#I noticed that running is a lot easier with my rollator

[kirby-the-gorb]

[x-for-a-y]

re: my last post (again) here are my thoughts on what kind of reasonable lasting or short-term effects being goners would have on the doatk cast in a post-canon revival setting:

jake: i already headcanon him as being disabled, something akin to chronic fatigue or insomnia or POTS. so getting all the wires out... either his preexisting conditions make recovery harder or the lasting effects themselves are mainly just exacerbating his old issues. but regardless. rollator jake real guptill: the main thing he'd have to deal with is just being fucking Out Of It. getting used to having direct, normal control over his body again. like in the long-term he'll be alright it's just going to be a rough first few days being back in his body edmund: this would be easier to determine if he were less ambiguously human from the get-go so. fuck it. heightened allergen sensitivity acquired star warriors: kirby bounces back fine, he just needs a few days to relax some, and his friends like bandana dee notice he's more tired & give him some help & kindness. meta knight also probably could use some time off but he's not going to give himself any, & his crew certainly can't get him to, so eventually dedede's the one who buckles down and makes sure all his buddies are feeling well again demo: she's fine. i don't have anything else to say hamood: now on one hand that's a fucked up transformation. on the other hand that's a lot more to clearly get reset back to normal. & on the other hand he's, what, 5? i think he does end up with slightly out-of-whack proportions from all this- his wings in particular turn out on the side of too large -but it'd probably take another 8 years for stuff like corrective surgery or just physical therapy & shit to be considered at: unfortunately i never watched this show so while the long-term effects are pretty up in the air i don't think the short-term effects are any worse than what can be covered in, like, a couple episode's time. like maybe jake needs a good pep talk or two from people to feel comfortable in his body again & finn has to learn to not run away from his issues. something like that kebian + will: will goes home and vents a little about the experience to his partner(s? i don't watch all his stuff). kebin, meanwhile, only turns to a bit of introspection out of competitiveness for what ian does, and thinks to himself that maybe the wall is a little fucked up then goes no further; ian takes up yoga/other mindfulness-focused athletics in order to feel more at home in his body. korone: probably spends the first few days aching like a motherfucker, the sort of full-body soreness you only get from like climbing a mountain or a way-too-intense workout. once it stops hurting to breathe she probably goes back to gaming just to keep her mind off stuff & maybe picks up streaming again not long after but it's at least a couple weeks before she's at base physical performance again. morty: dude i don't know. i think it makes the most sense for him to fuck off & resume a lifestyle of peaceful hedonism & self-care. no way he's going to start being introspective about stuff until he's like. 40. i don't watch the show dreem himself i have nothing to say about but, going with the assumption that the puppet, me, & you are all versions of the same person: physically i can just say they deal with generally reduced stamina, mentally meanwhile. for their own health & safety they log the fuck off most places and try to enjoy the music they like without getting bogged down in the awkwardly online social kinds of things and then. i don't know, some kingdom hearts shit happens to it- it spends time offline & otherwise with friends trying to figure out its own emotions -and it regrows a heart/soul. mozart: he got hit with the hypermobility beam! oh shit! knee braces wrist braces a brace for the spine, you name it he uses it. bonus roommate: two dimensional in the adam ruins everything animated insert way. yeah it's fucked up. yeah he'll never fully be, like, a regular human.

[thatdiabolicalfeminist]

I suspect I have ME/CFS but I'm not clinically diagnosed, and idk how I would even get diagnosed, but do you have any tips for beds or comfort? Do you have any comfort tips for someone who doesn't want to be in bed but fatigues early/easily?

So it's actually pretty important to figure out whether what you're ill with is actually ME/CFS or an illness with similar symptoms. Things that are good for ME patients can make people with similar chronic illnesses worse, and vice versa, and if you have something different to ME (or in addition to it) it may require medical treatment, either to make you feel better or to stop or slow serious damage.

If you have access to a rheumatologist, they should be able to run tests that can rule out lupus and rheumatoid arthritis, and they may be able to evaluate you for fibromyalgia as well. They'd likely run panels to check your blood counts and rule out vitamin deficiencies that can cause things from fatigue to neurological damage.

These are good things to do even if you're 100% sure you have M.E., because some of this stuff is commonly comorbid. (Oh, and if you have M.E. you might wanna get checked out for the most common comorbidities, like POTS or fibro or hEDS or IBS, to see if you can limit the strain your body's experiencing. Treat any comorbid migraines, etc.)

Check out the international consensus criteria to verify for yourself if you have M.E. Your GP may be willing to diagnose you if that's something you need or want to pursue - my original diagnosis was from a family doctor. A rheumatologist is better though, because they'll understand autoimmune stuff and know what to rule out. My rheumatologist caught ME symptoms I hadn't even noticed before.

In general though, being an ME patient means doing a lot of your own research. Doctors frequently know very little and only some are willing to read up on it. Don't let anyone try to sell you on graded exercise therapy - research shows it makes ME patients sicker, but some doctors recommend it anyway since it's good for many illnesses with similar symptoms.

As for what you actually asked about -

I think what you need/want as far as comfortable beds etc is going to be very specific to your particular body.

My main advice is to pay attention and not let yourself dissociate from your body.

People with chronic pain and fatigue often ignore our own bodies most of the time to avoid feeling that pain and fatigue so much, and it means we can have a hard time knowing what helps or hurts.

Experiment and be deliberate about noticing what feels restful and what doesn't.

In bed, you might find that you want extra pillows to support different parts of your body - a knee pillow makes a huge difference for me, and a body pillow under the edge of my back when I lie on my side.

Outside of bed, sit often and sit comfortably. As much as possible. I have found that it's WAY more draining to let my legs dangle down than to pull them up and cross them, so I sit cross legged a lot. I also have a day bed in the dining area so I can lie down when I get tired without missing out on socializing, or without leaving the room when I'm cooking. I've found that a chair with a back is less tiring than a chair without one. I also have a wheeled stool in the kitchen so I can cook sitting down and move around the kitchen without walking. It’s a lifesaver.

If you're not already using a mobility aid, consider getting one. I tire way, way less quickly with my rollator than I do with my cane, and I tire way less quickly with the cane than I do walking unsupported. (Also, some rollators and even some canes have convenient sitting when you're out and about!)

A cheap hand-propelled wheelchair doesn't save me energy unless someone else can push, but fancier ones are much easier to move, and motorized ones are least draining of all.

But honestly a $10 cane can be a lifesaver all on its own, even if you only use it on big fatigue days or when no one else is around.

Pay attention to whether light or sound tires you out, and if it does, try to reduce light and sound in the area where you rest. Same with other sensory input that can be quietly fatiguing. You may want to limit this input even outside of rest, so you don't wear out as fast. Lastly, if you're pretty sure you do have M.E., read up on pacing. My rheumatologist gave me this very easy to understand, nicely packaged guide to pacing, complete with charts to help you keep track of your activity patterns and explanations for friends and family so they can understand enough to be supportive.

Pacing is the number one best thing you can do to protect your health if you have M.E. The less often you go into post exertional malaise, the more ability you will retain.

Sorry this is so long but I hope it helps!