#MultiSystem

[willowreader]

This discovery has implications for other autoimmune diseases.

[sapphicautistic]

i am having Big Feelings today about how fast my life is burning out and how trying to live at all burns my life out even faster. i hate M.E. and i hate that we don't have any effective treatment yet beyond "don't do things that trigger the neuroimmune response" which when you have my level of M.E. is ANYTHING. like eating, using the bathroom, bathing, much less having conversations and a social life!!

i know i'm closer to sadness when i feel so sick like this but i'm so mad because all i did was write like, a couple tumblr posts and text with a couple people and i feel like i ran a fucking marathon with no training. i'm so so mad and sad and i hate being trapped in this decaying body!!!

[forensicfield]

The Intersection of Forensic Psychology and Mental Health: A Comprehensive Overview

Forensic Psychology is crucial in understanding criminal behavior and providing mental health care in the legal system. Authored by Prashansa Tripathi #forensicpsychology #forensicscience #mentalhealth #forensicstudy #forensicknowledge #crimescene

Continue reading The Intersection of Forensic Psychology and Mental Health: A Comprehensive Overview

[helenwhiteart-blog]

Super syndrome: taking a unified approach to all the things

As anyone long reading my posts will know (you just have to read my About section to hear much more on this topic) I have long believed that there is a whole bundle of health symptoms and conditions that very commonly overlap and which I strongly feel are connected; that, in fact, they need to be regarded as parts of a constellation of related things to make any sense of them at all. Finding…

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[oversease220volts]

220V to 110V Transformer: Reliable Power Conversion for Your Appliances

Understanding the Voltage Difference

Before delving into the world of transformers, it's crucial to understand the voltage difference between countries. Most of North America and Japan operate on a 110V power supply, while the rest of the world primarily uses 220V. This disparity can pose challenges when traveling or using foreign electronics.

What is a 220V to 110V Transformer?

A 220V to 110V transformer is a device that converts high-voltage alternating current (AC) to a lower voltage. Essentially, it bridges the gap between different electrical systems, allowing you to safely use your 110V appliances in countries with 220V power outlets.

How Does it Work?

A transformer utilizes the principle of electromagnetic induction. It consists of two coils of wire wrapped around a core. When an alternating current flows through the primary coil (connected to the 220V supply), it generates a changing magnetic field. This magnetic field induces a voltage in the secondary coil, which is designed to output 110V.

For More Information: https://overseas220volts.com/product-category/transformers/

Why Do You Need a Transformer?

Travel: When visiting countries with different voltage standards, a transformer ensures your electronics function correctly without damage.

Expatriate Living: If you're living abroad, a transformer allows you to use your familiar appliances from home.

Business Travel: For professionals frequently traveling between countries, a transformer is a must-have for uninterrupted work.

Choosing the Right Transformer

Power Rating: Determine the total wattage of the devices you'll be using and select a transformer with a higher power rating.

Portability: If you travel frequently, a compact and lightweight transformer is ideal.

Safety Features: Look for transformers with overcurrent and short-circuit protection for added safety.

Plug Compatibility: Ensure the transformer's plugs match the outlets in both your home country and your destination.

Safety Tips

Always check the voltage requirements of your devices before using a transformer.

Avoid overloading the transformer to prevent overheating.

Regularly inspect the transformer for any signs of damage.

Follow the manufacturer's instructions carefully.

[worldwidevoltage]

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[0dotexe]

Hey sorry to bug you but I saw your post in the tag and you’re the only other person I’ve seen on this site with multisystem inflammatory syndrome. I’m having a hard time accessing medical treatment and was wondering if you know of any groups for people dealing with this ?

Hey, you're not a bother at all, questions relating to health are always welcome.

Unfortunately, I'm not entirely sure, mainly because I wouldn't know where to look for that kind of thing (I don't really seek out group support, sorry), but what might help is looking for people who are dealing with long covid and/or seeing doctors who are keeping up to date with long covid research. You'd be surprised of what kind of symptoms can pop up from long covid outside of MIS.

A lot of support also initially depends on where you live. I live in a developing country and there's still not very much research being done about the effects of covid because of other health crises happening in the country. So it all depends on where you live if there's local support for your symptoms. Aside from that, MIS can only really be mitigated (never cured) through diet, rest, and exercise, just like most other chronic conditions.

Anyways, thanks for reaching out. Stay safe and have a good one.

[oysterlifestyle]

[fearecia]

@thebibliosphere

They are getting closer to creating a blood test for hEDS/HSD.

https://onlinelibrary.wiley.com/doi/10.1002/ajmg.a.63857

I mostly only skimmed it, but I read this and thought about the connection between MCAS flares and hEDS flares.

"Overall, these in vitro findings suggest a detrimental relationship between a pathological ECM [extracellular matrix] and an uncontrolled inflammatory response as a driving force behind the pathophysiology of hEDS and HSD. Specifically, an imbalanced ECM turnover involving proteases may trigger a vicious cycle where ECM degradation products and other proinflammatory mediators synergistically impair connective tissue functionality, ultimately leading to the patients' multisystemic presentations."

[covid-safer-hotties]

Back in early 2020, the news of the strange illness causing terrible pneumonias in China saddened me, but I believed I was safe in Canada. Within weeks, there was a reckoning: thousands were dying on my doorstep, too.

Directors of an independent living residence at the start of the pandemic asked me to become the residence’s COVID-19 advisor. They had no qualified medical staff, despite supporting elderly residents. Back in those early days, anyone with a medical qualification was commandeered to help in any way they could.

Confronted with the task of providing guidance to the nonmedical staff taking care of these residents, I decided to learn everything I could about the pandemic. At that time, about 1,000 papers were being published every month detailing research into every aspect of the coronavirus. Of course, I couldn’t read all of them, but I read as many as I could and built a breadth and depth of evidenced-based knowledge about SARS-CoV-2 and COVID-19. I wrote up the protocols and during my tenure as COVID-19 Advisor for this residence, we kept COVID out.

As a family physician seeing COVID-19 in my practice, I came to recognize that so many of my colleagues and patients had no idea how to keep themselves safe from the coronavirus, nor were they aware of its long-term risks. I saw the need to take action and effect change, which ultimately led me to becoming an advocate for Long COVID awareness.

I started the medical education company Kojala Medical, aiming to provide evidenced-based information about medical issues in a form patients could understand and reliably trust. I wanted a credible, trustworthy site to which I could refer my patients, colleagues, friends and family. We started with a focus on COVID-19 and have now expanded to Long COVID, with the site longcovidtheanswers.com.

I first learned about Long COVID in 2020 through publicity raised by the Body Politic COVID-19 support group, then became more alarmed as I read scientific articles about the disease.

Aside from the official death toll of over 7 million from COVID-19, Long COVID has emerged from the pandemic as the single biggest disaster to afflict humanity, yet very few people who are not sick with Long COVID are aware of it, want to know about it, believe in it, or even acknowledge that it’s happening. Sadly, many in the medical profession fall within that group of non and disbelievers.

This is bizarre, especially because of the impact of the disease. One recent review estimates more than 400 million global cases of Long COVID. I am furious that not enough is being done to alleviate this suffering. The injustice of yet another neglected and marginalized chronic illness that disproportionately affects women.

So, rather than sitting around waiting for ‘someone’ or ‘body’ to do something, I decided to act.

For me, medicine is fundamentally about aiding people to get as well as possible from any sickness they have — and even more importantly, preventing people from getting sick in the first place. In both of these regards, we are failing people with Long COVID dismally.

Long COVID is not the flu, it is a multisystem debilitating infection associated chronic condition. Developing Long COVID can be disabling and life-changing. Recovery remains low — and some manifestations like heart disease, dysautonomia, and myalgic encephalomyelitis (ME) may last a lifetime.

This is a terrifying situation to be in when, as a global community, we have chosen to act as though the pandemic is over and repeatedly expose ourselves to SARS-CoV-2, a grade 3 biohazard, with little to no protection.

As I read more and more research papers about Long COVID and looked at the inaction of global governments and my own profession, I feared that we were sleepwalking into a global mass disabling event unnecessarily, since we have many technologies available to prevent this.

Infection-associated chronic conditions do not have an established medical speciality, and are rarely taught in medical school. With the medical profession disengaged, people with Long COVID have been left to find answers for themselves.

My work aims to build on support groups, which have helped establish caring communities for people with Long COVID, but have also paved the way for us as scientists and medics to change the way we conduct research in a more patient-focused way. Nevertheless, they don’t entirely fulfill the need for evidence-based information about the disease in a readable format for nonmedical individuals.

I saw a huge need for a comprehensive website that would be of use to all people with Long COVID, their caregivers, the scientists researching the disease, and the multidisciplinary team of healthcare professionals that would be needed to rehabilitate them. Our organization believes that Long COVID The Answers meets those requirements.

There is also a pressing need to train medical professionals so that they will acknowledge Long COVID and feel confident about diagnosing and managing it. Inspired by an interview with Dr. Ric Arsenaeau, an expert in managing complex chronic diseases, my team and I created a podcast series: so that medical providers can receive continuing professional development/educational credits from watching this series.

The podcast series features a range of experts, including people with Long COVID, doctors, scientists, educators, and medical clinicians. Some of these experts also serve on our advisory board, overlooking and participating in the project.

Our site aims to raise awareness about the dangers of continuously exposing ourselves to a perilous virus with no thought of what it will cost us and our children.

This will mobilize the people of the world to demand that their leaders properly provide safe spaces for us all to prevent us from ever getting infected in the first place.

We need to mandate our governments to access all the mitigating technologies that we have in our roster, not only vaccination. The best way of managing Long COVID is to prevent people getting infected with SARS-CoV-2 in the first place!

We need national and international indoor clean air acts ��� to protect us from emerging pathogens.

For people with Long COVID, awareness will bring an educated and mobilized medical profession, governmental resources, financial and sociological support, and money for research — to facilitate treatments and, hopefully, a cure.

These are the main reasons why I jump out of bed in the morning with gusto, focus, and determination, and why I’ve poured all my money and my time into educating people about Long COVID.

Dr. Funmi Okunola is a British Family Physician who lives and works in Vancouver, Canada. She is the President and CEO of Kojala Medical, a digital medical education company behind COVID-19 The Answers and Long COVID The Answers.

[covidsafecosplay]

Article date: October 14, 2024

Summary: A study found people with long COVID symptoms were twice as likely to have lingering SARS-CoV-2 proteins in their blood, suggesting a persistent viral reservoir may drive some ongoing symptoms. Researchers analyzed blood from 706 individuals and found that 43% of those with multisystem long COVID symptoms had viral proteins present months post-infection, compared to 21% of those without symptoms. This discovery hints at potential benefits from antiviral treatments for those with persistent symptoms. However, the study also reveals that not all long COVID cases show persistent viral proteins, indicating other causes may contribute to this complex condition. Key Facts: 43% of individuals with multisystem long COVID symptoms had persistent viral proteins. 21% of those without long COVID symptoms tested positive for viral proteins. Findings suggest long COVID may have multiple causes, possibly including immune dysfunction.

Read the rest.

[phleb0tomist]

hey, it’s severe myalgic encephalomyelitis awareness day. i’m hopeful that things will change. i’m hopeful that people will learn about us.

infographic credit; see more here

please hold us in your heart. ME itself is not rare (it’s over 5x more common than MS), but it’s really rare to find someone who actually knows what severe ME is! ME has been misrepresented as a vague fatigue syndrome. it is not. it’s a complex multisystem illness with a predictable pattern of neuroimmune crashes that come 24-72 hrs after physical or sensory exertion. it can become progressive and fatal. millions of people with severe ME are isolated and neglected by doctors whose knowledge of ME is based on outdated research.

it seems as though long covid can sometimes progress into ME, so cases are increasing, but many of us have had it for decades already. it crushed my life when i was a kid. but i’m still hopeful.

[oversease220volts]

220V to 110V Transformer: Protect Your Electronics from Voltage Fluctuations

220V to 110V Transformer: Bridging the Voltage Gap

A 220V to 110V transformer is an essential device for operating North American or Japanese electronics in regions that utilize a 220V power supply, primarily found in Europe, Asia, and Africa. This electrical component effectively reduces the incoming 220V alternating current (AC) to a safer and compatible 110V AC, enabling the seamless operation of your devices without damage.

How it Works

The transformer operates on the principle of electromagnetic induction. It consists of two coils of wire wrapped around a core. When an alternating current flows through the primary coil (connected to the 220V supply), it generates a changing magnetic field. This magnetic field induces a voltage in the secondary coil, which is designed to output 110V.

Key Features and Considerations

Power Rating: This indicates the maximum wattage the transformer can handle. It's crucial to choose a transformer with a power rating higher than the combined wattage of the devices you plan to use.

Efficiency: A high-efficiency transformer minimizes energy loss during the conversion process, resulting in lower operating costs.

Safety Features: Look for transformers with built-in safety features like overcurrent protection, short circuit protection, and grounding to safeguard your devices and prevent electrical hazards.

Portability: If you frequently travel, consider a compact and lightweight transformer for easy carrying.

Plug Compatibility: Ensure the transformer is compatible with the power outlets in both your home country and the country you're visiting.

Applications

220V to 110V transformers find applications in various scenarios:

International Travel: Powering laptops, chargers, hair dryers, and other electronics while traveling abroad.

Expatriate Living: Using North American appliances in countries with 220V power supply.

Industrial and Commercial Use: Operating specific equipment or machinery that requires a 110V power source.

Hobbyists and DIY Enthusiasts: Powering tools and equipment for projects.

Safety Precautions

Always match the transformer's power rating with the total wattage of your connected devices.

Avoid overloading the transformer, as it can lead to overheating and damage.

Regularly inspect the transformer for any signs of wear or damage.

Follow the manufacturer's instructions for safe operation and maintenance.

[strugglinguist]

Hey! There's a new publication that's a big deal for me in particular! I have Hypermobile Ehlers-Danlos Syndrome, which is a multisystem condition that includes degenerative joint pain and a bunch of comorbid things like GI issues, heart issues like POTS or IST, etc. There is a second diagnosis called Hypermobile Spectrum Disorder, which is the same or different from hEDS depending on who you talk to. I was initially diagnosed with HSD instead of hEDS because the doctor didn't see that it was worth going "that far in a diagnosis" because there is no treatment. Therefore it's not worth the time or paperwork.

We haven't known a genetic marker for hEDS, and so it is often diagnosed by ruling out other systemic issues or other forms of EDS. This study says that hEDS and HSD are, in fact, variants of the same condition. AND they have identified a plasma marker in all hEDS and HSD patients but no healthy patients. This may mean that diagnosis could be as simple as a blood test! And there could also be some targeted treatments after all this time.

It took me 4 years to get sick, rapidly lose mobility, navigate medical bias in search of diagnoses, finally get some movement, and find a regimen of meds that help me live as well as I can. I also finally got into a specialized clinic that has been a lifesaver! That's a SHORT turn around time for many of us suffering from this genetic condition that primarily affects young women. We are often diagnosed with fictitious disorder or are accused of seeking medical attention and are not actually sick. I teared up when I heard the news about this study, and I can't stop being so pumped.

SCIENCE! Thanks to these researchers for doing the hard work and for making a community of sick people so happy for a moment!

[robot-roadtrip-rants]

hot take, guilliman would actually hate farming. like he'd have a great couple of months but eventually he would get bored and somehow talk all the neighboring farmers into forming an HOA and things would escalate into a multisystem empire from there. i don't think he can help himself