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horsebitesfence · 5 years ago

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On Chronophobia and ADHD – RB with Hestia Peppe

RB: hey, i think i just self-diagnosed with ADHD, am i right in thinking that's something you know about? would welcome any recs you might have for reading/resources

RB: (it would explain so muchhhh)

RB: (also wondering about the rel between ADHD and trauma)

HP: Oooh yes! ADHD is definitely the errr paradigm I am working with right now if that's a way to think about it.

HP: I am actually amazed by how practically useful it has been to think in these terms.

But I will say in terms of research/resources stuff is thin on the ground and mixed up with a lot of neurocognitive research which i find quite dodgy in places, not to mention the (very american) pharmaceutical agenda.The best stuff i found has been self advocacy descriptive personal account stuff, and that has been very much a process of reading between the lines.

Basically, people with ADHD tend to at least appear quite ‘high functioning’ (not an ideal phrase because hierarchies) so go undetected often, and then its very very stigmatised, i would say, in that often symptoms or traits are judged in moral terms. The most important sort of secondary ideas i have found are about Rejection Sensitivity Dysphoria, and anxiety as a hugely comorbid secondary issue which is more likely to be treated than the ADHD itself.

The relationship to discipline and goal-setting is formative, as is chronophobia or a traumatised relation to time, and sometimes memory. The neurocognitive hypothesis is that it’s a problem in the dopamine cycle, so process is more fulfilling than completion of work; but i am super skeptical about neurotransmitter theories.

HP: As far as its relation to trauma goes, i would say it probably renders us more vulnerable to CPTSD. Lack of diagnosis or 'management' of ADHD leads to problematic coping mechanisms, leading possibly to abusive or addictive behaviours or on the other end vulnerability from a lack of or funky interpersonal boundaries. But whether anything is causal/symptomatic or comorbid seems always particularly hard to tell with ADHD, partly because of the non-typical relation to time.

HP: The neurocognitive hypothesis is that it’s a problem in the dopamine cycle, so [that] process is more fulfilling than completion of work, but i am super skeptical about neurotransmitter theories.

HP: On the plus side, [my] university and NHS [practitioners] have both been really encouraging about seeking help for it and getting a psychiatric diagnosis, which i am interested in, tho will no doubt have its downsides.

Most important, i think, is that mental health problems are treated in the context of ADHD as a constitution, rather than [in isolation], and i think that would go for trauma stuff too. Apparently ADHD folks have less success with SSRIs than others. I think a body focused/somatic approach [is] v. v. productive, for both ADHD and trauma.

Rejection Sensitivity Dysphoria [also] seems key. It’s the idea that the emotional impact of rejection is almost irrationally high in many ADHD folks, but [then again] this may be a traumatised relation from the stigma of ADHD, and literally being reprimanded more often than neurotypical folks, rather than being an essential difference. So if there's an interaction with trauma specific to ADHD it might be related to emotional response to external stimuli being higher.

RB: gosh, yea.

HP: Sorry so much.

RB: Wondering how receptive my gp would be to my requesting an adult diagnosis

HP: My GP was like ‘yes, will refer u immediately’, but that’s with a recommendation from an Ed Psych which uni paid for. *UPDATE: NHS maybe aren’t doing this as quickly as i thought, so it remains to be seen if they follow through; and university seems to just be sending me through as many hoops as possible, lots of assessments, minimal support systems.

RB: ok

RB: i saw this on Twitter – ‘ADHD Explained Using Comics’ by Dani Donovan,1

and, like, so much of it is me. ,2So much. idk what chronophobia is but def. have weird relationship with time. Very weird.

HP: I have sort of made up chronophobia but am sure its a thing.

RB: 'comorbidity'

RB: i feel lost in time.

HP: It seems to me the best stuff around is DIY stuff exactly like the comics u link to

RB: also – trouble starting anything; trouble finishing without hard external deadlines – so me.

RB: why i never write

HP: I think these are like the defining traits tbh

RB: even tho i want/need to be writing

RB: + procrastinating

HP: Comorbidity is the creepiest word

RB: as described ^^

HP: Same!

RB: do u medicate for it, may i ask? seems like mindfulness / meditation cld really be helpful

RB: i had an insane year on citalopram

HP: In America they see it as essential to medicate for it from a v early age but i am like v v v skeptical

RB: sertraline seemed better

HP: I took Prozac for 5 years; it didn’t do much except make me sleepy and a bit ok with shit life, but for ADHD it’s Ritalin or Vyvanse, so treatment with low constant dose of stimulants (*sometimes also something called dopamine blockers, but I don't know the details).

RB: ok; so, like coffee? just on my risky 2nd cup.

HP: I dont myself want this prescription.

HP: Am sure mindfulness etc v. good, but i do think body-focused methods best.

RB: ok

HP: I read this Twitter by Erynn Brook (sp?), and she advocates meds but also talks a lot about building in good coping mechanisms like how you organise yrsrlf in space/time in ways that work for u.

RB: yea; more interested in strategy

HP: So yeah strategy v. key.

RB: hey thanks so much, also in as much as i may unconsciously have posited u as gatekeeper. couldn’t have hoped for a more helpful reply.

HP: No worries! It’s good talking to other people about it cos the grand narrative of it is well shaky

HP: One thing i have worked out is that it’s all just emerging now so u can’t really gatekeep it, thank fuck. Glad to be helpful always. Check out Erynn Brook and remember being kind to yourself cos probably u havent been being if u just got to this point.

[time passes]

RB: hey, i'd really like to hear a bit more about your thinking on chronophobia;

it stayed with me as a strong motif. felt so 'full' when you said it it took me a while to realise i hadn't asked u to describe it.

HP: Yes I would love to see you and talk about all this stuff. I have thoughts tjoughts thought ... Google searching ‘Chronophobia’ brings up this book from MIT about art in the 60s:

https://mitpress.mit.edu/books/chronophobia. It appears to be also a term in use in psychology/self help; is in wiktionary, and appears to mean the obvious: fear of the passing of time. Associations with incarcerated people, particularly, suffering from it and also anyone suffering from heightened stress and anxiety. Searching chronophobia + ADHD, there are plenty of hits, so, again, this seems a well-made connection. I’m also thinking about ‘Chrononormativity’, an idea i was first introduced to by my friend Helen Stuhr Rommereim, and which I think she gets from Elizabeth Freeman (possibly via Lauren Berlant), in relation to ‘queer time’ or a failure to achieve normative milestones in the time allotted, such as maturity, childbearing, marriage. Her paper on this is included in the documentation of a conference about Chris Kraus we both attended in 2013, which is where we met as we were on the same panel. 3

HP: Context in my work right now – all of this to do with ideas about speculation, past/present/future, chance/fate, resistance to goal/plan/target, not knowing what to do.

I’m currently doing some early/cursory research into the mythology of the fates (Ancient Greek and other cultures) as spinners, and thread as line; trying to parse linearity and how it might or might not relate to neurodivergence/neurotypicality. I like lines as a way of following or tracing, and also drawing as well as writing –thinking a lot about the work of Renee Gladman, who is interested in architecture and fiction (prose architectures), and works with drawing and writing and the relation between the two – so, also automatic and asemic writing. I also think a lot about Ariadne’s red thread in the labyrinth, and now that i am trying to learn to spin, how all threads are made of many tiny ones. This trying to spin has grown out of an old durational performance work i have done for years – so, durational performance, as a form, is part of this, maybe, for me. I always like the durational form, as it is more about setting up boundaries in space and then letting time happen than [it is about] existing in linear time. Chronophobia as anxiety about mortality, and control, or volition/agency; or the trace of subjectivity in the world (cf maybe tim ingold). Also, there are two types of time in the classical sense: Kairos (the now) and Chronos (history), or something like that. None of this is fact-checked, I must say.Tarot cards relating to time are: wheel of fortune, temperance, death, the hanged man.

HP: Not sure i am doing this right, but thought some context to the earlier conversation might be useful for orientation, at the same time as thinking about my own self-diagnosis of ADHD and how it relates to knowledge and action and intention and access. Not sure if you saw this on my Twitter, but I thought it was a very good overview of neurodiversity discourse as it stands: https://www.janinebooth.com/content/two-and-half-cheers-neurodiversity

RB: Thanks. You’re doing this very right, I’d say. Like somewhere back in the transcript there is a ‘gosh, yea’ of mine which stands in as a marker for the point at which my mind was blown, began to make new neural connections, bathed in a sort of speechless radiant awe for what you said; and this feels the same only more so, galaxy brain in mandelbrot – only grounded in and by your efforts to verbalise it and connect it with your work and that of others. That this is what you’re working on for your doctorate – I am awed and excited to know it. I would really like to be present when you perform. I’m really impressed by your articulation. I feel such a relieved shock of recognition for chronophobia as you describe it, as something I had begun to acknowledge and articulate internally, but never outside myself, verbally or otherwise; nor had any inkling that it might be tangled up with ADHD ... nor that it is something other people experience or know about, nor that you are working on it in this profound way. I feel less alone and am honoured that you shared this here with us.

RB: Also – ehheh! I saw today that we both liked this tweet

RB: Another highlight, for me, of today’s feed –

RB: I’m always keen for writers’ writing on technique, scanning in case I find a key there to my own outward articulacy and/or the means to vanquish distraction/avoidance. Just remembered when the poet Lucy Mercer said to me that as a writer, I’m a weaver. I was happy with that then and I am happy with it here, in this context. 4

HP: Hey! This is all so kind of you to say I am sort of overwhelmed. I can't believe i have even been paid for this already, so shout out to that. I made up chronophobia because i wanted a way to describe my fear of time. I dont think it was really to talk to anyone else about it. I looked it up afterwards when I mentioned it to you I guess i have really let you have it with the inner monologue. I looked it up after I mentioned it to you. I figured that this had, you know, happened before, that other people would already be using this word. And they are. As a sort of intra-post-script, it is important to say that in terms of ADHD I came to this knowledge or understanding after like 12 years working as a private tutor, and without the students I worked with in that time I don’t see how I would have got to this articulation, so immense gratitude and respect to them for the thinking we did together about how thinking and learning work for different people.

HP: I was going to email you and ask for a deadline today but in the end i didn't write any emails because i was just spinning yarn on the wheel. It’s an amazing process learning to do it. Like a truly never-has-to-end embodied action. I think it could be the best way to replace some obsessive Twitter scrolling. My dad totally gets it. He says singing while spinning, that's the thing, he's heard. I learnt how to learn things from him mostly. I think maybe both my folks have ADHD. It’s supposed to be super heritable.

HP: My mum's a doctor. That's maybe where I get the cavalier attitude to discussing stuff like this you are supposed to be an expert to be allowed to think about. I am absolutely not an expert except perhaps of my own experience. Which this is, but but i push it, i know that. tho I don’t want the meds, I absolutely want to stress i am not like totally against meds. Chemicals are fine and good. Like coffee or you know whatever works. I am just in favour of people being given the best possible understanding of any treatment they undergo. I feel like i wanna unwind my own coping mechanisms like manually. Maybe that's a perk of late diagnosis – for me, anyway.

HP: I have to stop now. I am in a park and it’s dark now. I was sitting in the park cos i was an hour early to get a lift from my friend because i was so worried about being late. It’s perfect timing though. If you like sitting in parks watching orange street-lamps through blossom as if they are the sunset like some kinda shook moth. Which I do. And then type super fast into a phone cos you know someone asked.

HP: Thanks xx

RB: <3

RB: Thank you

1 – https://Twitter.com/danidonovan/status/1100414551932030984

3 (http://www.metamute.org/editorial/books/you-must-make-your-death-public-collection-texts-and-media-work-chris-kraus )

4 mercer | ˈməːsə | noun British, chiefly historical a dealer in textile fabrics, especially silks, velvets, and other fine materials. (Oxford English Dictionary Version 2.3.0 (203.16.12))

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