27 | She/Her | Cane User | Cerebral Palsy | POTS | Autistic | Therapist
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as a physically disabled person I'm used to people only noticing accessibility issues if they are temporarily disabled. so this disability pride month I'm proud to be partnering with this baseball bat...
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the cultural boogeyman of the faker is such a convenient lie for ableism. Waste your time fighting about who does and does not deserve help, and maybe you wont realizes that there was never any help to begin with. The is no epidemic of malingerers taking up resources they don't need, there is a lack of resources for disabled people
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Me waiting until the pain becomes excruciating before taking my pain meds. (Because I’m stubborn and an idiot)
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btw the grief you feel over becoming disabled comes in waves. sometimes its as small as a thought and other times it steals your breath and brings you to your knees and makes you feel like the whole fucking world is coming to an end.
but its not. you will catch your breath, and get off your knees, and continue folding laundry, or buying groceries, or whatever. and things will be different but they won't always be terrible.
let yourself feel it, but don't let it consume you. there is a future where you can be happy and disabled. its so bright, and you will live to see it.
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Me: “I love thunderstorms.”
Me after the weather changes:
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Why is that when someone else needs to sit down or take multiple breaks while doing household chores, I encourage them to make an accommodation for that...
But when *I'm* the one who needs to sit down or take a lot of breaks, I need to do it all at once or... ** add every insult you can imagine being hurled at a kid by their "parent" when unable to do the dishes for any reason all at once **
No, wait. I just gave one of two answers to my own question.
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IM SO MAD AT THE SHAME SOCIETY PLACES ON DYNAMIC DISABILITIES
yes, I was walking unaided yesterday; yes, I am using forearm crutches today
yes, I was using forearm crutches but left them behind to go to the bathroom yesterday; yes, I need to use them even to walk two steps today
yes, I went up the stairs unaided yesterday; yes, I needed my crutches to go up to the stairs today; yes, tomorrow I might need to scooch upstairs on my ass because I won't be able to walk them
yes, I walked unaided to the car to get my crutches out of the car in the morning; yes, I will use them to go on a walk in the afternoon
DISABILITY CAN BE DYNAMIC, MOST PEOPLE ARENT ON A FIXED POINT OF SUPPORT NEEDS AND MOBILITY, WE'LL HAVE GOOD AND BAD DAYS AND I DONT NEED TO EXPLAIN MYSELF TO YOU
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theres something about being disabled and needing to sit down constantly in public spaces that makes you notice how often benches are put up as tributes and memorials. and before i hit an age where i really started to need them as frequently i think i never fully understood the sentiment but now its become very endearing to me. a bit of relief and care for you in the name of someone who offered us the same… i dont think i had a point with this post but i hope everyone thats been memorialized as such knows how loved they were to become synonymous with respite even to total strangers
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Some people use different mobility aids on different days! This could be for accessibility, symptom or loads of other reasons!
ID in Alt
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it would be so funny if I fell (when no more spoons) and one of my coworkers or friends caught me before hitting the ground, and I sang "I- I just died in your arms tonight ! 🎵"
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Like "go exercise, you'll feel so much better once you move your body" doesn't apply to a lot of physically disabled people. And "just force yourself to socialize, you will have fun once you're there" doesn't apply to a lot of autistic people. And "your intuition will always tell you the truth" doesn't apply to a lot of psychotic people. And so on. And I'm not saying that this means that you can't or shouldn't promote these things, but they aren't universal solutions for everyone
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Actually sometimes when you're disabled, forcing the "healthy" standard solution isn't actually going to improve your quality of life! Like if you have severe sensory processing issues, then forcing yourself to eat food that makes you vomit is unlikely to improve your quality of life. And if you're touch averse to the point of pain, cuddling is very unlikely to improve your mood. And if being social always exhausts you completely, then forcing yourself to go out every weekend is unlikely to actually make your life any happier. So can we please stop acting like universal solutions are a real thing?!
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I am not a spoonie. I am a Stardew Valley character whose energy bar is perpetually at half, maybe lower. If only I had a little magic TV that could predict where my energy bar would fall today. Maybe then I could finally plan my days. I cannot keep fainting at work.
#potsawareness#pots#actually disabled#chronically ill#chronic illness#disability#stardew valley#spoonie#unfortately i do not have a handsome doctor to carry me home every time i collapse
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Collei will always be disabled to me🩷🌱🍄🟫✨ her chair is powered by dendro !
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shaking myself (very gently) . being in pain takes a lot of energy!!!!!! being in pain is exhausting!!!!!!! you are not lazy or weak because you need to spend so much time resting, this is your body coping with how much pain you’re in literally 24/7!!!!!!!!!
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I do so love it when a 7 hour shift saps me of any and all energy and makes me almost faint in front of my boss. It's bad enough that I have the OP faints under duress disorder, but do my eyes really have to cross like a cartoon character!?
#actually disabled#disability#spoonie#pots#chronically disabled#chronic pain#chronic fatigue#disabled#chronic illness#chronically ill
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