girdle Muscular Dystrophy Awareness Day
Monkey Bars Day
National Black Funding Day
National Chewing Gum Day
National Day of Remembrance for Indian Boarding Schools
National Kratom Day
National Love People Day
National Microcephaly Awareness Day
National Mud Pack Day
National Nonspeaking / Nonverbal Awareness Day (UK)
National Pet Tricks Day (UK)
National PrepareAthon! Day [also 4.30]
National Puppy Mill Survivor Day
National Security Officers Day (Turkmenistan)
National Sporting Heritage Day (UK)
National Teach Spanish Day
Neonatal Intensive Care Awareness Day
Orange Shirt Day (Manitoba, Canada)
Parsnip Day (French Republic Day)
Peon Day (Warcraft)
Pink Out Day
Rabbit Rabbit Day [Last Day of Every Month]
Recovery Day (Canada)
Rumi Day
Secretary Day (Venezuela)
Terpsichore Asteroid Day
Thunderbirds Day
Time For Yoga Day
Truth and Reconciliation Day (Canada)
World Pole Dance Day
Food & Drink Celebrations
Austrian Beer Day (Austria)
Extra Virgin Olive Oil Day
Hot Mulled Cider Day
National Hot Mulled Cider Day
National Soufflé Potato Day
World Stroopwafel Day (Netherlands)
Independence & Related Days
Botswana (from UK, 1966)
Republic of Abkhazia (from Georgia, 1983) [unrecognized]
Tinakula (Declared; 2020) [unrecognized]
5th & Last Monday in September
Family and Community Day (ACT, Australia) [Last Monday]
Meditation Monday [Every Monday]
Meatless Monday [Last Monday of Each Month]
Monday Musings [Every Monday]
Moody Monday [Last Monday of Each Month]
Motivation Monday [Every Monday]
Weekly Holidays beginning September 30 (Last Week of September)
Active Aging Day (thru 10.6)
Culpeper Downtown Restaurant Week (Culpeper, Virginia) [thru 10.6]
Taco Week (National Harbor, Maryland) [thru 10.6]
Festivals Beginning September 30, 2024
Mariachi Festival (Hayward, California)
Valley of the Moon Vintage Festival (Sonoma, California)
Feast Days
Aequinoctium Autumnale II (Pagan)
Anthony Green (Artology)
Blue-Feathered Swallowing Swallow (Muppetism)
Camilla D’Errico (Artology)
Cutting the Neck (Celtic Book of Days)
Edgar Parin d'Aulaire (Artology)
Ellen Chang (Writerism)
Emmanuelle Houdart (Artology)
Epitaphia (Festival Honoring the Souls of Warriors; Ancient Greece)
Feast of Soma (God of Ambrosia & Immortality; India)
Festival of Drunkenness (Ancient Egypt)
Festival of Tereteth (Goddess of the Coconut Toddy; Yap Island, Micronesia)
Gregory the Illuminator (a.k.a. the Enlightener; Christian; Saint)
Honorius of Canterbury (Christian; Saint)
Jerome (Christian; Saint)
John Waters Day (Church of the SubGenius; Saint)
Laura Esquivel (Writerism)
Medetrinalia (Fruits Offered to Goddess of Medicine; Ancient Rome)
Molière (Positivist; Saint)
Plan for the 31st if September Day (Pastafarian)
Ridiculous Excuses Day (Pastafarian)
Say Goodbye to Summer Day (Starza Pagan Book of Days)
Simon of Crépy (Christian; Saint)
Tales of Kelp-Kori’s Second Visit Yet Again (Shamanism)
Ta-Neshisi Coates (Writerism)
Truman Capote (Writerism)
Lucky & Unlucky Days
Taian (大安 Japan) [Lucky all day.]
Uncyclopedia Bad to Be Born Today (because Green Day fans will never leave you alone.)
Premieres
Adjustment Team, by Philip K. Dick (Short Story; 1954)
Alias (TV Series; 2001)
The Ascent Of Rum Doodle, by W.E. Bowman (Novel; 1956)
Ballonland (a.k.a. The Pincushion Man; Ub Iwerks ComiColor Cartoon; 1935)
Barefoot Gen, Vol. 1: A Cartoon Story of Hiroshima, by Keiji Nakazawa (Manga; 1973)
The Bible (Revised Standard Version (RSV) translation; 1952)
The Big Chill (Film; 1983)
Bird (Film; 1988)
Blueberries for Sal, by Robert McCloskey (Children’s Book; 1948)
The Boy Friend (Broadway Musical; 1954)
Car Talk (Radio Series; 1977)
Cheers (TV Series; 1982)
The Clock Store (Disney Cartoon; 1931)
Con Man (Web Series; 2015)
Dad, Can I Borrow the Car? (Disney Short Film; 1970)
Death Valley Days (Radio Series; 1930)
Entergalactic (Animated Film; 2022)
The Family of Pascual Duarte, by Camilo José Cela (Novel; 1942)
Fantasy, by Mariah Carey (Song; 1995)
50/50 (Film; 2011
The First Bad Man (Tex Avery MGM Cartoon; 1955)
The Flintstones (Animated TV Series; 1960)
Garden Gopher (Tex Avery MGM Cartoon; 1950)
Go Away Stowaway (WB MM Cartoon; 1967)
Grand Ole Opry (TV Series; 1950)
The Graveyard Book, by Neil Gaiman (Novel; 2008)
The Greatest Game Ever Played (Film; 2005)
Happy Days (Ub Iwerks ComiColor Cartoon; 1936)
Into the Blue (Film; 2005)
Little Women (Novel; 1868)
Louis Armstrong Plays King Oliver, recorded by Louis Armstrong (Album; 1957) [1st stereo album]
Love for Sale, by Tony Bennett (Album; 2021)
Luke Cage (TV Series; 2016)
The Magic Flute, by Wolfgang Amadeus Mozart (Opera; 1791)
Marvel Rising: Secret Warriors (Animated Film; 2018)
Methuselah's Children, by Robert A. Heinlein (Novel; 1958)
Miss Peregrine’s Home for Peculiar Children (Film; 2016)
Mister and Mistletoe (Fleischer/Famous Popeye Cartoon; 1955)
Murder, She Wrote (TV Series; 1984)
Nebraska, by Bruce Springsteen (Album; 1982)
One Mother’s Family (MGM Cartoon; 1939)
The Oyster (Super Chicken Cartoon; 1967) [#4]
Pandora’s Box, by Alexey Pajitnov (Video Game; 1999)
Pink in the Woods (Pink Panther Cartoon; 1978)
Porgy and Bess, by George Gershwin (Opera; 1935)
The Queen (Film; 2006)
The Rifleman (TV Series; 1958)
The Robe, by Lloyd C. Douglas (Novel; 1942)
The Saint in Europe, by Leslie Charteris (Short Stories 1953) [Saint #30]
Scooby-Doo! And the Monster of Mexico (WB Animated Film; 2003)
A Separate Peace, by John Knowles (Novel; 1959)
Serenity (Film; 2005)
Shine On, by Jet (Album; 2006)
The Steeple-Chase (Disney Cartoon; 1933)
Theme From Shaft, by Isaac Hayes (Song; 1971)
Too Pink (Pink Panther Cartoon; 1978)
To the Manor Born (UK TV Series; 1979)
Ungawa the Gorilla God (George of the Jungle Cartoon; 1967) [#4]
Yogi’s Great Escape (Hanna-Barbera Animated TV Special; 1987)
You, Me and the Apocalypse (UK TV Series; 2015)
Today’s Name Days
Hieronymus, Urs, Victor (Austria)
Felicija, Grgur, Jerko, Jeronim (Croatia)
Jeroným (Czech Republic)
Hieronymus (Denmark)
Kaur, Kauri, Tauri (Estonia)
Sirja, Siru, Sorja (Finland)
Jérôme (France)
Hieronymus , Urs, Viktor (Germany)
Stratonikos (Greece)
Jeromos (Hungary)
Gerolamo (Italy)
Abgara, Elma, Lamekins (Latvia)
Bytautė, Jeronimas, Sofija, Žymantas (Lithuania)
Hege, Helga, Helge (Norway)
Grzegorz, Hieronim, Honoriusz, Imisław, Leopard, Sofia, Wera, Wiera, Wiktor, Wiktoriusz, Zofia (Poland)
Grigorie (Romania)
Lubov, Nadezhda, Vera (Russia)
Jarolím (Slovakia)
Jerónimo, Sofía, Sonia (Spain)
Helge (Sweden)
Jerome, Jeronima, Gerome, Geromino (USA)
Today is Also…
Day of Year: Day 274 of 2024; 92 days remaining in the year
ISO: Day 1 of Week 40 of 2024
Celtic Tree Calendar: Gort (Ivy) [Day 2 of 28]
Chinese: Month 8 (Guy-You), Day 28 (Ding-You)
Chinese Year of the: Dragon 4722 (until January 29, 2025) [Wu-Chen]
Hebrew: 27 Elul 5784
Islamic: 26 Rabi I 1446
J Cal: 4 Orange; Foursday [4 of 30]
Julian: 17 September 2024
Moon: 4%: Waning Crescent
Positivist: 22 Shakespeare (10th Month) [Palestrina]
Runic Half Month: Gyfu (Gift) [Day 9 of 15]
Season: Autumn or Fall (Day 9 of 90)
Week: Last Week of September/1st Week of October
Zodiac: Libra (Day 8 of 30)
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ACCOMPLISHMENTS (1-20years)
20 years: started journey in art.
15 years: work experience in immunology of both vaccine and Biologics + regulatory science.
10 years: decision to move from Amgen to Biocon.
5 years: Approval of Trastuzumab Biosimilar; and influenced Biocon culture
2 years: Symphonytech clarity; Shoolini-YRP; C> in India
1 year: big Bike Rides (Leh/Ladak); Reading books; Neuroscience
6 months: gifted souls concert; tennis elbow
3 months: IAMD muscular dystrophy awareness
1 month: reading voraciously books from Free Library
1 week: flute.
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Jiffy Lube Int'l Inc Franchise Review
The oil change company, Jiffy Lube was started in 1979. Since then it has changed hands and is currently owned by the oil giant Shell Oil Company. The company has 2,200 establishments and serves over 32 million customers every year. The company has good ranking rates according to the assessments conducted by Franchise 500, Fast-Growing Franchises and America's Top Global Franchises.
The company has a good dexterity of managing business of running oil change. Jiffy Lube Int'l. Inc. is now keen on expanding its operation across the United States and in Canada. They know how the things can be made to work even under the present stressful economic situation and stiff competition.
Scope Of Development And A Running A Sustainable Business By The Franchise
The number of franchises has been growing consistently since 2006 in the United States as well as Canada. Jiffy Lube is a company with strong social bonding through organizing charities and social awareness and welfare programs. A few of these are companies participation in National Earth Day, Children's Miracle Network, Buckle Up America and Muscular Dystrophy Association. The company ensures active participation of the franchises in these social programs.
Strong Marketing Supports
A grand opening ceremony of course makes a news. This helps drawing the customers due to already established brand image of Jiffy Lube. The company is known for strong media support using national and regional ads. Ad slicks and cooperative ads are released very frequently. The reminder mailing strategy adopted by the company helps generating a feeling of care for the customers while assisting them to remind about due change of oil. Typically, Jiffy Lube is associated with a lot of research ties to be seen on the forefront of development Jiffy Lube Florida .
Other types of marketing assistance available to the franchisees are field operations and assessments, meeting, communication about safety and security, newsletters, and toll-free phones.
Franchisee Training
Basic strategy of this company is to serve the customers efficiently and offer an experience of friendly and concerned dealings. The objective is to create a strong customer-base. Jiffy Lube Int'l. Inc. understands the value of creating a strong team of franchisees to effectively work as the ambassadors of Jiffy Lube everywhere. The beginning of franchisee training starts with 2 to4 week's session at the company headquarter in Houston, Texas; additional training is offered as necessary. The company also offers training at franchisee locations. As such, all you can look forward to a smooth launching of your franchise business with good knowledge of products. You can also be sure of professional back-up whenever necessary.
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“Schlatt Attack”
Warnings: Drug use, Smoking, Violence, Swearing, Death, Ghosts, and Angst (Recommended to readers over 14).
Summary: What if Schlatt survived his heart attack?
Notes: None of this is canon, this is my take on the DSMP. Let me know if there are any other warnings I should put, or if I should change the recommended reading age.
“What the fuck happened?” Schlatt groaned, sitting up in a hospital bed rubbing his head. Ponk was beside him monitoring his health. “You had a….cardio-cerebral infarction. In other words you had a heart attack.” Ponk explained hesitantly. “Wait was it from-” Schlatt was cut off by Ponk. “The alcohol.” Ponk said, setting one of the bottles he had been holding before he passed out on his bedside. “Yeah….” Schlatt said, ashamed looking down at his sheets. “Schlatt, what were you thinking?” Ponk fully aware that Schlatt should be dead. “It just all hurts.” Schlatt mumbled putting his hands to his face. “Schlatt, I understand that you suffer from myotonic muscular dystrophy and Chronic obstructive pulmonary disease.” “Yes yes that’s right.” Schlatt confirmed. “Have you tried to take any medication for it?” Ponk asked.
“Do drugs count?” Schlatt replied with hesitation. “Schlatt!?” Ponk questioned, knowing he was probably drinking more than he could handle. “Look, you know I’m an alcoholic! Everyone knows that! And where am I supposed to get fucking medicine!” Schlatt said aggressively. “Schlatt! You can’t use Drugs and Tobacco and expect them to fix you!” Ponk shouted trying to get it through his thick skull. “THEY DID FIX ME!” Schlatt screamed, grabbing Ponk by the shirt as his breath became unsteady. Schlatt let go of Ponk only to cough uncontrollably into his arm.
Ponk was a bit frightened, but it was his job to help all his patients, no matter how difficult they were. “Here.” He said as he tried to hand a bottle of water to Schlatt. “Get that the fuck away from me. I don’t need that.” Schlatt said, reaching for the bottle of alcohol. “Ah ah ah.” Ponk wagged his finger at Schlatt blocking his hand from the glass bottle. “Asshole.” Schlatt muttered. “Schlatt, I’m not letting you leave till you agree on taking medication and withdrawing drugs.” Ponk threatened. “Oh come the fuck on! You can’t be serious?” Schlatt said, astonished. “Okay, well I bet you can’t last a week without it.” Ponk teased. “Are you challenging me?” Ponk only looked down on him smiling. “If you're gonna bet there's gotta be something in it for me.” Schlatt said pissed off that Ponk was in control now. “I’ll give you a thousand dollars if we can improve your health by the end of the year.” Ponk said. “Ten thousand.” Schlatt stated. “Let’s make it five thousand, or I shave that off.” He said pointing at Schlatt’s facial hair. “Deal!” Schlatt said, pleased as he shook Ponk’s hand. (Also his facial hair is at risk lmao).
“Take it easy, okay. I’ll hook you up with an inhaler for your COPD. Come visit me next week.” Ponk said as he hulled Schlatt to his feet. “Thanks.” Schlatt said as he grabbed the water bottle from before. He guzled it down and threw it into Ponk’s hands. Which only caused a proud smile to form across Ponk’s face. Schlatt smiled back waltzing out the door. His little ears perked up as he walked out of the building with his new found confidence.
. . .
Schlatt arrived at where L’Manberg once was. He looked off to where his great nation once stood. Now only being occupied by a huge crater. He was stunned. “Who the hell pulled this off?” He whispered, impressed. He wasn’t mad because he knew he’d never really cared about the nation itself, but the power he gained from it. He just wanted to know what all went wrong. He knew he didn’t govern the nation right, but he didn’t think someone would go and fucking blow it up. Off in the distance he saw a small figure. It was Tubbo.
“Tubbo!?” Schlatt called as he ran up to him. Tears were running down Tubbo’s face as he looked off to Schlatt. “S-Schlatt?” Tubbo says, his voice trembling. Schlatt came to a halt in front of him, confused. “You look like you’ve seen a ghost?” Schlatt said still not understanding why Tubbo was surprised. “I-We thought you were dead.” Tubbo responded, backing away from him. “What….” Schlatt trailed off in fear. “When you had your heart attack we thought you’d died. We called Ponk t-to take care of you.” He said, staring down at the ground. “You didn’t think to check my pulse!” Schlatt said, chuckling nervously. “Look, we were in a hurry. Trying to stop a war you helped cause!” Tubbo was still upset that he had killed him. Schlatt, noticing the pain, reached out to touch one of the many explosion scars on his face from the execution. “Don’t touch me.” He cursed, pulling Schlatt’s hand away from him. “I-I’m sorry.” Schlatt apologized. “Why did you do it?” Tubbo asked. “Do what?” Schlatt questioned. “Why did you make me your right-hand man?” “I-I…. Fuck, Tubbo! It’s because you reminded me of myself. When I was….a better man.” Schlatt said, looking off to the L’Manhole. “I didn’t want you to become me, so I thought if I kept you close…. You’d be a better man than I ever was.” Schlatt looked back at Tubbo.
Tubbo didn’t know what to say. Schlatt never seemed to care for anyone, but himself. He never thought out of all the people Schlatt wanted to protect…. it would be him. “Hey, but it turns out Manberg really did take the L right?” Schlatt laughed trying to up the mood. “Yeah, Wilbur had a denanator room under Manberg. H-He couldn’t take it anymore-and he blew it up.” Another tear rolled down Tubbo’s face. He quickly wiped it away. “Umm, how long was I out.” Schlatt asked. “It’s been a long time Schlatt.” “Oh….” Schlatt said. “What do we do now?” He asked Tubbo. “We move on.” Tubbo said, turning from Schlatt and walking away.
. . .
Schlatt wandered the server for a few days not knowing what was the next step for him. Manberg was gone and he accepted that, but that meant his purpose was gone. Everyone hated him anyhow. Whatever he did next he had to make sure it wouldn’t hurt anyone else. If it were, no one would ever forgive him. They probably would kill him and make sure he was dead this time. He felt like no matter what he did he’d just push them further away. Was this his purpose to hurt everyone he ever came into contact with? There were so many If’! His true fear was being alone, but he just denied it.
He couldn’t take it anymore! All he heard in his head was his sins, his wrong doings! He couldn’t even remember who he used to be before L’Manberg. He needed to drown out the pain. He didn’t care what Ponk said! It all hurt too much.
He dug up one of the many drug stashes he’d hidden on the server. He opened the chest to find only a few bottles left. He must have gotten drunk the other day and didn’t remember. He didn’t care, this would be enough. He reached for one of the bottles, before hearing a rustle in the brush behind him.
“Okay! Who the fucks is there!” Schlatt said wearily, being completely defenseless. Out of the brush sat up a very confused Wilbur. He just stared at Schlatt puzzled. “A new friend!” He shouted with glee, hugging Schlatt. “W-Will!?” Schlatt also became very confused and uncomfortable. “Yeah?” He said letting go of Schlatt thinking he’d done something wrong. Schlatt hadn’t realized it, but something was wrong with Wilbur. He was discolored and pale. He wasn’t wearing his usual leather jacket and glasses. And was that a yellow sweater? It was freaking Schlatt out. Wilbur was his enemy, but once his friend. Seeing him like this only brought more and more questions.
“Will, what happened to you before L’Manberg blew up?” Schlatt asked. “I-I can’t remember.” Wilbur said, pushing his hands into his forehead, which made zero difference. “A-And why do you keep calling me Wilbur? I’m Ghostbur.” Now Ghostbur was asking the questions. “Um G-Ghostbur are you de….” Schlatt stopped, afraid that Ghostbur wouldn’t be able to handle it. “What? What is it new friend?” Ghostbur asked, concerned. “Never mind. Um, do you know Phil?” Schlatt changed the subject. “Yeah! I love Phil! Can we go see him?” Ghostbur said with new found excitement. “That’s where we're headed!” Schlatt said, only causing Ghostbur more cheer. “Wait, here.” Ghostbur smiled and handed him some sort of blue stuff. “What's-” Ghostbur cut him off knowing just how to answer his question. “It’s blue! It takes the pain away….” “Thanks.” Schlatt said seeing the blue stuff glow as he breathed heavily. ”I saw those bottles you had. I remember Phil said that they were bad for me. I felt funny whenever I ate them, so I stopped. Is that why you're sad?” Ghostbur said with guilt.
“I-I don’t know. Wait, but did you say you remembered?” Schlatt said realizing Ghostbur could remember Wilbur. “I remember before….before h-he,” Ghostbur stopped hugging Schlatt, before crying into his arms. Schlatt knew he must have remembered what happened to his living self. “I know I know.” Schlatt rubbed him on the back, letting Ghostbur cry into him. He wasn’t very good at comforting people, but this was the best he could do. Ghostbur let go of Schlatt and wiped away his tears. “Sorry.” Ghostbur sniffled. Schlatt could see where the tears had rolled down his cheek now had left burning scars on his face. “Ghostbur, you don’t have to be sorry. But are you okay?” Schlatt said, pointing to the scars. “Yeah. It doesn’t hurt much.” He said, his tone more gentle than energetic. “Come on. We gotta get going if we wanna find Phil.” “Wait! Can I hold your hand?” Ghostbur said nervously. “Yeah.” Schlatt smiled, feeling like he was holding a five year old’s hand.
. . .
Schlatt thought if Tubbo still had been at L’Manberg then Phil must have been. He arrived at the crater. Ghostbur was horrified. He may not have remembered much of L’Manberg, but it was Wilbur’s home. “Did I do that….” “No, you didn’t. The past you may have, but he wasn’t in the right mind, okay.” Schlatt said his hands on Ghostbur’s shoulders. “You-He was a good man.” Schlatt said, staring Ghostbur in the eyes. Ghostbur smiled, then caught something out of the corner of his eye. “Phil!” Ghostbur shouted, running towards him. Schlatt, being unable to run due to some of his complications, tried his best to catch up to Ghostbur.
Phil was up in the denantor room which was more visible now from the explosion. He could see a sword in Phil’s hands as he sat there frozen. Dried up blood laid on the blade of the sword. As Schlatt approached he pulled Ghostbur behind him. He could see Phil was thinner and exhausted. He just stared at a button in the middle of what remained of a wall in front of him. “Looks like you’ve aged.” Schlatt laughed hesitantly. “Go away.” Phil muttered. “Phil what happened here.” Schlatt asked. “Why did Will do it. H-He had everything and he just threw it away.” Phil said, looking down to the diamond sword. Tears rolled down his face falling onto the blade. “I hope he’s happy. He’s happy that this is all gone.” The anger was in Phil’s voice, but he still missed him. Schlatt was speechless. He didn’t know what to say.
But Ghostbur was growing too impatient. He couldn’t wait on Schlatt anymore. He pushed past him wrapping his arms around Phil. Phil was about to point the blade at him before realizing who it was. “Will!?” He said dropping the sword to the ground. Phil stood up and embraced him. “How are you here?” He said, staring at Schlatt. “Um, Ghostbur, could you wait outside for us?” Schlatt really asked as more of an order than a favor. Ghostbur nodded understanding. He looked up at Phil, his eyes sparkling a deep blue. Tears of joy rolled down Phil’s face as he parted Ghostbur’s curly mess of hair out of his face. Schlatt directed him to where he could wait as they talked and he cheerfully made his way over to where L’Manberg used to stand.
“Phil, what’s wrong with him?” Schlatt said with worry. “I think he’s a ghost. He’s different now….he’s happy.” Phil smiled watching Ghostbur roll down a hill over and over again. “He acts…. younger. Why’s that?” Schlatt asked Phil. “I think he was happier as a child, so it’s in his nature to be his younger self.” “Phil, why were you here, not taking care of yourself.” Schlatt confronted. “H-He asked me to-” Phil looked down at the sword. “Phil I-” Schlatt connected the dots. “It’s for the best. It worked out in the end, right?” Phil had more tears falling from his face. “Phil, you did the right thing. It might not have been the best choice for-Wilbur, but he asked you to take the pain away.” Schlatt said feeling the same pain.
Meanwhile, as Phil and Schlatt conversed Ghostbur laid in the grass hanging his legs over the blown up crater. He crest his hand around the white clouds in the sky. He’d imagined what it would feel like to touch one. He mindedly pointed out shapes he saw in them as he thought. He hummed the L’Manberg Anthem as he tried to remember what the huge pit once was. He watched as the sky grew darker and the clouds blocked the light. A little toddler-like whine came from his mouth, upset that the sun had disappeared. He closed his eyes listening to all around him. It felt so….peaceful. Ghostbur would have never been able to enjoy this without Wilbur’s destruction of L’Manberg.
A stinging came to his face as he suddenly opened his eyes. He wiped at his cheek where a raindrop had soaked into his skin. He had not yet experienced rain and didn’t understand that it could hurt him. The sky started erupting with rain. Ghostbur got up in fear, feeling it burn his skin. He tried to run towards Phil and Schlatt, but slipped on the wet grass. Everything burned and in a moment of agony he screamed for Phil.
Back by Schlatt and Phil they were just finishing their talk. Schlatt had noticed the storm that had rolled in, but thought nothing of it. Schlatt wasn’t sure why Ghostbur’s face burned from his tears, but he didn’t think water was the problem. Suddenly they both heard someone scream. “PHIL!” Ghostbur cried out stuck to the ground like a magnet. “Wilbur!” Phil yelled in distress. “Fuck I forgot! Water must hurt him!” Schlatt shouted, ripping off his suit’s jacket. He rushed over to Ghostbur’s aid. Phil stood there frozen in fear. Schlatt used his jacket like an umbrella over his head. “Come on Ghostbur!” Schlatt reached his hand out. “I-I can’t!” Ghostbur sobbed covered in mud.
“Wilbur couldn’t Ghostbur! But you can!” Schlatt shouted, grabbing Ghostbur’s hand. Ghostbur pulled his feet out of the mud one by one. He winced in pain being covered in the wet muck. Schlatt started dragging Ghostbur behind him, forcing Ghostbur to keep up the same pace. Schlatt ran through the pain as his legs cramped up. Ghostbur now had his jacket wrapped around him. Phil reached out his arms to Ghostbur as he melted into Phil’s arms (Not literally). Schlatt fell to the ground exhausted. “I-Is he okay.” Schlatt panted out. “He’s got a lot of burns, but I can patch him up.” Phil smiled amused by Schlatt’s act. Ghostbur didn’t say a word, only whimpering and sobbing into Schlatt’s jacket. Phil hushed him quietly to calm him down. “Schlatt?” Phil asked kindly. “Yeah?” Schlatt sat up. “You need a place to stay right?”
. . .
Schlatt came out of his room with his Yankees hat on and his favorite Obama T-shirt. His eyes drooped with exhaustion. “Hey, Phil.” Schlatt greeted, grabbing his morning coffee. Schlatt had been living with Ghostbur and Phil since their chat. Ghostbur was still a little bandaged up from his burns. He’d also had some neighbors, Techno and Ranboo. He was still mad with Techno, but was charmed by Ranboo. He joined Phil and Ghostbur at the table watching them eat their stupid biscuts. “Did you sleep well?” Phil asked, munching on a jam filled crumpet. “Could've been better.” Schlatt sighed. “Another nightmare?” Phil said concerned. “Yeah.” Schlatt looked down at his plate where his food was getting cold. “I’m gonna go take a smoke.” Schlatt said heading out the door without a single bite of breakfast.
Schlatt sat out in the cold, smoke rings being blown from his mouth. He may not have been allowed to drink, but Ponk didn’t say anything about cigars. He was changing. The change scared him. He couldn’t even remember the last time he’d cursed out someone’s name. He felt like he was getting too soft. And now he had an inhaler that made him look like some kind of asthma kid. He was afraid that if others looked down upon him like this they’d think he was weak. He was mad too. He was stuck in this arctic desert. He couldn’t go back, not after what he did.
Then he heard a sound all too familiar. He barrel rolled to the side as an arrow wished past him, cutting the side of his ear. He screamed in agony grabbing at the bleeding cut on his ear. It had torn through his flesh leaving a missing chunk out. Another arrow then cut through his hat nailing it into the back porch. He then heard a crack of a twig from behind. He spun around to face his attacker. “Quackity!?” Schlatted shouted in surprise. Quackity dropped his crossbow running up to Schlatt only to pull him back into the brush. “Quackity what are you d-” Schlatt yelped before Quackity covered his mouth.
“Schlatt! Schlatt!” Phil shouted, stumbling around the porch trying not to step on any arrows. “You gotta be quiet or they’ll hear you.” Quackity hissed. Schlatt mumbled trying to get Quackity’s hand off of him. “I’m gonna let go okay. And then you're gonna shut up alright.” Quackity said sternly. Schlatt nodded before licking Quackity’s hand. “Ah god dammit! You fucking whore!” Quackity yelled trying to shake Schlatt’s spit from his hand.
Schlatt then ran from his killer. The last time they’d talked he got shot by him. He wasn’t gonna make the same mistake twice. “Schlatt, wait! Come back!” Quackity called chasing after him. They raced through the forest. Schlatt made sure to smack every tree branch into Quackity’s face for good measure. But the wood was really dense and filled with roots. Schlatt had to swerve through the trees and try to lose Quackity. He didn’t know if his legs could handle it any longer. A log was approaching ahead of Schlatt. He was gonna have to jump it. He pushed one of his hands off of the log as he landed on the other side. Unfortunately the more athletic Quackity jumped off of the log and onto Schlatt, pinning him to the ground.
“Let go of me!” Schlatt squirmed underneath Quackity’s hold. “Not until you give me some answers!” Quackity ordered. “Hmm… No.” Schlatt said like a little toddler. “What the fuck do you mean no!?” Quackity laughed. “I mean why should I tell you anything!” Schlatt said in hatred. “Well you could have told me that you weren’t dead! It’s been three months since L’Manberg and your hiding out in the middle of nowhere!” Quackity said, pushing his crossbow in Schlatt’s face. “Easy with that thing!” Schlatt quived. “You left me when I needed you most! You left me with a blown up country!” Quackity roared. “And you killed me!” Schlatt screamed, flipping Quackity over and pushing into the ground. “And I wish you stayed that way.” Quackity muttered tears rolling down his face.
Schlatt got off of Quackity as his eyes widened. He was right. Everyone did want him dead. He may have hated Quackity, but they were friends once. Even his own friend wanted rid of him. “You didn’t mean that. Right?” Schlatt looked at Quackity, not a word coming out of him. “Tell me you didn’t mean it!” He shouted tears outlining his face. “I did mean it, okay!” Quackity screamed looking up at Schlatt. Schlatt gasped, turning away from him. “I wish I stayed that way too….” Schlatt whispered, running from Quackity yet again. “Schlatt! No!” Quackity yelled, his voice getting softer and softer the further Schlatt ran.
“Phil! Phil!” Quackity called, running out of the forest with a stream of tears coming down his face. “Quackity!? Where’s Schlatt?” Phil said with confusion, pulling out his sword. “I-I didn’t know he was alive…. look I’m sorry, but you’ve gotta help me get him back.” Quackity sobbed, wiping the tears from his face. “What did you do!” Phil shouted nearing Quackity. “We got into an argument…. And he’s headed for the docks!” Quackity said, running towards Schlatt’s direction. “Wait for me!” Phil said, taking off after him. Poor Ghostbur peered out the window with worry, not understanding that Schlatt’s life was at stake.
Schlatt finally arrived at the docks. He had found a bottle of whiskey as he sat at the edge of the wooden bridge. He stared at the bottle seeing his reflection in it. “I’m sorry….” He whispered as he chugged the bottle down. He shattered the bottle in his hands making him bleed. But it didn’t hurt. He didn’t care. He didn’t care as he threw it into the murky water below. He covered his face crying into his blood and tear soaked hands. “I want it to stop! I want the pain to stop!” He cried out. He stood up looking down into the sea. Bloody handprints tattooed his face. He told himself that he didn’t deserve it. That he didn’t deserve any of it. That no one cared. That no one fucking ever gave a single damn about him! And then he jumped. Splashing into the ocean as all the pain and misery was washed away by the cold stinging water.
“Schlatt don’t!” Quackity shouted seeing his friend splash into the water. “Schlatt!” Phil shouted about to jump in after him before Quackity stopped him. “You can’t swim with your broken wings.” Quackity said with his sadness engulfing him. “But I can!” Ghostbur shouted, jumping in after him. “Wait, What!? Wilbur!?” Quackity shouted in surprise. (“How many god damn people are coming back to life” - Probably Quackity). “WILBUR!” Phil screamed, trying to grab him, but only catching air within his hands. “He’ll melt!” Phil screeched, unable to do anything.
Ghostbur felt everything around him burn, but he had to save Schlatt. He drove through the pain and opened his eyes. In the dark depths below he could just make the outlines of schlatt. He tried to call him, only to have bubbles erupt from his mouth. He covered his mouth in shock not knowing. His skin kept burning more and more, so he tried his best to hurry and get to Schlatt. Finally, reaching him he grabbed Schlatt by the waist, lifting him up through the water. Schlatt was unconscious, so it was up to Ghostbur to find the strength to save him in time. He’d remembered how kindly he had treated him. His love, his companion. Alivebur may not have taken a liking to Schlatt, but Schlatt had changed. And Ghostbur thought that was mostly due to their uncanny friendship. But he knew eventually that everything had to come to an end and as they reached the surface the world around him went to black.
Schlatt felt someone haul him out of the water as he tried to open his eyes. He looked around as everything became clearer. Blood still dripped from his hands as Phil wrapped them in some sort of cloth. He winced feeling the ok pressure being applied to his hands. He coughed up some of the sea water he had inhaled. “Quackity.” He called out mindlessly searching for him. “I’m here. I’m here.” Quackity cried softly cupping Schlatt’s hand. Schlatt rubbed away Quackity’s tears as his senses slowly returned.
“Wait, where’s Ghostbur!?” He asked in a panic. “Ghostbur!” Schlatt cried out, crawling over the edge to where Ghostbur once was. Nothing was left of the innocent ghost. Schlatt stared into the water hoping he would emerge. For a time they all waited quietly, quietly waiting for their friend. “Schlatt, this is your fault.” Phil broke the silence. “What?” Schlatt said, confused. “I said this is your fault!” Phil grabbed Schlatt by the collar. “I let you into my home! I trusted you! Will, trusted you ....” Phil mumbled his last sentence realizing what he said. “Oh, so now you're blaming me! You're the one who killed him in the first place!” Quackity gasped hearing Schlatt’s words.
Then a fist was met with Schlatt’s face. Followed by another and another. “Phil! Stop!” Quackity cried trying to pull him away from Schlatt. “You took him from me!” Phil screeched holding Schlatt over the water. “Now you’ll join him.” Phil scoffed, hatred in his voice. “Phil, don't do it! Please!” Quackity sobbed practically begging. Schlatt looked at Phil, his own blood fogging his vision. “Phil….is this what Ghostbur would have….wanted.” Schlatt asked weakly. “No….but this is what Wilbur would have.”
Phil’s grip loosened on Schlatt, letting him fall into the sea.
Myotonic muscular dystrophy (MMD): A lot of types of muscular dystrophy can also lead to heart diseases and breathing problems which would fit into Schlatt’s clinical picture. It also affects Schlatt’s use of his legs.
COPD: One of the complications of COPD that is quite relevant to our discussion is chronic heart failure - due to complications in the lungs it becomes very hard for a heart to pump blood properly so it gets weaker, blood starts flowing slower and there are a lot more chances of random blood clots forming (this could have worsened the muscle pains as symptoms like intermittent claudication are common for chronic heart failure). There is indeed a chance of having a heart attack and a stroke at the same time (or have a heart attack that manifests in stroke-like symptoms). It is called cardio-cerebral infarction. It starts with a heart attack (mostly caused by a blood clot or an atherosclerotic plaque in the heart’s arteries), as heart tissue starts to die the production of more blood clots increases and one of them may end up in the brain causing damage there. Alternatively, the brain tissue may start to die because of the general decrease of blood going into it as the heart starts dying and can’t work properly.
Withdrawal syndrome (Discontinuation syndrome): Occurs in individuals who have developed physiological dependence on drugs or alcohol and who discontinue or reduce their use of it.
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September Disability Awareness Presented by @servicedogforum and @daaconnections If you need assistance with disability advocacy or information, please reach out to us at [email protected], or on our Facebook page. For service animal support, please contact our affiliated page at [email protected], or message the service dog forum affiliated Facebook page. 💜 Stay Safe! #September #Disability Awareness ⭐️#Achalasia Awareness Month ⭐️Childhood #Cancer Awareness Month ⭐️#lopecia Awareness Month ⭐️#Lymphoma Awareness Month ⭐️National Guide Dog Month ⭐️National #Hydrocephalus Awareness Month ⭐️National #Suicide Prevention Awareness Month ⭐️Orthostatic Tremor Awareness Month ⭐️Ovarian Cancer Awareness Month ⭐️#Pain Awareness Month ⭐️Peripheral Artery Disease (PAD) Awareness Month ⭐️Polycystic Ovary Syndrome Awareness Month ⭐️Prostate Awareness Month ⭐️Spinal Cord Injury Awareness Month ⭐️Thyroid Cancer Awareness Month ⭐️World #Alzheimers Disease Month 💫Sep 5 Disability Awareness Day 💫Sep 7 Duchenne Muscular Dystrophy 💫Sep 9 International Fetal Alcohol Spectrum Disorder Awareness Day (FASD) 💫Sep 13 #Celiac Disease Awareness Day 💫Sep 15 World Lymphoma Awareness Day – Hodgkin’s Lymphoma 💫Sep 18 National HIV/AIDS and Aging Awareness Day 💫Sep 19 Usher Syndrome Awareness Day 💫Sep 20-27 International Week of the Deaf 💫Sep 21 World Alzheimer’s Day 💫Sep 22 World Chronic Myeloid Leukemia (CML) Day 💫Sept 23 International Day of Sign Language 💫Sep 24 Atypical Hemolytic Uremic Syndrome (aHUS) Awareness Day 💫Sep 25 International Ataxia Awareness Day 💫Sep 26 Mesothelioma Awareness Day 💫Sep 30 Limb Girdle Muscular Dystrophy Awareness Day #disabilityawareness #musculardystrophy #servicedog #servicedogs #advocacy #disabled #disabilitypride #disabilityrights #disorder #mentalhealth #suicideawareness #disabilities #equality #equal #unity #equalrights #pride #servicedogtraining #servicedogintraining https://www.instagram.com/p/CTSjredpSHy/?utm_medium=tumblr
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Leah:
“IF you are ever wondering where I find my hope and determination, it is in this girl!
There was a day last week that Ali had a rough day, simply trying to understand why she had Muscular Dystrophy. She didn’t comprehend why her sisters were reaching milestones that she couldn’t. She just wanted to do something that brought her joy and made her feel included.
She just wanted to be able to ride a bike and run with her sisters. She wanted to be able to do these things without it being too hard and getting hurt. Today she is smiling from ear to ear as her sisters cheered her on during a one on one private with @sarajha21 . I sincerely can’t thank our @famous_superstars10 family enough for allowing my girl to feel apart of the family. Alis hope and determination through all circumstances always inspire me. I'm so blessed to be her momma.
I’m seriously so proud of her, and I know she felt so much joy leaving the gym today. Her smile and joy melted my heart. Y’all just don’t even know. I love you so much, sweet girl! Today seriously meant so much to my Ali girl! Thank you! #musculardystrophy #AliGirl #AliHope #awareness”
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for anyone that’s been reading clean the kitchen i just wanted to say there’s probably only going to be 2/3 chapters left. i wanted to take a moment to just say that writing this fic has been hard. it’s been something i wanted to learn about (grief, trauma) and write about in the most realistic sense of all when it comes to losing not only a loved one, but a child.
over the last week a family friend of mine has had their 16 year old son go onto life support after a bad bout of pneumonia. he’s suffered from duchenne’s muscular dystrophy his entire life, confined to a wheelchair. even though he is unable to talk, walk, communicate or show any signs of awareness to the world around him, he is the sweetest kid that i’ve known for the last ten years. to know his life support will but shut off in the next few days is frightening and so incredibly tragic.
i wrote clk knowing that it’d be a fic that probably a lot of people wouldn’t feel comfortable reading, and that’s absolutely fine, i wouldn’t expect anybody to read anything they didn’t want to - but during the process of writing the chapters i educated myself on other people’s stories i read on how a parent would deal with grief. i hadn’t expected to experience this in real life so soon.
because of this, i’ll be donating to the duchenne muscular dystrophy uk charity, in which the donations are used to help families in need of support.
clean the kitchen started off as a project to branch out as something difficult and more challenging for myself, and ended as something way more closer to home. seeing what this poor child’s mother is going through during this difficult time is heartbreaking, and all i could do in this moment is hope that my donation can help more mothers/fathers in her position, and that my fic may be of some kind of comfort to anyone going through this, or like me, knowing somebody going through this.
this is no means a way to promote my fic, i’ve just been feeling all kinds of emotions this week and i feel like it’d be a wasted opportunity not to promote the charity here where anybody can donate to such a good cause if they wish to do so.
thank you so much, and i’m here if anyone needs to talk.
the website to donate can be found here ❤️
#sorry for the ramble#but i felt like this is what i needed to do#thank you 🖤#tw death mention#phan#<- adding it to the tag to boost#❤️❤️❤️
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“I WAS BORN FOR SOMETHING GREATER THAN I WAS--AND GREATER I WOULD BECOME.” | MARY SHELLEY
BASIC INFORMATION
FULL NAME: Ronan Ivarsson
MEANING:
RONAN ( IRISH ) - “LITTLE SEAL”
IVARSSON ( SWEDISH ) - “SON OF IVAR”
NICKNAME(S): Ronan has never had a nickname, and would never allow someone to call him by a nickname. He’s only ever been Ronan, even to both of his parents. The only acceptation would be if someone called him by his last name.
PREFERRED NAME(S): Ronan
BIRTH DATE: December 13th, 1980
AGE: 39
ZODIAC: Sagittarius
GENDER: Male
PRONOUNS: He / His
ROMANTIC ORIENTATION: Biromantic
SEXUAL ORIENTATION: Bisexual
NATIONALITY: Italian
ETHNICITY: Swedish
CURRENT LOCATION: Verona, Italy
LIVING CONDITIONS: Ronan lives in an expensive top floor penthouse near the center of Verona, which is furnished exactly to his tastes--dark wood, sleek metals, dark leather. He bought it shortly after being married to Lucien, but his husband rarely ever stays for more than a couple of days or weeks, which means that most of the time Ronan lives alone. It is also outfitted to be more accessible for him.
TITLE(S): Richard III, The Vice, Councilman
BACKGROUND
BIRTHPLACE / HOMETOWN: Stockholm, Sweden / Verona, Italy
SOCIAL CLASS: Ronan was born into a wealthy, upper class family, and his wealth has only increased since he became the sole bearer of that family name. He considers himself to be among Verona’s elite, though in the end he holds no love for that title--in his own mind, he is better than everyone in Verona.
EDUCATION LEVEL: Ronan graduated university with a degree in political science.
FATHER: Magnus Ivarsson
MOTHER: Joanna Ivarsson.
SIBLING(S): None as far as he knows, but his parents cheated on each other throughout their marriage, and his mother could have very well had other children without telling him.
CHILDREN: None
PET(S): None
OTHER IMPORTANT RELATIVES: All of Ronan’s other relatives are back in Sweden, and he does not communicate with them. (No brothers or nephews to do anything horrible to--yet!)
PREVIOUS RELATIONSHIPS:
Caleb Tallmadge: An intern at the American embassy, who was Ronan’s first serious boyfriend right out of college.
Rafaella Capulet: The love of his life, his soulmate as far as he’s concerned. Their relationship deteriorated when he became a member of the Montagues, and with the exception of one night after Ronan became engaged to Lucien, they have not spoken since.
Lucien Ivarsson: Ronan’s husband, who he met shortly after things with Rafaella fell apart. Ronan fell out of love with him quickly, and their relationship is barely functional at the present--they appear in public together before going their separate ways, with the exception of rare moments where they fall together violently.
Renzo Carozza: A distraction bordering on an addiction.
ARRESTS?: None.
PRISON TIME?: None.
OCCUPATION + HOME
PRIMARY SOURCE OF INCOME: Ronan is an elected councilman in the city of Verona, and his family has several investments that he manages.
SECONDARY SOURCE OF INCOME: His salary as a Montague Soldato--a trifle in comparison to what he already has, however, he isn’t interested in earning money from the position.
CONTENT WITH THEIR JOB (OR LACK THERE OF)?: Ronan loves being the center of attention, and the power that he commands as a politician. His ambition extends far beyond his current office however, and he’d like to eventually run for more prestigious positions.
PAST JOB(S): Ronan interned with the mayor’s office right out of college, and steadily worked his way to his current position. He has only ever worked in politics.
SPENDING HABITS: Ronan felt like an outsider growing up, so he uses his money to purchase the life he feels like he deserves, the life he always wanted. As long as he has money, and lots of it, he feels safe--it’s as much an armor as the designer suits he puts on every day. He’s always aware of exactly how much he has, and ways that he could obtain more.
MOST VALUABLE POSSESSION: A first edition of Frankenstein, his favorite novel. He bought it right after his mother died and he became the sole heir of the Ivarsson fortune.
SKILLS + ABILITIES
PHYSICAL STRENGTH: 4/10
Ronan was born with limb-girdle muscular dystrophy, which means that the muscles of his arms and legs are very weak. He does what he can to stay as good of shape as possible, and he is capable of doing the bare minimum required of a Montague soldier.
OFFENSE: 4/10
Ronan would prefer not to get into a physical altercation, but he knows the bare minimum of fighting techniques. He can throw a punch with accuracy, that would hurt reasonably. His strength is his ability to see other people’s weaknesses fairly quickly, and fight cleverly.
DEFENSE: 5/10
Defense requires less physical exertion, which means Ronan is stronger in that area.
SPEED: 0/10
Ronan walks with a cane, and isn’t really capable of running.
INTELLIGENCE: 10/10
Because he can’t fight with his fists, Ronan made his mind into a weapon. He’s well read, he attended one of the finest universities where he attained excellent grades, and he is well studied in the arts of manipulation. He can read people’s facial expressions with astounding accuracy, he is excellent at verbally manipulating people into action, and more than anything, he is capable of inspiring great loyalty in people through deception, though words, through the weaknesses they were so certain they could hide. Its the same principle as your other senses heightening when one is deprived--Ronan couldn’t fight physically, so he made sure every other power he possessed worked at maximum capacity.
ACCURACY: 5/10
The muscles in Ronan’s arms and shoulders are weak, but he can sustain the position necessary to fire a gun long enough to be average with it.
AGILITY: 0/10
Ronan is not agile at all--his muscles are too weak to allow him to do anything agile.
STAMINA: 7/10
Ronan is used to pain--his spine and his shoulders, his legs, all cause him pain on a regular basis. His daily life requires an amount of stamina that the average person doesn’t have to exert.
TEAMWORK: 0/10
He allows others to think they’re working with him, that they’re part of a team with him, but he’s always looking out for himself and his own designs first and foremost. Other people are merely pieces he can move around, or discard, as they present themselves as useful to him.
TALENTS: Ronan is excellent at public speaking, and his public persona is very magnetic. He is skilled at manipulating people, at reading their faces, at ferreting out their weaknesses. He played the violin growing up and still plays occasionally when he needs to clear his mind, and he enjoys playing chess.
SHORTCOMINGS: Ronan is incredibly narcissistic, with little to no empathy for anyone. He cares exclusively for himself and the things that he wants, and he doesn’t care who he has to hurt, whatever he has to do, in order to get them. He is also incredibly greedy, and one of his primary interests is getting more money for himself.
LANGUAGE(S) SPOKEN: Italian, Swedish, Latin, English
DRIVE?: No, he’s always had a driver.
JUMP-START A CAR?: No, that’s what mechanics or new cars are for.
CHANGE A FLAT TIRE?: No.
RIDE A BICYCLE?: No, he physically can’t.
SWIM?: Yes.
PLAY AN INSTRUMENT?: Yes, he plays the violin on occasion.
PLAY CHESS?: Yes, and at a high level.
BRAID HAIR?: No.
TIE A TIE?: Absolutely, a nice tie can make or break an outfit.
PICK A LOCK?: Yes.
PHYSICAL APPEARANCE + CHARACTERISTICS
FACE CLAIM: Joel Kinnaman
EYE COLOR: Brown
HAIR COLOR: Blonde
HAIR TYPE/STYLE: He likes to stay pretty trendy--his current haircut is short on the sides and long on top, slicked back.
GLASSES/CONTACTS?: None.
DOMINANT HAND: Right
HEIGHT: 6′2 at his full height, but he usually is hunched over to varying degrees, rendering him about 5′10-6′0 to the eye.
WEIGHT: 165
BUILD: He has a solid build, keeps what muscle he’s able to gain.
EXERCISE HABITS: Swimming, lifting weights, physical therapy.
SKIN TONE: Pale, but he tans pretty easily.
TATTOOS: None, mostly because of his physical condition--but that could change if he found a person he trusted to give him one ;)
PIERCINGS: None.
MARKS/SCARS: He has various scars from his work as a Montague soldier, and a few from when his mother was feeling particularly vindictive.
NOTABLE FEATURES: Keen and sharp eyes, a mouth that seems to always be smirking to some degree, a sharp jawline.
USUAL EXPRESSION: Pensive, like he’s looking for a weakness in your armor you didn’t even know you had, like he can see straight through you.
CLOTHING STYLE: Designer suits, designer t-shirts and jeans, luxurious fabrics that feel nice against his back and shoulders, expensive watches, silk ties, all neutral and dark colors. Even his casual is dressed up from the average person. He also has several different canes with different heads on them.
JEWELRY: He has a weakness for a nice watch, and if he’s in public he’s probably wearing his wedding ring. He also considers a cane as an accessory, and changes which one he uses depending on what he’s wearing.
MAKEUP: None.
ALLERGIES: None.
DIET: He never had to cook for himself, so he generally orders out from Verona’s nicer restaurants. He drinks socially, and doesn’t really indulge in sugar that often. If Lucien is there and feels like cooking, he’ll eat whatever his husband makes.
PHYSICAL AILMENTS: Ronan was born with limb-girdle muscular dystrophy, which means the muscles in his arms, shoulders, and legs are weakened. His lower back is curved, and the bones of his shoulders protrude in something called “scapular winging”. He wears a back brace most of the time to prevent a pronounced hunch and to lessen the pain in his spine, and he attends physical therapy anywhere from once to three times a week to deal with it.
PSYCHOLOGY
JUNG TYPE: ENTP
ENNEAGRAM TYPE: Type 3, The Achiever. The success-oriented, pragmatic type: adaptable, excelling, driven, and image conscious.
MORAL ALIGNMENT: Lawful Evil
TEMPERAMENT: Choleric
ELEMENT: Fire
PRIMARY INTELLIGENCE TYPE: Intra-personal Intelligence.
MENTAL CONDITIONS/DISORDERS: None officially diagnosed--a case could probably be made for narcissistic personality disorder.
SOCIABILITY: Ronan is very sociable--after being forced to the shadows throughout his entire childhood, he loves nothing more than commanding a room, than being the center of everyone’s attention. He doesn’t care about people on a deeper level than that, but he likes being around them--he’d be a terrible politician if he wasn’t able to make people believe that they liked him, that he had their best interests at heart. Again I quote Les Miserables, “He was a charming young man, capable of being terrible.”
EMOTIONAL STABILITY: Ronan doesn’t allow his emotion to get the better of him most of the time--he believes that emotion gets in the way of logic, prevents people from making the best, most rational decisions. He’d like to be cold and unfeeling, but more often than not his heart has a habit of getting in the way. He genuinely fell in love with Rafaella, it genuinely hurt when she left him, etc. He has a temper, but he’s worked very hard on keeping it under control.
OBSESSION(S): power and money, being understood.
COMPULSION(S): He doesn’t feel compelled to do anything--he refuses to be compelled to do anything. He is always in control.
PHOBIA(S): Failure, Irrelevance.
ADDICTION(S): Ronan isn’t addicted to anything.
DRUG USE: Nothing recreationally.
ALCOHOL USE: He drinks socially, but he likes to be fully in control, fully able to observe everyone and everything going on around him.
PRONE TO VIOLENCE?: Absolutely, violence is the quickest way to come to solutions, or to prove that you’re more powerful than your opponent. Violence is necessary if you want to get anywhere in Verona.
MANNERISMS
SPEECH STYLE: Clear, properly enunciated, verbose.
ACCENT: Italian
QUIRKS: Twisting his wedding ring, tapping his fingers against a nearby surface, never quite smiling, rubbing his hand over the juncture between his neck and shoulder.
HOBBIES: Reading, playing chess, playing the violin, occasionally strolling through art galleries. He doesn’t have a lot of leisure time, and prefers to be actively doing something useful.
NERVOUS TICKS: Twisting his wedding ring primarily, other than that he doesn’t like to show weakness, and has trained himself out of having a lot of ticks.
DRIVES/MOTIVATIONS: Ronan was cast aside the minute he was born, told repeatedly that he was monstrous simply because of a twist of fate that he had no control over. He wants to prove just how monstrous he truly is, and that he is capable of so much more than anyone ever thought he would be--he wants to see the faces of everyone in Verona when the monster they created comes to his throne to lead them. He wants control of the Montagues, the Capulets, and he wants control of Verona.
FEARS: failure, being alone, becoming anything like either of his parents.
POSITIVE TRAITS: intelligent, charismatic, perceptive.
NEGATIVE TRAITS: manipulative, cruel, self-centered
SENSE OF HUMOR: dry, sarcastic, often at the expense of whoever he’s talking to.
DO THEY CURSE OFTEN?: Not really, he thinks it betrays a lack of intelligence. But if he feels like the person he’s talking to will respond better to it, he’ll let something slip.
FAVORITES
ACTIVITY: Working, visiting Renzo at The Dark Lady, scheming.
ANIMAL: He compares himself to a wolf, or to a snake--vicious, hungry, frightening creatures.
BEVERAGE: Vodka Martini
BOOK: Frankenstein, Il Principe, We Have Always Lived in the Castle, Memoirs of Hadrian, The Art of War, Wuthering Heights
COLOR: Navy Blue
DESIGNER: Yves St. Laurent, Burberry, Gucci
FOOD: Food isn’t really something he enjoys--its an annoyance he has to put up with in order to survive.
FLOWER: Hellebore
GEM: Sapphire
HOLIDAY: Ronan thinks holidays are trivial, and generally ignores them.
MOVIE: Todd Browning’s 1931 adaptation of Dracula, Andrea Arnold’s 2011 adaptation of Wuthering Heights, Lawrence of Arabia
QUOTE/SAYING:
“beware, for I am fearless and therefore powerful. I will watch with the wiliness of a snake, that I may sting with its venom. Man, you shall repent of the injuries you inflict.”
-MARY SHELLEY, FRANKENSTEIN
SCENT: Amouage--Jubilation XXV Man
SPORT: None.
TELEVISION SHOW: Hannibal, Game of Thrones, The Tudors
WEATHER: Dark and stormy.
VACATION DESTINATION: His family owns property in Sweden that he has a few vaguely fond memories of. He also owns a place in Rome that he likes to go to when he needs space.
ATTITUDES
GREATEST DREAM: To basically fashion himself a kind of king in Verona. He may be named after Richard III, who tried to do the same thing, but Ronan vows that he will be successful where is namesake failed.
MOST AT EASE WHEN: He’s by himself and doesn’t have to wear any kind of mask--the only person he can fully trust is himself, therefore in private he puts forward the least amount of effort to disguise himself.
LEAST AT EASE WHEN: His family is mentioned--particularly anything having to do with their deaths. He used to be at ease whenever Lucien was around, but in the present he feels like he has to be on his guard, whenever his husband decides to show his face.
WORST POSSIBLE THING THAT COULD HAPPEN: Someone manages to outplay him, to reveal his machinations and get him killed.
BIGGEST ACHIEVEMENT: Being elected to the Verona city council, taking his family fortune for himself, becoming bigger than the abuse his parents hurled at him.
BIGGEST REGRET: Letting Rafaella walk away from him, marrying Lucien in an effort to fill the hole that she left.
TOP PRIORITIES: Ascending in the ranks, eliminating anyone who he sees as a potential threat, gathering allies to himself.
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What Made Me Smile This Week:
Monday 2/04: Cuddling up with a good book on a cold night made me smile tonight.
Tuesday 2/05: Eating my favorite beer cheese soup while watching the snow fall outside made me smile.
Wednesday 2/06: The back of our apartment overlooks a small parking lot. The mound of snow that has amassed over repeated plowings this week is now taller than our 2nd story window. There’s also heavy snow forecasted every other day for the next six days. Experiencing the true ridiculousness of my first Minnesota winter makes me smile.
Thursday 2/07: This morning I performed the final of six presentations for an elementary school in New York. Every single grade level was highly attentive and eager to ask me all sorts of things about my life, work, and disability. Spreading disability awareness to kids makes me smile.
Friday 2/08: My dad just sent me a video of himself plugging in and playing the first electric guitar he’s built in over 25 years! He used to build them much more frequently, but now that Andrew and I are grown adults, he finally has the time to pursue this passion again. The guitar looks sick, and the smile on his face as he played the first riff made me smile.
Saturday 2/09: Registration has barely been open for a week and we already have people from six states and two countries signed up to run in our annual Laughing At My Nightmare 5K Run, Walk, and Roll! That makes me smile very big. You can participate from anywhere in the world, and every dollar we raise helps us provide vital equipment to people living with muscular dystrophy! To register, visit: https://www.laughingatmynightmare.com/5k
Sunday 2/10: I got myself some spiffy new kicks. Yes, they’re women’s. Don’t care. They make me smile.
What made you smile this week?
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What do I do? Where do I work?
Figure it out.
I work at a service that everybody wishes they didnt need. The first visits often scary. The last visits often when the worst has happened.
What is the worst? The worst is when their child/sibling/grandchild/nephew or niece or friend has died.
I work at a service that this week (written a while ago): Hosted a BBC radio show, live from the play room.
A service where some guests had a jacuzzi everyday. A service with live music on some days. And a visit from a Golden Retriever on another. A service that had a boat trip recently, and a big event where people ran through coloured bubbles, and last year we had our own fireworks display!
A service full of singing, laughter, great food, baking.
A service full of support, sibling support, play teams, social work, family support, medical support, bereavement support. Then of course, outreach support and the support of the nurses and carers on the care team each day.
A team which would not function without fundraisers, who get creative, without donations from people who pay attention we would not survive as a service.
You've probably figured it out now, but just in case you haven't, here are a few things I've done in the year I've worked there:
- Supported and splashed with many children in the jacuzzi, and with families.
- Eaten many meals with families
- Given many children blended diets via their gastrostomy
- Been in a lot of fancy dress
- Given a lot of medications
- Completed a lot of care plans with families
- Supported a crying parent
- Supported a seizing child
- Done a lot of singing
- Watched a tonne of Peppa pig
- Suctioned the airways of children to help them breathe
- Cleaned a lot of bums
- Cried
- Read a lot of stories
- Liased with funeral directors and coroners
- Liased with schools
- Met Jack Whitehall when he visited
- Quickly put oxygen on a child losing colour
- Dressed as one of Santas helpers
- Seen many children after they have died.
- Dressed a few children after they have died.
- Been to the cinema with patients and staff
- Had a monkey on my shoulder at work once
- Met a penguin at work once
- Read a child the last story they ever heard
- Spent my every moment trying to make a childs last days pain free
- Lots of visits to the ice cream parlour
- Lots of painting
- Been invited to many childrens funerals
- Been chased by children with fake swords
- Been a listening ear for parents at whatever time, in person or on the phone
- learnt about many conditions and syndromes
- and diseases and cancers
- Met some incredibly resilient people (staff, patients and families)
- hugged parents just after their child has died.
- prepared aunts and uncles before they seen their loved one, after they have died.
- had many really hard discussions
- and laughed, lots.
- smiled, lots.
More about the service again?
We are a service that our families use to cope, to catch up on sleep, to step back and just be mum and dad (not also a medic, nurse, physio, carer etc), a service that allows parents to put down a few of their worries and responsibilities for a while and relax. A service that enables parents to get a break so they can keep caring for their child, with very complex health needs, when they go home. A service that allows teenagers with complex health to have a break from parents also, a little bit more independence if that's what they want, and a step away where people know their needs. Once you use our services, we are somewhere to contact when your child is sick and you need advice, a place that understands the complexities of your situation, a place here to help wherever we can.
A place to fall if your child has a terminal illness. A place where people are gathered to care for your child, and your family.
Have you guessed?
I am a nurse at a children's hospice.
Usually, people get some of what I do right, because hospice connitates death - and yes, we do have children who come to stay with us as they die, that is a huge part of what we do... but we also support many families who have children that are not actively dying, but have a condition or disease that means they are expected to die before they turn 19. A child with complex needs, a degenerative condition, a progressive illness, or high risk because of episodes such a seizures, respiratory arrest, cardiac disorders, muscular dystrophy, brain damage etc etc. We have children who have fallen victim to a brain tumour that was too aggressive to fix. Children who are dying of a number of cancers, cardiac disorders, metabolic conditions and many more I am yet to meet and care for.
We care for them. We care for their families. We try to take some weight off the shoulders of families who always have to do more, often whose whole lives are about this sick child, whose every day centres around their care needs. When a child dies, we try to support them to have it in the way they and their family would prefer. The most comforting way, whilst managing distressing symptoms the child may have.
It is both utterly joyous and heart breaking. I love working there. It's the biggest privilege in the world.
But I wish, above anything, that people understood more of what a children's hospice is about, people can understand that my job is sad, yes, but it is also so so full of love and joy and happiness. I wish people understood this, not for me, but for the families who are afraid to use us, but could hugely benefit from it. Families who are exhausted, who spend their lives wrapped in medical supplies and stress, who could really do with meeting other families in a similar position, with staff who understand and doctors on hand to always give advice and to teach parents how to cope with new symptoms. Parents who don't yet realise that we support in the home as well as in the hospice, and that continues when a child is actively dying if a family wants it to be facilitated at home.
A children's hospice, like Helen and Douglas House, does so much more than people are aware.
I love my job, its ever changing but always meaningful and I hope people can come to understand and support this vast service more.
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Holidays 6.20
Holidays
Bald Eagle Day (a.k.a. American Eagle Day)
Brownie 620 Day
Clean Air Day (EU)
Datsun 620 Day
Day of Remembrance of the Victims of the Ossentian Genocide (South Ossetia)
Flag Day (Argentina)
Gas Sector Day (Azerbaijan)
Guru Rinpoche Day (Bhutan)
Hike with a Geek Day
International Asteroid Day
International Day of Nikkei
International Horseshoe Crab Day
International Nystagmus Awareness Day
International Tennis Day
Loch Ness Day
Martyrs’ Day (Eritrea)
Naked Hiking Day
National Celluma Light Therapy Day
National eGiving Day
National Goat Day
National Heroes’ Day (Bermuda)
National Hike with a Geek Day
National Jimmy Day
National Kissing Day (UK)
National Neuroscience Nurses Day (Canada)
National Public Display of Affection Day
National Seashell Day
National Surveillance Camera Day (UK)
National Yard Games Day
New Identity Day
Nystagmus Awareness Day (a.k.a. Wobbly Wednesday)
Oat Day (French Republic)
Oxford Charter Day
Ratha Yathra (a.k.a. Kang; Manipur, Odisha; India)
Sack of Baltimore (Ireland)
Sea Serpent Day (Plymouth, Massachusetts)
620 Day
Tall Girl Appreciation Day
Toad Hollow Day of Thank You
Vitamin Discovery Day
World Facioscapulohumeral Muscular Dystrophy Day
World Peace & Prayer Day
World Productivity Day
World Psychedelics Day
World Refugee Day (UN)
World Wi-Fi Day
Food & Drink Celebrations
Drink Chenin Blanc Day
Dunkin Iced Coffee Day
Flitch of Bacon Day (UK)
Ice Cream Soda Day
National Kouign Amann Day
Plain Yogurt Day
Vanilla Milkshake Day
Vinegar Day
Independence & Related Days
Aedeland (a.k.a. Republic of Aedeland, Declared, 943) [unrecognized]
Nixland (Declared, 2014) [unrecognized]
West Virginia Statehood Day (#35; 1863)
3rd Thursday in June
Dump the Pump Day [3rd Thursday]
International Knock Knock Day [3rd Thursday]
Recess At Work Day [3rd Thursday]
Social Mobility Awareness Day (UK) [3rd Thursday]
Throwback Thursday [Every Thursday]
World Kidney Cancer Day [3rd Thursday]
World Tapas Day [3rd Thursday]
Weekly Holidays beginning June 20 (3rd Full Week)
World Refugee Week (Australia) [week including 6.20]
Festivals Beginning June 20, 2024
Barefoot Country Music Festival (Wildwood, New Jersey) [thru 6.23]
Bartender Spirits Awards (San Francisco, California)
Belgrade Beer Fest (Belgrade, Serbia) [thru 6.23]
CiderFeast East Coast Tour (Haverhill, Massachusetts)
Cottage Grove Strawberry Fest (Cottage Grove, Minnesota) [thru 6.23]
Cranberry Blossom Festival (Wisconsin Rapids, Wisconsin) [thru 6.23]
Encounters South African International Documentary Festival (Cape Town, South Africa) [thru 6.30]
Farmington Dew Days (Farmington, Minnesota) [thru 6.23]
Haubstadt Sommerfest (Haubstadt, Indiana) [thru 6.22]
Herb Society of America Educational Conference (Malvern, Pennsylvania) [thru 6.21]
International Diaghilev Festival (Perm, Russia) [thru 6.29]
Isle of Wight Festival (Newport, Isle of Wight, United Kingdom) [thru 6.23]
JazzAscona [Ascona Jazz Festival] (Ascona, Switzerland) [thru 6.29]
London Strawberry Festival (London, Ohio) [thru 6.22]
National Arts Festival (Grahamstown, South Africa) [thru 6.30]
Pittston Fair (Pittston, Maine) [thru 6.23]
Placer County Fair (Roseville, California) [thru 6.23]
Quahog Day (Cataumet, Massachusetts)
Sommeliers Choice Awards (Chicago, Illinois)
Stilldream Festival (Wilseyville, California) [thru 6.24]
Summerfest (Milwaukee, Wisconsin) [thru 7.6]
Taste of Tippecanoe (Lafayette, Indiana)
Telluride Bluegrass Festival (Telluride, Colorado) [thru 6.23]
Feast Days
Adalbert of Magdeburg (Christian; Saint)
Bain, Bishop of Terouanne (a.k.a. Bagnus; Christian; Saint)
Carista (Day of Peace in the Family; Pagan)
Day of Cerridwen (Welsh Goddess of Barley)
Day of the Purification of All Things (Ancient Egypt)
Feast of the Irish Martyrs
Festival of Saint Joan begins (Spain)
Festival of Summanus (Ancient Roman god of the night sky & nocturnal thunder)
Festival of the New Knee (Shamanism)
Florentina (Christian; Saint)
Georges Dufrénoy (Artology)
Gobain (Christian; Martyr)
Idaberga (a.k.a. Edburge) of Merica (Christian; Saint)
Iron Skegge’s Day (Vikings)
Jacques Saly (Artology)
John of Matera (Christian; Saint)
Josephine Winslow Johnson (Writerism)
Joseph Smith Day (Church of the SubGenius; Saint)
Kubik (Muppetism)
Kurt Schwitters (Artology)
Magdalena Abakanowicz (Artology)
Margareta Ebner (Christian; Blessed)
Methodius of Olympus (Christian; Saint)
Michelina of Pesaro (Christian; Saint)
Omer (Christian; Saint)
Otho the Great (Positivist; Saint)
Paul Muldoon (Writerism)
Scira (a.k.a. Skirophoria; Festival for Demeter; Ancient Greece)
Silverius, Pope (Christian; Martyr)
Solstice [1st Day of Summer in Northern Hemisphere] (a.k.a. ...
Acophony (G’BroagFran of Anti-Music; Church of the SubGenius)
Alban Hefin (a.k.a. Litha or Midsummer; Celtic, Pagan) [4 of 8 Festivals of the Natural Year]
Aimless Wandering Day
Anne and Samantha Day
Aymara New Year (Año Nuevo Aymara; Bolivia)
Cuckoo Warning Day (it will be a wet summer if the cuckoo is heard today)
Daylight Appreciation Day
Day of Private Reflection
Day of the Martyrs (Togo)
Feast of the Great Spirit (Native American)
Fête de la Musique
Finally Summer Day/Finally Winter Day
Hump Day (Tasmania)
Indigenous New Year (We Tripantu; Año Nuevo Indígena; Chile)
International Day of the Celebration of the Solstice
Into Raymi (Incan Sun God Festival; Sacsayhuamán Andes Mountain Natives)
Jaanipäev (Estonia)
Jāņi (Latvia)
Juhannus Day (Finland)
Kupala (fertility rite)
Kupala Night (Ukraine, Belarus, Poland, Russia)
Litha (Wiccan/Pagan; northern hemisphere)
Midnight Sun Festival (Nome, Alaska)
Midsomarsblog (Norse celebration of fishing, trading & raiding)
Midsummer
Midsummer Baal (Celtic)
National Celluma Light Therapy Day
National Daylight Appreciation Day
National Day of Greenland
National Energy Shopping Day
Polar Bear Swim (Nome, Alaska)
Saint Jonas' Festival (Lithuania)
Solsticio de Invierno (Bolivia)
Sommar Börjar (Sweden)
Summer Saucestice (Pastafarian)
Tall Girl Appreciation Day
Tiregān (Iran)
Wadjet (Ancient Egypt)
We Tripantu (winter solstice festival in the southern hemisphere; Chile)
Wianki (Poland)
Willkakuti (Andean-Amazonic New Year; Aymara)
World Humanist Day
World Peace and Prayer Day
Yule (Wiccan/Pagan; southern hemisphere)
Takekiri Eshiki Matsuri (Bamboo Cutting Festival; Japan)
Watching the Ferns Day (Starza Pagan Book of Days)
World Juggling Day (Pastafarian)
Islamic Lunar Holidays
Eid al-Adha, Day 5 [Muslim Feast of Sacrifice] (a.k.a. ...
Al Adha (Egypt)
Eid al Adha (Iraq, Jordan, Kuwait, Oman, Qatar, Yemen)
Eid ul-Ad’haa (Maldives)
Lucky & Unlucky Days
Sensho (先勝 Japan) [Good luck in the morning, bad luck in the afternoon.]
Yellow Day [Happiest day of the year.]
Premieres
Abraham Lincoln: Vampire Hunter (Film; 2012)
The Palm-Wine Drinkard, by Amos Tutuola (Novel; 1952)
Batman & Robin (Film; 1997)
Blonde on Blonde, by Bob Dylan (Album; 1966)
The Blue Lagoon (Film; 1980)
The Blues Brothers (Film & Soundtrack Album; 1980)
The Blue Train (Le Train Bleu), by Darius Milhaud (Ballet; 1924)
The Call of the Wild, by Jack London (Novel; 1902)
Carry On Camping (Film; 1969)
Chinatown (Film; 1974)
Clown of the Jungle (Disney Cartoon; 1947)
Count on the Saint, by Graham Weaver (Short Stories; 1980) [Saint #49]
Dangerously in Love, by Beyoncé (Album; 2003)
Don’t Be Cruel, by Bobby Brown (Album; 1988)
Double Vision, by Foreigner (Album; 1978)
Extinct Pink (Pink Panther Cartoon; 1969)
Fastest Tongue in the West (Tijuana Toads Cartoon; 1971)
Father’s Week-End (Disney Cartoon; 1953)
Friend or Phony (Fleischer/Famous Popeye Cartoon; 1952)
Get Smart (Film; 2008)
Happy Scouts (Oswald the Lucky Rabbit Cartoon; 1938)
Hare Trimmed (WB MM Cartoon; 1953)
Heart Break, by New Edition (Album; 1988)
HIStory: Past, Present and Future, Book I, by Michael Jackson (Album; 1995)
Hulk (Film; 2003)
Independence Day: Resurgence (Film; 2016)
Jaws (Film; 1975)
The Last of the Just, by Andre Schwarz-Bart (Novel; 1961)
A Leap in the Deep (Tijuana Toads Cartoon; 1971)
The Merchant of Venice, by William Shakespeare (Play; 1605)
Mickey’s Rival (Disney Cartoon; 1936)
Moving Day (Disney Cartoon; 1936)
My Best Friend’s Wedding (Film; 1997)
The Nifty Nineties (Disney Cartoon; 1941)
Nurse-Mates (Fleischer Popeye Cartoon; 1940)
One, by George Jones and Tammy Wynette (Album; 1995)
Picnic Panic (Color Rhapsody Cartoon; 1946)
The Reluctant Dragon (Disney Animated Film; 1941)
Rippling Romance (Color Rhapsody Cartoon; 1945)
Rommel, The Desert Fox, by Desmond Young (Biography; 1951)
Shanghaied Shipmates (WB LT Cartoon; 1936)
Superman: Brainiac Attacks (WB Animated Film; 2006)
Teenage Idol, recorded by Rick Nelson (Song; 1962)
Them, by Joyce Carol Oates (Novel; 1969)
To Hell and Back, by Audie Murphy (Memoir; 1949)
Tonight’s the Night, by Neil Young (Album; 1975)
A Touch of Class (Film; 1973)
The Trooper, by Iron Maiden (Song; 1983)
Unsafe at Any Speed, by Ralph Nader (Book; 1966)
Very Good, Jeeves! P.G. Wodehouse (Short Stories; 1930) [Jeeves #4]
Wee-Willie Wildcat, featuring Barney bear (MGM Cartoon; 1953)
A Wet Knight (Oswald the Lucky Rabbit Cartoon; 1932)
Yellowstone (TV Series; 2018)
Yesterday and Today (a.k.a. The Butcher Cover), by The Beatles (Album; 1966)
Today’s Name Days
Adalbert, Florentina (Austria)
Margareta, Naum (Croatia)
Květa (Czech Republic)
Sylverius (Denmark)
Kaari, Karlotte, Karola, Karoliine, Karolin, Lota (Estonia)
Into (Finland)
Silvère (France)
Adalbert, Florentina, Margot (Germany)
Methodios (Greece)
Rafael (Hungary)
Ettore, Silverio (Italy)
Imula, Maira, Rasa, Rasma (Latvia)
Silverijus, Žadvainas, Žintautė (Lithuania)
Salve, Sølve, Sølvi (Norway)
Bogna, Bogumiła, Bożena, Florentyna, Franciszek, Michał, Rafaela, Rafał, Sylwery (Poland)
Metodie (România)
Maria, Valeria (Russia)
Valéria (Slovakia)
Florentina, Silverio (Spain)
Flora, Linda (Sweden)
Earl, Earline, Errol, Fatima, Ofelia, Omar, Omarion, Ophelia (USA)
Today is Also…
Day of Year: Day 172 of 2024; 194 days remaining in the year
ISO: Day 4 of week 25 of 2024
Celtic Tree Calendar: Duir (Oak) [Day 12 of 28]
Chinese: Month 5 (Geng-Wu), Day 15 (Yi-Mao)
Chinese Year of the: Dragon 4722 (until January 29, 2025) [Wu-Chen]
Hebrew: 14 Sivan 5784
Islamic: 13 Dhu al-Hijjah 1445
J Cal: 22 Blue; Oneday [22 of 30]
Julian: 7 June 2024
Moon: 97%: Waxing Gibbous
Positivist: 3 Charlemagne (7th Month) [Otho the Great]
Runic Half Month: Dag (Day) [Day 12 of 15]
Season: Summer (Day 1 of 94)
Week: 3rd Full Week of June)
Zodiac: Gemini (Day 31 of 31)
Calendar Changes
Summer [Season 3 of 4; thru 9.22]
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Holidays 6.20
Holidays
Bald Eagle Day (a.k.a. American Eagle Day)
Brownie 620 Day
Clean Air Day (EU)
Datsun 620 Day
Day of Remembrance of the Victims of the Ossentian Genocide (South Ossetia)
Flag Day (Argentina)
Gas Sector Day (Azerbaijan)
Guru Rinpoche Day (Bhutan)
Hike with a Geek Day
International Asteroid Day
International Day of Nikkei
International Horseshoe Crab Day
International Nystagmus Awareness Day
International Tennis Day
Loch Ness Day
Martyrs’ Day (Eritrea)
Naked Hiking Day
National Celluma Light Therapy Day
National eGiving Day
National Goat Day
National Heroes’ Day (Bermuda)
National Hike with a Geek Day
National Jimmy Day
National Kissing Day (UK)
National Neuroscience Nurses Day (Canada)
National Public Display of Affection Day
National Seashell Day
National Surveillance Camera Day (UK)
National Yard Games Day
New Identity Day
Nystagmus Awareness Day (a.k.a. Wobbly Wednesday)
Oat Day (French Republic)
Oxford Charter Day
Ratha Yathra (a.k.a. Kang; Manipur, Odisha; India)
Sack of Baltimore (Ireland)
Sea Serpent Day (Plymouth, Massachusetts)
620 Day
Tall Girl Appreciation Day
Toad Hollow Day of Thank You
Vitamin Discovery Day
World Facioscapulohumeral Muscular Dystrophy Day
World Peace & Prayer Day
World Productivity Day
World Psychedelics Day
World Refugee Day (UN)
World Wi-Fi Day
Food & Drink Celebrations
Drink Chenin Blanc Day
Dunkin Iced Coffee Day
Flitch of Bacon Day (UK)
Ice Cream Soda Day
National Kouign Amann Day
Plain Yogurt Day
Vanilla Milkshake Day
Vinegar Day
Independence & Related Days
Aedeland (a.k.a. Republic of Aedeland, Declared, 943) [unrecognized]
Nixland (Declared, 2014) [unrecognized]
West Virginia Statehood Day (#35; 1863)
3rd Thursday in June
Dump the Pump Day [3rd Thursday]
International Knock Knock Day [3rd Thursday]
Recess At Work Day [3rd Thursday]
Social Mobility Awareness Day (UK) [3rd Thursday]
Throwback Thursday [Every Thursday]
World Kidney Cancer Day [3rd Thursday]
World Tapas Day [3rd Thursday]
Weekly Holidays beginning June 20 (3rd Full Week)
World Refugee Week (Australia) [week including 6.20]
Festivals Beginning June 20, 2024
Barefoot Country Music Festival (Wildwood, New Jersey) [thru 6.23]
Bartender Spirits Awards (San Francisco, California)
Belgrade Beer Fest (Belgrade, Serbia) [thru 6.23]
CiderFeast East Coast Tour (Haverhill, Massachusetts)
Cottage Grove Strawberry Fest (Cottage Grove, Minnesota) [thru 6.23]
Cranberry Blossom Festival (Wisconsin Rapids, Wisconsin) [thru 6.23]
Encounters South African International Documentary Festival (Cape Town, South Africa) [thru 6.30]
Farmington Dew Days (Farmington, Minnesota) [thru 6.23]
Haubstadt Sommerfest (Haubstadt, Indiana) [thru 6.22]
Herb Society of America Educational Conference (Malvern, Pennsylvania) [thru 6.21]
International Diaghilev Festival (Perm, Russia) [thru 6.29]
Isle of Wight Festival (Newport, Isle of Wight, United Kingdom) [thru 6.23]
JazzAscona [Ascona Jazz Festival] (Ascona, Switzerland) [thru 6.29]
London Strawberry Festival (London, Ohio) [thru 6.22]
National Arts Festival (Grahamstown, South Africa) [thru 6.30]
Pittston Fair (Pittston, Maine) [thru 6.23]
Placer County Fair (Roseville, California) [thru 6.23]
Quahog Day (Cataumet, Massachusetts)
Sommeliers Choice Awards (Chicago, Illinois)
Stilldream Festival (Wilseyville, California) [thru 6.24]
Summerfest (Milwaukee, Wisconsin) [thru 7.6]
Taste of Tippecanoe (Lafayette, Indiana)
Telluride Bluegrass Festival (Telluride, Colorado) [thru 6.23]
Feast Days
Adalbert of Magdeburg (Christian; Saint)
Bain, Bishop of Terouanne (a.k.a. Bagnus; Christian; Saint)
Carista (Day of Peace in the Family; Pagan)
Day of Cerridwen (Welsh Goddess of Barley)
Day of the Purification of All Things (Ancient Egypt)
Feast of the Irish Martyrs
Festival of Saint Joan begins (Spain)
Festival of Summanus (Ancient Roman god of the night sky & nocturnal thunder)
Festival of the New Knee (Shamanism)
Florentina (Christian; Saint)
Georges Dufrénoy (Artology)
Gobain (Christian; Martyr)
Idaberga (a.k.a. Edburge) of Merica (Christian; Saint)
Iron Skegge’s Day (Vikings)
Jacques Saly (Artology)
John of Matera (Christian; Saint)
Josephine Winslow Johnson (Writerism)
Joseph Smith Day (Church of the SubGenius; Saint)
Kubik (Muppetism)
Kurt Schwitters (Artology)
Magdalena Abakanowicz (Artology)
Margareta Ebner (Christian; Blessed)
Methodius of Olympus (Christian; Saint)
Michelina of Pesaro (Christian; Saint)
Omer (Christian; Saint)
Otho the Great (Positivist; Saint)
Paul Muldoon (Writerism)
Scira (a.k.a. Skirophoria; Festival for Demeter; Ancient Greece)
Silverius, Pope (Christian; Martyr)
Solstice [1st Day of Summer in Northern Hemisphere] (a.k.a. ...
Acophony (G’BroagFran of Anti-Music; Church of the SubGenius)
Alban Hefin (a.k.a. Litha or Midsummer; Celtic, Pagan) [4 of 8 Festivals of the Natural Year]
Aimless Wandering Day
Anne and Samantha Day
Aymara New Year (Año Nuevo Aymara; Bolivia)
Cuckoo Warning Day (it will be a wet summer if the cuckoo is heard today)
Daylight Appreciation Day
Day of Private Reflection
Day of the Martyrs (Togo)
Feast of the Great Spirit (Native American)
Fête de la Musique
Finally Summer Day/Finally Winter Day
Hump Day (Tasmania)
Indigenous New Year (We Tripantu; Año Nuevo Indígena; Chile)
International Day of the Celebration of the Solstice
Into Raymi (Incan Sun God Festival; Sacsayhuamán Andes Mountain Natives)
Jaanipäev (Estonia)
Jāņi (Latvia)
Juhannus Day (Finland)
Kupala (fertility rite)
Kupala Night (Ukraine, Belarus, Poland, Russia)
Litha (Wiccan/Pagan; northern hemisphere)
Midnight Sun Festival (Nome, Alaska)
Midsomarsblog (Norse celebration of fishing, trading & raiding)
Midsummer
Midsummer Baal (Celtic)
National Celluma Light Therapy Day
National Daylight Appreciation Day
National Day of Greenland
National Energy Shopping Day
Polar Bear Swim (Nome, Alaska)
Saint Jonas' Festival (Lithuania)
Solsticio de Invierno (Bolivia)
Sommar Börjar (Sweden)
Summer Saucestice (Pastafarian)
Tall Girl Appreciation Day
Tiregān (Iran)
Wadjet (Ancient Egypt)
We Tripantu (winter solstice festival in the southern hemisphere; Chile)
Wianki (Poland)
Willkakuti (Andean-Amazonic New Year; Aymara)
World Humanist Day
World Peace and Prayer Day
Yule (Wiccan/Pagan; southern hemisphere)
Takekiri Eshiki Matsuri (Bamboo Cutting Festival; Japan)
Watching the Ferns Day (Starza Pagan Book of Days)
World Juggling Day (Pastafarian)
Islamic Lunar Holidays
Eid al-Adha, Day 5 [Muslim Feast of Sacrifice] (a.k.a. ...
Al Adha (Egypt)
Eid al Adha (Iraq, Jordan, Kuwait, Oman, Qatar, Yemen)
Eid ul-Ad’haa (Maldives)
Lucky & Unlucky Days
Sensho (先勝 Japan) [Good luck in the morning, bad luck in the afternoon.]
Yellow Day [Happiest day of the year.]
Premieres
Abraham Lincoln: Vampire Hunter (Film; 2012)
The Palm-Wine Drinkard, by Amos Tutuola (Novel; 1952)
Batman & Robin (Film; 1997)
Blonde on Blonde, by Bob Dylan (Album; 1966)
The Blue Lagoon (Film; 1980)
The Blues Brothers (Film & Soundtrack Album; 1980)
The Blue Train (Le Train Bleu), by Darius Milhaud (Ballet; 1924)
The Call of the Wild, by Jack London (Novel; 1902)
Carry On Camping (Film; 1969)
Chinatown (Film; 1974)
Clown of the Jungle (Disney Cartoon; 1947)
Count on the Saint, by Graham Weaver (Short Stories; 1980) [Saint #49]
Dangerously in Love, by Beyoncé (Album; 2003)
Don’t Be Cruel, by Bobby Brown (Album; 1988)
Double Vision, by Foreigner (Album; 1978)
Extinct Pink (Pink Panther Cartoon; 1969)
Fastest Tongue in the West (Tijuana Toads Cartoon; 1971)
Father’s Week-End (Disney Cartoon; 1953)
Friend or Phony (Fleischer/Famous Popeye Cartoon; 1952)
Get Smart (Film; 2008)
Happy Scouts (Oswald the Lucky Rabbit Cartoon; 1938)
Hare Trimmed (WB MM Cartoon; 1953)
Heart Break, by New Edition (Album; 1988)
HIStory: Past, Present and Future, Book I, by Michael Jackson (Album; 1995)
Hulk (Film; 2003)
Independence Day: Resurgence (Film; 2016)
Jaws (Film; 1975)
The Last of the Just, by Andre Schwarz-Bart (Novel; 1961)
A Leap in the Deep (Tijuana Toads Cartoon; 1971)
The Merchant of Venice, by William Shakespeare (Play; 1605)
Mickey’s Rival (Disney Cartoon; 1936)
Moving Day (Disney Cartoon; 1936)
My Best Friend’s Wedding (Film; 1997)
The Nifty Nineties (Disney Cartoon; 1941)
Nurse-Mates (Fleischer Popeye Cartoon; 1940)
One, by George Jones and Tammy Wynette (Album; 1995)
Picnic Panic (Color Rhapsody Cartoon; 1946)
The Reluctant Dragon (Disney Animated Film; 1941)
Rippling Romance (Color Rhapsody Cartoon; 1945)
Rommel, The Desert Fox, by Desmond Young (Biography; 1951)
Shanghaied Shipmates (WB LT Cartoon; 1936)
Superman: Brainiac Attacks (WB Animated Film; 2006)
Teenage Idol, recorded by Rick Nelson (Song; 1962)
Them, by Joyce Carol Oates (Novel; 1969)
To Hell and Back, by Audie Murphy (Memoir; 1949)
Tonight’s the Night, by Neil Young (Album; 1975)
A Touch of Class (Film; 1973)
The Trooper, by Iron Maiden (Song; 1983)
Unsafe at Any Speed, by Ralph Nader (Book; 1966)
Very Good, Jeeves! P.G. Wodehouse (Short Stories; 1930) [Jeeves #4]
Wee-Willie Wildcat, featuring Barney bear (MGM Cartoon; 1953)
A Wet Knight (Oswald the Lucky Rabbit Cartoon; 1932)
Yellowstone (TV Series; 2018)
Yesterday and Today (a.k.a. The Butcher Cover), by The Beatles (Album; 1966)
Today’s Name Days
Adalbert, Florentina (Austria)
Margareta, Naum (Croatia)
Květa (Czech Republic)
Sylverius (Denmark)
Kaari, Karlotte, Karola, Karoliine, Karolin, Lota (Estonia)
Into (Finland)
Silvère (France)
Adalbert, Florentina, Margot (Germany)
Methodios (Greece)
Rafael (Hungary)
Ettore, Silverio (Italy)
Imula, Maira, Rasa, Rasma (Latvia)
Silverijus, Žadvainas, Žintautė (Lithuania)
Salve, Sølve, Sølvi (Norway)
Bogna, Bogumiła, Bożena, Florentyna, Franciszek, Michał, Rafaela, Rafał, Sylwery (Poland)
Metodie (România)
Maria, Valeria (Russia)
Valéria (Slovakia)
Florentina, Silverio (Spain)
Flora, Linda (Sweden)
Earl, Earline, Errol, Fatima, Ofelia, Omar, Omarion, Ophelia (USA)
Today is Also…
Day of Year: Day 172 of 2024; 194 days remaining in the year
ISO: Day 4 of week 25 of 2024
Celtic Tree Calendar: Duir (Oak) [Day 12 of 28]
Chinese: Month 5 (Geng-Wu), Day 15 (Yi-Mao)
Chinese Year of the: Dragon 4722 (until January 29, 2025) [Wu-Chen]
Hebrew: 14 Sivan 5784
Islamic: 13 Dhu al-Hijjah 1445
J Cal: 22 Blue; Oneday [22 of 30]
Julian: 7 June 2024
Moon: 97%: Waxing Gibbous
Positivist: 3 Charlemagne (7th Month) [Otho the Great]
Runic Half Month: Dag (Day) [Day 12 of 15]
Season: Summer (Day 1 of 94)
Week: 3rd Full Week of June)
Zodiac: Gemini (Day 31 of 31)
Calendar Changes
Summer [Season 3 of 4; thru 9.22]
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Text
What does it mean to be disabled?
Why don’t you get a job? That’s a question that I have heard by a few people. Most everyone assumes that I am not disabled in any way. I can walk, I can talk, I can go to the bathroom, I can pick things up, I can see, hear, smell, taste, feel, and I can go out to public places. I have a dog that I help take care of, a gf that I spend time with, and friends that I talk to and occasionally hang out with. So why would I and people similar to me possibly be considered disabled?
Well lets started with the definition of disabled: “having a physical or mental condition that limits movements, senses, or activities” and to get disability benefits you need “a disabling condition that will last more than 12 months or result in death”. As you probably already know, people of any race, religion, gender, sexuality, height, weight, and age can be disabled. Please understand that it is a very common misconception that disabled people need assistance to walk. Some disabled people can walk on their own all the time, some need help some of the time, some need a wheelchair part or half of the time, some need a wheelchair all of the time, and some are bedridden.
Here is an incomplete list of disabling conditions:
Addison’s Disease
Aging
Albinism
Alcoholism
Alzheimer’s
Amputation
ALS
Anxiety
Arthritis
Ataxia
ADHD
Auditory Processing Disorder
Autism
Back impairment
Bipolar
Bladder impairment
Bleeding disorder
Blindness
Brain injury
Burn injury
Cancer
Cataplexy
Cerebral Palsy
Charcot-Marie-Tooth
Chronic Fatigue Syndrome
Chronic pain
Colorblindness
Cumulative trauma
Deafness
Depression
Diabetes
Drug addiction
Dystonia
Eating Disorders
Ehlers-Danlos syndrome
Electrical sensitivity
Endometriosis
Epilepsy
Essential Tremors
FAS
Fibromyalgia
GERD
GI disordrs
Graves’ disease
Guillain Barre’ syndrome
Hearing impairment
Heart conditon
Hepatitis
HIV
Huntington’s disease
Intellectual impairment
Learning disability
Leg impairment
Low vision
Lupus
Lyme Disease
Marfan syndrome
Mental health impairments
MIgraine
Multiple chemical sensitivities
Multiple Sclerosis
Muscular Dystrophy
Myasthenia Gravis
Obesity
OCD
Paraplegia
Parkinson’s
Personality Disorder’s
Phobias
POTS
Polio
PTSD
Pregnancy(an exclusion to 12 months)
Quadriplegia
Raynaud’s disease
RSD
Renal/Kidney disease
Respiratory impairments
Sarcoidosis
Schizophrenia
SAD
Shingles
Sickle cell anemia
Skin conditions
Sleep disorders
Speech impairments
Spina Bifida
Stroke
Thyroid disorders
Tourette syndrome
Vertigo
So as you can see, disability can be invisible
Disability can be invisible
Disability can be invisible
Anyways, back to my disability story. Yesterday, I managed to do a sink full of dishes I hadn’t been able to do, wash and dry four loads of laundry (not even fold them), collect all the indoor trash, and sweep the back patio over the course of six hours. This was with many breaks, advil, and afterwards a nice, hot bath with CBD butter and epsom salt. This morning I woke up in moderate neck, back, stomach, shoulder, and thigh pain. More advil it was, even though it eats away at my already bad stomach, because it’s the only over the counter pain medicine that works for me. And this time it didn't even help.
Now imagine not just 6 hours, but 8 hours a day with only one break. For 5 days a week. For 50 weeks a year. Sometimes I’ll have a good day and think “I’m doing so good I could go get a job!” and then I’ll get depressed and be like “there’s no way”. Back at the end of when I did have a job and my GI issues got worse and my autoimmune issues came into play, 25 hours a week would have me in bed crying after every shift. I would go home early from shifts from unimaginable costochondritis pain that felt like electric stabbing shocks. I wasn’t able to do anything but work and do basic hygiene.
My daily life consists of urgent and painful trips to the bathroom, bouts of nausea and dizziness, having less money than I need, chronic pain in my muscles, joints, nerves, back, chest, stomach, intestines, and legs, severe dehydration, taking various medications (and more to come), and not enough energy to get all my basic chores done.
On top of all that physical stuff, I have anxiety, depression, and PTSD that is so bad that it has led to psychosis. I get panic attacks every time I get behind the wheel of a car, and therefore I can't drive. I have PTSD flashbacks from abuse that leave me sobbing. I have spent countless nights and hours crying in my bed or in the shower. I'm on medications that are helping, but I still have a looooong way to go.
You may ask: but don't you go out and do things? Yes I do. I have good days with little to no issues, normal days with some issues, and bad days with most to all issues. But I specifically do my shopping on my normal or good days and specifically do the physically exerting activities I need to do on my good days. I won't go out and do stuff or invite you over on my bad days unless we're really close and then you'll truly know what this is like.
That was just my average daily life, this does not include the other events that have happened in past 6 months including:
Losing 15 lbs unintentionally and being unable to gain it back, making me 2 lbs from under weight
Having several period cramps that were so bad I couldn't walk/talk correctly
Going to the ER for severe dehydration that caused me to have a bp of 76/22 and therefore I could hardly remain conscious
About a dozen doctors visits
Two pain episodes that were so bad I wanted to die
Three random finger joint dislocations
Three hallucinations
15 mouth sores in one day (not from an allergy)
Trying to commit suicide/going inpatient
Having a dizzy/weakness spell that caused me to fall in the shower
The only diagnosises I have so far are anxiety, depression, PTSD, costochondritis, and anemia. But the doctors also think I have endometriosis, Crohn's, and an autoimmune disease. I can't get disability without an actual diagnosis. I have been dealing with chronic pain for the past 6 years, since I was 15. And I am still here with a daily invisible struggle. I am going to have a rheumatologist, gastroenterologist, gynecologist, and diagnostics appointment. But some of these medical things can be expensive. Thank god I am still on my parents insurance.
I will keep fighting, I will keep perservering, I will keep moving forward everyday. I am skinny, am pretty, I am smart, I am "normal". I can walk, I can talk, I can go to the bathroom, I can pick things up, I can see, hear, smell, taste, feel, and I can go out to public places. I have a dog that I help take care of, a gf that I spend time with, and friends that I talk to and occasionally hang out with. I will have stabbing chest pains from breathing while having a conversation with you and you will never notice. And then I will go to the bathroom and take some advil.
Please share your disability stories
To help out some disabilities or struggles disabled people face:
Hotlines/helplines:
In general
1) they are available to call 24/7
2) they are 100% confidential
3) they are free
United States Elder Abuse
1-866-363-4276Child Abuse /Dept of Social Services 1-800-342-3720
Alcohol Treatment Referral 1-800-252-6465
Cocaine addiction 1-800-262-2463
Drug Abuse 1-800-662-4357
National Association for Children of Alcoholics 1-888-554-2627
Ecstasy Addiction 1-800-468-6933
American Cancer Society 1-800-227-2345
National Cancer institute 1-800-422-6237
Elder Care Locator 1-800-677-1116
Want to know Jesus? 1-800-NEED-HIM
Social Security Administration 1-800-772-1213
Crisis Pregnancy 1-800-67-BABY-6
National Domestic Violence 1-800-799-SAFE
Elder Abuse 1-800-252-8966
Eating Disorders Awareness and Prevention 1-800-931-2237
Eating Disorders Center 1-888-236-1188
National Association of Anorexia Nervosa and Associated Disorders 1-847-831-3438
Compulsive Gambling 1-410-332-0402
GriefShare 1-800-395-5755
Homeless 1-800-231-6946
American Family Housing 1-888-600-4357
LGBTQIA+ Helpline 1-800-398-GAYS
Gay and Lesbian National Hotline 1-888-843-4564
Poison Control (they will help with overdoses) 1-800-942-5969
S.A.F.E. (Self Abuse Finally Ends) 1-800-DONT-CUT
Project Know (sex addiction) 1-888-892-1840
Sex Addicts Anonymous 1-800-477-8191
Suicide Hotline 1-800-SUICIDE (784-2433) or
1-800-273-TALK (8255)
Suicide Prevention 1-800-827-7571
Deaf Hotline 1-800-799-4TTY
Crisis Intervention (717) 851-5320 or 1-800-673-249
If you have a disability please feel free to reach out to me
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