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meadowhilley · 7 years ago

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Part I: A Walk in the (Upside-Down) Park

I’ve always wanted people to like me. As far back as I can remember, though, I was never convinced they did.

Don’t worry, I’ll spare you the self-tortured speculation bit where I delve into the possible origins of my persistent insecurity. All I want to say now is that, however strong or self-assured or even arrogant I may have appeared to you over the years, what I most wanted, always, was for you to understand me, to accept me, to tell me that the person that I am is alright by you.

Then one day you did. It was three years ago. On October 30, 2014, actually, the eve of what could have been the scariest Halloween of my life. This invigorating shot in the arm came just hours before Chris and I would sit down with a team of medical experts who claimed to have discovered a relatively successful protocol for dealing with the zombie apocalypse. Little did any of us know at the time that you, my friends, had slipped me a powerful antidote the day before, one whose real effects would manifest and multiply over the months and years to come.

On that Halloween eve, in my shock at having been abruptly relegated to the ranks of the undead, I turned to Facebook. As one does. And there you were, my imagined community, ready to inoculate me against the looming horror. A motley group of friends that reflected better than anything else the complex composition of my character—character and friends I would need now more than ever. Looking to you, I realized, was the best way of looking at me. The converse, I understood, was equally true. Mirror, mirror, I began. A weird approach to fighting cancer, admittedly. An indication I’d spent too long in fairytale land as a kid. As wild-eyed Joyce Byers of Stranger Things has repeatedly insisted, “I know what this looks like!” By that, of course, she means BATSHIT CRAZY. Unless you happen to be the one who has found a way to talk with your missing son via Christmas lights. Or who feels you’ve discovered a “cure” for your disease in regularly confiding your deepest fears and greatest foibles in the world’s most public forum.

Self-reflection, I quickly discovered, can look an awful lot like an exercise in vanity, its mirror-image and near enemy.

Just as poison can serve as medicine.

Patriotism can resemble treason.

Standing up can involve taking a knee.

Abuse can masquerade as tough love.

And, if you should find yourself suddenly separated from everything you hold dear by the thin wall concealing an eerie dimension you never suspected could exist, then your frantic effort to break down that space-time barrier with an axe or whatever goddamn tool you happen to have on hand will likely appear to many concerned onlookers as the textbook sign of a nervous breakdown.

(Note my weapons of choice: a pen, a child’s fork, a pair of scissors, needle-nose pliers, lip gloss, and a few fake bullets.)

If any of my soul-searching exploits of the past three years ever struck you as exhibitionist—just the sort of self-absorbed, navel-gazing, attention-seeking, ego-driven kind of behavior that gives social media its bad name (well, that and the whole selling-out-to-the-Russians thing)—you are not alone. On many occasions, I myself came to question the methods I’d adopted and to ask what hidden motivations my sneaky subconscious might be cleverly concealing.

My closest friends and family shared these concerns, but whenever they voiced them I justified my Facebooking and blogging and memoir writing as so many means to achieving a noble and necessary end: healing.

Of course, even as I emphatically defended myself against charges of look-at-me narcissism, I was fully and uncomfortably aware of the fact that how we arrive at our destination is bound to change the very nature and outcome of the journey itself.

Social media can have a terrifically corrosive power. We know this. Evidence that these platforms can fracture and divide our community more than they unite us is everywhere apparent. Many social scientists have taken to the soapbox of late, screaming that our devices have made zombies of us all, preaching that the end of the world is nigh, and offering statistics to back their claims.

Showing up regularly in such a fraught virtual environment was a risky proposition, I knew, being all too aware of our susceptibility as humans to the lure of likes, the intoxicating effects of flattery, and the tendency to get greedy and hoard the sort of social capital such attention bestows. Hip to all this, I was a bit like Will Byers, understanding that, even if my initial intention was to use my insight to spy on the Shadow Monster in the hope of defeating it, I could easily end up a double agent in the employ of pure evil.

But whatever. It didn’t seem to matter how often I flipped the perspective switch during those internal debates about the advisability of “performative self-examination,” as I’d come to think of it. I always found myself coming back here, to this massive virtual theater, and awkwardly uttering “Ahem” to get your attention.

Driving my actions was something far more powerful than what the visible world was willing to reveal. Like Joyce, I felt what I felt. I knew what I knew. This was a salvage operation; at stake was not only the rebuilding of my body but the redemption of my soul. To hell with what it looked like. Just sell me the fucking Christmas lights, Donald. And yes, I mean on credit.

There’s something seriously wrong with me, I began by admitting to us all three years ago. And to the public confession that I was harboring a horrifying thing at my core, you responded with 162 likes, 146 comments, and 24 shares, which combined told me what I’d always secretly hoped to hear: that you liked me anyway, that some of you even loved me, and that you cared whether I lived or died.

It was a glorious and strange occasion, like attending my own funeral. Announcing my diagnosis helped us all dump our inhibitions in a screw it, let’s hug sort of way. Within the space of an instant I received this rare and beautiful gift: learning how you felt about me without having to die first.

Everyone should be so lucky. Seriously.

You and I wanted to have a moment, right then and there, while it was still possible. We felt compelled and instinctively driven to enact a basic human transaction at the brink, for our mutual benefit. What we had to figure out were the terms of our trade.

Conventional wisdom says cancer patients need casseroles. While my kids thank those of you who cooked to show you cared over the six-month period when I found even the taste of water overpowering and insufferable, what I most wanted for myself was something very different, and really hard to ask for: an audience.

Hard because, if asking for pretty much anything is awkward, it can be downright mortifying to walk up to the mic and announce, “May I have your attention, please? I have something very worthwhile and important to say.”

Especially for a 5’2” female who indulges in self-doubt the way that others devour a pint of ice cream (ok, I do that, too). Inviting you to read along as I muddled through some early responses to The Big Questions, I was always excruciatingly aware of the bigness of my ask. Time is precious, after all, and far greater voices than mine constantly compete for your attention. But there was so much I wanted to tell you. So much, in fact, that I was dying to tell you.

However lovely the intentions behind donated comfort food, forcing myself to enjoy it in the context of my cancer felt a lot like roasting marshmallows while my house was burning, to be perfectly honest. Every one of my instincts was fully engaged in the all-consuming survival effort, and there was a clear consensus among those deep and shrill interior voices that, if my existence was to mean anything at all to this world, I needed to express myself 1.) immediately and continuously, 2.) to the exclusion of many other worthy pursuits, 3.) within hearing range of an audience, 4.) without any hope of reward beyond simply being heard.

Here’s something you may have figured out about me by now: I am no good at playing the part of Helpless Cancer Victim. No more than I can pull off the role of Classroom Party Mom. “Don’t count on me for cupcakes,” I recently explained to my daughter’s first-grade teacher. “But hey, if you’re open to some curriculum enhancement, I’ll bake you up a big batch.”

Please understand: this is not me acting all smarty-pants, holier-than-thou, self-righteous, proud-to-a-fault, or ungrateful for your concrete aid when I was at my lowest. This is not me judging all of those compromised folks who legitimately need casseroles, or even those who are getting on just fine but would like to enjoy a steaming bowl of consolation without a side dish of complicated, thank you very much. Nor is this me looking down my nose at the phenomenal cupcake bakers of this world who brighten our kids’ days (I love you ladies for all you do—and yes, it’s almost exclusively ladies who do this very important work). It is simply a matter of me knowing me. Of me understanding that the best of what I have to offer is something far less comforting than casseroles or cupcakes, but just as important.

For the better part of my life, most folks haven’t known what to make of me. Like Carla Bruni, “je suis excessive” by nature. I was always too much for people. Too intense. Too far out there. Too eclectic. Too intimidating. Too earnest. Too touche-à-tout (all-over-the-place). Too outspoken. The proof? I just compared myself to Carla Bruni, France’s perfectly bilingual supermodel, actress, singer songwriter, and former First Lady. Who does that?

I’ll tell you who: the sort of person who has been looked at askance, questioned, criticized, and reined in all her life for expressing this brand of intolerable excess.

Someone should really take you down a peg or two, I’ve heard more than once.

You think you’re so great.

On whose authority do you make such claims?

Goody-goody!

Who do you think you are?

Can’t you just focus on one thing at a time?

Stop pointing your finger at me!

What makes you think you have something worthwhile to share?

How about you just shut up already and give someone else a chance to talk?

None of which felt good. If those voices had it right, I’d be forced to conclude there was something seriously wrong with me. The prospect of approaching life in a fundamentally different way would necessarily mean fighting the wild nature even my name told me I was meant to embody.

But still the voices persisted. Which is likely what led to my most valiant effort at shutting myself up: a 13-year relationship in which I was actively discouraged from expressing myself in almost every way imaginable.

Then the most amazing thing happened: I got cancer!

Again, an admittedly excessive thing to do. Not something I’d exactly gone and signed up for. But I’ll be damned if this illness wasn’t the perfect antidote to my lifelong alienation problem.

Suddenly, nobody begrudged me my excesses. No one wanted to be in my shoes. Nobody envied my lot in life. People pretty much stopped telling me to be more this and less that. My body was not a source of jealousy or desire. My manic antics didn’t grate on people’s nerves, or at least not the way they used to. That old, persistent claim that the deck had been stacked in my favor was abruptly dropped. And just like that, after a lifetime of curbing my natural élan so as not to make people uncomfortable, after decades carrying guilt over what I’d been given and wearing shame because my very being could often seem an unwelcome excess, I was finally free to just be me.

The jig was up. My cancer had outed me, revealed what I’d long been concealing. And the only way to spare folks discomfort was to hide the fact that I was sick… which of course could only make me sicker. Repressing, stifling, conforming to expectations—this cautious approach had clearly been unhealthy. Besides which, following all the rules had failed to keep me safe from mortal danger.

Call me crazy, what others saw as a tragedy I experienced as a liberation.

In the Upside-Down, I felt quite suddenly well-liked. Welcome. Just right. The sensation Alice must have felt when she finally stopped growing either too big or too small. Or the comfort Goldilocks found in tasting Baby Bear’s porridge, sitting in his chair, and sleeping in his bed.

The natural bravado and intensity I’d carried into many of my earlier endeavors and that had often struck observers as problematic were instantaneously recast in a heroic light. Whereas in the past I’d been accused of overreach and gaudy showmanship, now the very same gestures were perceived as acts of “incredible bravery” and “kick-ass determination.”

Thanks… I guess? I stammered, totally baffled, knowing that this “amazing courage” people spoke of was nothing more than me being me, only the context had shifted dramatically. The extreme nature of my circumstances finally seemed a good fit for my own radical character. My fearlessness finally had a proper outlet. This is going to sound weird, I know. Offensive, even. But I immediately knew that cancer was going to be easy compared to feeling unliked. That had been excruciating. This would be a walk in the park.

I’ve got this, I assured everyone.

But what I was really thinking was: Holy crap, I was made for this shit.

Ever hear the story about how Br’er Fox wanted to kill Br’er Rabbit in the worst possible way? “Hang me from the highest tree!” pleaded Br’er Rabbit. “Drown me in the deepest lake!” he implored. But please, PLEASE, p-l-e-a-s-e don’t throw me in that there briar patch!” Which is precisely what Br’er Fox proceeded to do, letting predatory spite blind him to the fact that his prey had royally played him.

Like the tricky rabbit, I was born and bred in this here briar patch, my friends. Born and bred.

(to be continued)

#strangerthings longwayhome cancer withyoujoyce zombieapocalypse

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